holiday party at Penn lung transplant

[Guest guest]

last night Jerry and I went to the holiday party at Penn's lung

transplant center. It was an uplifting evening. The people we met were

very happy that they had transplants. We met people who had single

lung, double lung, heart and double lung. One man had 2 double lung

transplants due to rejection issues. They can walk, talk, no more

oxygen, no more wheelchairs.

Right now i seem to be stable. But it's nice to know there is a light

at the end of the tunnel if the fibrosis gets worse.

pink joyce

[Guest guest]

Hi P.J. Did the people with the transplants wear masks? Did you ask how active they are??

Thanks, Peggy

Reply-To: Breathe-Support

Date: Tue, 12 Dec 2006 14:25:37 +0000

To: Breathe-Support

Subject: holiday party at Penn lung transplant

last night Jerry and I went to the holiday party at Penn's lung

transplant center. It was an uplifting evening. The people we met were

very happy that they had transplants. We met people who had single

lung, double lung, heart and double lung. One man had 2 double lung

transplants due to rejection issues. They can walk, talk, no more

oxygen, no more wheelchairs.

Right now i seem to be stable. But it's nice to know there is a light

at the end of the tunnel if the fibrosis gets worse.

pink joyce

[Guest guest]

How old are the folks who get transplants???? I'vr heard the cut off is 65 years. I'm very new to this support group. All the msgs Ive read are very informative. Thank you. Lynda Peggy wrote: Hi P.J. Did the people with the transplants wear masks? Did you ask how active they are??Thanks, Peggy From: Joyce <pinkrockybeach>Reply-To: Breathe-Support Date:

Tue, 12 Dec 2006 14:25:37 +0000To: Breathe-Support Subject: holiday party at Penn lung transplant last night Jerry and I went to the holiday party at Penn's lungtransplant center. It was an uplifting evening. The people we met werevery happy that they had transplants. We met people who had singlelung, double lung, heart and double lung. One man had 2 double lungtransplants due to rejection issues. They can walk, talk, no moreoxygen, no more wheelchairs.Right now i seem to be stable. But it's nice to know there is a lightat the end of the tunnel if the fibrosis gets worse.pink joyce signature

Need a quick answer? Get one in minutes from people who know. Ask your question on

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[Guest guest]

Peggy

The person with the most recent transplant had a mask on, but he was

not wearing it. The rest of them have had it long enough not to need

masks. They appear to be very active--walking without oxygen. Being

able to live a relatively normal life except for the transplant

issues. Exercise--the post transplant rehab seems to be very

vigorous. It's important to keep your body in good shape. One lady

who goes to rehab with me, exercises everyday, either at home or at

rehab.

pink joyce

>

> Hi P.J. Did the people with the transplants wear masks? Did you

ask how

> active they are??

> Thanks, Peggy

>

>

> Reply-To: Breathe-Support

> Date: Tue, 12 Dec 2006 14:25:37 +0000

> To: Breathe-Support

> Subject: holiday party at Penn lung transplant

>

>

>

> last night Jerry and I went to the holiday party at Penn's lung

> transplant center. It was an uplifting evening. The people we met

were

> very happy that they had transplants. We met people who had single

> lung, double lung, heart and double lung. One man had 2 double lung

> transplants due to rejection issues. They can walk, talk, no more

> oxygen, no more wheelchairs.

>

> Right now i seem to be stable. But it's nice to know there is a

light

> at the end of the tunnel if the fibrosis gets worse.

>

> pink joyce

>

[Guest guest]

The cut off is the end of age 65, so until you turn 66 you are

elegible. They were all ages--60's, 50's, 40's, 30's. The youngest

one that i met looks like she is in her 20's or 30's--cystic

fibrosis, bilateral. Mother of 2 year old twins.

pink joyce

> Hi P.J. Did the people with the transplants wear masks?

Did you ask how active they are??

> Thanks, Peggy

>

>

> Reply-To: Breathe-Support

> Date: Tue, 12 Dec 2006 14:25:37 +0000

> To: Breathe-Support

> Subject: holiday party at Penn lung transplant

>

>

>

> last night Jerry and I went to the holiday party at Penn's lung

> transplant center. It was an uplifting evening. The people we met

were

> very happy that they had transplants. We met people who had single

> lung, double lung, heart and double lung. One man had 2 double lung

> transplants due to rejection issues. They can walk, talk, no more

> oxygen, no more wheelchairs.

>

> Right now i seem to be stable. But it's nice to know there is a

light

> at the end of the tunnel if the fibrosis gets worse.

>

> pink joyce

>

>

>

>

>

>

>

>

> signature

>

>

> ---------------------------------

> Need a quick answer? Get one in minutes from people who know. Ask

your question on Yahoo! Answers.

>

[Guest guest]

well i am 30 and not able to have the transplant because the fricken

insurance companies make it almost impossible for

me.......GRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRR!

even with united health care who would allow me to have it done here

at home verses 5 hours away, only porblem there is that their

premiums are almost 4 times as much as what i am paying now, the

deductibles are alot more plus the 80-20 percentages. right now my

deductible for tranplant would be $500, it we switched to united

health care it would be $5000! and that does not include anything

except the transplant itself.

it's ridiculous and the more i think and talk about it, the more it

disgusts and pisses me off.

i do not think insurance companies should have the choice in whether

we are allowed to live or die.

EG 10-05

> Hi P.J. Did the people with the transplants wear masks?

Did you ask how active they are??

> Thanks, Peggy

>

>

> Reply-To: Breathe-Support

> Date: Tue, 12 Dec 2006 14:25:37 +0000

> To: Breathe-Support

> Subject: holiday party at Penn lung transplant

>

>

>

> last night Jerry and I went to the holiday party at Penn's lung

> transplant center. It was an uplifting evening. The people we met

were

> very happy that they had transplants. We met people who had single

> lung, double lung, heart and double lung. One man had 2 double lung

> transplants due to rejection issues. They can walk, talk, no more

> oxygen, no more wheelchairs.

>

> Right now i seem to be stable. But it's nice to know there is a

light

> at the end of the tunnel if the fibrosis gets worse.

>

> pink joyce

>

>

>

>

>

>

>

>

> signature

>

>

> ---------------------------------

> Need a quick answer? Get one in minutes from people who know. Ask

your question on Yahoo! Answers.

>

[Guest guest]

Lana Hall was in ger early 20's when diagnosed with IPF and only had

22 % lung capacity at the time of her diagnosis. she has since had a

double transplant and is back in college now. GEAUX Lana.

also another PF friend of mine, tammy barnes from dallas texas had

her double transplant on mother's day of this year at age 33 and is

fully recovered as one can be from it. she worked until the day she

was called to come to the hospital. she was able to take her O2 to

work with her.

EG 10-05

> > Hi P.J. Did the people with the transplants wear

masks?

> Did you ask how active they are??

> > Thanks, Peggy

> >

> > From: Joyce <pinkrockybeach@>

> > Reply-To: Breathe-Support

> > Date: Tue, 12 Dec 2006 14:25:37 +0000

> > To: Breathe-Support

> > Subject: holiday party at Penn lung transplant

> >

> >

> >

> > last night Jerry and I went to the holiday party at Penn's lung

> > transplant center. It was an uplifting evening. The people we

met

> were

> > very happy that they had transplants. We met people who had

single

> > lung, double lung, heart and double lung. One man had 2 double

lung

> > transplants due to rejection issues. They can walk, talk, no

more

> > oxygen, no more wheelchairs.

> >

> > Right now i seem to be stable. But it's nice to know there is a

> light

> > at the end of the tunnel if the fibrosis gets worse.

> >

> > pink joyce

> >

> >

> >

> >

> >

> >

> >

> >

> > signature

> >

> >

> > ---------------------------------

> > Need a quick answer? Get one in minutes from people who know. Ask

> your question on Yahoo! Answers.

> >

>