reply to Amy on SSD

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Hi Amy, Thanks for the warning. Because this is my first round and have not had a decision as of yet, but should get one in a little more than a month, everything that is going on in my life is so overwhelming that I don't know what will happen to me and my living situation if I don't get on it right away. According to all those involved, including The Bureau of Rehabilitation Services, I can't sustain a full time position, because of the MS; stamina, tremors, difficulty walking, balance, eye sight etc. etc...... In my state (CT) you can not apply for state financial assistance if you have applied for SSD or SSI, which is really unfair! Not that I want to be doing any of this at all. I would rather be working in a viable, contributing position and socializing activities like I used to, but.......the MS decided to take over instead and here I am.---------2004!!!! that is a long time! you must be very frustrated and quite tired

of having to prove your self over and over again for something you have no control over. I know I am, and I just started. I certainly don't mean any disrespect by this following statement, but it seems that if one is not in a wheel chair or drooling at the mouth, it's like being in a trial to prove your self innocent! I understand that there are people out there who would abuse the system, but for those of us who have a legitimate and diagnosed disease, it should be easier than what you have been going through and what may be in store for me as well. God Bless, good luck and peace to you! keep me updated on the progress. and let me know how to get the DVD when you get the chance. Thanks, CandaceAmy Hugon wrote: ---Candace, I applied 12/04. I've had two denials, and am to see a judge this summer. Last denial was becasue my arms & legs work normally in between the times they don't work. The problem is that my definition of *normal* has changed. Normal used to be walking 4 miles a day. Normal now is I'm okay as long as I don't do stairs, as long as I only walk within the house, as long as I sit most of the day, as long as I dont' stand more than 15 minutes. In that definition, yes, my legs work normally.My lawyer sent a *do you REALLY need to see her or is the stack of med records & doctor letter enough to resolve*. I gave my dr the

MSAA template letter - designed for dr to tweak to your details. I'm hopeful but trying not to count on it too much. My biggest symptom is my legs - I have zero balance. Other issues are more minor - memory, bowel. I suppose the *advantage* there is that everyone can see when you wobble when you walk.Mine is SSI, not SSDI, since I've been home with kids for the last 12 years so am not eligible for SSDI. Most of the issues are similar.I wish the best for you adn hope it comes through soon. There's a DVD this group has that you can borrow that discusses how to put together your application - I watched it after I'd done mine already.Amy Candace H.

Calver-Lori

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