Guest guest Posted July 22, 2009 Report Share Posted July 22, 2009 Anil, I have no experience with the revitapops but one thing that struck me in your post is that it sounds like you started all the supplements all at once. This is something you should never do while doing biomedical treatements. It's a shame that the DAN doctors don't tell this to newbies. Always try one thing at a time. Start at 1/8th the recommended dose and build it up to recommended dose or tolerable dose slowly over a period of a week or so. This process is usually called " start low and slow " by biomed parents. This way, you can figure out exactly which supplement is doing what, and what exact dose is tolerable for your particular child. It is very essential to closely observe the child and write down your observations daily in a log. Write what you gave, what dosage, what the reactions were. This way you have everything documented and you can go back to it later on. You even begin to see trends about what family of supplements your child is unable to tolerate, etc. The biomedical path is one of trial and error and therefore you need to be very methodical in your approach. Once you have stabilized your child on the first supplement, start the second one, then the next, and so on. This may sound like a time consuming process, and I know that in the beginning you just want to start everything as soon as possible, but in the long run, believe me this slow, methodical way is the best way to go. You'll save a lot of time and agony by taking it step by step and slowly. You'll find that some supplements will be well tolerated, whiel others are not. Some supplements that do wonders for one child may be a disaster for yours and vice versa. It all depends on the child's biochemistry. Every child is so different in what they can tolerate and how they detoxify that there are no guarantees about anything, unfortunately. It is also hard to find out if the adverse reactions you are seeing are a sort of " adjustment period " reaction, or die-off reaction, or intolerance/allergic reaction. In my opinion this is the hardest part about the whole biomed path. But overtime you learn to read your child's symptoms and learn what works for your child and what doesn't. Good luck! Sangeeta > > Hi Folks, > I am new to this group and I just wanted to introduce myself a bit. I have a son (my only child) who has been diagnosed with ASD in the month of June this year. He has been diagnosed as high functioning. He seems to have a good eye contact and responds when his name is called. But lacks in focus, behaviour appropriateness, sociability, conversational communications. > > We had our fitst appoitment with a DAN doctor on Thursday last week (7/16). But while we were waiting to meet the DAN doctor, I thought I would try the mb12 lollipop on my son. Immediately I started seeing some great improvements in him - increased focus, more appropriate behaviour and attendtiveness, increased speech. More obedient, etc. This was there for about 4 days. > > Then we started to see hyperactivity which I thought was fine since mb12 could cause hyperactivity. At this point we also started giving him for the first time all the vitamins and minerals (Brainchild Nutritionals Spectrum Support Ultra-Sensitive I & II). Probiotics, Enzym-Complete/ DPP-IVâ„¢ (kirkman) and Nordic Naturals - Arctic Cod Liver Oil (orange flavor) - 8 fl oz. > > We started to observe over the next 4 days- increased hyperactivity, stimming (jumping), mouthing, etc. I am fine with these side-effects (from Dr Neubranders' protocol) and understand that these would fade away after a few days/weeks. > > But we also started to see regression symptoms - lost in his own world, not responding to his name well, decreased focus, etc. We have not seen such negative behaviour even before we started him on GFCF 3 weeks ago. So this is a cause of concern that we saw a roller coaster ride where we saw some initial great gains (first 4 days) and then it all went away and in addition brought up some side effects as well as regressive symtoms. > > Our DAN doctor also prescribed mb12 nasal spray which I was wondering whether or not give it to him since we saw such regressive symptoms. Would anyone have an idea of what might have happened with my son ? And would mb12 therapy really for my son or not ? > > Thanks, > Anil. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2009 Report Share Posted July 22, 2009 I would go back. Stop all the supplements. Then add one at a time slowly like Sangeeta said. It has taken us FOREVER to get through the list of supplements our DAN told us to start along with diet changes too. We are not all the way through bc we have added even more than he said but we are getting there. > > > > Hi Folks, > > I am new to this group and I just wanted to introduce myself a bit. I have a son (my only child) who has been diagnosed with ASD in the month of June this year. He has been diagnosed as high functioning. He seems to have a good eye contact and responds when his name is called. But lacks in focus, behaviour appropriateness, sociability, conversational communications. > > > > We had our fitst appoitment with a DAN doctor on Thursday last week (7/16). But while we were waiting to meet the DAN doctor, I thought I would try the mb12 lollipop on my son. Immediately I started seeing some great improvements in him - increased focus, more appropriate behaviour and attendtiveness, increased speech. More obedient, etc. This was there for about 4 days. > > > > Then we started to see hyperactivity which I thought was fine since mb12 could cause hyperactivity. At this point we also started giving him for the first time all the vitamins and minerals (Brainchild Nutritionals Spectrum Support Ultra-Sensitive I & II). Probiotics, Enzym-Complete/ DPP-IVâ„¢ (kirkman) and Nordic Naturals - Arctic Cod Liver Oil (orange flavor) - 8 fl oz. > > > > We started to observe over the next 4 days- increased hyperactivity, stimming (jumping), mouthing, etc. I am fine with these side-effects (from Dr Neubranders' protocol) and understand that these would fade away after a few days/weeks. > > > > But we also started to see regression symptoms - lost in his own world, not responding to his name well, decreased focus, etc. We have not seen such negative behaviour even before we started him on GFCF 3 weeks ago. So this is a cause of concern that we saw a roller coaster ride where we saw some initial great gains (first 4 days) and then it all went away and in addition brought up some side effects as well as regressive symtoms. > > > > Our DAN doctor also prescribed mb12 nasal spray which I was wondering whether or not give it to him since we saw such regressive symptoms. Would anyone have an idea of what might have happened with my son ? And would mb12 therapy really for my son or not ? > > > > Thanks, > > Anil. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2009 Report Share Posted July 23, 2009 Anil- it’s hard to tell what causing what since you are starting several things. I can say that you might see some regression with the detoxing from going GFCF. Some kids really regress during this time when the body is clearing out the gluten, etc. You also started cod Liver oil and this will push things out too. I would back off and start these things one at a time for a week each and add one at a time slowly. I had talked to Dr. Neubrander a couple years ago when he told me that he starts parents on the B12 b/c he can usually get a big bang from it and then he can get the parents to buy-into the diet, etc. However, I think that the diet should be in place first and then you can fine tune after the child’s gut has healed. Zinc can help with hyperactivity and so will folinic acid. I assume your multi-s are providing cal/magnesium at a good ratio too, magnesium helps with hyperactivity. It’s like mixing a cocktail to find the right ratios for each child. I wish you luck – it sounds like you are really getting into the biomed quickly which will only benefit your son! Best wishes to you.    Heidi J From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Anil Kumar Sent: Wednesday, July 22, 2009 3:32 PM To: mb12 valtrex Subject: mb12 revitapop Hi Folks, I am new to this group and I just wanted to introduce myself a bit. I have a son (my only child) who has been diagnosed with ASD in the month of June this year. He has been diagnosed as high functioning. He seems to have a good eye contact and responds when his name is called. But lacks in focus, behaviour appropriateness, sociability, conversational communications. We had our fitst appoitment with a DAN doctor on Thursday last week (7/16). But while we were waiting to meet the DAN doctor, I thought I would try the mb12 lollipop on my son. Immediately I started seeing some great improvements in him - increased focus, more appropriate behaviour and attendtiveness, increased speech. More obedient, etc. This was there for about 4 days. Then we started to see hyperactivity which I thought was fine since mb12 could cause hyperactivity. At this point we also started giving him for the first time all the vitamins and minerals (Brainchild Nutritionals Spectrum Support Ultra-Sensitive I & II). Probiotics, Enzym-Complete/ DPP-IV™ (kirkman) and Nordic Naturals - Arctic Cod Liver Oil (orange flavor) - 8 fl oz. We started to observe over the next 4 days- increased hyperactivity, stimming (jumping), mouthing, etc. I am fine with these side-effects (from Dr Neubranders' protocol) and understand that these would fade away after a few days/weeks. But we also started to see regression symptoms - lost in his own world, not responding to his name well, decreased focus, etc. We have not seen such negative behaviour even before we started him on GFCF 3 weeks ago. So this is a cause of concern that we saw a roller coaster ride where we saw some initial great gains (first 4 days) and then it all went away and in addition brought up some side effects as well as regressive symtoms. Our DAN doctor also prescribed mb12 nasal spray which I was wondering whether or not give it to him since we saw such regressive symptoms. Would anyone have an idea of what might have happened with my son ? And would mb12 therapy really for my son or not ? Thanks, Anil. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2009 Report Share Posted July 23, 2009 We only did the spray and my kid did better than ever for less than a week and then we lost him for a few months. We went off of it after the first week since we had the regression.... It took awhile to get him back. Then we tried super nu thera,,, he started going nuts again. took him off the nu thera and he got better again. We had his vitamin levels checked later, and he was not low in Bs of any kind. So then I needed to find him a multi without B that did not contain corn, egg, gluten, casein, soy, yeast. I couldn't find one so we started giving him all his supplememts separate. Recently we found a multi vitamin powder from our kids that is b less. We are giving it a go. So far so good. I have leard lots of people tell stories about how mb12 makes their kid go nuts. If I ever tried it again... it would be a once a week thing, me thinks. Oh, and I'm sure you have been told by others,,, but low and slow on all the supps is best. When we start something new, I give about a quarter dose for the first week of only one supplement, then build up to the max. It usually takes 2 or 3 weeks to start a new supplement in this house. It is a great way to see what reactions are coming. Also, we do most of the new stuff during school since the teachers are the best barometers of how the kid is reacting. But we don't tell them what we are doig... we just ask them to report if they see anything extra good or bad throughout the year. .. > > Anil- it’s hard to tell what causing what since you are starting several things. I can say that you might see some regression with the detoxing from going GFCF. Some kids really regress during this time when the body is clearing out the gluten, etc. You also started cod Liver oil and this will push things out too. I would back off and start these things one at a time for a week each and add one at a time slowly. I had talked to Dr. Neubrander a couple years ago when he told me that he starts parents on the B12 b/c he can usually get a big bang from it and then he can get the parents to buy-into the diet, etc. However, I think that the diet should be in place first and then you can fine tune after the child’s gut has healed. > > > > Zinc can help with hyperactivity and so will folinic acid. I assume your multi-s are providing cal/magnesium at a good ratio too, magnesium helps with hyperactivity. It’s like mixing a cocktail to find the right ratios for each child. I wish you luck †" it sounds like you are really getting into the biomed quickly which will only benefit your son! Best wishes to you. Heidi J > > > > From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Anil Kumar > Sent: Wednesday, July 22, 2009 3:32 PM > To: mb12 valtrex > Subject: mb12 revitapop > > > > > > Hi Folks, > I am new to this group and I just wanted to introduce myself a bit. I have a son (my only child) who has been diagnosed with ASD in the month of June this year. He has been diagnosed as high functioning. He seems to have a good eye contact and responds when his name is called. But lacks in focus, behaviour appropriateness, sociability, conversational communications. > > > > We had our fitst appoitment with a DAN doctor on Thursday last week (7/16). But while we were waiting to meet the DAN doctor, I thought I would try the mb12 lollipop on my son. Immediately I started seeing some great improvements in him - increased focus, more appropriate behaviour and attendtiveness, increased speech. More obedient, etc. This was there for about 4 days. > > > > Then we started to see hyperactivity which I thought was fine since mb12 could cause hyperactivity. At this point we also started giving him for the first time all the vitamins and minerals (Brainchild Nutritionals Spectrum Support Ultra-Sensitive I & II). Probiotics, Enzym-Complete/ DPP-IV™ (kirkman) and Nordic Naturals - Arctic Cod Liver Oil (orange flavor) - 8 fl oz. > > > > We started to observe over the next 4 days- increased hyperactivity, stimming (jumping), mouthing, etc. I am fine with these side-effects (from Dr Neubranders' protocol) and understand that these would fade away after a few days/weeks. > > > > But we also started to see regression symptoms - lost in his own world, not responding to his name well, decreased focus, etc. We have not seen such negative behaviour even before we started him on GFCF 3 weeks ago. So this is a cause of concern that we saw a roller coaster ride where we saw some initial great gains (first 4 days) and then it all went away and in addition brought up some side effects as well as regressive symtoms. > > > > Our DAN doctor also prescribed mb12 nasal spray which I was wondering whether or not give it to him since we saw such regressive symptoms. Would anyone have an idea of what might have happened with my son ? And would mb12 therapy really for my son or not ? > > > > Thanks, > > Anil. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2009 Report Share Posted July 24, 2009 So did your son improve quite a bit from dietary interventions and then you did MB-12 and had this experience? Did you try MB-12 before you began a special diet or while you were experimenting? I am wondering because I used to give my son MB-12 injections for about 5 months and then it seemed they were not tolerated anymore, so I stopped. I restarted again and got the hyperactivity/aggression/screaming business again so no more now. I wonder if the diet somehow repairs this problem and they don't need as much anymore? What do you think? > > > > Anil- it’s hard to tell what causing what since you are starting several things. I can say that you might see some regression with the detoxing from going GFCF. Some kids really regress during this time when the body is clearing out the gluten, etc. You also started cod Liver oil and this will push things out too. I would back off and start these things one at a time for a week each and add one at a time slowly. I had talked to Dr. Neubrander a couple years ago when he told me that he starts parents on the B12 b/c he can usually get a big bang from it and then he can get the parents to buy-into the diet, etc. However, I think that the diet should be in place first and then you can fine tune after the child’s gut has healed. > > > > > > > > Zinc can help with hyperactivity and so will folinic acid. I assume your multi-s are providing cal/magnesium at a good ratio too, magnesium helps with hyperactivity. It’s like mixing a cocktail to find the right ratios for each child. I wish you luck †" it sounds like you are really getting into the biomed quickly which will only benefit your son! Best wishes to you. Heidi J > > > > > > > > From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Anil Kumar > > Sent: Wednesday, July 22, 2009 3:32 PM > > To: mb12 valtrex > > Subject: mb12 revitapop > > > > > > > > > > > > Hi Folks, > > I am new to this group and I just wanted to introduce myself a bit. I have a son (my only child) who has been diagnosed with ASD in the month of June this year. He has been diagnosed as high functioning. He seems to have a good eye contact and responds when his name is called. But lacks in focus, behaviour appropriateness, sociability, conversational communications. > > > > > > > > We had our fitst appoitment with a DAN doctor on Thursday last week (7/16). But while we were waiting to meet the DAN doctor, I thought I would try the mb12 lollipop on my son. Immediately I started seeing some great improvements in him - increased focus, more appropriate behaviour and attendtiveness, increased speech. More obedient, etc. This was there for about 4 days. > > > > > > > > Then we started to see hyperactivity which I thought was fine since mb12 could cause hyperactivity. At this point we also started giving him for the first time all the vitamins and minerals (Brainchild Nutritionals Spectrum Support Ultra-Sensitive I & II). Probiotics, Enzym-Complete/ DPP-IV™ (kirkman) and Nordic Naturals - Arctic Cod Liver Oil (orange flavor) - 8 fl oz. > > > > > > > > We started to observe over the next 4 days- increased hyperactivity, stimming (jumping), mouthing, etc. I am fine with these side-effects (from Dr Neubranders' protocol) and understand that these would fade away after a few days/weeks. > > > > > > > > But we also started to see regression symptoms - lost in his own world, not responding to his name well, decreased focus, etc. We have not seen such negative behaviour even before we started him on GFCF 3 weeks ago. So this is a cause of concern that we saw a roller coaster ride where we saw some initial great gains (first 4 days) and then it all went away and in addition brought up some side effects as well as regressive symtoms. > > > > > > > > Our DAN doctor also prescribed mb12 nasal spray which I was wondering whether or not give it to him since we saw such regressive symptoms. Would anyone have an idea of what might have happened with my son ? And would mb12 therapy really for my son or not ? > > > > > > > > Thanks, > > > > Anil. > > > Quote Link to comment Share on other sites More sharing options...
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