Guest guest Posted November 30, 2006 Report Share Posted November 30, 2006 ok ok, I'll tell my butt measurement first, its .............from one side to the other.. Vicky81856 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2007 Report Share Posted January 11, 2007 Thanks Joyce, I see a few things I am checking into. I would not have thought of the water. Or getting the names & #'s. . I do have a little bag in my BOA with batteries and small supplies. I have extra cannulas and hoses, connectors. We are going to be at the Church of God camp ground. I didn't sleep last night. I'm glad I have time to catch up..lol Now on to find warm clothes.. It's COLD there for me. Is there anything you do to keep the air from freezing your sinuses? I get such headaches from the cold air going up my nose. God Bless you and Carolyn for the help. Love and Prayers, Peggy 9/04 ipf Florida Peggy, It is me, Miss Know it All..butting in. You do know that you can call your 02 provider and they will set you up with a concentrator and all the tanks you need while you are at your destination. They bring tubing, connectors and whatever you need. I always have extra peices and parts with me in case they forget something....and it happens! Tell them if you want a water bottle, but take your own distilled water or buy some there. They don't supply that. You only need enough tanks to get you there and you can trade out while you are there. When you leave the hotel, or whrever, have them call the 02 company to pick up. I have been doing this a long time so maybe I am Miss Know it All! p.s. when you call to set this up, get the name and ph # of the company there and ask for the name of a contact person. You can call enroute to see if everything is ready. I always ask them to bring it the day before. Hugs and have a great time, Joyce PF 1997 Bronchiectasis 2004 Indiana Hugs and have a great time, Joyce PF 1997 Bronchiectasis 2004 Indiana > > Peggy, > > I'm excited for you!! It's great to have a change of scenery...we all need it once in a while. > > It sounds like you're thinking of everything. The information I found online is that the Chattanooga area is less than 1000 feet above sea level so altitude shouldn't be too much of an issue. There are towns close by though (Signal Mountain for instance) where the elevations are higher so be aware of that. Changes in elevation above sea level alter your bodies need for O2 drastically. Also the environment will be different (new kinds of trees, vegetation etc etc) and that can make your O2 needs change so just be aware of it. > > Of course, bring your oximeter. I would strongly suggest having your O2 company get Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2007 Report Share Posted January 21, 2007 Hi Beth. When I contacted the SS office they consider terminal within a two {2} year time frame. If you will live longer than 2 years that to them is not terminal. Go Fgure. A HP 6/06TN Beth wrote: , The whole Social Security thing can be very intimidating. Have you talked to someone at a Social Security office? Even with a life expectancy of 10 years, it's still considered terminal. I'm only 47 and the life expectancy for NSIP is 5-10 years so I'm not that different from you. I don't know whether or not you paid enough in to be able to collect a benefit. I worked from the time I was 14 except for a few years when my son was little so there was no doubt about me lol If you haven't already, go talk to someone at a ss office and see what the story is. God Bless you too! Beth Fibrotic NSIP 06/06 Don't try to explain it, just nod your head. Breathe in, breathe out. Move on. J. Buffett Re: Beth > Beth I am proud for u. I need some help with that myself. See I am 53 and they say I have not paid in enough. Because they say I can live 10 or more years with this dip I don't know if that would be considered terminal. Gosh I can't get use to talking about morbid things, but I have got too. If anyone has my siuation just jump on board and let me here from u. Right when I got sick last Feb. my husband lost his job so he is drawing unemployment. MAY GOD BLESS U MARY BETH> > Hi Beth,> > When I told my atty I was terminal, he did a hardship case on my SS, then SS > called him and asked me for proof that I was terminal. Of course my dr gave > me the letter and I was approved within a month, no court hearing or > anything. Then within a month of that, they expidated my pay, ( they went back 2 yrs > for me!!!)) so I got back pay and my regualr check came yesterday, all that > within 3 months!!!!!! ! Good luck..> > Vicky IPH/PF 4/06> > > > ••••••••••••• Original Message •••••••> Any questions? Get answers on any topic at Yahoo! Answers. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2007 Report Share Posted January 21, 2007 , I'm so surprised at all the varied responses many of us have had from Social Security. When I called my local office, I first asked just for early retirement information. She asked why and I told her about the diagnosis of NSIP. She suggested the disability claim and sent me loads of forms. I filled everythng out,many of the questions did not apply to me . I called her and she said to write a detailed letter about my condition, doctors, medications, etc. I did that. Obviously, my doctors filled out the forms. I never had an in person interview or a separate doctor appointment from Social Security.Everything was on the phone or by mail. In less than one month I had heard from burg, PA that I had been approved for both the early and disability claims. The money started within 6 weeks and was retroactive to 6months after my diagnosis!!!!! I never personally mentioned that NSIP was considered to be terminal but I can safely assume that the doctors did.Being 63 ( 61 when diagnosed) I'll just get the amount until 65 when I'll start getting half of my husband's. But for now...I'll take it. Z. fibriotic NSIP/05 linda arnold wrote: Hi Beth. When I contacted the SS office they consider terminal within a two {2} year time frame. If you will live longer than 2 years that to them is not terminal. Go Fgure. A HP 6/06TN Beth <mbmurtha> wrote: , The whole Social Security thing can be very intimidating. Have you talked to someone at a Social Security office? Even with a life expectancy of 10 years, it's still considered terminal. I'm only 47 and the life expectancy for NSIP is 5-10 years so I'm not that different from you. I don't know whether or not you paid enough in to be able to collect a benefit. I worked from the time I was 14 except for a few years when my son was little so there was no doubt about me lol If you haven't already, go talk to someone at a ss office and see what the story is. God Bless you too! Beth Fibrotic NSIP 06/06 Don't try to explain it, just nod your head. Breathe in, breathe out. Move on. J. Buffett ----- Original Message ---- From: tootiebess <tootiebess> To: Breathe-Support Sent: Sunday, January 21, 2007 2:07:43 PM Subject: Re: Beth > Beth I am proud for u. I need some help with that myself. See I am 53 and they say I have not paid in enough. Because they say I can live 10 or more years with this dip I don't know if that would be considered terminal. Gosh I can't get use to talking about morbid things, but I have got too. If anyone has my siuation just jump on board and let me here from u. Right when I got sick last Feb. my husband lost his job so he is drawing unemployment. MAY GOD BLESS U MARY BETH > > Hi Beth, > > When I told my atty I was terminal, he did a hardship case on my SS, then SS > called him and asked me for proof that I was terminal. Of course my dr gave > me the letter and I was approved within a month, no court hearing or > anything. Then within a month of that, they expidated my pay, ( they went back 2 yrs > for me!!!)) so I got back pay and my regualr check came yesterday, all that > within 3 months!!!!!! ! Good luck.. > > Vicky IPH/PF 4/06 > > > > ••••••••••••• Original Message ••• •••• > Any questions? Get answers on any topic at Yahoo! Answers. Try it now. No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.410 / Virus Database: 268.17.3/642 - Release Date: 1/20/2007 -- I'm gonna be iron like a lion in Zion. * Bob Marley Quote Link to comment Share on other sites More sharing options...
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