Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 Dear Carolyn, My heart goes out to you in this time of trouble. Put your faith in God and he will give you the stregenth and knowledge to get thru this time of trouble. May god envelope you and your family is His Golden Light of Love.You and your mother are in my prayers. HP 6/06 TN caroline wrote: My mom got the blow yesterday. She has to either get a tranplant within six months or she will die shortly thereafter. She goes to Duke, so in our opinion, she can't have any better physicians working with her. We always knew this day would come. We just had NO IDEA it would happen so quickly. She was diagnosed with IPF one year ago tomorrow. My family lives in Chicago, so that would mean them moving back to N. Carolina within a few months, taking the risks of the transplant itself into consideration, etc. I am literally on an emotional roller coaster today. I know I need to stay composed and centered, so I can fully give my mom all the strength and support that I can. I live 3 hours away from the hospital, so I have and will continue to be there. I just do not know how to come to terms with this or how to prepare myself and my children for the ultimate outcome one way or another. Well thanks for reading.Peace,Caroline Want to start your own business? Learn how on Yahoo! Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 Hi Caroline, I am 64 and trying to loose 15 more pounds so I can be listed for transplant. Has your Mom been through all the tests to be listed?? Can she not go to the U.M.? Or does she live in N. C.? My children all live two hours away and are stressed over this decision to do the transplant or not. They want it done like tomorrow but I am not sure what quality of life I would have after... I really hate this monster. I will hold you and your Mom up in prayer. God Bless y'all. Peggy 9/04 ipf Reply-To: Breathe-Support Date: Wed, 13 Dec 2006 17:35:49 +0000 To: Breathe-Support Subject: How to prepare??? My mom got the blow yesterday. She has to either get a tranplant within six months or she will die shortly thereafter. She goes to Duke, so in our opinion, she can't have any better physicians working with her. We always knew this day would come. We just had NO IDEA it would happen so quickly. She was diagnosed with IPF one year ago tomorrow. My family lives in Chicago, so that would mean them moving back to N. Carolina within a few months, taking the risks of the transplant itself into consideration, etc. I am literally on an emotional roller coaster today. I know I need to stay composed and centered, so I can fully give my mom all the strength and support that I can. I live 3 hours away from the hospital, so I have and will continue to be there. I just do not know how to come to terms with this or how to prepare myself and my children for the ultimate outcome one way or another. Well thanks for reading. Peace, Caroline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 My mother for several reason will only go to Duke. They saved my dad's life when he had cancer, and she got her degree from there. We have tried too get her to consider staying in Chicago, but her mind was made up along time ago. She has to be where she is most comfortable and I agree. They want her back here in 4 to 6 weeks to start the testing, etc. Honestly, I am really confused and concerned about what is the best thing for her. The transplant is no guarantee. It is both risky and can be equally fatal. I simply just don't know. I want my mom here, but at what cost? Good Luck on those last 15 pounds and best wishes on your future decisions. Hugs, Caroline > > Hi Caroline, I am 64 and trying to loose 15 more pounds so I can be listed > for transplant. > Has your Mom been through all the tests to be listed?? > Can she not go to the U.M.? Or does she live in N. C.? > My children all live two hours away and are stressed over this decision to > do the transplant or not. They want it done like tomorrow but I am not sure > what quality of life I would have after... I really hate this monster. > I will hold you and your Mom up in prayer. God Bless y'all. > > Peggy 9/04 ipf > > > Reply-To: Breathe-Support > Date: Wed, 13 Dec 2006 17:35:49 +0000 > To: Breathe-Support > Subject: How to prepare??? > > > My mom got the blow yesterday. She has to either get a tranplant > within six months or she will die shortly thereafter. She goes to > Duke, so in our opinion, she can't have any better physicians working > with her. We always knew this day would come. We just had NO IDEA it > would happen so quickly. She was diagnosed with IPF one year ago > tomorrow. My family lives in Chicago, so that would mean them moving > back to N. Carolina within a few months, taking the risks of the > transplant itself into consideration, etc. I am literally on an > emotional roller coaster today. I know I need to stay composed and > centered, so I can fully give my mom all the strength and support that > I can. I live 3 hours away from the hospital, so I have and will > continue to be there. I just do not know how to come to terms with > this or how to prepare myself and my children for the ultimate outcome > one way or another. Well thanks for reading. > > Peace, > Caroline > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 Caroline...we have prayer warriors on this board and your name is added to an ongoing prayer list. I'm on it and Nick is on it for today as well. This is a hard time for you and your family. What does your mother want? Love to you, Sher ipf 5-06 "Don't worry about tomorrow, God is already there" How to prepare??? My mom got the blow yesterday. She has to either get a tranplant within six months or she will die shortly thereafter. She goes to Duke, so in our opinion, she can't have any better physicians working with her. We always knew this day would come. We just had NO IDEA it would happen so quickly. She was diagnosed with IPF one year ago tomorrow. My family lives in Chicago, so that would mean them moving back to N. Carolina within a few months, taking the risks of the transplant itself into consideration, etc. I am literally on an emotional roller coaster today. I know I need to stay composed and centered, so I can fully give my mom all the strength and support that I can. I live 3 hours away from the hospital, so I have and will continue to be there. I just do not know how to come to terms with this or how to prepare myself and my children for the ultimate outcome one way or another. Well thanks for reading.Peace,Caroline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 Thank you so very much for the prayers. I sincerely appreciate it. I am not sure my mom has had a chance yet to digest all of this just yet. Her and my dad are on their way back to Chicago as I write this. Over the next few days and weeks, she will then be able to sort this out. As a family, we have all told her, this is her decision. We will support her no matter what she ultimately decides to do. I think she is leaning towards the transplant. Thanks again so much for adding us to the prayer list. Hugs, Caroline > > Caroline...we have prayer warriors on this board and your name is added to an ongoing prayer list. I'm on it and Nick is on it for today as well. > This is a hard time for you and your family. What does your mother want? > Love to you, Sher ipf 5-06 > " Don't worry about tomorrow, God is already there " > How to prepare??? > > > My mom got the blow yesterday. She has to either get a tranplant > within six months or she will die shortly thereafter. She goes to > Duke, so in our opinion, she can't have any better physicians working > with her. We always knew this day would come. We just had NO IDEA it > would happen so quickly. She was diagnosed with IPF one year ago > tomorrow. My family lives in Chicago, so that would mean them moving > back to N. Carolina within a few months, taking the risks of the > transplant itself into consideration, etc. I am literally on an > emotional roller coaster today. I know I need to stay composed and > centered, so I can fully give my mom all the strength and support that > I can. I live 3 hours away from the hospital, so I have and will > continue to be there. I just do not know how to come to terms with > this or how to prepare myself and my children for the ultimate outcome > one way or another. Well thanks for reading. > > Peace, > Caroline > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 I think this was supposed to go to Caroline, not me as my mother has been dead for many years now. Carolynlinda arnold wrote: Dear Carolyn, My heart goes out to you in this time of trouble. Put your faith in God and he will give you the stregenth and knowledge to get thru this time of trouble. May god envelope you and your family is His Golden Light of Love.You and your mother are in my prayers. HP 6/06 TN caroline wrote: My mom got the blow yesterday. She has to either get a tranplant within six months or she will die shortly thereafter. She goes to Duke, so in our opinion, she can't have any better physicians working with her. We always knew this day would come. We just had NO IDEA it would happen so quickly. She was diagnosed with IPF one year ago tomorrow. My family lives in Chicago, so that would mean them moving back to N. Carolina within a few months, taking the risks of the transplant itself into consideration, etc. I am literally on an emotional roller coaster today. I know I need to stay composed and centered, so I can fully give my mom all the strength and support that I can. I live 3 hours away from the hospital, so I have and will continue to be there. I just do not know how to come to terms with this or how to prepare myself and my children for the ultimate outcome one way or another. Well thanks for reading.Peace,Caroline Want to start your own business? Learn how on Yahoo! Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 Thanks so much for your kind words. I believe God is with all of us here. Hugs, Caroline > My mom got the blow yesterday. She has to either get a tranplant > within six months or she will die shortly thereafter. She goes to > Duke, so in our opinion, she can't have any better physicians working > with her. We always knew this day would come. We just had NO IDEA it > would happen so quickly. She was diagnosed with IPF one year ago > tomorrow. My family lives in Chicago, so that would mean them moving > back to N. Carolina within a few months, taking the risks of the > transplant itself into consideration, etc. I am literally on an > emotional roller coaster today. I know I need to stay composed and > centered, so I can fully give my mom all the strength and support that > I can. I live 3 hours away from the hospital, so I have and will > continue to be there. I just do not know how to come to terms with > this or how to prepare myself and my children for the ultimate outcome > one way or another. Well thanks for reading. > > Peace, > Caroline > > > > > > --------------------------------- > Want to start your own business? Learn how on Yahoo! Small Business. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 Caroline When you think about the alternative, what choice is there? On monday night i went to the holiday party at Penn's lung transplant department. I wrote about it a couple of days ago. It was an uplifting experience to meet so many people who have had lung transplants and are happy with them. Your mom will make the best decision for herself, you need to be there to support her in whatever decision she makes. pink joyce > > > > Caroline...we have prayer warriors on this board and your name is > added to an ongoing prayer list. I'm on it and Nick is on it for > today as well. > > This is a hard time for you and your family. What does your mother > want? > > Love to you, Sher ipf 5-06 > > " Don't worry about tomorrow, God is already there " > > How to prepare??? > > > > > > My mom got the blow yesterday. She has to either get a tranplant > > within six months or she will die shortly thereafter. She goes > to > > Duke, so in our opinion, she can't have any better physicians > working > > with her. We always knew this day would come. We just had NO > IDEA it > > would happen so quickly. She was diagnosed with IPF one year ago > > tomorrow. My family lives in Chicago, so that would mean them > moving > > back to N. Carolina within a few months, taking the risks of the > > transplant itself into consideration, etc. I am literally on an > > emotional roller coaster today. I know I need to stay composed > and > > centered, so I can fully give my mom all the strength and > support that > > I can. I live 3 hours away from the hospital, so I have and will > > continue to be there. I just do not know how to come to terms > with > > this or how to prepare myself and my children for the ultimate > outcome > > one way or another. Well thanks for reading. > > > > Peace, > > Caroline > > > Quote Link to comment Share on other sites More sharing options...
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