Re: Coloboma's and Climbing

[Guest guest]

I'm not sure what your friend should do exactly, but if there's a

Deaf/Blind program in the area, check it out, they could have some

great methods for dealing with this & many other issues.

The combination of vision & hearing impairments makes things

difficult for kids in so many ways that we can't understand unless

we're " in their shoes " ... I just found the Deaf/Blind program in my

state, to get help with my daughter's education... they can be a huge

help in many ways!

Good Luck!

Lori-Mom2CHARgEr,Cheyenne

> Hi All,

> I am usually a lurker but I was hoping that I could ask for some

ideas....

> I have a friend whose 6 year old son has coloboma's effecting his

lower visual field, he also hearing impaired which gives him some

> balance issues to go with it. (he doesn't have Charge but a trisomy)

>

> Recently he started standing on his bed to get closer to the

ceiling fan and she is frightened that he will fall off and hurt

> himself. As a result she is looking for ideas to keep him safe.

> She can't put pillows or cushions on the floor because he cannot

see them and will fall over them. Because of the vision and balance

> issues his upper body always goes first and so in accidents he

tends to fall face first. The same with taking the mattress off the

> box spring (the box spring makes the bed high enough that he can

see it)

>

> Sensory issues makes putting something like playground matting on

the floor out of the question. (he hates it to the point where he

> will stand and scream)

> We have thought of a Vail Bed but are not sure if he will like

being " enclosed " - and along those lines my friend doesn't want to

> restrict his independence or freedom by enclosing the bed or making

it off limits.

> Does anyone else have ideas??

>

> Cultural enrichment lies in learning to speak another language.

Ducks, for example, tell some of the funniest stories.

> Gurin

>

> Keep Looking for Rainbows!!!

> , Mum to (6, T-18 mosaic - we once thought he had CHARGE)

> Sydney, Australia

> http://members.optushome.com.au/karens

> http://www.trisomyonline.org