To Lynn - medical coverage

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Lynn, Have you tried contacting the Caring Voice Coalition? They are a group that provides comprehensive help for the needs of patients with serious, chronic illnesses. Phone is , web address is www.caringvoice.org. Good luck. Leanne uip 1/03armede wrote: Hi Joyce , thank you for the welcome back. I've missed you too. Thank you for not forgetting about me. The last 2 - 3 years have been the most difficult period I've been though for a long time. I can't remember ever having as distressing a time as this in my life since my late 20's. Since I got out into the world and found out that not only don't know everything, but am basically "clueless". LOL!!!! As I'm sure everybody can relate, being as sick as I have been over the last three years has devastated my life. I guess I should feel re-assured because at least now I finally have a name to attach to the wretched way I have been feeling. Yes, I'll keep using the CPAP machine. It was recently re-set after a recent sleep test.

Probably not as bad as some, but worse than others - stopped breathing 90 some times during the night and had o2 stats in the low 80's. Not using the CPAP is not an option for me. I love the way you describe your description of "discrete & ladylike burping". *smile* I start passing gas as fast as 20 minutes after putting on the machine. I know the forced air must be dehydrating me also. I saw some CPAP websites earlier. Message boards. I'll have to post the issue there to see if anyone else has had similar issues. I will also call Apria in the morning to find out how to turn it down a "ramp". I don't have access to a therapist at the moment. I'm in kind of a scary bind. I don't have medical coverage at the moment. I knew that was coming and have been rationing my o2 tanks. I still have the

concentrator, am just tethered to the house these days. I know it will work out and I'll get coverage soon. I had a dear friend for dinner whose Husband is a medical advocate. She was the one who first told me about the services that are available to me. She also has been sweet enough to recognise that I need help with things like dealing with forms. Something that is particularly devastating to me considering I used to be an intake person. This disease sure is humbling. LynnA > >> >> > Hello everyone. [] I hope all are having a wonderful Holiday> > Season. I'm still unpacking, getting acclimated to snowy Seattle after> > 6 years in California. Also dealing with a lot of the same family> > issues as it sounds like so many of you are.> >> > I

noticed that there are quite a few of us with sleep apnea. I just> had> > a terrible bought with constipation and brutal gas in my stomach and> > bowels. A lot of it is the pain meds I take for the costochondritis> and> > fibromyalgia, but I'm beginning to suspect my CPAP machine as also> being> > a part of the problem. In October I had another monitored sleep with> > the overnight o2 meter. It turned out my machine was way too low for> > me. My stats went down in to the low 80's a few times, an average of> > 90. I stopped breathing 98 times. So they adjusted my machine from a 7> > to a 9.> >> > Immediately I started noticing terrible gas in my stomach (and making> > its way out - loudly [#-o] ). The stomach cramps escalated and - so> > did my constipation!!! I usually have a breakfast smoothie with pears,> > a 1/2 a

banana, apples, prune and cherry juice, flax seed and aloe> vera.> > I eat a fair amount of living foods and take stool softeners. Last> > week, though, I was so impacted & dehydrated, I ended up in the ER. I> > have never been in so much pain in my life!!! [(] And in front of 4> > of the handsomest firemen in Seattle! [:">]> >> > I was given pain meds, xrayed and scanned and they found a lot of> > "back-up" in me. Sorry this is so long. That night I didnt use my CPAP> > because I couldnt take anymore stomach pain. The next night I did use> > it and immediately had a major gas expelling fest!!! I'm starting to> > wonder if the CPAP is forcing enough air into me to dry me and my> stool> > out enough to constipate me and cause the severe dehydration? Anyone> > else had any simular experiences or problems please??> >>

> Thank you> >> >> >> > LynnA> >>

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