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Re: Question for Suzanne: Bethanechol

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Hi Suzanne:Thanks a lot for the valuable info - I really appreciate it.

Quick question - did your son have any history of seizures, prior to taking bethanechol? Or did bethanechol result in him having seizures after he started taking it?

My daughter is normally very hyper and with bethanechol, we noticed that her hyperactivity reduced (which is a good thing from our perspective but can be considered scary, since you mentioned that your son got quieter and quieter). We would like to know if bethanechol worsened his existing condition or if it introduced the seizures for the first time.

Regards,

Shilpa.

Subject: Re: BethanecholTo: mb12 valtrex Date: Tuesday, May 12, 2009, 5:00 PM

Bethanechol can lower the seizure threshold. It was bad news for my son. He got quieter and quieter as the weeks passed, and eventually had noticable seizures (he was probably having them at night all along). We got him into the hospital and our then-DAN doctor told us about the seizure risk and we stopped it. He got slowly better, though we found out later on that he was still having them at night and started an anticonvulsant. That was when he really started to improve. If you're seeing language loss or other regression, I would stop immediately and seek the help of a neurologist. good luck to you. Suzanne >> Has anyone tried this medicine?> I was at my DAN's

office today. > He has my daughter on Bethanecol but she is foggy today after 2 doses of 1 ml each. I am in double minds about continuing it. > If anyone has tried this med., can you pls share your experiences?> Thank you so much.>

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It's hard to know if my son was having seizures before. His ABA school had said

they thought they'd seen some absence episodes but never caught them long enough

to tell. Most ASD kids have their seizures at night, and if what they're having

is just subcortical abnormalities or epileptiform abnormalities, they may never

show up as seizures. Or they may show up as mood or anger problems or something

else just odd and nobody suspects a seizure.

We believe my son was having them at night all along, and the bethanechol caused

them to be progressively more severe and to break through to daytime.

Suzanne

> >

> > Has anyone tried this medicine?

> > I was at my DAN's office  today.

> > He has my daughter on Bethanecol but she is foggy today after 2 doses of 1

ml each. I am in double minds about continuing it.

> > If anyone has tried this med., can you pls share your experiences?

> > Thank you so much.

> >

>

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