Re: shirley

[Guest guest]

Hi Shirley, thanks for the support. I can see why he is going to be your future ex or did you mean former ex? My ex fiance left me when I was diagnosed, he couldn't handle it! and if he stayed he would have said the same thing yours did. even some people in my family who don't quite grasp what the effects of MS are say I should just "push yourself, I get tired too!" I don't blame them, it's hard to understand if your not in the MS shoes (LOL). But it still hurts that they don't understand. In the past, I have talked about my experiences and have given them pamphlets and have even offered them to come to MS group with me, but to no avail. I just get looked at as if I'm making the whole thing up because they can't see 3/4s of what I go through. And if I drop things or knock over a liter of liquid (which seems to turn into eight gallons when it hits the floor) or lose my

balance and fall it's: "everybody drops things or falls occasionally!" Oh, and glasses that keep getting upgraded "your just getting old". So I don't talk about it anymore with them. as far as they are concerned "I am just fine, no problems" The only real support and understanding I get is from my Mother and Son. I think my daughter is in denial about the whole thing. I hope something breaks soon, because I would like to feel the relief too. It's hard enough not knowing what your MS will bring each day, but the added financial unpredictability is a daily stressor and sometimes unbearable! I am so happy for you that you received your benefits and are relieved of the burden of not knowing ( and getting rid of the "jerk", that in itself will progress you faster!). Thanks for your sharing and caring. I wish you all the best. God Bless and Peace, ahhh (that's a sigh of relief) Candace Shirley wrote: Candace, unfortunately you're right about how we almost have to prove that we drool to get SSDI or SSI. It's a shame. Those who have tried to scam the system have made it harder on us who deserve it. It took me 2 years to get approved for SSDI. I was approved in 5/99. Now my future ex is saying he didn't agree to me trying to get it. Jerk. I know how you want to be able to contribute to society by working. But you're not helping yourself. I felt the relief rush out of me when I was approved. Good luck with it all x0x0x0 Shirley Candace Calver-Lori <ccalverlori> wrote: Hi Amy, Thanks for the warning. Because this is my first round and have not had a decision as of yet, but should get one in a little more than a month, everything that is going on in my life is so overwhelming that I don't know what will happen to me and my living situation if I don't get on it right away. According to all those involved,

including The Bureau of Rehabilitation Services, I can't sustain a full time position, because of the MS; stamina, tremors, difficulty walking, balance, eye sight etc. etc...... In my state (CT) you can not apply for state financial assistance if you have applied for SSD or SSI, which is really unfair! Not that I want to be doing any of this at all. I would rather be working in a viable, contributing position and socializing activities like I used to, but.......the MS decided to take over instead and here I am.---------2004!!!! that is a long time! you must be very frustrated and quite tired of having to prove your self over and over again for something you have no control over. I know I am, and I just started. I certainly don't mean any disrespect by this following statement, but it seems that if one is not in a wheel chair or drooling at the mouth, it's like being in a trial to prove your self innocent! I understand that

there are people out there who would abuse the system, but for those of us who have a legitimate and diagnosed disease, it should be easier than what you have been going through and what may be in store for me as well. God Bless, good luck and peace to you! keep me updated on the progress. and let me know how to get the DVD when you get the chance. Thanks, CandaceAmy Hugon <amyhugon> wrote: ---Candace, I applied 12/04. I've had two denials, and am to see a judge this summer. Last denial was becasue my arms & legs work normally in between the times they don't work. The problem is that my definition of *normal* has changed. Normal used to be walking 4 miles a day. Normal now is I'm okay as long as I don't do stairs, as long as I only walk

within the house, as long as I sit most of the day, as long as I dont' stand more than 15 minutes. In that definition, yes, my legs work normally.My lawyer sent a *do you REALLY need to see her or is the stack of med records & doctor letter enough to resolve*. I gave my dr the MSAA template letter - designed for dr to tweak to your details. I'm hopeful but trying not to count on it too much. My biggest symptom is my legs - I have zero balance. Other issues are more minor - memory, bowel. I suppose the *advantage* there is that everyone can see when you wobble when you walk.Mine is SSI, not SSDI, since I've been home with kids for the last 12 years so am not eligible for SSDI. Most of the issues are similar.I wish the best for you adn hope it comes through soon. There's a DVD this group has that you can borrow that discusses how to put together your application - I watched it after I'd done mine

already.Amy Candace H. Calver-Lori Need Mail bonding?Go to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users. Candace H. Calver-Lori

Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Yahoo! Games.

[Guest guest]

Hi Candace.Thanks for sharing and letting us get to know you.Im sorry your

fiance left.I know what you mean.I have a really hard time with some of the

people in my life understanding.I come here for most of my support.Its

easier,knowing you all understand.When the specialist I seen at UCSF asked me if

I had anyone to talk to I said ya my family and my support group,he says no I

mean someone you can vent to about your disability,and I said again yes,my

support group,they help me through it.He says nope I think you should talk to a

psychologist.Im like what a jerk! I dont know what I would do without this safe

haven,I probly would be crazy.lol.We are part of your family now too,so please

know you can come to us for anything.We are very caring and understanding,and

you can vent.woo hoo.I love that.lol.Its hard to vent to everyone here its like

I have to make them understand,and thats way to tiring.big hugz,cassy

[ccalverlori@...] wrote:

Hi Shirley,

thanks for the support. I can see why he is going to be your future ex or did

you mean former ex? My ex fiance left me when I was diagnosed, he couldn't

handle it! and if he stayed he would have said the same thing yours did. even

some people in my family who don't quite grasp what the effects of MS are say I

should just " push yourself, I get tired too! " I don't blame them, it's hard to

understand if your not in the MS shoes (LOL). But it still hurts that they

don't understand. In the past, I have talked about my experiences and have given

them pamphlets and have even offered them to come to MS group with me, but to

no avail. I just get looked at as if I'm making the whole thing up because they

can't see 3/4s of what I go through. And if I drop things or knock over a liter

of liquid (which seems to turn into eight gallons when it hits the floor) or

lose my balance and fall it's: " everybody drops things or falls occasionally! "

Oh, and glasses that keep getting

upgraded " your just getting old " . So I don't talk about it anymore with them.

as far as they are concerned " I am just fine, no problems " The only real

support and understanding I get is from my Mother and Son. I think my daughter

is in denial about the whole thing. I hope something breaks soon, because I

would like to feel the relief too. It's hard enough not knowing what your MS

will bring each day, but the added financial unpredictability is a daily

stressor and sometimes unbearable! I am so happy for you that you received your

benefits and are relieved of the burden of not knowing ( and getting rid of the

" jerk " , that in itself will progress you faster!). Thanks for your sharing and

caring. I wish you all the best.

God Bless and Peace, ahhh (that's a sigh of relief)

Candace

Shirley wrote:

Candace, unfortunately you're right about how we almost have to

prove that we drool to get SSDI or SSI. It's a shame. Those who have tried to

scam the system have made it harder on us who deserve it. It took me 2 years to

get approved for SSDI. I was approved in 5/99. Now my future ex is saying he

didn't agree to me trying to get it. Jerk.

I know how you want to be able to contribute to society by working. But

you're not helping yourself. I felt the relief rush out of me when I was

approved.

Good luck with it all

x0x0x0

Shirley

Candace Calver-Lori wrote:

Hi Amy,

Thanks for the warning. Because this is my first round and have not had a

decision as of yet, but should get one in a little more than a month, everything

that is going on in my life is so overwhelming that I don't know what will

happen to me and my living situation if I don't get on it right away. According

to all those involved, including The Bureau of Rehabilitation Services, I can't

sustain a full time position, because of the MS; stamina, tremors, difficulty

walking, balance, eye sight etc. etc...... ....

[Guest guest]

I feel that I worked 20 years paying in that if something happened to me it would be there. That said, I 'm fixin' to apply for the 1st time and expect to be denied, I have not been paid by my disability insurance in 3 weeks because they are reviewing records to ensure this was not a preexisting dx. I have worked for the last year since my possible dx, dragging myself to work on a cane when I was running into walls and working till I had nothing let for my family when I got home. That is not living. So now I must prove that I cannot work as a nurse to get disability when I used to go in and check on so called "disabled" pts who would be great if they took their medicine the way they were suppose to. People have milked the system soo much it makes it difficult for the ones who need it. One question? Do you have to be off work for 6 months before you apply or can you go on and apply with the knowledge you will be off. ' in TexasCandace Calver-Lori wrote: Hi Shirley, thanks for the support. I can see why he is going to be your future ex or did you mean former ex? My ex fiance left me when I was diagnosed, he couldn't handle it! and if he stayed he would have said the same thing yours did. even some people in my family who don't quite grasp what the effects of MS are say I should just "push yourself, I get

tired too!" I don't blame them, it's hard to understand if your not in the MS shoes (LOL). But it still hurts that they don't understand. In the past, I have talked about my experiences and have given them pamphlets and have even offered them to come to MS group with me, but to no avail. I just get looked at as if I'm making the whole thing up because they can't see 3/4s of what I go through. And if I drop things or knock over a liter of liquid (which seems to turn into eight gallons when it hits the floor) or lose my balance and fall it's: "everybody drops things or falls occasionally!" Oh, and glasses that keep getting upgraded "your just getting old". So I don't talk about it anymore with them. as far as they are concerned "I am just fine, no problems" The only real support and understanding I get is from my Mother and Son. I think my daughter is in denial about the whole thing. I hope something breaks soon, because I

would like to feel the relief too. It's hard enough not knowing what your MS will bring each day, but the added financial unpredictability is a daily stressor and sometimes unbearable! I am so happy for you that you received your benefits and are relieved of the burden of not knowing ( and getting rid of the "jerk", that in itself will progress you faster!). Thanks for your sharing and caring. I wish you all the best. God Bless and Peace, ahhh (that's a sigh of relief) Candace Shirley <aishirlssbcglobal (DOT) net> wrote: Candace, unfortunately you're right about how we almost have to prove that we drool to get SSDI or SSI. It's a shame. Those who have

tried to scam the system have made it harder on us who deserve it. It took me 2 years to get approved for SSDI. I was approved in 5/99. Now my future ex is saying he didn't agree to me trying to get it. Jerk. I know how you want to be able to contribute to society by working. But you're not helping yourself. I felt the relief rush out of me when I was approved. Good luck with it all x0x0x0 Shirley Candace Calver-Lori <ccalverlori> wrote: Hi Amy, Thanks for the warning. Because this is my first round and have not had a decision as of

yet, but should get one in a little more than a month, everything that is going on in my life is so overwhelming that I don't know what will happen to me and my living situation if I don't get on it right away. According to all those involved, including The Bureau of Rehabilitation Services, I can't sustain a full time position, because of the MS; stamina, tremors, difficulty walking, balance, eye sight etc. etc...... In my state (CT) you can not apply for state financial assistance if you have applied for SSD or SSI, which is really unfair! Not that I want to be doing any of this at all. I would rather be working in a viable, contributing position and socializing activities like I used to, but.......the MS decided to take over instead and here I am.---------2004!!!! that is a long time! you must be very frustrated and quite tired of having to prove your self over and over again for something you have no control over. I know I am,

and I just started. I certainly don't mean any disrespect by this following statement, but it seems that if one is not in a wheel chair or drooling at the mouth, it's like being in a trial to prove your self innocent! I understand that there are people out there who would abuse the system, but for those of us who have a legitimate and diagnosed disease, it should be easier than what you have been going through and what may be in store for me as well. God Bless, good luck and peace to you! keep me updated on the progress. and let me know how to get the DVD when you get the chance. Thanks, CandaceAmy Hugon <amyhugon> wrote: ---Candace, I applied 12/04. I've had two denials, and am to see a judge this summer. Last denial was becasue my arms &

legs work normally in between the times they don't work. The problem is that my definition of *normal* has changed. Normal used to be walking 4 miles a day. Normal now is I'm okay as long as I don't do stairs, as long as I only walk within the house, as long as I sit most of the day, as long as I dont' stand more than 15 minutes. In that definition, yes, my legs work normally.My lawyer sent a *do you REALLY need to see her or is the stack of med records & doctor letter enough to resolve*. I gave my dr the MSAA template letter - designed for dr to tweak to your details. I'm hopeful but trying not to count on it too much. My biggest symptom is my legs - I have zero balance. Other issues are more minor - memory, bowel. I suppose the *advantage* there is that everyone can see when you wobble when you walk.Mine is SSI, not SSDI, since I've been home with kids for the last 12 years so am not eligible for

SSDI. Most of the issues are similar.I wish the best for you adn hope it comes through soon. There's a DVD this group has that you can borrow that discusses how to put together your application - I watched it after I'd done mine already.Amy Candace H. Calver-Lori Need Mail bonding?Go to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users. Candace H. Calver-Lori Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Yahoo! Games. '

in Texas Courage is not being fearless, courage is facing your fears and not running for cover!

[Guest guest]

Why don't you call Social Security or go to ssa.gov and get the true answers? They have always been very helpful. Did you get the video/dvd from Lynn to help with filling out your forms?Sharon Re: shirley

I feel that I worked 20 years paying in that if something happened to me it would be there. That said, I 'm fixin' to apply for the 1st time and expect to be denied, I have not been paid by my disability insurance in 3 weeks because they are reviewing records to ensure this was not a preexisting dx. I have worked for the last year since my possible dx, dragging myself to work on a cane when I was running into walls and working till I had nothing let for my family when I got home. That is not living. So now I must prove that I cannot work as a nurse to get disability when I used to go in and check on so called "disabled" pts who would be great if they took their medicine the way they were suppose to. People have milked the system soo much it makes it difficult for the ones who need it. One question? Do you have to be off work for 6 months before you apply or can you go on and apply with the knowledge you will be

off. ' in TexasCandace Calver-Lori <ccalverlori@ yahoo.com> wrote: Hi Shirley, thanks for the support. I can see why he is going to be your future ex or did you mean former ex? My ex fiance left me when I was diagnosed, he couldn't handle it! and if he stayed he would have said the same thing yours did. even some people in my family who don't quite grasp what the effects of MS are say I should just "push yourself, I get

tired too!" I don't blame them, it's hard to understand if your not in the MS shoes (LOL). But it still hurts that they don't understand. In the past, I have talked about my experiences and have given them pamphlets and have even offered them to come to MS group with me, but to no avail. I just get looked at as if I'm making the whole thing up because they can't see 3/4s of what I go through. And if I drop things or knock over a liter of liquid (which seems to turn into eight gallons when it hits the floor) or lose my balance and fall it's: "everybody drops things or falls occasionally! " Oh, and glasses that keep getting upgraded "your just getting old". So I don't talk about it anymore with them. as far as they are concerned "I am just fine, no problems" The only real support and understanding I get is from my Mother and Son. I think my daughter is in denial about the whole thing. I hope something breaks soon, because I

would like to feel the relief too. It's hard enough not knowing what your MS will bring each day, but the added financial unpredictability is a daily stressor and sometimes unbearable! I am so happy for you that you received your benefits and are relieved of the burden of not knowing ( and getting rid of the "jerk", that in itself will progress you faster!). Thanks for your sharing and caring. I wish you all the best. God Bless and Peace, ahhh (that's a sigh of relief) Candace Shirley <aishirlssbcglobal (DOT) net> wrote: Candace, unfortunately you're right about how we almost have to prove that we drool to get SSDI or SSI. It's a shame. Those who have

tried to scam the system have made it harder on us who deserve it. It took me 2 years to get approved for SSDI. I was approved in 5/99. Now my future ex is saying he didn't agree to me trying to get it. Jerk. I know how you want to be able to contribute to society by working. But you're not helping yourself. I felt the relief rush out of me when I was approved. Good luck with it all x0x0x0 Shirley Candace Calver-Lori <ccalverlori@ yahoo.com> wrote: Hi Amy, Thanks for the warning. Because this is my first round and have not had a decision as of

yet, but should get one in a little more than a month, everything that is going on in my life is so overwhelming that I don't know what will happen to me and my living situation if I don't get on it right away. According to all those involved, including The Bureau of Rehabilitation Services, I can't sustain a full time position, because of the MS; stamina, tremors, difficulty walking, balance, eye sight etc. etc...... In my state (CT) you can not apply for state financial assistance if you have applied for SSD or SSI, which is really unfair! Not that I want to be doing any of this at all. I would rather be working in a viable, contributing position and socializing activities like I used to, but.......the MS decided to take over instead and here I am.--------- 2004!!!! that is a long time! you must be very frustrated and quite tired of having to prove your self over and over again for something you have no control over. I know I am,

and I just started. I certainly don't mean any disrespect by this following statement, but it seems that if one is not in a wheel chair or drooling at the mouth, it's like being in a trial to prove your self innocent! I understand that there are people out there who would abuse the system, but for those of us who have a legitimate and diagnosed disease, it should be easier than what you have been going through and what may be in store for me as well. God Bless, good luck and peace to you! keep me updated on the progress. and let me know how to get the DVD when you get the chance. Thanks, CandaceAmy Hugon <amyhugonyahoo (DOT) com> wrote: ---Candace, I applied 12/04. I've had two denials, and am to see a judge this summer. Last denial was becasue my arms &

legs work normally in between the times they don't work. The problem is that my definition of *normal* has changed. Normal used to be walking 4 miles a day. Normal now is I'm okay as long as I don't do stairs, as long as I only walk within the house, as long as I sit most of the day, as long as I dont' stand more than 15 minutes. In that definition, yes, my legs work normally.My lawyer sent a *do you REALLY need to see her or is the stack of med records & doctor letter enough to resolve*. I gave my dr the MSAA template letter - designed for dr to tweak to your details. I'm hopeful but trying not to count on it too much. My biggest symptom is my legs - I have zero balance. Other issues are more minor - memory, bowel. I suppose the *advantage* there is that everyone can see when you wobble when you walk.Mine is SSI, not SSDI, since I've been home with kids for the last 12 years so am not eligible for

SSDI. Most of the issues are similar.I wish the best for you adn hope it comes through soon. There's a DVD this group has that you can borrow that discusses how to put together your application - I watched it after I'd done mine already.Amy Candace H. Calver-Lori Need Mail bonding?Go to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users. Candace H. Calver-Lori Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Yahoo! Games. '

in Texas Courage is not being fearless, courage is facing your fears and not running for cover!

No need to miss a message. Get email on-the-go with Yahoo! Mail for Mobile. Get started.