Guest guest Posted September 9, 2001 Report Share Posted September 9, 2001 Steffi, I also looked into getting some plastic surgery done with 's ears. I see the plastic surgeon yearly but he warned me that if would not keep his hands away from the bandages or pull on his ear, then the surgery would be a waste. So we continue to wait until we feel can handle leaving it alone. Good Luck!! Nicol mom to 7 CHARGE, Jordan 3, and baby due May 9 At 08:33 PM 9/8/01 -0400, you wrote: >It's that time again. More surgery! On the 20th, is going to have >some cosmetic work done on his ear, so we can finally get the second hearing >aid to stay in. He is also getting his 3rd set of ear tubs and dental work. >I love the fact that the doctors are so willing to work together to prevent >lots of separate surgeries. I feel a little funny about getting his ear >repaired. I am so used to that cute little ear sticking out. Has anyone >else had ear repairs done. Dr. Shah (from the conference) has been ' >ENT since the Houston conference. Anyway, he said it is a long healing time >of 4-6 weeks. How am I going to keep bandages on his ear? I know he will >rip them off! I worried already! > >Steffi > > >Membership of this email support groups does not constitute membership in >the CHARGE Syndrome Foundation. >For information about the CHARGE Syndrome >Foundation or to become a member (and get the newsletter) >please contact marion@... or visit >the CHARGE Syndrome Foundation web page >at http://www.chargesyndrome.org >6th International CHARGE Syndrome Conference, Cleveland, Ohio, >July 25-27, 2003. Information will be available at our website >www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2001 Report Share Posted September 9, 2001 steffi, thoughts will be going your way the 20th, we find out the 14th if and when timmy has surgery--nose, ears--tubes, adnoids. it never ends, when you think it will. how is riding going? timmy is in group lessons this session--so far, so good. irene is going to see timmy on tues at school--i love her!! maria ear surgery > It's that time again. More surgery! On the 20th, is going to have > some cosmetic work done on his ear, so we can finally get the second hearing > aid to stay in. He is also getting his 3rd set of ear tubs and dental work. > I love the fact that the doctors are so willing to work together to prevent > lots of separate surgeries. I feel a little funny about getting his ear > repaired. I am so used to that cute little ear sticking out. Has anyone > else had ear repairs done. Dr. Shah (from the conference) has been ' > ENT since the Houston conference. Anyway, he said it is a long healing time > of 4-6 weeks. How am I going to keep bandages on his ear? I know he will > rip them off! I worried already! > > Steffi > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2001 Report Share Posted September 9, 2001 HI - just thought I'd let you know that the ear surgery was one of the easiest we have had so far. had no pain. The big head dressing just gets itchy after a week. I think she had it on for maybe 10 days. removing the stitches was not great but he should have no problem at all. BTW- post op was alot of vomiting which they said is common when working on the ears. Also her aid is now in the ear since the surgery since the surgeon did NOT want any pressure from glasses or hearing aid to push the ear down. she had gone back to her glasses maybe 2 months after but he really pushed us to switch to an in the ear aid and she is fine with them. good luck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2001 Report Share Posted September 14, 2001 Okay guys, you have me a little nervous about those bandages. I am hoping for the best. will probably try to take the bandages off, but if I keep him distracted, I hope to " win the battle " . We really want to be able to put the second aid in, since that ear has the better hearing. I didn't know vomiting and the ears had so much in common. No wonder why is such a retcher! I'm glad it was an " easy surgery " . I don't think I can take anything major anymore Thanks! Steffi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2001 Report Share Posted September 30, 2001 glad to hear all went well--glad the brushing is working also. maria EAR SURGERY > What a success!!!!! Dr. Shah is the best ENT! ' ear looks amazing. > The otoplasty will now let us put a hearing aid in his right ear. > tried to pick at his ear the first day, but now has left it alone. Every > once in a while, he tries to play with the stitches, but nothing major. He > was almost discharged that same day (he also had ear tubes again & dental > work)! We stayed over night just to make sure because he was so sleepy we > were nervous. He woke up in the morning when Dr. Shah removed his bandages > and played as if nothing happened. He didn't nap the entire day even on the > Tylenol w/ codeine! I am so happy we did this. His ear looks almost > " normal " . The only thing is he has no ear lobe, but we were not adding any > ear or cartilage because he is only 2 1/2. So, now we are crossing our > fingers that we may get some responses with two hearing aids. Wish us luck! > > Happy as can be > Steffi > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
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