Guest guest Posted November 21, 2001 Report Share Posted November 21, 2001 Hi, Tina, I think you mean atenolol, which is a beta blocker. I am on another beta blocker, toprol. I also do not like the way it makes me feel - very tired, short of breath, etc. There are a few possibilities - the doc may reduce the dosage; I am on 25 mg and anything more than that sinks me like a stone. Or, you should find out if your hubby has adrenergic or vagal afib - quick, somewhat inaccurate, clue is stress makes adrenergic afib worse, vagal afib tends to happen when one is relaxed. For vagal afib, beta blockers make it worse. Also, some people, like my brothers adust to the beta blocker in time and it no longer hampers them. Both take 50 mg. Your hubby should have an echocardiogram and maybe a stress test to see if he has an underlying heart problem or if he has what is called lone afib - just the electrical system is not quite right. Has that been done? If he has a heart problem, dealing with that may help the afib. Besides the beta blocker, I am on digoxin, which tends to lower the heart rate without the lethargy effects of a beta blocker. I still take the beta blocker because that has another beneficial effect - reducing the number of extra beats, which can trigger afib. If he has no underlying heart problem, he may luck out and not have afib again. Some people go into afib when under great stress, and then when things are back to normal, the go along for years with no recurrence. There are a lot of useful writeups on the web site http://groups.yahoo.com/group/AFIBsupport in the files, bookmarks, etc. section. One of my favorite links is http://www.mikecowley.co.uk/markhammerschmidt/ArrhythmiaReview.htm which shows you exactly what is happening in the heart with different arrhythmias. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 Bush snr The democrat guy who stood against the President Clinton vice president in the primarys I am not sure but I think Eton has had Af and has been ablated and a pacemaker inserted. I am sure there are more British celebs with this but here its not the done thing to talk about. C It's a pity we could not get some one famous to join the group and give us some more exposure. Jack D, Ellen any ideas. C (no subject) Here's a bit of a game we can all play. Whether here in the colonies or across the pond in the UK. Can you name a celebrity, person of note or sports celebrity who has AF. Larry Bird- Former Boston Celtic basketball great and Ind. Pacers coach. ********************************************************************** This message may contain information which is confidential or privileged. If you are not the intended recipient, please advise the sender immediately by reply e-mail and delete this message and any attachments without retaining a copy. ********************************************************************** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 Bill Bradley, former Democratic presidential hopeful, USA. (no subject) Here's a bit of a game we can all play. Whether here in the colonies or across the pond in the UK. Can you name a celebrity, person of note or sports celebrity who has AF. Larry Bird- Former Boston Celtic basketball great and Ind. Pacers coach. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 In a message dated 12/31/01 4:53:36 PM Eastern Standard Time, msgander@... writes: > I've noticed a recent post of yours where you mention you use it not on a > daily basis but > as needed. Did you do this on your own or over time with your doctor's > knowledge? > > -- Glad to be of service. To answer your question, absolutely with my doctor's knowledge. Flecainide can be a very dangerous drug (it can kill you by causing your heart to stop, to be quite blunt) so don't try anything funny without asking your doctor! I had mine started in the hospital at much higher dose than what you are taking (300 mg), to test its effect on the QT interval. Subsequently I take 200 mg as needed -- not all the time. Also, if alcohol is causing you to go into AF I would eliminate it completely, at least until you have the AF under control. My very best wishes for the New Year! Victor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 Dear Victor, I want to thank you for sending me the message with the information regarding the new standard recommendations of the American College of Cardiology with regard to vagal afib. I was able, with this information, to express firmly my desire to try Flecainide. I started on 50 mg. a.m. and 50 p.m. resulting in very heavy afib the first night and into the next morning which stopped about 10 a.m. all day. A new very light episode occurred that night and stopped after awhile lying on my right side. I had an episode every day lasting for just a couple of hours or so, but they were so light and inconsequential I was hilarious with joy. I had a follow up app't. after two weeks for a stress test and everything checked out well and the doc recommended an extra 50 mg. tablet midday and sure enough, that stopped the episodes completely for 4-1/2 days with only a couple of slight breakthroughs which were my fault (Christmas Eve cheer) . I am so thrilled with the result of this drug and realize from all the posts that it may be temporary. My energy level is up and my outlook on life which has never been too bad, has improved tremendously. I appreciate so much the fact that you were so exasperated with the information I related in my e-mail; it gave me the strength to stand my ground and insist on Flecainide. I've noticed a recent post of yours where you mention you use it not on a daily basis but as needed. Did you do this on your own or over time with your doctor's knowledge? Thanks again, Re: Re: (no subject) > In a message dated 11/30/01 3:19:06 PM Eastern Standard Time, > msgander@... writes: > > > > . My EC doesn't > > really acknowledge there are vagally and adrenergically mediated forms of > > af--he just mentions a vagal > > component and I've given him the info on Philippe Coumel's study regarding > > the use of beta blockers > > with vagal af. > > > > > > This is outrageous. Even the (presumably fairly conservative) American > College of Cardiology now includes in their standard recommendations > (released Sept. 2001) different treatment of vagal Afib (see their website at > www.acc.org). They state, for example that beta blockers " may aggravate > vagally mediated AF " and that for vagal AF " propafenone is not recommended > because its (weak) intrinsic) beta-blocking activity may aggravate vagally > mediated paroxysmal AF. " > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2002 Report Share Posted January 1, 2002 What a great idea to name personalities with Afib. Maybe we can get some of them to bring the message forward in the same classy style that stars have brought their disorder to the fore. Thank you from a newbie! 91326@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2002 Report Share Posted January 1, 2002 Both he and Larry Bird are basketball stars... what is the implication? Great idea to name celebs... any others? Thank you from a newbie. 91326@... ------------------------------------------------------------------ << Bill Bradley, former Democratic presidential hopeful, USA. >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 Armede: Your post on how people act; mad that you are dying, in denial, etc. rung a bell with me. I lost my husband to cancer 25yrs ago. I remember how many people just could not face it. He and I chose that opportunity to minister the Love of God to people. He would be asked if he knew God was with him and he had the opportunity to tell people he KNEW. I know my IPF will give me many opportunities to speak of my faith in God... these people are scared for their own mortality (just like you said)... especially the doctors. That was a shock to me. This "monster" is not a test from God.. it will not be an easy journey, but with God's help, I hope I can be forgiving of the ignorant and uplifting to the weary and fearful. This web site is not only good therapy but a real blessing. I read all posts and live and love in the same IPF world as you. Gale in TX Quote Link to comment Share on other sites More sharing options...
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