Re: side effects of antidepressants

[Guest guest]

I had my court date on the 27th of Feb 2007 and the letter from the judge for a complete "in my favor" came around the 18th of March stamped on the 15th of March 2007. So as of the 15th of March I had my approval letter, It also said that as of Dec 2004 I was disabled and so my settlement check should go back to June 2005. My lawyer said it could take months before i see anything, I was going to call the SS office here, but my phone is off...... I am in a viscous circle here...I need the check to pay the phone bill, cant call to ask about the check cause I can't pay the phone bill........when will it end. LOLOLOL I have to laugh or cry, Sharon Marsden wrote: THAT made you "border line bi-polar"?????? That quack doesn't have any real knowledge about MS and cognitive dysfunction, does he? Geez. I cry lots of times when the cognitive parts of life smack me in the face. You know what I mean? But he helped you in the long run so that's okay. When was your approval and why haven't you gotten any money yet?Sharon Re: side effects of antidepressantsThanks so much for sharing this.I think doctors are way to eager to prescribe anti-depressants. In my experience anyway.Just 6 mons ago I was on 20 mg. Of paxil,then was switched to Zoloft at 50mg. And then up'd to 100 mg. I AM Not depressed,but they dont listen.I want to scream at them it is to much! In such a short period.The only time im depressed is when im to sick to get outa bed for 3 days,and

when its like that im not thinkn about oh my lifes awful,im thinking OMG please take my pain away,help me get enough strength to take a shower,please let me walk to take care of my kids.Its like they want to shove them down my throat,like they wana cover my problems with it.But they dont get the only thing wrong in my life is that im sick as hell and they cant tell me why.And I refuse to play the "lets see what happens"game, but then the docs always gota throw sumthn in to delay me getting a dx,so I guess they think an antidepressant along with all my other meds willmake mebetter.Who knows what they think.lol.[jeffAfrankel@ aol.com] wrote:Side effects of antidepressants "The main reason for people stopping a course of depression medication is the side effects of the antidepressant. "IT IS BECOMING clearer and clearer that antidepressants are far from benign drugs. And unfortunately, the combination of depression

and medication, as.... Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr. Don't be flakey. Get Yahoo! Mail for Mobile and always stay connected to friends. Don't get soaked. Take a quick peek at the forecast with theYahoo! Search weather shortcut. Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr.

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[Guest guest]

Chuck, you aren't on betaseron, Avonex, Copaxone, or Rebif, right? My recent monthly supply of betaseron was $1618.57. Kathi

Instead of getting cheaper, they are getting more expensive each year.

Subject: Re: side effects of antidepressants

Hi, I'm on Medicare part D and have AARP for my prescriptions, they never even questioned it so I only pay $5.00. They send me a statement each month and according to that the retail cost here is $105.00 plus my neoro gives me samples when they can.I get my prescriptions filled at Shopko and find that they have the best prices.Have you checked the Canadian Pharmacies, our son is on a very expensive medicine for his stomach, and we can get a generic form from Canada for a 3 month supply at less than what a 1 month supply costs here (generic form not available in U.S).BlessingsChuckcassandra workmn <payngabby72> wrote:

Hey Chuck.Im glad the Cymbalta is working for you.My neuro wrote me an rx awile back for cymbalta but my insurance company denied it(of course she didnt help me fight it) I looke into paying for it but the cheapest place wanted 255 dollars or sumthn like that,the most expensive was 305.Yikes! For one month.I was wondering did your insurance approve it right away,or did you have to wait for authorization? I Have the state insurance Medical here in California.It seems im always waiting or fighting for a test,doc,or med. I cannot be on my fiances insurance till we are married,so the state allows me to have there benefits.I think we will have to be married soon,because unfortunetly im not any closer to a dx,I think the insurance I have has alot more to do with this than id like to believe.Have an awesome day! hugz,cassy[c_t_j_dad] wrote:Trista, I'm on 30mg of Cymbalta, and they are working great for me. I tried the 60mg, but for me they are too strong. the 30s really take the edge off my leg pains and help alot with my attitude and mood swings. The only thing is that they are not cheap, but I'm on Mediare and have part D so that really helps.BlessingsChuckTrista <tabeloecharter (DOT) net> wrote: Paxil was a nightmare for me. I was on it for several years, and could not get off, because of withdrawal any time I even tapered down a little. Finally I was able to start Zoloft, and go off Paxil. I was having withdrawal sx's for almost 3 months after stopping the Paxil. I was a part of the lawsuit against the company that makes it. I have to say that I am scared every time I try a new drug, because of the hell that Paxil put me through for years. I am thankful for this group, because I never would have heard of LDN, or Cymbalta. I plan on researching Cymbalta and discussing it with my Dr. Sharon, I am so glad that you are doing so well on it. I remember how miserable it was for you with your leg pain at night. Hugs, Trista Re: side effects of antidepressantsIt seems that people have problems more with Paxil or Wellbutrin but some people tolerate it very well. I was on Zoloft and it worked great until it stopped working. Then I was on Prozac and that worked great. I was able to stop it in 2004 but when I started having such severe nocturnal spasms and leg pain in the winter of 2005/2006 I was thankful my doctor suggested Cymbalta. It's an anti-depressant and also works on diabetic neuropathy. I don't have diabetes but my nocturnal leg pain is similar. It was a miracle for me. Before I started on Cymbalta I was in the worst pain you could imagine and I would wake up crying night after night, dreaming about suicide. It was the worst period of my life. Cymbalta has taken the pain down to half of what it was and LDN has taken it down further. Each person is different and we need different therapies. I wish natural therapies would always work. I am, however, very thankful for the medications that let me lead the life I am able to lead. Klonopin helps me too. I take it in combination with Baclofen to keep the spasms and spasticity at a livable level.Sharon.Love and friendship builds a bridge that spans forever.c.f.s.---------------------------------Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Yahoo! Games.

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[Guest guest]

That is an incredible thing for you to say about your grandma. I would like to be thought of like that........when I pass. Kathi

I'm having surgery on Wed. for my gall stones.

Re: side effects of antidepressantsIt seems that people have problems more with Paxil or Wellbutrin but some people tolerate it very well. I was on Zoloft and it worked great until it stopped working. Then I was on Prozac and that worked great. I was able to stop it in 2004 but when....

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[Guest guest]

See, I do the same thing. If someone touches me it's ok but then if they start rubbing my arm or stay against me it gets more painful till it feels unbearable. in Texascassandra workmn wrote: The same happend to me.I seen the specialist at UCSF,and as I was telling him about how I couldnt touch some thing due to my skin being sensitive I started crying.I had just bought my daughter some new jammies,went to put them on her and shrieked in pain,scared the

hell out of us all.It felt like it touched a nerve or something,and sent a shocky cringy feeling up my hands to my arms.I had to have my fiance take it off of her.So I thought maybe it was a one time thing,tried it again and the same thing happened(they are now put up) so im tryn to explain to him and I start crying.so im depressed because of this.I have the same problem with blankets or my fiance holding my hand.It seems it sets off spasms but I dont understand why the skin is so sensitive.I guess they dont either.Well id hate to have that test,I suck at math.lol.I dred the day when they throw numbers at me.lol.[lastinline10] wrote:When I went to the SS phycoligist he wrote that I was border line bi-polar...........? Hummmm, well he apperently knows some thing more then the other docs. LOL The only reason he said it was cause....when I was trying to remember the numbers backwards test, i

couldn't remember all of them and it upset me, I started crying. I am very good at numbers, but had a stressfull couple of days before my appointment with him, and I had just changed my anti-depressant a few days before too. He is also one of these doc's that thinks there is a pill for everything and why should I be upset I only have MS, (sarcasticly said). But when I went in front of the judge for my hearing for my SS, with what that doc wrote made it very clear to the judge and expert-vocational person that I could not function in a job any more. So I was approved for my SS, so in the long run he helped me win my case. Even though I still haven't ghotten a check yet, I won.... YEAH. Still broke, cassandra workmn <payngabby72> wrote: Hi Candace,thanks for sharing.I am not yet dx'd,and every doc or specialist I see has a new recomendation,I have been to eager to follow thinking I will be

diagnosed anyday and will be able to go off.I had aggreed with my doc to stay on a low dose of something Till I knew what I was up against,but I think I will be in limboland for awile.I feel it is up to me to decide what to take.A few mons ago I seen a specialist at Ucsf and when I was telling him about my newest symptoms I started crying so he upd the zoloft to 100(i was taking 50,and he said that was a pediatric dose) then he said he recomends I meet with a psychologist to talk about my symptoms,and increasing disability.Of course later when I get the report he put on it im severly depressed.Im like ok,well thanks for letting me know.Lol.Im going to have my pcp start the referal to a psychologist,so I can talk to someone,without taking meds for it,and then maybethey can put in that report this lady is notdepressed,she is sick and needs help! Lol.[ccalverlori] wrote:I always refuse the

antidepressant offerings from Doctor's. I agree that they push them way too much! I used to be on them years ago and found them to be of no use nor did they make any difference physically for me. I find Holistic Therapies and an MS mental health professional far More effective....for me, everyone is different and should do what is most comfortable for them. However,I do take Klonipin for my spacticity, which is in the anti anxiety family, and this helps me physically very much, and with other symptoms too.Candacendra workmn <payngabby72> wrote: I have been on and off a few times to.I was jus thinkn that maybe them doin a switch a roo with mine and high increase,that maybe its causing more harm than good?Like with some of my symptoms worsening .I dont know it never occurs to them but I feel fine either way,you know like the same as if I wernt on anything.But I

have....' in Texas Courage is not being fearless, courage is facing your fears and not running for cover!

[Guest guest]

Kathi you will be in my prayers for your surgery.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlAnxiety Depression and Breast Cancerhttp://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancer/Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my ornaments at:www.geocities.com/chucky5741/bcornament.htmlThe Cancer Clubwww.cancerclub.com

Re: side effects of antidepressantsIt seems that people have problems more with Paxil or Wellbutrin but some people tolerate it very well. I was on Zoloft and it worked great until it stopped working. Then I was on Prozac and that worked great. I was able to stop it in 2004 but when....

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[Guest guest]

I know .The pain is unbearable.Have the docs ever gave you a clue why?When

I told the specialist at ucsf he didnt get it.I tell my fam its like taking

nails to a chalkboard,that cringe feeling you get,but in my skin.I wish I knew

why. hugz,cassy

[dixmstx@...] wrote:

See, I do the same thing. If someone touches me it's ok but then if they start

rubbing my arm or stay against me it gets more painful till it feels unbearable.

in Texas

cassandra workmn wrote:

The same happend to me.I seen the specialist at UCSF,and as I was

telling him about how I couldnt touch some thing due to my skin being sensitive

I started crying.I had just bought my daughter some new jammies,went to put them

on her and shrieked in pain,scared the hell out of us all.It felt like it

touched a nerve or something,and sent a shocky cringy feeling up my hands to my

arms.I had to have my fiance take it off of her.So I thought maybe it was a one

time thing,tried it again and the same thing happened(they are now put up) so im

tryn to explain to him and I start crying.so im depressed because of this.I have

the same problem with blankets or my fiance holding my hand.It seems it sets off

spasms but I dont understand why the skin is so sensitive.I guess they dont

either.Well id hate to have that test,I suck at math.lol.I dred the day when

they throw numbers at me.lol.

[lastinline10@...] wrote:

When I went to the SS phycoligist he wrote that I was border line

bi-polar...........? Hummmm, well he apperently knows some thing more then the

other docs. LOL The only reason he said it was cause....when I was trying to

remember the numbers backwards test, i couldn't remember all of them and it

upset me, I started crying. I am very good at numbers, but had a stressfull

couple of days before my appointment with him, and I had just changed my

anti-depressant a few days before too. He is also one of these doc's that thinks

there is a pill for everything and why should I be upset I only have MS,

(sarcasticly said). But when I went in front of the judge for my hearing for my

SS, with what that doc wrote made it very clear to the judge and

expert-vocational person that I could not function in a job any more. So I was

approved for my SS, so in the long run he helped me win my case. Even though I

still haven't ghotten a check yet, I won.... YEAH. Still broke,

cassandra workmn wrote: Hi Candace,thanks for sharing.I

am not yet dx'd,and every doc or specialist I see has a new recomendation,I have

been to eager to follow thinking I will be diagnosed anyday and will be able to

go off.I had aggreed with my doc to stay on a low dose of something Till I knew

what I was up against,but I think I will be in limboland for awile.I feel it is

up to me to decide what to take.A few mons ago I seen a specialist at Ucsf and

when I was telling him about my newest symptoms I started crying so he upd the

zoloft to 100(i was taking 50,and he said that was a pediatric dose) then he

said he recomends I meet with a psychologist to talk about my symptoms,and

increasing disability.Of course later when I get the report he put on it im

severly depressed.Im like ok,well thanks for letting me know.Lol.Im going to....

[Guest guest]

You would be thought of like that Kathi.You are an amazing person with so much

to offer.I didnt know you were having surgery.Please let us know how you

are.Will you be in the hospital long?big hugz,cassy

[kathib@...] wrote:

That is an incredible thing for you to say about your grandma. I would like to

be thought of like that........when I pass. Kathi

I'm having surgery on Wed. for my gall stones.

Re: side effects of antidepressants

That is beyond awful.im so sorry.I have a friend with MG,it is a scary

disease.That is a horrible thing.Your poor sis.I dont think I could ever get

over sumthn like that either,im so glad the Cymbalta is helping her.My sisters

name is Dee Dee,short for maygan dee,my grandmas name was Dee.She was named

after my granma who passed from cancer in her pancreas.She went to the doc for a

few yrs. Complaining of symptoms,they always told her nothing was wrong and said

maybe its this or that and always sent her home.By the time they caught it it

was to late and she was in the terminal stage of it.It was very sad,was one of

the reasons I kept pushing with the docs,cuz I knew sumthn was wrong with me and

I didnt want something similiar to happen.She was an amazing person,if they had

caught it in time she could have been treated and fought it harder.Not a day

goes by I dont think of her.hugz,cassy

[lastinline10@...] wrote:

Cassy, My sister s daughter Dee Dee was Dx'ed with Mystena Graveitis, I

think I am spelling it sort of right. She had a bad episode ended up throwing up

and since the Mystena G effects the muscle's, she could not throw up....(

stomach muscles would not push it up) and she drowned in her own vomit, she went

into a coma and was pronounced brain dead according to the Cat scan, she was on

every thing to keep her breathing and her heart beating for 3 days, then they

decided to " pull the plug " and Dee Dee went into something that made the

machines not breath for her any more, she was gone in a few seconds. It was a

long time ago for me, still miss her. I think my sister lives in that day

everyday. I can't imagine what I would do in her place.

She has been on Cymbalta for over a year and loves it, she says it it the only

think that helps her. this happened in the late 80's so she has been on lots of

anti-depressants. Not a problem about you asking.......

cassandra workmn wrote:

,that is so sad.Do you mind if I ask how your sis lost her daughter? If

so im sorry to be to nosy;) jus ignore it.I have heard awesome things about

Cymbalta.I almost got on it myself,only my insurance denied it and they wanted

almost 300 buks for one month.OUCH.could no way afford that.

[lastinline10@...] wrote:

I was on Cymbalta for a few months, I can't remember why the doc took me off

of it.....(memory problems). My sister is on it and she has been on just about

everything out there, she lost her daughter who was age 12, 18 years ago, she

has never been mentally stable since. (not that I blame her) But she says

Cymbalta is the best she....

[Guest guest]

i ask them why and basically they just shrug their shoulders and just look at me blankly. I think all of us are wired differently than the "norm" and so are our kids. Maybe we are just more noticable to certain senses, like we are on alert at all times 'cassandra workmn wrote: I know .The pain is unbearable.Have the docs ever gave you a clue why?When I told the specialist at ucsf he didnt get it.I tell my fam its like taking nails to a chalkboard,that

cringe feeling you get,but in my skin.I wish I knew why. hugz,cassy[dixmstx] wrote:See, I do the same thing. If someone touches me it's ok but then if they start rubbing my arm or stay against me it gets more painful till it feels unbearable. in Texascassandra workmn <payngabby72> wrote:The same happend to me.I seen the specialist at UCSF,and as I was telling him about how I couldnt touch some thing due to my skin being sensitive I started crying.I had just bought my daughter some new jammies,went to put them on her and shrieked in pain,scared the hell out of us all.It felt like it touched a nerve or something,and sent a shocky cringy feeling up my hands to my arms.I had to have my fiance take it off of her.So I thought maybe it was a one time thing,tried it again and the same thing happened(they are now put up) so

im tryn to explain to him and I start crying.so im depressed because of this.I have the same problem with blankets or my fiance holding my hand.It seems it sets off spasms but I dont understand why the skin is so sensitive.I guess they dont either.Well id hate to have that test,I suck at math.lol.I dred the day when they throw numbers at me.lol.[lastinline10] wrote:When I went to the SS phycoligist he wrote that I was border line bi-polar...........? Hummmm, well he apperently knows some thing more then the other docs. LOL The only reason he said it was cause....when I was trying to remember the numbers backwards test, i couldn't remember all of them and it upset me, I started crying. I am very good at numbers, but had a stressfull couple of days before my appointment with him, and I had just changed my anti-depressant a few days before too. He is also one of these doc's that thinks there is a

pill for everything and why should I be upset I only have MS, (sarcasticly said). But when I went in front of the judge for my hearing for my SS, with what that doc wrote made it very clear to the judge and expert-vocational person that I could not function in a job any more. So I was approved for my SS, so in the long run he helped me win my case. Even though I still haven't ghotten a check yet, I won.... YEAH. Still broke, cassandra workmn <payngabby72> wrote: Hi Candace,thanks for sharing.I am not yet dx'd,and every doc or specialist I see has a new recomendation,I have been to eager to follow thinking I will be diagnosed anyday and will be able to go off.I had aggreed with my doc to stay on a low dose of something Till I knew what I was up against,but I think I will be in limboland for awile.I feel it is up to me to decide what to take.A few mons ago I seen a specialist at Ucsf and when

I was telling him about my newest symptoms I started crying so he upd the zoloft to 100(i was taking 50,and he said that was a pediatric dose) then he said he recomends I meet with a psychologist to talk about my symptoms,and increasing disability.Of course later when I get the report he put on it im severly depressed.Im like ok,well thanks for letting me know.Lol.Im going to....'

in Texas Courage is not being fearless, courage is facing your fears and not running for cover!

[Guest guest]

Ya maybe.Its gotts have sumthn to do with the nerves or something too dont ya

think? Like maybe the signals are all messed up,beats me.They jus look at me

blankly too.lol.or like im crazy.lol.if only they knew what it was like.

big hugzzz,cassy

[dixmstx@...] wrote:

i ask them why and basically they just shrug their shoulders and just look at me

blankly. I think all of us are wired differently than the " norm " and so are our

kids. Maybe we are just more noticable to certain senses, like we are on alert

at all times

'

cassandra workmn wrote:

I know .The pain is unbearable.Have the docs ever gave you a clue

why?When I told the specialist at ucsf he didnt get it.I tell my fam its like

taking nails to a chalkboard,that cringe feeling you get,but in my skin.I wish I

knew why. hugz,cassy

[dixmstx@...] wrote:

See, I do the same thing. If someone touches me it's ok but then if they start

rubbing my arm or stay against me it gets more painful till it feels unbearable.

in Texas

cassandra workmn wrote:

The same happend to me.I seen the specialist at UCSF,and as I was telling him

about how I couldnt touch some thing due to my skin being sensitive I started

crying.I had just bought my daughter some new jammies,went to put them on her

and shrieked in pain,scared the hell out of us all.It felt like it touched a

nerve or something,and sent a shocky cringy feeling up my hands to my arms.I had

to have my fiance take it off of her.So I thought maybe it was a one time

thing,tried it again and the same thing happened(they are now put up) so im tryn

to explain to him and I start crying.so im depressed because of this.I have the

same problem with blankets or my fiance holding my hand.It seems it sets off

spasms but I dont understand why the skin is so sensitive.I guess they dont

either.Well id hate to have that test,I suck at math.lol.I dred the day when

they throw numbers at me.lol.

[lastinline10@...] wrote:

When I went to the SS phycoligist he wrote that I was border line

bi-polar...........? Hummmm, well he apperently knows some thing more then the

other docs. LOL The only reason he said it was cause....when I was trying to

remember the numbers backwards test, i couldn't remember all of them and it

upset me, I started crying. I am very good at numbers, but had a stressfull

couple of days before my appointment with him, and I had just changed my

anti-depressant a few days before too. He is also one of these doc's that thinks

there is a pill for everything and why should I be upset I only have MS,

(sarcasticly said). But when I went in front of the judge for my hearing for my

SS, with what that doc wrote made it very clear to the judge and

expert-vocational person that I could not function in a job any more. So I was

approved for my SS, so in the long run he helped me win my case. Even though I

still haven't ghotten a check yet, I won.... YEAH. Still broke,

cassandra workmn wrote: Hi Candace,thanks for sharing.I

am not yet dx'd,and every doc or specialist I see has a new recomendation,I have

been to eager to follow thinking I will be diagnosed anyday and will be able to

go off.I had aggreed with my doc to....

[Guest guest]

After a few strokes of soemoen rubbing my arm it almost feels like they could be rubbing me with sand paper...LOL cassandra workmn wrote: I know .The pain is unbearable.Have the docs ever gave you a clue why?When I told the specialist at ucsf he didnt get it.I tell my fam its like taking nails to a chalkboard,that cringe feeling you get,but in my skin.I wish I knew why. hugz,cassy[dixmstx]

wrote:See, I do the same thing. If someone touches me it's ok but then if they start rubbing my arm or stay against me it gets more painful till it feels unbearable. in Texascassandra workmn <payngabby72> wrote:The same happend to me.I seen the specialist at UCSF,and as I was telling him about how I couldnt touch some thing due to my skin being sensitive I started crying.I had just bought my daughter some new jammies,went to put them on her and shrieked in pain,scared the hell out of us all.It felt like it touched a nerve or something,and sent a shocky cringy feeling up my hands to my arms.I had to have my fiance take it off of her.So I thought maybe it was a one time thing,tried it again and the same thing happened(they are now put up) so im tryn to explain to him and I start crying.so im depressed because of this.I have the same problem with blankets or my fiance holding my

hand.It seems it sets off spasms but I dont understand why the skin is so sensitive.I guess they dont either.Well id hate to have that test,I suck at math.lol.I dred the day when they throw numbers at me.lol.[lastinline10] wrote:When I went to the SS phycoligist he wrote that I was border line bi-polar...........? Hummmm, well he apperently knows some thing more then the other docs. LOL The only reason he said it was cause....when I was trying to remember the numbers backwards test, i couldn't remember all of them and it upset me, I started crying. I am very good at numbers, but had a stressfull couple of days before my appointment with him, and I had just changed my anti-depressant a few days before too. He is also one of these doc's that thinks there is a pill for everything and why should I be upset I only have MS, (sarcasticly said). But when I went in front of the judge for my hearing for my

SS, with what that doc wrote made it very clear to the judge and expert-vocational person that I could not function in a job any more. So I was approved for my SS, so in the long run he helped me win my case. Even though I still haven't ghotten a check yet, I won.... YEAH. Still broke, cassandra workmn <payngabby72> wrote: Hi Candace,thanks for sharing.I am not yet dx'd,and every doc or specialist I see has a new recomendation,I have been to eager to follow thinking I will be diagnosed anyday and will be able to go off.I had aggreed with my doc to stay on a low dose of something Till I knew what I was up against,but I think I will be in limboland for awile.I feel it is up to me to decide what to take.A few mons ago I seen a specialist at Ucsf and when I was telling him about my newest symptoms I started crying so he upd the zoloft to 100(i was taking 50,and he said that was a pediatric

dose) then he said he recomends I meet with a psychologist to talk about my symptoms,and increasing disability.Of course later when I get the report he put on it im severly depressed.Im like ok,well thanks for letting me know.Lol.Im going to.... Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr.

Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Yahoo! Games.

[Guest guest]

LoL! I HAVE actually heard that you can rub your skin with rouch cloth or a type

of like sandpaper.One of the ladys in the Devics support group told me that.Her

son had real sensitive skin and the doc told her to use sumthn rough (not to

rough though) on his skin to help it.I dont know if its true but I have been

very curious havnt had a chance to look it up,but will soon and hopefully if its

true Ill try it out.My skin drives me nuts,it sucks when you cant touch or feel

things cuz it hurts. hugz,cassy

[lastinline10@...] wrote:

After a few strokes of soemoen rubbing my arm it almost feels like they could be

rubbing me with sand paper...LOL

cassandra workmn wrote: I know .The pain

is unbearable.Have the docs ever gave you a clue why?When I told the specialist

at ucsf he didnt get it.I tell my fam its like taking nails to a chalkboard,that

cringe feeling you get,but in my skin.I wish I knew why. hugz,cassy

[dixmstx@...] wrote:

See, I do the same thing. If someone touches me it's ok but then if they start

rubbing my arm or stay against me it gets more painful till it feels unbearable.

in Texas

cassandra workmn wrote:

The same happend to me.I seen the specialist at UCSF,and as I was telling him

about how I couldnt touch some thing due to my skin being sensitive I started

crying.I had just bought my daughter some new jammies,went to put them on her

and shrieked in pain,scared the hell out of us all.It felt like it touched a

nerve or something,and sent a shocky cringy feeling up my hands to my arms.I had

to have my fiance take it off of her.So I thought maybe it was a one time

thing,tried it again and the same thing happened(they are now put up) so im tryn

to explain to him and I start crying.so im depressed because of this.I have the

same problem with blankets or my fiance holding my hand.It seems it sets off

spasms but I dont understand why the skin is so sensitive.I guess they dont

either.Well id hate to have that test,I suck at math.lol.I dred the day when

they throw numbers at me.lol.

[lastinline10@...] wrote:

When I went to the SS phycoligist he wrote that I was border line

bi-polar...........? Hummmm, well he apperently knows some thing more then the

other docs. LOL The only reason he said it was cause....when I was trying to

remember the numbers backwards test, i couldn't remember all of them and it

upset me, I started crying. I am very good at numbers, but had a stressfull

couple of days before my appointment with him, and I had just changed my

anti-depressant a few days before too. He is also one of these doc's that thinks

there is a pill for everything and why should I be upset I only have MS,

(sarcasticly said). But when I went in front of the judge for my hearing for my

SS, with what that doc wrote made it very clear to the judge and

expert-vocational person that I could not function in a job any more. So I was

approved for my SS, so in the long run he helped me win my case. Even though I

still haven't ghotten a check yet, I won.... YEAH. Still broke,

cassandra workmn wrote: Hi Candace,thanks for sharing.I

am not yet dx'd,and every doc or specialist I see has a new recomendation,I have

been to eager to follow thinking I will be diagnosed anyday and will be able to

go off.I had aggreed with my doc to stay on a low dose of something Till I knew

what I was up against,but I think I will be in limboland for awile.I feel it is

up to me to decide....

[Guest guest]

A lot of autistic kids have very sensitive skin. If you touch it lightly they have a fit, but if you touch it firmly it's usually OK. Parents and teachers use what's called a "surgical brush" and brush the skin. I once saw a whole class of autistic kids quiet down in 5 minutes after all of them were brushed. I've used them on some of my kids, and also myself. It feels quite good. It seems to help calm the nerves down. You can also try a dry washcloth - one that's kind of rough, maybe dried on the line rather than the dryer. You have to use a firm touch - not a light one. It wears off after a little while - the kids who get it done have it done every couple of hours. Hope that helps.Suecassandra workmn wrote: LoL! I HAVE actually heard

that you can rub your skin with rouch cloth or a type of like sandpaper.One of the ladys in the Devics support group told me that.Her son had real sensitive skin and the doc told her to use sumthn rough (not to rough though) on his skin to help it.I dont know if its true but I have been very curious havnt had a chance to look it up,but will soon and hopefully if its true Ill try it out.My skin drives me nuts,it sucks when you cant touch or feel things cuz it hurts. hugz,cassy [lastinline10@...] wrote:After a few strokes of soemoen rubbing my arm it almost feels like they could be rubbing me with sand paper...LOL cassandra workmn wrote: I know .The pain is unbearable.Have the docs ever gave you a clue why?When I told the specialist at ucsf he didnt get it.I tell my fam its like taking nails to a chalkboard,that cringe feeling you get,but in my skin.I wish I knew why.

hugz,cassy[dixmstx@...] wrote:See, I do the same thing. If someone touches me it's ok but then if they start rubbing my arm or stay against me it gets more painful till it feels unbearable. in Texascassandra workmn wrote:The same happend to me.I seen the specialist at UCSF,and as I was telling him about how I couldnt touch some thing due to my skin being sensitive I started crying.I had just bought my daughter some new jammies,went to put them on her and shrieked in pain,scared the hell out of us all.It felt like it touched a nerve or something,and sent a shocky cringy feeling up my hands to my arms.I had to have my fiance take it off of her.So I thought maybe it was a one time thing,tried it again and the same thing happened(they are now put up) so im tryn to explain to him and I start crying.so im depressed because of this.I have the same problem with blankets or my fiance holding my hand.It seems it sets

off spasms but I dont understand why the skin is so sensitive.I guess they dont either.Well id hate to have that test,I suck at math.lol.I dred the day when they throw numbers at me.lol.[lastinline10@...] wrote:When I went to the SS phycoligist he wrote that I was border line bi-polar...........? Hummmm, well he apperently knows some thing more then the other docs. LOL The only reason he said it was cause....when I was trying to remember the numbers backwards test, i couldn't remember all of them and it upset me, I started crying. I am very good at numbers, but had a stressfull couple of days before my appointment with him, and I had just changed my anti-depressant a few days before too. He is also one of these doc's that thinks there is a pill for everything and why should I be upset I only have MS, (sarcasticly said). But when I went in front of the judge for my hearing for my SS, with what that doc wrote made it very clear to the judge and

expert-vocational person that I could not function in a job any more. So I was approved for my SS, so in the long run he helped me win my case. Even though I still haven't ghotten a check yet, I won.... YEAH. Still broke, cassandra workmn wrote: Hi Candace,thanks for sharing.I am not yet dx'd,and every doc or specialist I see has a new recomendation,I have been to eager to follow thinking I will be diagnosed anyday and will be able to go off.I had aggreed with my doc to stay on a low dose of something Till I knew what I was up against,but I think I will be in limboland for awile.I feel it is up to me to decide....

[Guest guest]

thanks for sharing sue.Is there a type of brush you recomend.I would like to

pass this info onto my SIL,her son is autistic,Id also like to try it on my

daughter,and myself.Thankyou soooooooooo much,hope today is a great day for you,

big hugz,cassy

[sueb409@...] wrote:

A lot of autistic kids have very sensitive skin. If you touch it lightly they

have a fit, but if you touch it firmly it's usually OK. Parents and teachers

use what's called a " surgical brush " and brush the skin. I once saw a whole

class of autistic kids quiet down in 5 minutes after all of them were brushed.

I've used them on some of my kids, and also myself. It feels quite good. It

seems to help calm the nerves down. You can also try a dry washcloth - one

that's kind of rough, maybe dried on the line rather than the dryer. You have

to use a firm touch - not a light one. It wears off after a little while - the

kids who get it done have it done every couple of hours.

Hope that helps.

Sue

cassandra workmn wrote: LoL! I HAVE actually heard that

you can rub your skin with rouch cloth or a type of like sandpaper.One of the

ladys in the Devics support group told me that.Her son had real sensitive skin

and the doc told her to use sumthn rough (not to rough though) on his skin to

help it.I dont know if its true but I have been very curious havnt had a chance

to look it up,but will soon and hopefully if its true Ill try it out.My skin

drives me nuts,it sucks when you cant touch or feel things cuz it hurts.

hugz,cassy

[lastinline10@...] wrote:

After a few strokes of soemoen rubbing my arm it almost feels like they could be

rubbing me with sand paper...LOL

cassandra workmn

wrote: I know .The pain is unbearable.Have the docs ever gave you

a clue why?When I told the specialist at ucsf he didnt get it.I tell my fam its

like taking nails to a chalkboard,that cringe feeling you get,but in my skin.I

wish I knew why. hugz,cassy

[dixmstx@...] wrote:

See, I do the same thing. If someone touches me it's ok but then if they start

rubbing my arm or stay against me it gets more painful till it feels unbearable.

in Texas

cassandra workmn

wrote:

The same happend to me.I seen the specialist at UCSF,and as I was telling him

about how I couldnt touch some thing due to my skin being sensitive I started

crying.I had just bought my daughter some new jammies,went to put them on her

and shrieked in pain,scared the hell out of us all.It felt like it touched a

nerve or something,and sent a shocky cringy feeling up my hands to my arms.I had

to have my fiance take it off of her.So I thought maybe it was a one time

thing,tried it again and the same thing happened(they are now put up) so im tryn

to explain to him and I start crying.so im depressed because of this.I have the

same problem with blankets or my fiance holding my hand.It seems it sets off

spasms but I dont understand why the skin is so sensitive.I guess they dont

either.Well id hate to have that test,I suck at math.lol.I dred the day when

they throw numbers at me.lol.

[lastinline10@...] wrote:

When I went to the SS phycoligist he wrote that I was border line

bi-polar...........? Hummmm, well he apperently knows....

[Guest guest]

What is that suppose to help? Maybe wake up the reseptors in the skin??? cassandra workmn wrote: LoL! I HAVE actually heard that you can rub your skin with rouch cloth or a type of like sandpaper.One of the ladys in the Devics support group told me that.Her son had real sensitive skin and the doc told her to use sumthn rough (not to rough though) on his skin to help it.I dont know if its true but I have been very curious havnt had a chance to look it up,but will soon and hopefully if its true Ill

try it out.My skin drives me nuts,it sucks when you cant touch or feel things cuz it hurts. hugz,cassy[lastinline10] wrote:After a few strokes of soemoen rubbing my arm it almost feels like they could be rubbing me with sand paper...LOL cassandra workmn <payngabby72> wrote: I know .The pain is unbearable.Have the docs ever gave you a clue why?When I told the specialist at ucsf he didnt get it.I tell my fam its like taking nails to a chalkboard,that cringe feeling you get,but in my skin.I wish I knew why. hugz,cassy[dixmstx] wrote:See, I do the same thing. If someone touches me it's ok but then if they start rubbing my arm or stay against me it gets more painful till it feels unbearable. in Texascassandra workmn <payngabby72> wrote:The same happend to me.I seen the specialist at UCSF,and as I was telling him about how I couldnt touch some thing due to my skin being sensitive I started crying.I had just bought my daughter some new jammies,went to put them on her and shrieked in pain,scared the hell out of us all.It felt like it touched a nerve or something,and sent a shocky cringy feeling up my hands to my arms.I had to have my fiance take it off of her.So I thought maybe it was a one time thing,tried it again and the same thing happened(they are now put up) so im tryn to explain to him and I start crying.so im depressed because of this.I have the same problem with blankets or my fiance holding my hand.It seems it sets off spasms but I dont understand why the skin is so sensitive.I guess they dont either.Well id hate to have that test,I suck at math.lol.I dred the day when they throw numbers at me.lol.[lastinline10] wrote:When I went to the SS phycoligist he wrote that I was border line bi-polar...........? Hummmm, well he apperently knows some thing more then the other docs. LOL The only reason he said it was cause....when I was trying to remember the numbers backwards test, i couldn't remember all of them and it upset me, I started crying. I am very good at numbers, but had a stressfull couple of days before my appointment with him, and I had just changed my anti-depressant a few days before too. He is also one of these doc's that thinks there is a pill for everything and why should I be upset I only have MS, (sarcasticly said). But when I went in front of the judge for my hearing for my SS, with what that doc wrote made it very clear to the judge and expert-vocational person that I could not function in a job any more. So I was approved for my SS, so in the long run he helped me win my case. Even

though I still haven't ghotten a check yet, I won.... YEAH. Still broke, cassandra workmn <payngabby72> wrote: Hi Candace,thanks for sharing.I am not yet dx'd,and every doc or specialist I see has a new recomendation,I have been to eager to follow thinking I will be diagnosed anyday and will be able to go off.I had aggreed with my doc to stay on a low dose of something Till I knew what I was up against,but I think I will be in limboland for awile.I feel it is up to me to decide....

Don't pick lemons.

See all the new 2007 cars at Yahoo! Autos.

[Guest guest]

I dont know.lol.maybe that.Its suppose to de-sensitize it I think.If thats the

opposite from sensitive.lol.I tried looking for the email from the lady but i

cant find it,I will find something soon and post a link.

[lastinline10@...] wrote:

What is that suppose to help? Maybe wake up the reseptors in the skin???

cassandra workmn wrote: LoL! I HAVE actually

heard that you can rub your skin with rouch cloth or a type of like

sandpaper.One of the ladys in the Devics support group told me that.Her son had

real sensitive skin and the doc told her to use sumthn rough (not to rough

though) on his skin to help it.I dont know if its true but I have been very

curious havnt had a chance to look it up,but will soon and hopefully if its true

Ill try it out.My skin drives me nuts,it sucks when you cant touch or feel

things cuz it hurts. hugz,cassy

[lastinline10@...] wrote:

After a few strokes of soemoen rubbing my arm it almost feels like they could be

rubbing me with sand paper...LOL

cassandra workmn wrote: I know .The pain is

unbearable.Have the docs ever gave you a clue why?When I told the specialist at

ucsf he didnt get it.I tell my fam its like taking nails to a chalkboard,that

cringe feeling you get,but in my skin.I wish I knew why. hugz,cassy

[dixmstx@...] wrote:

See, I do the same thing. If someone touches me it's ok but then if they start

rubbing my arm or stay against me it gets more painful till it feels unbearable.

in Texas

cassandra workmn wrote:

The same happend to me.I seen the specialist at UCSF,and as I was telling him

about how I couldnt touch some thing due to my skin being sensitive I started

crying.I had just bought my daughter some new jammies,went to put them on her

and shrieked in pain,scared the hell out of us all.It felt like it touched a

nerve or something,and sent a shocky cringy feeling up my hands to my arms.I had

to have my fiance take it off of her.So I thought maybe it was a one time

thing,tried it again and the same thing happened(they are now put up) so im tryn

to explain to him and I start crying.so im depressed because of this.I have the

same problem with blankets or my fiance holding my hand.It seems it sets off

spasms but I dont understand why the skin is so sensitive.I guess they dont

either.Well id hate to have that test,I suck at math.lol.I dred the day when

they throw numbers at me.lol.

[lastinline10@...] wrote:

When I went to the SS phycoligist he wrote that I was border line

bi-polar...........? Hummmm, well he apperently knows some thing more then the

other docs. LOL The only reason he said it was cause....when I was trying to

remember the numbers backwards test, i couldn't remember all of them and it

upset me, I started crying. I am very good at numbers, but had a stressfull

couple of days before my appointment with him, and I had just changed my

anti-depressant a few days before too. He is also one of these doc's that thinks

there is a pill for everything and why should I be upset I only have MS,

(sarcasticly said). But when I went in front of the judge for my hearing for my

SS, with what that doc wrote made it very clear....

[Guest guest]

This is a picture of the kind of brush that I've used in the pasthttp://www.leevalley.com/home/page.aspx?c=2 & p=47930 & cat=21One of the occupational sites that I looked at also said you could use a small bath brush from a place like the Dollar Tree. These brushes are about $1 apiece, so they're not expensive. If your SIL's son has OT she would probably have plenty. The brush is about the size of the palm of your hand. It's for washing your hands before surgery to make sure the surgeon gets all the germs off. I used to enjoy having my husband do my back.Suecassandra workmn wrote: thanks for sharing sue.Is there a type of brush you recomend.I would like to pass this info onto my SIL,her son is autistic,Id also like to try it on my daughter,and

myself.Thankyou soooooooooo much,hope today is a great day for you, big hugz,cassy [sueb409@...] wrote:A lot of autistic kids have very sensitive skin. If you touch it lightly they have a fit, but if you touch it firmly it's usually OK. Parents and teachers use what's called a "surgical brush" and brush the skin. I once saw a whole class of autistic kids quiet down in 5 minutes after all of them were brushed. I've used them on some of my kids, and also myself. It feels quite good. It seems to help calm the nerves down. You can also try a dry washcloth - one that's kind of rough, maybe dried on the line rather than the dryer. You have to use a firm touch - not a light one. It wears off after a little while - the kids who get it done have it done every couple of hours. Hope that helps.Suecassandra workmn wrote: LoL! I HAVE actually heard that you can rub your skin with rouch cloth or a type of

like sandpaper.One of the ladys in the Devics support group told me that.Her son had real sensitive skin and the doc told her to use sumthn rough (not to rough though) on his skin to help it.I dont know if its true but I have been very curious havnt had a chance to look it up,but will soon and hopefully if its true Ill try it out.My skin drives me nuts,it sucks when you cant touch or feel things cuz it hurts. hugz,cassy [lastinline10@...] wrote:After a few strokes of soemoen rubbing my arm it almost feels like they could be rubbing me with sand paper...LOL cassandra workmn wrote: I know .The pain is unbearable.Have the docs ever gave you a clue why?When I told the specialist at ucsf he didnt get it.I tell my fam its like taking nails to a chalkboard,that cringe feeling you get,but in my skin.I wish I knew why. hugz,cassy[dixmstx@...] wrote:See, I do the same thing. If someone touches

me it's ok but then if they start rubbing my arm or stay against me it gets more painful till it feels unbearable. in Texascassandra workmn wrote:The same happend to me.I seen the specialist at UCSF,and as I was telling him about how I couldnt touch some thing due to my skin being sensitive I started crying.I had just bought my daughter some new jammies,went to put them on her and shrieked in pain,scared the hell out of us all.It felt like it touched a nerve or something,and sent a shocky cringy feeling up my hands to my arms.I had to have my fiance take it off of her.So I thought maybe it was a one time thing,tried it again and the same thing happened(they are now put up) so im tryn to explain to him and I start crying.so im depressed because of this.I have the same problem with blankets or my fiance holding my hand.It seems it sets off spasms but I dont understand why the skin is so sensitive.I guess they dont either.Well id hate to have

that test,I suck at math.lol.I dred the day when they throw numbers at me.lol.[lastinline10@...] wrote:When I went to the SS phycoligist he wrote that I was border line bi-polar...........? Hummmm, well he apperently knows....

[Guest guest]

thanks so much sue.Im going to get a couple.I havnt asked my sil yet but im

thinkn if she did know she would have recomended it to me,she thinks my 3 yr.

Has autistic traits.I know that she will be stoked if she to know about it if

she dosnt already.thanks bunches hugz,cassy

[sueb409@...] wrote:

This is a picture of the kind of brush that I've used in the past

http://www.leevalley.com/home/page.aspx?c=2 & p=47930 & cat=21

One of the occupational sites that I looked at also said you could use a small

bath brush from a place like the Dollar Tree. These brushes are about $1

apiece, so they're not expensive. If your SIL's son has OT she would probably

have plenty. The brush is about the size of the palm of your hand. It's for

washing your hands before surgery to make sure the surgeon gets all the germs

off. I used to enjoy having my husband do my back.

Sue

cassandra workmn wrote: thanks for sharing sue.Is there

a type of brush you recomend.I would like to pass this info onto my SIL,her son

is autistic,Id also like to try it on my daughter,and myself.Thankyou

soooooooooo much,hope today is a great day for you, big hugz,cassy

[sueb409@...] wrote:

A lot of autistic kids have very sensitive skin. If you touch it lightly they

have a fit, but if you touch it firmly it's usually OK. Parents and teachers

use what's called a " surgical brush " and brush the skin. I once saw a whole

class of autistic kids quiet down in 5 minutes after all of them were brushed.

I've used them on some of my kids, and also myself. It feels quite good. It

seems to help calm the nerves down. You can also try a dry washcloth - one

that's kind of rough, maybe dried on the line rather than the dryer. You have

to use a firm touch - not a light one. It wears off after a little while - the

kids who get it done have it done every couple of hours.

Hope that helps.

Sue

cassandra workmn

wrote: LoL! I HAVE actually heard that you can rub your skin with rouch cloth

or a type of like sandpaper.One of the ladys in the Devics support group told me

that.Her son had real sensitive skin and the doc told her to use sumthn rough

(not to rough though) on his skin to help it.I dont know if its true but I have

been very curious havnt had a chance to look it up,but will soon and hopefully

if its true Ill try it out.My skin drives me nuts,it sucks when you cant touch

or feel things cuz it hurts. hugz,cassy

[lastinline10@...] wrote:

After a few strokes of soemoen rubbing my arm it almost feels like they could be

rubbing me with sand paper...LOL

cassandra workmn

wrote: I know .The pain is unbearable.Have the docs ever gave you

a clue why?When I told the specialist at ucsf he didnt get it.I tell my fam its

like taking nails to a chalkboard,that cringe feeling you get,but in my skin.I

wish I knew why. hugz,cassy

[dixmstx@...] wrote:

See, I do the same thing. If someone touches me it's ok but then if they start

rubbing my arm or stay against me it gets more painful till it feels unbearable.

in Texas

cassandra workmn

wrote:

The same happend to me.I seen the specialist at UCSF,and as I was telling him

about how I couldnt touch some thing due to my skin being sensitive I

started....

[Guest guest]

,

Once again that " People don't get MS, until they get it " phrase comes to

mind... Makes me just wanna reach out and smack the livin' shit out of

'em sometimes! But they really really have not clue one when it comes to

what we go through.

I too got upset on a test where I had to repeat numbers backwards, and

had a hard time remembering what they were... The person judging the

results of that test don't realize or don't understand that YESTERDAY I

could have repeated thousands of numbers backwards to you, today I'm

lucky to remember my own telephone number... but what they really don't

understand is that we know that we know it but that we just can't get it

out of our brains into the context that they want to see it... and just

how frustrating that type of thing can be to someone who was very much

aware of what they USED to know and they USED to be able to do.. but

can't perform like they did six months ago...

Does the fact that I get highly perturbed when I know that I know

something or that I was able to do it just yesterday, and now I just

can't figure it out make me borderline bi-polar??? Hmmm... Well maybe...

I remember something from General Psychology way back when... something

along the order of people with mental illness being of high intelligence

otherwise they couldn't BE mentally ill...

So I guess that we could be considered bi-polar (which not too long ago

was considered, or named manic-depressive)... So yeah, I suppose that I

could be labeled that way... Cause I can guarantee you that if I get

through today without having to take an extra anti-spasmodic, or I can

walk to the car without the assistance of my cane AND a person, or if I

can get through washing more than two loads of laundry, drying & folding

it as well.. or If I'm not ready for a nap by 11 AM... I'm going to be

ecstatic!!!!!!!!!!

But if I sit down to do a long division problem (part of some math

puzzles that I used to love to do) and I do the same problem FOUR times

and come up with FOUR different answers.. I'm gonna get just a bit

bent.. If I can't remember my best friend's telephone number and have to

look it up, or think about it before dialing it.. Or if I can't remember

what I had for dinner just two hours ago.. I suppose I'm going to get

just a tad bit BENT!!!!...

So yes, I guess I do the bi-polar thing too...

Now.. on the other hand....

You WILL get disability from Social Security a WHOLE lot faster because

of mental illness or mental defect than you will because your body is

eating away your nervous system... That's just an unfortunate fact.

I did some part time work for a lady who started a Representative Payee

business... She collects the disability checks for people who aren't

capable of handling their own money. She in turn keeps a roof over their

head, food in their stomach, and clothes on their back.. then pays their

bills with whatever is left over.. In some cases she even manages to

save those people a few dollars for emergency situations.

The sad part is... over 50 percent of her clients are drug addicts or

alcoholics, mostly drug addicts.... Now.. drug addiction and alcoholism

are no longer acceptable disabilities for Social Security purposes... So

their rehab counselors get them a depression or other mental illness

diagnosis.. So that they continue to collect their Social Security

Benefits...

She used to tell me that it's just not right.. that here I am with a

disease that I am in NO way responsible for having, but I have to fight

for my right to disability, and those who brought about their own

diseases or addictions get approved with NO problem...

So maybe the person who was doing your testing did you a really large

favor... knowing that the MS alone wasn't going to cut it if you had to

go before a judge to get the approval.. since the MS alone didn't get

through the first time you applied...

Just my little rant on how unfair the system is... and to tell ya not to

worry too awfully much about that borderline bi-polar thing.. If you

catch even the most normal and healthy person at the right time in their

lives, it could be said that they are bi-polar as well...

If that's what it took to get the approval for your disability.. so be it..

|)onna

> [lastinline10@ yahoo.com] wrote:

> When I went to the SS phycoligist he wrote that I was border line

> bi-polar.... .......? Hummmm, well he apperently knows some thing

> more then the other docs. LOL The only reason he said it was

> cause....when I was trying to remember the numbers backwards test, i

> couldn't remember all of them and it upset me, I started crying. I

> am very good at numbers, but had a stressfull couple of days before

> my appointment with him, and I had just changed my anti-depressant a

> few days before too. He is also one of these doc's that thinks there

> is a pill for everything and why should I be upset I only have MS,

> (sarcasticly said). But when I went in front of the judge for my

> hearing for my SS, with what that doc wrote made it very clear to

> the judge and expert-vocational person that I could not function in

> a job any more. So I was approved for my SS, so in the long run he

> helped me win my case. Even though I still haven't ghotten a check

> yet, I won.... YEAH. Still broke,

[Guest guest]

Hey...maybe they are the one's wired wrong and all of us with the great minds are wired right. 'cassandra workmn wrote: Ya maybe.Its gotts have sumthn to do with the nerves or something too dont ya think? Like maybe the signals are all messed up,beats me.They jus look at me blankly too.lol.or like im crazy.lol.if only they knew what it was like. big hugzzz,cassy[dixmstx] wrote:i ask them why

and basically they just shrug their shoulders and just look at me blankly. I think all of us are wired differently than the "norm" and so are our kids. Maybe we are just more noticable to certain senses, like we are on alert at all times'cassandra workmn <payngabby72> wrote:I know .The pain is unbearable.Have the docs ever gave you a clue why?When I told the specialist at ucsf he didnt get it.I tell my fam its like taking nails to a chalkboard,that cringe feeling you get,but in my skin.I wish I knew why. hugz,cassy[dixmstx] wrote:See, I do the same thing. If someone touches me it's ok but then if they start rubbing my arm or stay against me it gets more painful till it feels unbearable. in Texascassandra workmn <payngabby72>

wrote:The same happend to me.I seen the specialist at UCSF,and as I was telling him about how I couldnt touch some thing due to my skin being sensitive I started crying.I had just bought my daughter some new jammies,went to put them on her and shrieked in pain,scared the hell out of us all.It felt like it touched a nerve or something,and sent a shocky cringy feeling up my hands to my arms.I had to have my fiance take it off of her.So I thought maybe it was a one time thing,tried it again and the same thing happened(they are now put up) so im tryn to explain to him and I start crying.so im depressed because of this.I have the same problem with blankets or my fiance holding my hand.It seems it sets off spasms but I dont understand why the skin is so sensitive.I guess they dont either.Well id hate to have that test,I suck at math.lol.I dred the day when they throw numbers at me.lol.[lastinline10]

wrote:When I went to the SS phycoligist he wrote that I was border line bi-polar...........? Hummmm, well he apperently knows some thing more then the other docs. LOL The only reason he said it was cause....when I was trying to remember the numbers backwards test, i couldn't remember all of them and it upset me, I started crying. I am very good at numbers, but had a stressfull couple of days before my appointment with him, and I had just changed my anti-depressant a few days before too. He is also one of these doc's that thinks there is a pill for everything and why should I be upset I only have MS, (sarcasticly said). But when I went in front of the judge for my hearing for my SS, with what that doc wrote made it very clear to the judge and expert-vocational person that I could not function in a job any more. So I was approved for my SS, so in the long run he helped me win my case. Even though I still haven't ghotten a check yet, I won.... YEAH. Still broke,

cassandra workmn <payngabby72> wrote: Hi Candace,thanks for sharing.I am not yet dx'd,and every doc or specialist I see has a new recomendation,I have been to eager to follow thinking I will be diagnosed anyday and will be able to go off.I had aggreed with my doc to....' in Texas Courage is not being fearless, courage is facing your fears and not running for cover!

[Guest guest]

oh, got it.....duh. LOL cassandra workmn wrote: I dont know.lol.maybe that.Its suppose to de-sensitize it I think.If thats the opposite from sensitive.lol.I tried looking for the email from the lady but i cant find it,I will find something soon and post a link.[lastinline10] wrote:What is that suppose to help? Maybe wake up the reseptors in the skin???

cassandra workmn <payngabby72> wrote: LoL! I HAVE actually heard that you can rub your skin with rouch cloth or a type of like sandpaper.One of the ladys in the Devics support group told me that.Her son had real sensitive skin and the doc told her to use sumthn rough (not to rough though) on his skin to help it.I dont know if its true but I have been very curious havnt had a chance to look it up,but will soon and hopefully if its true Ill try it out.My skin drives me nuts,it sucks when you cant touch or feel things cuz it hurts. hugz,cassy[lastinline10] wrote:After a few strokes of soemoen rubbing my arm it almost feels like they could be rubbing me with sand paper...LOL cassandra workmn <payngabby72> wrote: I know .The pain is

unbearable.Have the docs ever gave you a clue why?When I told the specialist at ucsf he didnt get it.I tell my fam its like taking nails to a chalkboard,that cringe feeling you get,but in my skin.I wish I knew why. hugz,cassy[dixmstx] wrote:See, I do the same thing. If someone touches me it's ok but then if they start rubbing my arm or stay against me it gets more painful till it feels unbearable. in Texascassandra workmn <payngabby72> wrote:The same happend to me.I seen the specialist at UCSF,and as I was telling him about how I couldnt touch some thing due to my skin being sensitive I started crying.I had just bought my daughter some new jammies,went to put them on her and shrieked in pain,scared the hell out of us all.It felt like it touched a nerve or something,and sent a shocky cringy feeling up my hands to my

arms.I had to have my fiance take it off of her.So I thought maybe it was a one time thing,tried it again and the same thing happened(they are now put up) so im tryn to explain to him and I start crying.so im depressed because of this.I have the same problem with blankets or my fiance holding my hand.It seems it sets off spasms but I dont understand why the skin is so sensitive.I guess they dont either.Well id hate to have that test,I suck at math.lol.I dred the day when they throw numbers at me.lol.[lastinline10] wrote:When I went to the SS phycoligist he wrote that I was border line bi-polar...........? Hummmm, well he apperently knows some thing more then the other docs. LOL The only reason he said it was cause....when I was trying to remember the numbers backwards test, i couldn't remember all of them and it upset me, I started crying. I am very good at numbers, but had a stressfull couple of

days before my appointment with him, and I had just changed my anti-depressant a few days before too. He is also one of these doc's that thinks there is a pill for everything and why should I be upset I only have MS, (sarcasticly said). But when I went in front of the judge for my hearing for my SS, with what that doc wrote made it very clear.... Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr.

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[Guest guest]

Thanks Donna, I loved the "rant" I feel that way too, I get really upset that I am disbaled with MS but not *enough* how much more do they need me to be to get my disability just on my MS? Yeah that doc did me a favor by putting that on my papers!!! The judge made sure that with the "mental and physical" illness the vocational expert could not say anything. My lawyer said she had never heard the judge talk like that to the vocational expert, she said she knew that I had won my case when he told the vocational "expert" to look over everything and read what it said not just look it over. But he knew I was not mentally over the top. I am so happy that you all know that I am not bi-polar. I am just a normal person dealing with a disease that is very hard to handle. Love to all and Thanks again Donna. PS, bi-polar is not a bad thing if you are. I just don't want

to be along with everything else . Donna wrote: ,Once again that "People don't get MS, until they get it" phrase comes to mind... Makes me just wanna reach out and smack the livin' shit out of 'em sometimes! But they really really have not clue one when it comes to what we go through.I too got upset on a test where I had to repeat numbers backwards, and had a hard time remembering what they were... The person

judging the results of that test don't realize or don't understand that YESTERDAY I could have repeated thousands of numbers backwards to you, today I'm lucky to remember my own telephone number... but what they really don't understand is that we know that we know it but that we just can't get it out of our brains into the context that they want to see it... and just how frustrating that type of thing can be to someone who was very much aware of what they USED to know and they USED to be able to do.. but can't perform like they did six months ago...Does the fact that I get highly perturbed when I know that I know something or that I was able to do it just yesterday, and now I just can't figure it out make me borderline bi-polar??? Hmmm... Well maybe...I remember something from General Psychology way back when... something along the order of people with mental illness being of high intelligence otherwise they

couldn't BE mentally ill...So I guess that we could be considered bi-polar (which not too long ago was considered, or named manic-depressive)... So yeah, I suppose that I could be labeled that way... Cause I can guarantee you that if I get through today without having to take an extra anti-spasmodic, or I can walk to the car without the assistance of my cane AND a person, or if I can get through washing more than two loads of laundry, drying & folding it as well.. or If I'm not ready for a nap by 11 AM... I'm going to be ecstatic!!!!!!!!!!But if I sit down to do a long division problem (part of some math puzzles that I used to love to do) and I do the same problem FOUR times and come up with FOUR different answers.. I'm gonna get just a bit bent.. If I can't remember my best friend's telephone number and have to look it up, or think about it before dialing it.. Or if I can't remember what I had

for dinner just two hours ago.. I suppose I'm going to get just a tad bit BENT!!!!...So yes, I guess I do the bi-polar thing too...Now.. on the other hand....You WILL get disability from Social Security a WHOLE lot faster because of mental illness or mental defect than you will because your body is eating away your nervous system... That's just an unfortunate fact.I did some part time work for a lady who started a Representative Payee business... She collects the disability checks for people who aren't capable of handling their own money. She in turn keeps a roof over their head, food in their stomach, and clothes on their back.. then pays their bills with whatever is left over.. In some cases she even manages to save those people a few dollars for emergency situations.The sad part is... over 50 percent of her clients are drug addicts or alcoholics, mostly drug addicts.... Now.. drug addiction and

alcoholism are no longer acceptable disabilities for Social Security purposes... So their rehab counselors get them a depression or other mental illness diagnosis.. So that they continue to collect their Social Security Benefits...She used to tell me that it's just not right.. that here I am with a disease that I am in NO way responsible for having, but I have to fight for my right to disability, and those who brought about their own diseases or addictions get approved with NO problem...So maybe the person who was doing your testing did you a really large favor... knowing that the MS alone wasn't going to cut it if you had to go before a judge to get the approval.. since the MS alone didn't get through the first time you applied...Just my little rant on how unfair the system is... and to tell ya not to worry too awfully much about that borderline bi-polar thing.. If you catch even the most normal and

healthy person at the right time in their lives, it could be said that they are bi-polar as well...If that's what it took to get the approval for your disability.. so be it..|)onna> [lastinline10@ yahoo.com] wrote:> When I went to the SS phycoligist he wrote that I was border line> bi-polar.... .......? Hummmm, well he apperently knows some thing> more then the other docs. LOL The only reason he said it was> cause....when I was trying to remember the numbers backwards test, i> couldn't remember all of them and it upset me, I started crying. I> am very good at numbers, but had a stressfull couple of days before> my appointment with him, and I had just changed my anti-depressant a> few days before too. He is also one of these doc's that thinks there> is a pill for everything and why should I be upset I only have MS,> (sarcasticly said). But when I went in front of the judge

for my> hearing for my SS, with what that doc wrote made it very clear to> the judge and expert-vocational person that I could not function in> a job any more. So I was approved for my SS, so in the long run he> helped me win my case. Even though I still haven't ghotten a check> yet, I won.... YEAH. Still broke,

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[Guest guest]

Now thats more like it.Now wouldnt it be cool if we could mess with the docs

wiring for a day jus so they could see what we go through?I bet then there would

be a cure,and more compassion.

[dixmstx@...] wrote:

Hey...maybe they are the one's wired wrong and all of us with the great minds

are wired right.

'

cassandra workmn wrote:

Ya maybe.Its gotts have sumthn to do with the nerves or something too

dont ya think? Like maybe the signals are all messed up,beats me.They jus look

at me blankly too.lol.or like im crazy.lol.if only they knew what it was like.

big hugzzz,cassy

[dixmstx@...] wrote:

i ask them why and basically they just shrug their shoulders and just look at me

blankly. I think all of us are wired differently than the " norm " and so are our

kids. Maybe we are just more noticable to certain senses, like we are on alert

at all times

'

cassandra workmn wrote:

I know .The pain is unbearable.Have the docs ever gave you a clue why?When

I told the specialist at ucsf he didnt get it.I tell my fam its like taking

nails to a chalkboard,that cringe feeling you get,but in my skin.I wish I knew

why. hugz,cassy

[dixmstx@...] wrote:

See, I do the same thing. If someone touches me it's ok but then if they start

rubbing my arm or stay against me it gets more painful till it feels unbearable.

in Texas

cassandra workmn wrote:

The same happend to me.I seen the specialist at UCSF,and as I was telling him

about how I couldnt touch some thing due to my skin being sensitive I started

crying.I had just bought my daughter some new jammies,went to put them on her

and shrieked in pain,scared the hell out of us all.It felt like it touched a

nerve or something,and sent a shocky cringy feeling up my hands to my arms.I had

to have my fiance take it off of her.So I thought maybe it was a one time

thing,tried it again and the same thing happened(they are now put up) so im tryn

to explain to him and I start crying.so im depressed because of this.I have the

same problem with blankets or my fiance holding my hand.It seems it sets off

spasms but I dont understand why the skin is so sensitive.I guess they dont

either.Well id hate to have that test,I suck at math.lol.I dred the day when

they throw numbers at me.lol.

[lastinline10@...] wrote:

When I went to the SS phycoligist he wrote that I was border line

bi-polar...........? Hummmm, well he apperently knows some thing more then the

other docs. LOL The only reason he said it was cause....when I was trying to

remember the numbers backwards test, i couldn't remember all of them and it

upset me, I started crying. I am very good at numbers, but had a stressfull

couple of days before my appointment with him, and I had just changed my

anti-depressant a few days before too. He is also one of these doc's that thinks

there is a pill for everything and why should I be upset I only have MS,

(sarcasticly said). But when I went in front of the judge for my hearing for my

SS, with what that doc wrote made it very clear to the judge and

expert-vocational person that I could not function in a job any more. So I

was....

[Guest guest]

ahh.we never thought that.and you are right bi polar is alot to deal with on top

of another illness.Who wants one illness let alone two.I think we may have a few

on the group with bi polar on top of ms?not positive.I give them alot of

credit.To be able to combat the two together.And even depression,all the

diseases are to much but when theres 2 or 3 oh my that takes a very strong

person.Im thinking and hoping all my symptoms amount to just 1 disease but if

its more Im not sure I could handle it.MS can be such a hard disease and others

ontop,regardless of what it is,sure must take a toll.Doctors dont know

everything do they?At one point I actually thought they did.lol.hugz to you and

all on the group, cassy

[lastinline10@...] wrote:

Thanks Donna, I loved the " rant " I feel that way too, I get really upset that I

am disbaled with MS but not *enough* how much more do they need me to be to get

my disability just on my MS? Yeah that doc did me a favor by putting that on my

papers!!! The judge made sure that with the " mental and physical " illness the

vocational expert could not say anything. My lawyer said she had never heard the

judge talk like that to the vocational expert, she said she knew that I had won

my case when he told the vocational " expert " to look over everything and read

what it said not just look it over. But he knew I was not mentally over the top.

I am so happy that you all know that I am not bi-polar. I am just a normal

person dealing with a disease that is very hard to handle. Love to all and

Thanks again Donna.

PS, bi-polar is not a bad thing if you are. I just don't want to be along with

everything else .

Donna wrote:

,

Once again that " People don't get MS, until they get it " phrase comes to

mind... Makes me just wanna reach out and smack the livin' shit out of

'em sometimes! But they really really have not clue one when it comes to

what we go through.

I too got upset on a test where I had to repeat numbers backwards, and

had a hard time remembering what they were... The person judging the

results of that test don't realize or don't understand that YESTERDAY I

could have repeated thousands of numbers backwards to you, today I'm

lucky to remember my own telephone number... but what they really don't

understand is that we know that we know it but that we just can't get it

out of our brains into the context that they want to see it... and just

how frustrating that type of thing can be to someone who was very much

aware of what they USED to know and they USED to be able to do.. but

can't perform like they did six months ago...

Does the fact that I get highly perturbed when I know that I know

something or that I was able to do it just yesterday, and now I just

can't figure it out make me borderline bi-polar??? Hmmm... Well maybe...

I remember something from General Psychology way back when... something

along the order of people with mental illness being of high intelligence

otherwise they couldn't BE mentally ill...

So I guess that we could be considered bi-polar (which not too long ago

was considered, or named manic-depressive)... So yeah, I suppose that I

could be labeled that way... Cause I can guarantee you that if I get

through today without having to take an extra anti-spasmodic, or I can

walk to the car without the assistance of my cane AND a person, or if I

can get through washing more than two loads of laundry, drying & folding

it as well.. or If I'm not ready for a nap by 11 AM... I'm going to be

ecstatic!!!!!!!!!!

But if I sit down to do a long division problem (part of some math

puzzles that I used to love to do) and I do the same problem FOUR times

and come up....

[Guest guest]

That would be fun, just for a day. cassandra workmn wrote: Now thats more like it.Now wouldnt it be cool if we could mess with the docs wiring for a day jus so they could see what we go through?I bet then there would be a cure,and more compassion.[dixmstx] wrote:Hey...maybe they are the one's wired wrong and all of us with the great minds are wired

right.'cassandra workmn <payngabby72> wrote:Ya maybe.Its gotts have sumthn to do with the nerves or something too dont ya think? Like maybe the signals are all messed up,beats me.They jus look at me blankly too.lol.or like im crazy.lol.if only they knew what it was like. big hugzzz,cassy[dixmstx] wrote:i ask them why and basically they just shrug their shoulders and just look at me blankly. I think all of us are wired differently than the "norm" and so are our kids. Maybe we are just more noticable to certain senses, like we are on alert at all times'cassandra workmn <payngabby72> wrote:I know .The pain is unbearable.Have the docs ever gave you a clue why?When I told the specialist at ucsf he didnt get it.I tell my fam its

like taking nails to a chalkboard,that cringe feeling you get,but in my skin.I wish I knew why. hugz,cassy[dixmstx] wrote:See, I do the same thing. If someone touches me it's ok but then if they start rubbing my arm or stay against me it gets more painful till it feels unbearable. in Texascassandra workmn <payngabby72> wrote:The same happend to me.I seen the specialist at UCSF,and as I was telling him about how I couldnt touch some thing due to my skin being sensitive I started crying.I had just bought my daughter some new jammies,went to put them on her and shrieked in pain,scared the hell out of us all.It felt like it touched a nerve or something,and sent a shocky cringy feeling up my hands to my arms.I had to have my fiance take it off of her.So I thought maybe it was a one time thing,tried it again and the same

thing happened(they are now put up) so im tryn to explain to him and I start crying.so im depressed because of this.I have the same problem with blankets or my fiance holding my hand.It seems it sets off spasms but I dont understand why the skin is so sensitive.I guess they dont either.Well id hate to have that test,I suck at math.lol.I dred the day when they throw numbers at me.lol.[lastinline10] wrote:When I went to the SS phycoligist he wrote that I was border line bi-polar...........? Hummmm, well he apperently knows some thing more then the other docs. LOL The only reason he said it was cause....when I was trying to remember the numbers backwards test, i couldn't remember all of them and it upset me, I started crying. I am very good at numbers, but had a stressfull couple of days before my appointment with him, and I had just changed my anti-depressant a few days before too. He is also one

of these doc's that thinks there is a pill for everything and why should I be upset I only have MS, (sarcasticly said). But when I went in front of the judge for my hearing for my SS, with what that doc wrote made it very clear to the judge and expert-vocational person that I could not function in a job any more. So I was....

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