Guest guest Posted December 5, 2006 Report Share Posted December 5, 2006 Joyce, I'm glad you got as much out of rehab as I did. Rehab was the best thing I ever could have done for myself after my diagnosis. When I get frustrated with my physical limitations I think back to how bad I was pre-rehab and I stop complaining! It really did make a huge difference. The rehab hospital I go to, Helen Hospital, West Haverstraw, NY has a Wellness Center that as a rehab graduate I'm eligible for. I go 3 times a week for an hour and a half and have access to a trainer, all the equipment, both cardio and the Nautilus machines etc and the pool. This all costs $60 a month which I feel is a bargain for me and it's an investment in my getting to stay here as long as possible!! Beth Fibrotic NSIP 06/06 Don't try to explain it, just nod your head. Breathe in, breathe out. Move on. J. Buffett Re: Rehab BethYour explanation was much better than mine. Thank you.About 2 weeks ago, i went to visit my daughter and 2 month old grandson. When we took a walk, my daughter was amazed by how much faster i was walking that day compared to several months ago. Rehab has made a difference. At St 's medical center, langhorne, PA, when the formal sessions are completed, you can continue to go twice a week for maintenance.pink joyce ipf 3/06> >> > I will be going to Rehab the middle of Dec. What signifcant help > will > > this give me? The PF will still be in my lungs...so, how can rehab > > help? Thanks. JOy 3/6> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2006 Report Share Posted December 5, 2006 Rehab was very good for me. I like the fact that there are nurses there to help moniter your stats. I am not on oxygen yet and I think that is because of what I learned and did at rehab. I did well on the last 6 minute walk. I was out with pneumonia for 2 weeks but think rehab helped me get my breathing where it was before I was sick. They told me the important thing is to keep moving. Mall walk etc. I am taking a week off and then going back 3 days a week. During that time I will try to exersise at home. The rehab nurses said to buy weights and use them once a day in different ways. They suggested to check out exersise videos to find the ones best suited to my needs. All we all can do is keep going and try to stay healthy. Beth wrote: Joyce, I'm glad you got as much out of rehab as I did. Rehab was the best thing I ever could have done for myself after my diagnosis. When I get frustrated with my physical limitations I think back to how bad I was pre-rehab and I stop complaining! It really did make a huge difference. The rehab hospital I go to, Helen Hospital, West Haverstraw, NY has a Wellness Center that as a rehab graduate I'm eligible for. I go 3 times a week for an hour and a half and have access to a trainer, all the equipment, both cardio and the Nautilus machines etc and the pool. This all costs $60 a month which I feel is a bargain for me and it's an investment in my getting to stay here as long as possible!! Beth Fibrotic NSIP 06/06 Don't try to explain it, just nod your head. Breathe in, breathe out. Move on. J. Buffett Re: Rehab BethYour explanation was much better than mine. Thank you.About 2 weeks ago, i went to visit my daughter and 2 month old grandson. When we took a walk, my daughter was amazed by how much faster i was walking that day compared to several months ago. Rehab has made a difference. At St 's medical center, langhorne, PA, when the formal sessions are completed, you can continue to go twice a week for maintenance.pink joyce ipf 3/06> >> > I will be going to Rehab the middle of Dec. What signifcant help > will > > this give me? The PF will still be in my lungs...so, how can rehab > > help? Thanks. JOy 3/6> >> Need a quick answer? Get one in minutes from people who know. Ask your question on Yahoo! Answers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2006 Report Share Posted December 5, 2006 Here is some stuff on exersise P UIP 8/00 http://www.perf2ndwind.org/html/exercise.html http://home.vicnet.net.au/~huffpuff/exercise2.htm http://weboflife.nasa.gov/exerciseandaging/toc.html http://ipf.upmc.com/ExerciseProgram.htm wrote: Rehab was very good for me. I like the fact that there are nurses there to help moniter your stats. I am not on oxygen yet and I think that is because of what I learned and did at rehab. I did well on the last 6 minute walk. I was out with pneumonia for 2 weeks but think rehab helped me get my breathing where it was before I was sick. They told me the important thing is to keep moving. Mall walk etc. I am taking a week off and then going back 3 days a week. During that time I will try to exersise at home. The rehab nurses said to buy weights and use them once a day in different ways. They suggested to check out exersise videos to find the ones best suited to my needs. All we all can do is keep going and try to stay healthy. Beth <mbmurtha> wrote: Joyce, I'm glad you got as much out of rehab as I did. Rehab was the best thing I ever could have done for myself after my diagnosis. When I get frustrated with my physical limitations I think back to how bad I was pre-rehab and I stop complaining! It really did make a huge difference. The rehab hospital I go to, Helen Hospital, West Haverstraw, NY has a Wellness Center that as a rehab graduate I'm eligible for. I go 3 times a week for an hour and a half and have access to a trainer, all the equipment, both cardio and the Nautilus machines etc and the pool. This all costs $60 a month which I feel is a bargain for me and it's an investment in my getting to stay here as long as possible!! Beth Fibrotic NSIP 06/06 Don't try to explain it, just nod your head. Breathe in, breathe out. Move on. J. Buffett Re: Rehab BethYour explanation was much better than mine. Thank you.About 2 weeks ago, i went to visit my daughter and 2 month old grandson. When we took a walk, my daughter was amazed by how much faster i was walking that day compared to several months ago. Rehab has made a difference. At St 's medical center, langhorne, PA, when the formal sessions are completed, you can continue to go twice a week for maintenance.pink joyce ipf 3/06> >> > I will be going to Rehab the middle of Dec. What signifcant help > will > > this give me? The PF will still be in my lungs...so, how can rehab > > help? Thanks. JOy 3/6> >> Need a quick answer? Get one in minutes from people who know. Ask your question on Yahoo! Answers. Need a quick answer? Get one in minutes from people who know. Ask your question on Yahoo! Answers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2006 Report Share Posted December 5, 2006 , I don't think we thank you enough for your contributions to our well being. As we pray for one another and downplay doctor's statements, you unassumedly post websites that remind us to breathe and exercise and look for answers. I can't tell you how often your reseach has brought me a "breath of fresh air and hope. God bless you for being such a good friend to all of us. wrote: Here is some stuff on exersise P UIP 8/00 http://www.perf2ndwind.org/html/exercise.html http://home.vicnet.net.au/~huffpuff/exercise2.htm http://weboflife.nasa.gov/exerciseandaging/toc.html http://ipf.upmc.com/ExerciseProgram.htm <edwardsd77> wrote: Rehab was very good for me. I like the fact that there are nurses there to help moniter your stats. I am not on oxygen yet and I think that is because of what I learned and did at rehab. I did well on the last 6 minute walk. I was out with pneumonia for 2 weeks but think rehab helped me get my breathing where it was before I was sick. They told me the important thing is to keep moving. Mall walk etc. I am taking a week off and then going back 3 days a week. During that time I will try to exersise at home. The rehab nurses said to buy weights and use them once a day in different ways. They suggested to check out exersise videos to find the ones best suited to my needs. All we all can do is keep going and try to stay healthy. Beth <mbmurtha> wrote: Joyce, I'm glad you got as much out of rehab as I did. Rehab was the best thing I ever could have done for myself after my diagnosis. When I get frustrated with my physical limitations I think back to how bad I was pre-rehab and I stop complaining! It really did make a huge difference. The rehab hospital I go to, Helen Hospital, West Haverstraw, NY has a Wellness Center that as a rehab graduate I'm eligible for. I go 3 times a week for an hour and a half and have access to a trainer, all the equipment, both cardio and the Nautilus machines etc and the pool. This all costs $60 a month which I feel is a bargain for me and it's an investment in my getting to stay here as long as possible!! Beth Fibrotic NSIP 06/06 Don't try to explain it, just nod your head. Breathe in, breathe out. Move on. J. Buffett Re: Rehab BethYour explanation was much better than mine. Thank you.About 2 weeks ago, i went to visit my daughter and 2 month old grandson. When we took a walk, my daughter was amazed by how much faster i was walking that day compared to several months ago. Rehab has made a difference. At St 's medical center, langhorne, PA, when the formal sessions are completed, you can continue to go twice a week for maintenance.pink joyce ipf 3/06> >> > I will be going to Rehab the middle of Dec. What signifcant help > will > > this give me? The PF will still be in my lungs...so, how can rehab > > help? Thanks. JOy 3/6> >> Need a quick answer? Get one in minutes from people who know. Ask your question on Yahoo! Answers. Need a quick answer? Get one in minutes from people who know. Ask your question on Yahoo! Answers. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 UCSF is too far for me to go for that study as it requires you to go 3 times a week. It is a 2 hour drive for me and I have too much pain when I have to go that far. At UC would be closer for me. Carolyn wrote: Carolyn,I don't think you need a Dr's referral to the Rehab study @ UCSF. CallGarvey @ She can give you the skinny on it. Here-mail is chrisgarvey@...Peace to all UIP/IPF/LCH 5.06/1.07> Carolyn, > > Did you e-mail your pulmo about rehab? I know that all of Kaisers> classes/programs are oriented to COPD/Asthma but even at that I think> we don't have anything to lose by attending. I didn't see a program> listed for Vacaville so the closest one to you is probably in Vallejo.> Remember this is Kaiser as patients our job is to push them to dotheirs. > > Also UCSF is going to be doing a study on Rehab and IPF. If you can> make the trip to SF it might be worth it. If you are interested call> or for information.> > > > UIP/IPF/LCH 5/06-1/07> > > > > Quote Link to comment Share on other sites More sharing options...
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