Re: Can nerves in the brain regrow?

July 9, 2009

I wanted to chime in here and say it's never too late for the neurodevelopment

exercises (it's even helped adults)

My ASD son is now 10, and the ND approach was the first thing we tried when he

was diagnosed with Aspergers right before his 9th birthday.

Since we didn't have the money for a consult, I put together my own " program " ,

albeit imperfect based on the extensive reading I did. He was 9 and it we did it

for just a few months, but did it daily.

It helped tremendously! My son used to leak urine when he laughed, and he no

longer does that as much anymore.

His sensory issues all but disappeared! He no longer spins in circles.

If you contact me directly, I would be happy to share what I did.

There is always hope!

Nanci

> >

> > Janice,

> > I have read through all of these posts with great interest because we are

scheduled to attend a course at the Institute for Advancement of Human Potential

in Philadelphia and from what I understand the NACD is run by a family member

(brother or brother in law) of the gentleman who began the IAHP and the two

organizations have very similar programs.

> >

> > Our daughter is only 16 months old, but she is severely delayed (gross motor

skills are about 7 months and she is not talking yet, although she is very

verbal and playful). She also has mild Cerebral Palsy with general low tone in

her trunk and right side. I believe all of this stems from her circumstances in

the womb, where she was severely deprived of nutritional flow and oxygen due to

an extremely small and overly clotted placenta (which no one knew about till she

was born). I dont believe that she has any autistic issues, but it's hard to

tell because she is still so young and developmentally immature.

> > She has PT and OT in the home through the local IEP and she also has

craniosacral therapy, has had 40 HBOT sessions, and is taking a whole host of

supplements to help her with brain growth.

> >

> > The book, What To Do About Your Brain Injured Child is the general overview

of how the Institute got its start and how they believe the brain works and how

their program is different from any other mainstream treatments. From what I

learned in the book, they strongly emphasize patterning, visual stimulation (via

flashcards, dots, and light therapy) and they also incorporate specific diet and

nutritional requirements.

> >

> > From what you described as far as the Daily Exercises and Lessons, that is

very similar to what the IAHP advocates, but since I have yet to actually take

the course and have our daughter assessed, I'm not very clear on what exactly

they will recommend for her. I do know they require that at least one parent is

home full-time to be accepted into their program (because it is so intensive).

They also require that we come back to the Institute every 6 months, for a

follow-up assessment and a new take-home program for continuing development.

> >

> > I just wanted to ask if you had knowledge of the IAHP, if the NACD advocates

them or if they are 'rival' schools of thought. Also, while your son was

undergoing his assessments, did you notice any infants participating in the

program?? It seems like much of the exercises require some participation from

the student and other than some interactive play, our daughter wont be able to

respond to questions or commands just yet.

> >

> > Also, if the NACD's program is very similar, it might be something for us to

investigate because traveling all the way to Philadelphia is a little bit

expensive for us (we live in Los Angeles) and if we are expected to check in

every 6 months, Utah might be a much easier trip to make.

> >

> > Thanks for any info, comments you have for me. I am going to keep your name

and contact info stashed in my 'file' if you don't mind, so that I can pick your

brain as we get further into this program.

> >

> > Margo~

> >

> > " be a worldchild, form a circle

> > before we all go under "

> >

> > To: mb12 valtrex

> > From: jscott@

> > Date: Wed, 8 Jul 2009 10:01:38 -0600

> > Subject: Re: Can nerves in the brain regrow?

> >

> > A little thought on this......

> >

> > When my son was 3, they didn't know much about his

> > condition and the doctors told me that he would grow out of it. He didn't,

> > he just got worse and worse with time and grew 'into' it.

> >

> > When my son was 6, they diagnosed him as borderline

> > mentally handicapped. Nothing was to be done. OT services were

> > denied as he was deemed 'unresponsive' to therapy. (a cool way for the

> > system to deny funding, imo)

> >

> > When my son was 9, he was considered a special

> > education 'lifer' with not really much hope and I should consider what would

be

> > done with him as he aged. (ie. group home anyone?) The school

> > decided that he would no longer need testing to remain in the special

> > programming. It was just a given that he would never leave.

> >

> > When my son was 11, I discovered neurodevelopmental

> > therapy in the US ( http://www.nacd.org .....non profit and very

> > reasonably priced btw) and flew him stateside for a program plan which we

did at

> > home (we are from Canada) and special diets..... within 10 months, his

> > processing was age appropriate and he was mainstreamed but still noticeably

> > 'affected'.

> >

> > When my son was 13, we started chelating and he

> > started taking the public transit on his own, flew to California on his own

for

> > an 'extreme' adventure camp 6 months after we started and his relationships

with

> > his peers became completely normal. He has TONS of friends now and

> > OMG.... the girls are liking him too! The only friends he could make

> > before were other kids with issues. Today, he is considered the 'cool'

> > geeky kid.... the athelete of the nerdy brainiacs! He now hangs out with

> > the kids who are in the 'exceptions' program in his school which requires

> > an IQ of 135 or more and is placed in their classes...... what a big change

from

> > the low IQ kid he used to be. (he still sports a slight speech

> > affectation but language is good) Chelation was a godsend and we are still

> > pulling mercury 1.5 years later.

> >

> > For me, the best thing about this was to see his

> > personal happiness. I am rarely able to deny him a sleep over with 5-6

> > fourteen year old boys tromping through my house. The other great thing is

> > the loss of that 'stare' that others give you when you go out. It's funny,

> > people looking and wondering, " What's wrong with THAT boy? " became part of

> > my existance. (I wonder if they know how transparent they are when they

> > think that?) I really only noticed it when we stopped getting the

> > 'look'. I still have to pinch myself. In my mind I almost cannot

> > believe that they can't still see 'it'. The 'it' that plagues my son's

> > body is quietly disappearing now..... only other moms with affected kids

would

> > really guess it. None of the mothers of my son's friends can tell that he

> > has any type of condition and they know him well.

> >

> > When my son was 14, he was selected to go to France

> > with a group of kids from school. It's a difficult application process and

> > while my boy's grades were not as good as the other applicants, he is just

so

> > darn likeable that he made it into the group. (as a child, my boy got

> > the crap beat out of him for being different.... today, he is

> > loved by all and makes friends easily) He beat out 50 other

> > kids.....all NT. The principal was a bit concerned about his

> > organizational skills (or lack therof) for the trip but he's going next

> > March!

> >

> > Today, my son is 14.5 and we started MB12 about 2

> > months ago. I notice an enormous difference in his fine motor ability and

> > his energy levels. We are still fighting to build muscle on his low toned

> > body and it is coming..... with plenty of hard work. He has a 75% average

> > and there is no question that he is University bound. He uses a lap-top to

> > write essay type exams but that is the only special accomodations he

> > receives. All other exams are written manually. I am hoping that

> > next year, he'll be able to eliminate this and that his writing speed will

be

> > faster.

> >

> > I just dropped him off to summer school where he is

> > taking a grade 9 math prep course. He's not going because he has to.

> > He's going because his buddy's mom is making him and my boy asked to go in

order

> > to keep this other boy company..... and to improve his math skills, of

> > course! It will take him 2 buses to get home and he's never done this

> > route before but I'm not worried. He might even pop into the mall and

> > check out the new video games on the way. He has his cell phone with him

> > and he'll call if there's any trouble.

> >

> > If you had asked me 5 years ago that my son would

> > be where he is today, I would have told you..... " only in my

> > dreams " .

> >

> > The key in the end was not to listen to the doctors

> > or anyone. When I followed what mainstream said, we just went

> > downhill further and further. When I began to research and fight back, he

> > thrived and blossomed. A few things were key: daily therapy to work

> > on processing, chelation, ridding the body of bacteria/yeast/viruses, diet

and

> > finally B12 shots. He tested positive for mold recently (the really BAD

> > kinds) and we are doing a trial of amphoceterin B to address this.

> >

> > The sky is the limit. Visualize your son as

> > being completely NT. Then inch by inch, step by step..... sometimes 2

> > steps forward and one step back into the dreaded recession, you heal the

body

> > and you work the mind..... it heals too!

> >

> > Actually, it was much easier to heal the mind then

> > the body. It was labour intensive and we did about 3 hours of home therapy

> > a day for about 2 years to achieve it but today, the mind is completely

healed

> > while we continue to work that pesky body. Did you know that you can

> > actually increase processing to bring a child who is considered MR to that

of

> > genius levels? It's amazingly tough to do but we came close. I

> > finally got tired of the work and stopped short of genius but today my boy

> > processes at a much higher level then myself. When we started at the age

> > of 11, he had the processing of a 5 year old so this made a HUGE difference

to

> > his life. Along with chelation (which improves processing too, imo),

> > working the brain daily and working the processing daily has been an

enormous

> > BIGGIE. And..... the great thing is, the results stick. We haven't

> > done any of those exercises for about 9 months now and every gain has

> > held. They were really booooooring, a pain in the rear..... I dreaded them

> > daily but did they ever work to change his abilities~!

> >

> > In all of this my son has developed this amazing

> > spirit. Today, he will admit to having some extreme depression as a

> > youngster (neurotransmittors were all messed up.... get good labs). He

> > learned how to look at failure in the face and to stare it down.

> > He learned how to overcome and that if you are persistant, you can do and be

> > anything. I never taught him this; survival did. He is a good kid

> > who has this amazing ability to 'read' people..... something he could never

> > really seem to do when he was little (I guess all of the bullying wised him

> > up!) Inside his somewhat laid-back, slightly ADD-like demeanor, is a young

> > man who is competent, capable and steady. I don't know how or really when

> > this happened. His childhood has been tough..... unbelievably tough.....it

> > was completely unfair.... but hopefully he'll take his lessons with him

> > through to adulthood. In truth, he has learned so much more about life

> > through this experience then others can possibly imagine; he is an extremely

> > evolved individual for having had this condition. I have met middle-aged

> > men who were not nearly as insightful nor as wise as my boy. In the end,

> > he is an absolute hero.

> >

> > Good luck and never count your kid out. He is

> > full of unlimited potential beyond what anyone says and what anyone knows.

Just

> > BELIEVE and push forward. Never stop.

> >

> > Janice

> > Mother of Mark, 14.5

> >

>

July 9, 2009

Hi,

Forgive me for being naive, but was is the ND approach? Is this similar to

neurofeedback?

Sandy

> > >

> > > Janice,

> > > I have read through all of these posts with great interest because we are

scheduled to attend a course at the Institute for Advancement of Human Potential

in Philadelphia and from what I understand the NACD is run by a family member

(brother or brother in law) of the gentleman who began the IAHP and the two

organizations have very similar programs.

> > >

> > > Our daughter is only 16 months old, but she is severely delayed (gross

motor skills are about 7 months and she is not talking yet, although she is very

verbal and playful). She also has mild Cerebral Palsy with general low tone in

her trunk and right side. I believe all of this stems from her circumstances in

the womb, where she was severely deprived of nutritional flow and oxygen due to

an extremely small and overly clotted placenta (which no one knew about till she

was born). I dont believe that she has any autistic issues, but it's hard to

tell because she is still so young and developmentally immature.

> > > She has PT and OT in the home through the local IEP and she also has

craniosacral therapy, has had 40 HBOT sessions, and is taking a whole host of

supplements to help her with brain growth.

> > >

> > > The book, What To Do About Your Brain Injured Child is the general

overview of how the Institute got its start and how they believe the brain works

and how their program is different from any other mainstream treatments. From

what I learned in the book, they strongly emphasize patterning, visual

stimulation (via flashcards, dots, and light therapy) and they also incorporate

specific diet and nutritional requirements.

> > >

> > > From what you described as far as the Daily Exercises and Lessons, that is

very similar to what the IAHP advocates, but since I have yet to actually take

the course and have our daughter assessed, I'm not very clear on what exactly

they will recommend for her. I do know they require that at least one parent is

home full-time to be accepted into their program (because it is so intensive).

They also require that we come back to the Institute every 6 months, for a

follow-up assessment and a new take-home program for continuing development.

> > >

> > > I just wanted to ask if you had knowledge of the IAHP, if the NACD

advocates them or if they are 'rival' schools of thought. Also, while your son

was undergoing his assessments, did you notice any infants participating in the

program?? It seems like much of the exercises require some participation from

the student and other than some interactive play, our daughter wont be able to

respond to questions or commands just yet.

> > >

> > > Also, if the NACD's program is very similar, it might be something for us

to investigate because traveling all the way to Philadelphia is a little bit

expensive for us (we live in Los Angeles) and if we are expected to check in

every 6 months, Utah might be a much easier trip to make.

> > >

> > > Thanks for any info, comments you have for me. I am going to keep your

name and contact info stashed in my 'file' if you don't mind, so that I can pick

your brain as we get further into this program.

> > >

> > > Margo~

> > >

> > > " be a worldchild, form a circle

> > > before we all go under "

> > >

> > > To: mb12 valtrex

> > > From: jscott@

> > > Date: Wed, 8 Jul 2009 10:01:38 -0600

> > > Subject: Re: Can nerves in the brain regrow?

> > >

> > > A little thought on this......

> > >

> > > When my son was 3, they didn't know much about his

> > > condition and the doctors told me that he would grow out of it. He

didn't,

> > > he just got worse and worse with time and grew 'into' it.

> > >

> > > When my son was 6, they diagnosed him as borderline

> > > mentally handicapped. Nothing was to be done. OT services were

> > > denied as he was deemed 'unresponsive' to therapy. (a cool way for the

> > > system to deny funding, imo)

> > >

> > > When my son was 9, he was considered a special

> > > education 'lifer' with not really much hope and I should consider what

would be

> > > done with him as he aged. (ie. group home anyone?) The school

> > > decided that he would no longer need testing to remain in the special

> > > programming. It was just a given that he would never leave.

> > >

> > > When my son was 11, I discovered neurodevelopmental

> > > therapy in the US ( http://www.nacd.org .....non profit and very

> > > reasonably priced btw) and flew him stateside for a program plan which we

did at

> > > home (we are from Canada) and special diets..... within 10 months, his

> > > processing was age appropriate and he was mainstreamed but still

noticeably

> > > 'affected'.

> > >

> > > When my son was 13, we started chelating and he

> > > started taking the public transit on his own, flew to California on his

own for

> > > an 'extreme' adventure camp 6 months after we started and his

relationships with

> > > his peers became completely normal. He has TONS of friends now and

> > > OMG.... the girls are liking him too! The only friends he could make

> > > before were other kids with issues. Today, he is considered the 'cool'

> > > geeky kid.... the athelete of the nerdy brainiacs! He now hangs out with

> > > the kids who are in the 'exceptions' program in his school which requires

> > > an IQ of 135 or more and is placed in their classes...... what a big

change from

> > > the low IQ kid he used to be. (he still sports a slight speech

> > > affectation but language is good) Chelation was a godsend and we are

still

> > > pulling mercury 1.5 years later.

> > >

> > > For me, the best thing about this was to see his

> > > personal happiness. I am rarely able to deny him a sleep over with 5-6

> > > fourteen year old boys tromping through my house. The other great thing

is

> > > the loss of that 'stare' that others give you when you go out. It's

funny,

> > > people looking and wondering, " What's wrong with THAT boy? " became part of

> > > my existance. (I wonder if they know how transparent they are when they

> > > think that?) I really only noticed it when we stopped getting the

> > > 'look'. I still have to pinch myself. In my mind I almost cannot

> > > believe that they can't still see 'it'. The 'it' that plagues my son's

> > > body is quietly disappearing now..... only other moms with affected kids

would

> > > really guess it. None of the mothers of my son's friends can tell that he

> > > has any type of condition and they know him well.

> > >

> > > When my son was 14, he was selected to go to France

> > > with a group of kids from school. It's a difficult application process

and

> > > while my boy's grades were not as good as the other applicants, he is just

so

> > > darn likeable that he made it into the group. (as a child, my boy got

> > > the crap beat out of him for being different.... today, he is

> > > loved by all and makes friends easily) He beat out 50 other

> > > kids.....all NT. The principal was a bit concerned about his

> > > organizational skills (or lack therof) for the trip but he's going next

> > > March!

> > >

> > > Today, my son is 14.5 and we started MB12 about 2

> > > months ago. I notice an enormous difference in his fine motor ability and

> > > his energy levels. We are still fighting to build muscle on his low toned

> > > body and it is coming..... with plenty of hard work. He has a 75% average

> > > and there is no question that he is University bound. He uses a lap-top

to

> > > write essay type exams but that is the only special accomodations he

> > > receives. All other exams are written manually. I am hoping that

> > > next year, he'll be able to eliminate this and that his writing speed will

be

> > > faster.

> > >

> > > I just dropped him off to summer school where he is

> > > taking a grade 9 math prep course. He's not going because he has to.

> > > He's going because his buddy's mom is making him and my boy asked to go in

order

> > > to keep this other boy company..... and to improve his math skills, of

> > > course! It will take him 2 buses to get home and he's never done this

> > > route before but I'm not worried. He might even pop into the mall and

> > > check out the new video games on the way. He has his cell phone with him

> > > and he'll call if there's any trouble.

> > >

> > > If you had asked me 5 years ago that my son would

> > > be where he is today, I would have told you..... " only in my

> > > dreams " .

> > >

> > > The key in the end was not to listen to the doctors

> > > or anyone. When I followed what mainstream said, we just went

> > > downhill further and further. When I began to research and fight back, he

> > > thrived and blossomed. A few things were key: daily therapy to work

> > > on processing, chelation, ridding the body of bacteria/yeast/viruses, diet

and

> > > finally B12 shots. He tested positive for mold recently (the really BAD

> > > kinds) and we are doing a trial of amphoceterin B to address this.

> > >

> > > The sky is the limit. Visualize your son as

> > > being completely NT. Then inch by inch, step by step..... sometimes 2

> > > steps forward and one step back into the dreaded recession, you heal the

body

> > > and you work the mind..... it heals too!

> > >

> > > Actually, it was much easier to heal the mind then

> > > the body. It was labour intensive and we did about 3 hours of home

therapy

> > > a day for about 2 years to achieve it but today, the mind is completely

healed

> > > while we continue to work that pesky body. Did you know that you can

> > > actually increase processing to bring a child who is considered MR to that

of

> > > genius levels? It's amazingly tough to do but we came close. I

> > > finally got tired of the work and stopped short of genius but today my boy

> > > processes at a much higher level then myself. When we started at the age

> > > of 11, he had the processing of a 5 year old so this made a HUGE

difference to

> > > his life. Along with chelation (which improves processing too, imo),

> > > working the brain daily and working the processing daily has been an

enormous

> > > BIGGIE. And..... the great thing is, the results stick. We haven't

> > > done any of those exercises for about 9 months now and every gain has

> > > held. They were really booooooring, a pain in the rear..... I dreaded

them

> > > daily but did they ever work to change his abilities~!

> > >

> > > In all of this my son has developed this amazing

> > > spirit. Today, he will admit to having some extreme depression as a

> > > youngster (neurotransmittors were all messed up.... get good labs). He

> > > learned how to look at failure in the face and to stare it down.

> > > He learned how to overcome and that if you are persistant, you can do and

be

> > > anything. I never taught him this; survival did. He is a good kid

> > > who has this amazing ability to 'read' people..... something he could

never

> > > really seem to do when he was little (I guess all of the bullying wised

him

> > > up!) Inside his somewhat laid-back, slightly ADD-like demeanor, is a

young

> > > man who is competent, capable and steady. I don't know how or really when

> > > this happened. His childhood has been tough..... unbelievably

tough.....it

> > > was completely unfair.... but hopefully he'll take his lessons with him

> > > through to adulthood. In truth, he has learned so much more about life

> > > through this experience then others can possibly imagine; he is an

extremely

> > > evolved individual for having had this condition. I have met middle-aged

> > > men who were not nearly as insightful nor as wise as my boy. In the end,

> > > he is an absolute hero.

> > >

> > > Good luck and never count your kid out. He is

> > > full of unlimited potential beyond what anyone says and what anyone knows.

Just

> > > BELIEVE and push forward. Never stop.

> > >

> > > Janice

> > > Mother of Mark, 14.5

> > >

> >

>

July 9, 2009

There are so many acronyms it's hard to keep track!

ND is the neurodevelopmental approach to autism and other disorders. It's based

on strengthening/healing the brain connections with various exercises.

Nanci

> > > >

> > > > Janice,

> > > > I have read through all of these posts with great interest because we

are scheduled to attend a course at the Institute for Advancement of Human

Potential in Philadelphia and from what I understand the NACD is run by a family

member (brother or brother in law) of the gentleman who began the IAHP and the

two organizations have very similar programs.

> > > >

> > > > Our daughter is only 16 months old, but she is severely delayed (gross

motor skills are about 7 months and she is not talking yet, although she is very

verbal and playful). She also has mild Cerebral Palsy with general low tone in

her trunk and right side. I believe all of this stems from her circumstances in

the womb, where she was severely deprived of nutritional flow and oxygen due to

an extremely small and overly clotted placenta (which no one knew about till she

was born). I dont believe that she has any autistic issues, but it's hard to

tell because she is still so young and developmentally immature.

> > > > She has PT and OT in the home through the local IEP and she also has

craniosacral therapy, has had 40 HBOT sessions, and is taking a whole host of

supplements to help her with brain growth.

> > > >

> > > > The book, What To Do About Your Brain Injured Child is the general

overview of how the Institute got its start and how they believe the brain works

and how their program is different from any other mainstream treatments. From

what I learned in the book, they strongly emphasize patterning, visual

stimulation (via flashcards, dots, and light therapy) and they also incorporate

specific diet and nutritional requirements.

> > > >

> > > > From what you described as far as the Daily Exercises and Lessons, that

is very similar to what the IAHP advocates, but since I have yet to actually

take the course and have our daughter assessed, I'm not very clear on what

exactly they will recommend for her. I do know they require that at least one

parent is home full-time to be accepted into their program (because it is so

intensive). They also require that we come back to the Institute every 6 months,

for a follow-up assessment and a new take-home program for continuing

development.

> > > >

> > > > I just wanted to ask if you had knowledge of the IAHP, if the NACD

advocates them or if they are 'rival' schools of thought. Also, while your son

was undergoing his assessments, did you notice any infants participating in the

program?? It seems like much of the exercises require some participation from

the student and other than some interactive play, our daughter wont be able to

respond to questions or commands just yet.

> > > >

> > > > Also, if the NACD's program is very similar, it might be something for

us to investigate because traveling all the way to Philadelphia is a little bit

expensive for us (we live in Los Angeles) and if we are expected to check in

every 6 months, Utah might be a much easier trip to make.

> > > >

> > > > Thanks for any info, comments you have for me. I am going to keep your

name and contact info stashed in my 'file' if you don't mind, so that I can pick

your brain as we get further into this program.

> > > >

> > > > Margo~

> > > >

> > > > " be a worldchild, form a circle

> > > > before we all go under "

> > > >

> > > > To: mb12 valtrex

> > > > From: jscott@

> > > > Date: Wed, 8 Jul 2009 10:01:38 -0600

> > > > Subject: Re: Can nerves in the brain regrow?

> > > >

> > > > A little thought on this......

> > > >

> > > > When my son was 3, they didn't know much about his

> > > > condition and the doctors told me that he would grow out of it. He

didn't,

> > > > he just got worse and worse with time and grew 'into' it.

> > > >

> > > > When my son was 6, they diagnosed him as borderline

> > > > mentally handicapped. Nothing was to be done. OT services were

> > > > denied as he was deemed 'unresponsive' to therapy. (a cool way for the

> > > > system to deny funding, imo)

> > > >

> > > > When my son was 9, he was considered a special

> > > > education 'lifer' with not really much hope and I should consider what

would be

> > > > done with him as he aged. (ie. group home anyone?) The school

> > > > decided that he would no longer need testing to remain in the special

> > > > programming. It was just a given that he would never leave.

> > > >

> > > > When my son was 11, I discovered neurodevelopmental

> > > > therapy in the US ( http://www.nacd.org .....non profit and very

> > > > reasonably priced btw) and flew him stateside for a program plan which

we did at

> > > > home (we are from Canada) and special diets..... within 10 months, his

> > > > processing was age appropriate and he was mainstreamed but still

noticeably

> > > > 'affected'.

> > > >

> > > > When my son was 13, we started chelating and he

> > > > started taking the public transit on his own, flew to California on his

own for

> > > > an 'extreme' adventure camp 6 months after we started and his

relationships with

> > > > his peers became completely normal. He has TONS of friends now and

> > > > OMG.... the girls are liking him too! The only friends he could make

> > > > before were other kids with issues. Today, he is considered the 'cool'

> > > > geeky kid.... the athelete of the nerdy brainiacs! He now hangs out

with

> > > > the kids who are in the 'exceptions' program in his school which

requires

> > > > an IQ of 135 or more and is placed in their classes...... what a big

change from

> > > > the low IQ kid he used to be. (he still sports a slight speech

> > > > affectation but language is good) Chelation was a godsend and we are

still

> > > > pulling mercury 1.5 years later.

> > > >

> > > > For me, the best thing about this was to see his

> > > > personal happiness. I am rarely able to deny him a sleep over with 5-6

> > > > fourteen year old boys tromping through my house. The other great thing

is

> > > > the loss of that 'stare' that others give you when you go out. It's

funny,

> > > > people looking and wondering, " What's wrong with THAT boy? " became part

of

> > > > my existance. (I wonder if they know how transparent they are when they

> > > > think that?) I really only noticed it when we stopped getting the

> > > > 'look'. I still have to pinch myself. In my mind I almost cannot

> > > > believe that they can't still see 'it'. The 'it' that plagues my son's

> > > > body is quietly disappearing now..... only other moms with affected kids

would

> > > > really guess it. None of the mothers of my son's friends can tell that

he

> > > > has any type of condition and they know him well.

> > > >

> > > > When my son was 14, he was selected to go to France

> > > > with a group of kids from school. It's a difficult application process

and

> > > > while my boy's grades were not as good as the other applicants, he is

just so

> > > > darn likeable that he made it into the group. (as a child, my boy got

> > > > the crap beat out of him for being different.... today, he is

> > > > loved by all and makes friends easily) He beat out 50 other

> > > > kids.....all NT. The principal was a bit concerned about his

> > > > organizational skills (or lack therof) for the trip but he's going next

> > > > March!

> > > >

> > > > Today, my son is 14.5 and we started MB12 about 2

> > > > months ago. I notice an enormous difference in his fine motor ability

and

> > > > his energy levels. We are still fighting to build muscle on his low

toned

> > > > body and it is coming..... with plenty of hard work. He has a 75%

average

> > > > and there is no question that he is University bound. He uses a lap-top

to

> > > > write essay type exams but that is the only special accomodations he

> > > > receives. All other exams are written manually. I am hoping that

> > > > next year, he'll be able to eliminate this and that his writing speed

will be

> > > > faster.

> > > >

> > > > I just dropped him off to summer school where he is

> > > > taking a grade 9 math prep course. He's not going because he has to.

> > > > He's going because his buddy's mom is making him and my boy asked to go

in order

> > > > to keep this other boy company..... and to improve his math skills, of

> > > > course! It will take him 2 buses to get home and he's never done this

> > > > route before but I'm not worried. He might even pop into the mall and

> > > > check out the new video games on the way. He has his cell phone with

him

> > > > and he'll call if there's any trouble.

> > > >

> > > > If you had asked me 5 years ago that my son would

> > > > be where he is today, I would have told you..... " only in my

> > > > dreams " .

> > > >

> > > > The key in the end was not to listen to the doctors

> > > > or anyone. When I followed what mainstream said, we just went

> > > > downhill further and further. When I began to research and fight back,

he

> > > > thrived and blossomed. A few things were key: daily therapy to work

> > > > on processing, chelation, ridding the body of bacteria/yeast/viruses,

diet and

> > > > finally B12 shots. He tested positive for mold recently (the really BAD

> > > > kinds) and we are doing a trial of amphoceterin B to address this.

> > > >

> > > > The sky is the limit. Visualize your son as

> > > > being completely NT. Then inch by inch, step by step..... sometimes 2

> > > > steps forward and one step back into the dreaded recession, you heal the

body

> > > > and you work the mind..... it heals too!

> > > >

> > > > Actually, it was much easier to heal the mind then

> > > > the body. It was labour intensive and we did about 3 hours of home

therapy

> > > > a day for about 2 years to achieve it but today, the mind is completely

healed

> > > > while we continue to work that pesky body. Did you know that you can

> > > > actually increase processing to bring a child who is considered MR to

that of

> > > > genius levels? It's amazingly tough to do but we came close. I

> > > > finally got tired of the work and stopped short of genius but today my

boy

> > > > processes at a much higher level then myself. When we started at the

age

> > > > of 11, he had the processing of a 5 year old so this made a HUGE

difference to

> > > > his life. Along with chelation (which improves processing too, imo),

> > > > working the brain daily and working the processing daily has been an

enormous

> > > > BIGGIE. And..... the great thing is, the results stick. We haven't

> > > > done any of those exercises for about 9 months now and every gain has

> > > > held. They were really booooooring, a pain in the rear..... I dreaded

them

> > > > daily but did they ever work to change his abilities~!

> > > >

> > > > In all of this my son has developed this amazing

> > > > spirit. Today, he will admit to having some extreme depression as a

> > > > youngster (neurotransmittors were all messed up.... get good labs). He

> > > > learned how to look at failure in the face and to stare it down.

> > > > He learned how to overcome and that if you are persistant, you can do

and be

> > > > anything. I never taught him this; survival did. He is a good kid

> > > > who has this amazing ability to 'read' people..... something he could

never

> > > > really seem to do when he was little (I guess all of the bullying wised

him

> > > > up!) Inside his somewhat laid-back, slightly ADD-like demeanor, is a

young

> > > > man who is competent, capable and steady. I don't know how or really

when

> > > > this happened. His childhood has been tough..... unbelievably

tough.....it

> > > > was completely unfair.... but hopefully he'll take his lessons with him

> > > > through to adulthood. In truth, he has learned so much more about life

> > > > through this experience then others can possibly imagine; he is an

extremely

> > > > evolved individual for having had this condition. I have met

middle-aged

> > > > men who were not nearly as insightful nor as wise as my boy. In the

end,

> > > > he is an absolute hero.

> > > >

> > > > Good luck and never count your kid out. He is

> > > > full of unlimited potential beyond what anyone says and what anyone

knows. Just

> > > > BELIEVE and push forward. Never stop.

> > > >

> > > > Janice

> > > > Mother of Mark, 14.5

> > > >

> > >

> >

>

July 9, 2009

THanks Heidi for your input, it helped me tremendously. We are currently

working to get their gut working but nothing we do is working. But, I am not

going to give up! Stories like yours and Janice's son will keep me fighting,

forever if I have to! Thanks so much for your comforting words. I needed to

hear that!

Rhonda

>

> Rhonda:

>

> My children also had Augmentin. They are recovered now. I felt the same

> worries -- is it possible? I think that it's difficult to see such strong

> symptoms and imagine they can go away. But, I am here to tell you, they

> can. I stock-piled treatments. In that I did it all at the same time, and

> still do. I do diets, enzyme, mop up toxins, do liver support, kill all

> pathogen types, etc. Thus, it's doing all of it together, at the same time,

> that got us results. Improvements could not be detected if I just did some

> things. I am also hear to tell you that ammonia is likely in all with

> autism. So, it's common in them already. We used l-citrulline for ammonia

> with great results.

>

> Love and prayers,

>

> Heidi N

>

> > I saw a post on another board, then read the paper for myself that

> Augmentin has been implicated in some cases of Autism. I was interested

because

> this is exactly the reason I lost my 4 year old son. He regressed completely

> while on Augmentin for an ear infection. The cause of the Autism from the

> Augmentin producing high amounts of ammonia/urea. It affects the Small

> Intestine, Brain and nervous tissue. Both my boys have ALL of that! My

question

> is can they still be recovered depending on the amount of damage done to

> the brain or are they autistic forever? I wondered why my 4 year old seemed

> like a non-responder to most interventions I have tried. Maybe he's just

> too brain damaged. I am feeling very sick to my stomach right now, like I did

> when I found out about the Autism in the first place! A very sad mommy in

> Oklahoma

> >

> > Rhonda Masengale

>

> **************Looking for love this summer? Find it now on AOL Personals.

> (http://personals.aol.com/?ncid=emlcntuslove00000003)

>

July 9, 2009

when is the course in Phili?LuzJanice,I have read through all of these posts with great interest because we are scheduled to attend a course at the Institute for Advancement of Human Potential in Philadelphia and from what I understand the NACD is run by a family member (brother or brother in law) of the gentleman who began the IAHP and the two organizations have very similar programs. Our daughter is only 16 months old, but she is severely delayed (gross motor skills are about 7 months and she is not talking yet, although she is very verbal and playful). She also has mild Cerebral Palsy with general low tone in her trunk and right side. I believe all of this stems from her circumstances in the womb, where she was severely deprived of nutritional flow and oxygen due to an extremely small and overly clotted placenta (which no one knew about till she was born). I dont believe that she has any autistic issues, but it's hard to tell because she is still so young and developmentally! immature. She has PT and OT in the home through the local IEP and she also has craniosacral therapy, has had 40 HBOT sessions, and is taking a whole host of supplements to help her with brain growth.The book, What To Do About Your Brain Injured Child is the general overview of how the Institute got its start and how they believe the brain works and how their program is different from any other mainstream treatments. From what I learned in the book, they strongly emphasize patterning, visual stimulation (via flashcards, dots, and light therapy) and they also incorporate specific diet and nutritional requirements. From what you described as far as the Daily Exercises and Lessons, that is very similar to what the IAHP advocates, but since I have yet to actually take the course and have our daughter assessed, I'm not very clear on what exactly they will recommend for her. I do know they require that at least one parent is home full-tim! e to be accepted into their program (because it is so intensive). They also require that we come back to the Institute every 6 months, for a follow-up assessment and a new take-home program for continuing development.I just wanted to ask if you had knowledge of the IAHP, if the NACD advocates them or if they are 'rival' schools of thought. Also, while your son was undergoing his assessments, did you notice any infants participating in the program?? It seems like much of the exercises require some participation from the student and other than some interactive play, our daughter wont be able to respond to questions or commands just yet.Also, if the NACD's program is very similar, it might be something for us to investigate because traveling all the way to Philadelphia is a little bit expensive for us (we live in Los Angeles) and if we are expected to check in every 6 months, Utah might be a much easier trip to make. Thanks for any info, comments you! have for me. I am going to keep your name and contact info stashed in my 'file' if you don't mind, so that I can pick your brain as we get further into this program.Margo~"be a worldchild, form a circle before we all go under"To: mb12 valtrex From: jscottinterbaunDate: Wed, 8 Jul 2009 10:01:38 -0600Subject: Re: Can nerves in the brain regrow?A little thought on this...... When my son was 3, they didn't know much about his condition and the doctors told me that he would grow out of it. He didn't, he just got worse and worse with time and grew 'into' it. When my son was 6, they diagnosed him as borderline mentally handicapped. Nothing was to be done. OT services were denied as he was deemed 'unresponsive' to therapy. (a cool way for the system to deny funding, imo) When my son was 9, he was considered a special education 'lifer' with not really much hope and I should consider what would be done with him as he aged. (ie. group home anyone?) The school decided that he would no longer need testing to remain in the special programming. It was just a given that he would never leave. When my son was 11, I discovered neurodevelopmental therapy in the US ( http://www.nacd.org .....non profit and very reasonably priced btw) and flew him stateside for a program plan which we did at home (we are from Canada) and special diets..... within 10 months, his processing was age appropriate and he was mainstreamed but still noticeably 'affected'. When my son was 13, we started chelating and he started taking the public transit on his own, flew to California on his own for an 'extreme' adventure camp 6 months after we started and his relationships with his peers became completely normal. He has TONS of friends now and OMG.... the girls are liking him too! The only friends he could make before were other kids with issues. Today, he is considered the 'cool' geeky kid.... the athelete of the nerdy brainiacs! He now hangs out with the kids who are in the 'exceptions' program in his school which requires an IQ of 135 or more and is placed in their classes...... what a big change from the low IQ kid he used to be. (he still sports a slight speech affectation but language is good) Chelation was a godsend and we are still pulling mercury 1.5 years later. For me, the best thing about this was to see his personal happiness. I am rarely able to deny him a sleep over with 5-6 fourteen year old boys tromping through my house. The other great thing is the loss of that 'stare' that others give you when you go out. It's funny, people looking and wondering, "What's wrong with THAT boy?" became part of my existance. (I wonder if they know how transparent they are when they think that?) I really only noticed it when we stopped getting the 'look'. I still have to pinch myself. In my mind I almost cannot believe that they can't still see 'it'. The 'it' that plagues my son's body is quietly disappearing now..... only other moms with affected kids would really guess it. None of the mothers of my son's friends can tell that he has any type of condition and they know him well. When my son was 14, he was selected to go to France with a group of kids from school. It's a difficult application process and while my boy's grades were not as good as the other applicants, he is just so darn likeable that he made it into the group. (as a child, my boy got the crap beat out of him for being different.... today, he is loved by all and makes friends easily) He beat out 50 other kids.....all NT. The principal was a bit concerned about his organizational skills (or lack therof) for the trip but he's going next March! Today, my son is 14.5 and we started MB12 about 2 months ago. I notice an enormous difference in his fine motor ability and his energy levels. We are still fighting to build muscle on his low toned body and it is coming..... with plenty of hard work. He has a 75% average and there is no question that he is University bound. He uses a lap-top to write essay type exams but that is the only special accomodations he receives. All other exams are written manually. I am hoping that next year, he'll be able to eliminate this and that his writing speed will be faster. I just dropped him off to summer school where he is taking a grade 9 math prep course. He's not going because he has to. He's going because his buddy's mom is making him and my boy asked to go in order to keep this other boy company..... and to improve his math skills, of course! It will take him 2 buses to get home and he's never done this route before but I'm not worried. He might even pop into the mall and check out the new video games on the way. He has his cell phone with him and he'll call if there's any trouble. If you had asked me 5 years ago that my son would be where he is today, I would have told you..... "only in my dreams". The key in the end was not to listen to the doctors or anyone. When I followed what mainstream said, we just went downhill further and further. When I began to research and fight back, he thrived and blossomed. A few things were key: daily therapy to work on processing, chelation, ridding the body of bacteria/yeast/viruses, diet and finally B12 shots. He tested positive for mold recently (the really BAD kinds) and we are doing a trial of amphoceterin B to address this. The sky is the limit. Visualize your son as being completely NT. Then inch by inch, step by step..... sometimes 2 steps forward and one step back into the dreaded recession, you heal the body and you work the mind..... it heals too! Actually, it was much easier to heal the mind then the body. It was labour intensive and we did about 3 hours of home therapy a day for about 2 years to achieve it but today, the mind is completely healed while we continue to work that pesky body. Did you know that you can actually increase processing to bring a child who is considered MR to that of genius levels? It's amazingly tough to do but we came close. I finally got tired of the work and stopped short of genius but today my boy processes at a much higher level then myself. When we started at the age of 11, he had the processing of a 5 year old so this made a HUGE difference to his life. Along with chelation (which improves processing too, imo), working the brain daily and working the processing daily has been an enormous BIGGIE. And..... the great thing is, the results stick. We haven't done any of those exercises for about 9 months now and every gain has held. They were really booooooring, a pain in the rear..... I dreaded them daily but did they ever work to change his abilities~! In all of this my son has developed this amazing spirit. Today, he will admit to having some extreme depression as a youngster (neurotransmittors were all messed up.... get good labs). He learned how to look at failure in the face and to stare it down. He learned how to overcome and that if you are persistant, you can do and be anything. I never taught him this; survival did. He is a good kid who has this amazing ability to 'read' people..... something he could never really seem to do when he was little (I guess all of the bullying wised him up!) Inside his somewhat laid-back, slightly ADD-like demeanor, is a young man who is competent, capable and steady. I don't know how or really when this happened. His childhood has been tough..... unbelievably tough.....it was completely unfair.... but hopefully he'll take his lessons with him through to adulthood. In truth, he has learned so much more about life through this experience then others can possibly imagine; he is an extremely evolved individual for having had this condition. I have met middle-aged men who were not nearly as insightful nor as wise as my boy. In the end, he is an absolute hero. Good luck and never count your kid out. He is full of unlimited potential beyond what anyone says and what anyone knows. Just BELIEVE and push forward. Never stop. JaniceMother of Mark, 14.5

July 9, 2009

Luz,the course is the last week in September. They offer it four times a year in Philadelphia (the only US class offered) and then they offer it at other locations around the world. At this point I have decided that we are going to to the NACD course instead of the IAHP primarily because the NACD has a location in L.A. and we can do the quarterly assessments without having to pay for airfare and hotel every time we go back.Here is the link, though if you are interested in the IAHP. http://www.iahp.org/

M~"be a worldchild, form a circle before we all go under"To: mb12 valtrex From: zabin.luzed@...Date: Thu, 9 Jul 2009 23:01:32 -0400Subject: Re: Re: Can nerves in the brain regrow?

when is the course in Phili?LuzJanice,I have read through all of these posts with great interest because we are scheduled to attend a course at the Institute for Advancement of Human Potential in Philadelphia and from what I understand the NACD is run by a family member (brother or brother in law) of the gentleman who began the IAHP and the two organizations have very similar programs. Our daughter is only 16 months old, but she is severely delayed (gross motor skills are about 7 months and she is not talking yet, although she is very verbal and playful). She also has mild Cerebral Palsy with general low tone in her trunk and right side. I believe all of this stems from her circumstances in the womb, where she was severely deprived of nutritional flow and oxygen due to an extremely small and overly clotted placenta (which no one knew about till she was born). I dont believe that she has any autistic issues, but it's hard to tell because she is still so young and developmentally! immature. She has PT and OT in the home through the local IEP and she also has craniosacral therapy, has had 40 HBOT sessions, and is taking a whole host of supplements to help her with brain growth.The book, What To Do About Your Brain Injured Child is the general overview of how the Institute got its start and how they believe the brain works and how their program is different from any other mainstream treatments. From what I learned in the book, they strongly emphasize patterning, visual stimulation (via flashcards, dots, and light therapy) and they also incorporate specific diet and nutritional requirements. From what you described as far as the Daily Exercises and Lessons, that is very similar to what the IAHP advocates, but since I have yet to actually take the course and have our daughter assessed, I'm not very clear on what exactly they will recommend for her. I do know they require that at least one parent is home full-tim! e to be accepted into their program (because it is so intensive). They also require that we come back to the Institute every 6 months, for a follow-up assessment and a new take-home program for continuing development.I just wanted to ask if you had knowledge of the IAHP, if the NACD advocates them or if they are 'rival' schools of thought. Also, while your son was undergoing his assessments, did you notice any infants participating in the program?? It seems like much of the exercises require some participation from the student and other than some interactive play, our daughter wont be able to respond to questions or commands just yet.Also, if the NACD's program is very similar, it might be something for us to investigate because traveling all the way to Philadelphia is a little bit expensive for us (we live in Los Angeles) and if we are expected to check in every 6 months, Utah might be a much easier trip to make. Thanks for any info, comments you! have for me. I am going to keep your name and contact info stashed in my 'file' if you don't mind, so that I can pick your brain as we get further into this program.Margo~"be a worldchild, form a circle before we all go under"To: mb12 valtrex From: jscottinterbaunDate: Wed, 8 Jul 2009 10:01:38 -0600Subject: Re: Can nerves in the brain regrow?A little thought on this...... When my son was 3, they didn't know much about his condition and the doctors told me that he would grow out of it. He didn't, he just got worse and worse with time and grew 'into' it. When my son was 6, they diagnosed him as borderline mentally handicapped. Nothing was to be done. OT services were denied as he was deemed 'unresponsive' to therapy. (a cool way for the system to deny funding, imo) When my son was 9, he was considered a special education 'lifer' with not really much hope and I should consider what would be done with him as he aged. (ie. group home anyone?) The school decided that he would no longer need testing to remain in the special programming. It was just a given that he would never leave. When my son was 11, I discovered neurodevelopmental therapy in the US ( http://www.nacd.org .....non profit and very reasonably priced btw) and flew him stateside for a program plan which we did at home (we are from Canada) and special diets..... within 10 months, his processing was age appropriate and he was mainstreamed but still noticeably 'affected'. When my son was 13, we started chelating and he started taking the public transit on his own, flew to California on his own for an 'extreme' adventure camp 6 months after we started and his relationships with his peers became completely normal. He has TONS of friends now and OMG.... the girls are liking him too! The only friends he could make before were other kids with issues. Today, he is considered the 'cool' geeky kid.... the athelete of the nerdy brainiacs! He now hangs out with the kids who are in the 'exceptions' program in his school which requires an IQ of 135 or more and is placed in their classes...... what a big change from the low IQ kid he used to be. (he still sports a slight speech affectation but language is good) Chelation was a godsend and we are still pulling mercury 1.5 years later. For me, the best thing about this was to see his personal happiness. I am rarely able to deny him a sleep over with 5-6 fourteen year old boys tromping through my house. The other great thing is the loss of that 'stare' that others give you when you go out. It's funny, people looking and wondering, "What's wrong with THAT boy?" became part of my existance. (I wonder if they know how transparent they are when they think that?) I really only noticed it when we stopped getting the 'look'. I still have to pinch myself. In my mind I almost cannot believe that they can't still see 'it'. The 'it' that plagues my son's body is quietly disappearing now..... only other moms with affected kids would really guess it. None of the mothers of my son's friends can tell that he has any type of condition and they know him well. When my son was 14, he was selected to go to France with a group of kids from school. It's a difficult application process and while my boy's grades were not as good as the other applicants, he is just so darn likeable that he made it into the group. (as a child, my boy got the crap beat out of him for being different.... today, he is loved by all and makes friends easily) He beat out 50 other kids.....all NT. The principal was a bit concerned about his organizational skills (or lack therof) for the trip but he's going next March! Today, my son is 14.5 and we started MB12 about 2 months ago. I notice an enormous difference in his fine motor ability and his energy levels. We are still fighting to build muscle on his low toned body and it is coming..... with plenty of hard work. He has a 75% average and there is no question that he is University bound. He uses a lap-top to write essay type exams but that is the only special accomodations he receives. All other exams are written manually. I am hoping that next year, he'll be able to eliminate this and that his writing speed will be faster. I just dropped him off to summer school where he is taking a grade 9 math prep course. He's not going because he has to. He's going because his buddy's mom is making him and my boy asked to go in order to keep this other boy company..... and to improve his math skills, of course! It will take him 2 buses to get home and he's never done this route before but I'm not worried. He might even pop into the mall and check out the new video games on the way. He has his cell phone with him and he'll call if there's any trouble. If you had asked me 5 years ago that my son would be where he is today, I would have told you..... "only in my dreams". The key in the end was not to listen to the doctors or anyone. When I followed what mainstream said, we just went downhill further and further. When I began to research and fight back, he thrived and blossomed. A few things were key: daily therapy to work on processing, chelation, ridding the body of bacteria/yeast/viruses, diet and finally B12 shots. He tested positive for mold recently (the really BAD kinds) and we are doing a trial of amphoceterin B to address this. The sky is the limit. Visualize your son as being completely NT. Then inch by inch, step by step..... sometimes 2 steps forward and one step back into the dreaded recession, you heal the body and you work the mind..... it heals too! Actually, it was much easier to heal the mind then the body. It was labour intensive and we did about 3 hours of home therapy a day for about 2 years to achieve it but today, the mind is completely healed while we continue to work that pesky body. Did you know that you can actually increase processing to bring a child who is considered MR to that of genius levels? It's amazingly tough to do but we came close. I finally got tired of the work and stopped short of genius but today my boy processes at a much higher level then myself. When we started at the age of 11, he had the processing of a 5 year old so this made a HUGE difference to his life. Along with chelation (which improves processing too, imo), working the brain daily and working the processing daily has been an enormous BIGGIE. And..... the great thing is, the results stick. We haven't done any of those exercises for about 9 months now and every gain has held. They were really booooooring, a pain in the rear..... I dreaded them daily but did they ever work to change his abilities~! In all of this my son has developed this amazing spirit. Today, he will admit to having some extreme depression as a youngster (neurotransmittors were all messed up.... get good labs). He learned how to look at failure in the face and to stare it down. He learned how to overcome and that if you are persistant, you can do and be anything. I never taught him this; survival did. He is a good kid who has this amazing ability to 'read' people..... something he could never really seem to do when he was little (I guess all of the bullying wised him up!) Inside his somewhat laid-back, slightly ADD-like demeanor, is a young man who is competent, capable and steady. I don't know how or really when this happened. His childhood has been tough..... unbelievably tough.....it was completely unfair.... but hopefully he'll take his lessons with him through to adulthood. In truth, he has learned so much more about life through this experience then others can possibly imagine; he is an extremely evolved individual for having had this condition. I have met middle-aged men who were not nearly as insightful nor as wise as my boy. In the end, he is an absolute hero. Good luck and never count your kid out. He is full of unlimited potential beyond what anyone says and what anyone knows. Just BELIEVE and push forward. Never stop. JaniceMother of Mark, 14.5

July 10, 2009

Ours was Augmentin too, at 6 months old. I still can't believe I let him take it. After 24 hours, he had over 25 bowel movements. It literally took all of the skin off of his bottom. How do you test for high ammonia? I am getting ready to pull titers and would like to do all bloodwork at the same time.Thanks,Cam PearsonTo: mb12 valtrex From: rhondamasengale@...Date: Fri, 10 Jul 2009 01:45:03 +0000Subject: Re: Can nerves in the brain regrow?

Hi -

That is our story, too. He was on Augmentin the week before his second birthday and we lost him completely the therapists he was getting worse, but they didn't believe me! That next week, we went in and we got his two year shots. Boy, was that stupid! I wish I had listened when people told me not to do that! Now I'm the one telling everyone I know with newborns about our experiences and they just think I'm nuts! Hopefully, someday, I hope they will get to see the fruits of our hard work. Thank you for sharing your experience with me. It made me feel lots better!

Rhonda

>

> ----- Original Message -----

> From: Ambitionn01@...

>

> ===>Ours also had Augmentin, was on it when she received one of her vaccinations, geesh if that's not a bad idea I don't know what is. But she recovered, fully. In third grade with no special accommodations ever. Does age appropriate or above work, extremely verbal and social. No difference between her and other children her age. They can recover!

>

> Rhonda:

>

> My children also had Augmentin. They are recovered now. I felt the same worries -- is it possible? I think that it's difficult to see such strong symptoms and imagine they can go away. But, I am here to tell you, they can. I stock-piled treatments. In that I did it all at the same time, and still do. I do diets, enzyme, mop up toxins, do liver support, kill all pathogen types, etc. Thus, it's doing all of it together, at the same time, that got us results. Improvements could not be detected if I just did some things. I am also hear to tell you that ammonia is likely in all with autism. So, it's common in them already. We used l-citrulline for ammonia with great results.

>

> Love and prayers,

>

> Heidi N

>

> > I saw a post on another board, then read the paper for myself that Augmentin has been implicated in some cases of Autism. I was interested because this is exactly the reason I lost my 4 year old son. He regressed completely while on Augmentin for an ear infection. The cause of the Autism from the Augmentin producing high amounts of ammonia/urea. It affects the Small Intestine, Brain and nervous tissue. Both my boys have ALL of that! My question is can they still be recovered depending on the amount of damage done to the brain or are they autistic forever? I wondered why my 4 year old seemed like a non-responder to most interventions I have tried. Maybe he's just too brain damaged. I am feeling very sick to my stomach right now, like I did when I found out about the Autism in the first place! A very sad mommy in Oklahoma

> >

> > Rhonda Masengale

>

> ----------------------------------------------------------

> Looking for love this summer? Find it now on AOL Personals.

>

Windows Live™ Photos: it's easy to store and manage your photos online. See how.

July 10, 2009

>

> I saw a post on another board, then read the paper for myself that Augmentin

has been implicated in some cases of Autism. I was interested because this is

exactly the reason I lost my 4 year old son. He regressed completely while on

Augmentin for an ear infection. The cause of the Autism from the Augmentin

producing high amounts of ammonia/urea. It affects the Small Intestine, Brain

and nervous tissue. Both my boys have ALL of that! My question is

> can they still be recovered depending on the amount of damage done > to the

brain or are they autistic forever?

Hi, Rhonda.

I have no idea if this would be helpful or appropriate, but I recall from my

days as a health food store owner that there was an herb which purportedly was

capable of rejuvenating or regenerating brain cells - " Fo-Ti-Tieng " .

Bob

Heavenly Heat Saunas

>

> Rhonda Masengale

>

July 10, 2009

Janice- We do son rise at home with an emphasis on the social (their forte), and I'm aching for more structured work...Could you tell me more about the nacd exercises, evaluation etc. Our 10 yr old girl knows her mind and what she loves, but cannot communicate it well yet-- very limited language and auditory processing issues. We have been in touch with Milena and doing some detox in this order-chelation, viral/bacterial/fungal issues and then evaluate for the helpers like HBOT. I don't mind booooring work if I know what I'm doing. Is it ok to call you??Thanks so much,LuzI am forwarding this note to the board since I think that it would help many of you get an understanding of what sequential processing is and it's relationship to function, speech and language for our kids..... Tomatis works auditory tonal processig and we did this step too using a home based program called "The Listening Program". Auditory tonal processing helps the child acurately interpret the sounds coming into his ear and helps to strengthen this neuronal pathway. It is important. But it doesn't help sequential processing or the ability to "remember". Okay.... so let me give my little lecture on processing to try to help you to understand how it works. Like all of this stuff, it's easier to understand when you're looking at it from the rear view mirror and you've left it behind! Oh joy, right? We think in bits, just like a computer. The more 'bits' we can take in and hold in our mind at once, the more information we absorb and utilize. So, if we can only hold a small 'bit' of information in our mind, we will be unable to understand or process what is going on around us. But if we work our memory and our ability to hold more and more 'bits' at once, we can process more of our environment and 'collect' information about the world around us. There are two methods by which most of the information is collected in our brain: through our eyes and through our ears. I believe that it is estimated that 80% of the kids with issues struggle with severe auditory processing problems. They are not properly taking in information with their ears, holding it to 'remember' what is said or to know what to do or to even process high enough to enable speech. Same thing with the eyes. We must be able to 'recognize' and remember what we have seen in order to progress. If we have issues in taking information through both our visual processes AND our auditory processes, then you will definately see a child who will get the diagnosis of severe MR. They are unable to take information in, store it, and remember it long enough to produce an adequate response. Every response will be a reaction to the moment rather then a stored memory of events. Did this make any sense? Because my son was verbal and because he was older, we were able to use digit spans to increase his processing. So, let me introduce you to how digit spans work. When they measure processing during IQ testing in grade school, the process is a very easy one. They basically give your child a random set of numbers to remember, either visually or verbally. The number of individual 'digits' the child remembers is a measure of their digit span. So..... 8 3 1 0 6 2 4 7 Most grown adults have a minimum digit span of 7; that is they can remember 7 digits (a telephone number) for easy recall, either verbally or visually. If you have a digit span of 8.... you've got enough to go to college (that's what I am). If you've got a digit span of 9, then you're probably doing extremely well at school. If you've got a digit span of 10 (Mark has this now)..... then learning will come easy to you. If you've got a digit span of 12 or more, then you're a genius and are really able to think outside the box. Doing auditory reverse digit spans (the child has to give the digit spans back to you in reverse order) is a measurement of working memory. We need a base level of auditory processing to obtain speech. The rule of thumb is as follows: a normally developing child gets increases one digit every year of life up until the age of 7. So a one year old will have a digit span of 1. He generally verbalizes in single words. NO! Mamma, Dada, juice, etc. A two year old gets another digit and his language increases.... they begin to speak in couplets... want juice, no mommy, bad doggy. A three year old gets another digit and learns defiance! At NACD, they call this the "knock'em, block'em threes" because any child processing at this level despite their chronological age completely RESISTS therapy and it's probably the toughest stage to work with.....resulting in a lot of tearful moms! At this level, the child still speaks in couplets with the odd phrase thrown in. At a digit span of 4, the child can generally speak in phrases. At a digit span of 5 and there are disjointed attempts at sentences. This was where we started at the age of 11. Because Mark's very low tone, part of his problem was also an oral motor issue and thus everyone confused his poor articulation and his poor language as one entitity. It wasn't. They were very separate entities and require very separate treatment to get whole speech. If you have a child who processes well but still cannot speak, then you need to address the low muscle tone and overall coordination of the mouth, tonge, vellum, throat and air flow. Often, poor auditory sequential processing is mistaken for ADD because the result is the same.... an inability to attend and to follow instructions. When we got Mark up to a digit span of 6, his sentences became smoother. He stopped saying "What?" "HUH?" all of the time and could follow longer instructions. When we got him up to a digit span of 7, he started to be able to tell stories and his dry wit slowly began to emerge. This was very cool. Hidden away in my child was an awesome sense of humour that I didn't get to see until he was 12! A digit span of 8 produced an even keener wit. A digit span of 9 and 10 helped with function and grades and overall ability to compensate for his physical lack. Mark needs higher processing to be at the same level as other kids I think. His physical body is a major issue for him; poor muscle tone throughout, poor visual motor skills, poor hand coordination that really still does plague him..... but he compensates with his ability to think his way through situations now. He's smarter then the others now and can strategize his way through most problems that his body might give him. So.... after we got a digit span of 8..... we had normal language fluency but TERRIBLE articulation. He still spoke as though he had a mouthful of marbles. We did about a year of oral motor therapy after that and today it is much, much better..... well, it's not perfect but who cares? After we got the language from increased processing, no one has really cared about his articulation. It presents itself as a minor affectation of speech. Slowly it fades. For a long time, it got worse with dietary infractions and this made a big difference to the 'slushy' sound. I tend to use Mark as a poison control barometer. Speech sounds like slush after eating..... hmmmmm..... must be poison in it! Sure enough, look to the item and there is some type of weird chemical every single time. High Fructose Corn syrup and MSG are the two WORST items for clear speech, imo. We don't need 'special' diets anymore but continue to fight high bacteria levels from a biomedical standpoint. Thus we continue to work the labs. So, what do the gang do for the kids who have no words? Well, I don't know the complete program because we started late in the game. But I do know that they begin with one step commands and LOTS of them..... They give a lot of simple 'command' type of exercises designed to increase memory. They make you do these types of exercises as often as possible with the child. Another item I should mention..... While Mark's auditory processing was functioning at the 5 year old level at age 11..... everything about him was 5 years old. He played better with the little kids, he spoke like a 5 year old, he followed instructions like a 5 year old and really did have the maturity of a 5 year old. As his processing was increased, so did his maturity. There was always a gap between attaining the new digit span level and this translating into skill. This is because a new wealth of knowledge becomes assimilated and that utilized over time..... takes about a month or two to see the benefits begin to emerge. Our blessing. Our blessing was that while Marks ears were basically shot..... he had been compensating visually all along. The poor kid was using everything he could gleen from his environment to try to cope in this world of ours. This is pretty COMMON amongst our kids. They have hyper-peripheral vision which enables them to decode words easily and so you should work reading skills with your children even if they are non verbal. It is another method NaCD uses to teach some older non-verbal kids to speak. I digress.... Thus, while eye contact was the pits, while his visual motor systems were atrocious, his visual memory was AMAAAAAAZING! He started out with NACD with a visual digit span of 9. This was and remains his gift. We increased his visual processing to a 10 and left it there. NOW..... mainstream folks called him hyperlexic because he could read and decode material at a very young age. When we caught up his auditory processing (reading comprehension is an auditory skill)..... they said that his hyperlexia had 'resolved' itself. (yeah, right! They don't know how much work I did!) At the end of grade 6, Mark tested out at the college level of reading comprehension....and thus was considered 'gifted'. Remember, hidden amongst the trauma of our children is a gift or two so keep an eye out for it so you can help them use it to their best advantage. As we worked auditory skills, I never prepared Mark orally for tests at school..... everything was written work and he retained it like CRAZY! He is also a very good writer due to the many books he read..... this gift has only begun to emerge in the last year. So.... that is my last little 'processing' lecture for today. I hope some may benefit from this and that it provides a missing piece of the puzzle. It was a HUGE piece of our puzzle. Below, I have cut and paste a story Mark wrote this past year at school in grade 8. He received no assistance from me in this story.... it's all him. Remember, this child had an IQ of about 77 in grade 2 and was considered mentally handicapped. They didn't even want to let him into the regular special ed program. I had to fight tooth and nail to get him in THAT (almost had to pull a Sally Field re Forest Gump!). If he can overcome, any child can overcome. At the age of 11, he couldn't string a sentence together. Who says that older children can't beat the odds? They can! JaniceMother of Mark, 14 The Lockout It was winter time again, but it had snowed harder than any winter before. There was so much snow that my school looked as white as a cloud. I went into school and everyone was dressed in heavy parkas and wore their scarves wrapped tightly around their necks. I was opening my locker when my friend came up to me and asked, “Don’t you think this is Edmonton’s worst blizzard ever, Jake?” “Yeah, my bus ride took about an hour,” I agreed. My first three periods seemed to pass by in minutes. At lunch , Max and Connor suggested we have a huge snowball fight. It felt colder than dry ice, but since I was wearing my jacket, mitts, and everything else, I decided to stay out and play. It was a lively game, with Max and I fighting against and Connor. quickly constructed a gigantic mound of glistening white snowballs and passed them to Connor who tried to pound us with them. Max and I made small lightly packed snowballs and threw them alone. At first, and Connor’s strategy was beating ours as the large snowballs pounded us severely. I thought I saw an opening to hit , so I ran swiftly, trying to catch him off guard. Suddenly, turned towards me laughing and Max commanded in the background: “Jake, look out!” I looked behind me and there was Connor armed with an enormous pile of snow. He threw it and the watery mixture hit my face. It was so cold that I shivered violently. As the icy droplets from the huge slush ball slid down my neck, I suddenly wanted vengeance. Connor skulked towards Max to pelt him with his small gleaming weapon. He chucked it, but Max dodged swiftly and countered with the snowball he was holding in his hand. He slammed it against Connor with a big splash. was left defenseless when Connor tried, but failed miserably, to hit Max. It gave me an opening to strike with my three weapons of tightly packed snow. Before I could attack, , with frosty white hair peaking out of his cap and shivering blue lips yelled, “I surrender!” Looking like frosty snowmen ourselves, everyone decided to go back inside, so we went towards the heavy door. I tried to open it, but it was frozen shut and we could see ice encrusting the hinges. “Let’s try the other doors. They’re probably open,” Max said optimistically. We tried every single door but they were all either locked or frozen shut. was the first one to panic, screaming, “We are doomed! Tomorrow our bodies will be on the news, and some bald headed newscaster will be talking about our dead frozen corpses!” Thinking intelligently, Connor suggested, “Do any of you take the bus home from school?” <clip_image002.jpg>Everyone said no, but right then, I remembered my cell phone in my pocket, so I took it out, but its batteries had died and you could see its metal covered with small white particles from the blistering cold. “The ETS doesn’t look like its running. We’re going to die out here!” cried. Just then Max collapsed in the snow, seeming not to breathe at all. “Max, are you all right? Max, Max!” screamed. Max remained motionless. I suddenly had had enough. I ran and found a heavy piece of ice and threw it at the school window. It broke, and I was just barely tall enough to climb through the shattered casement. “, Connor, please help me carry Max into the school!” and Connor tried but didn’t seem to be strong enough to bring Max in. Suddenly Max spoke very faintly and whispered, “Guys, its okay. You go in, it’s okay.” found enough strength to lift Max up and he shoved him in through the window. He and Connor climbed in, embracing the warmth. was right --- we did get to go on the news, not as fatalities but as four survivors who worked together to overcome the odds.

July 10, 2009

Does it matter? My son had an episode of post-vax brain swelling.

Does that mean I don't try? No.

The interventions are making him healthier.

CGF

>

> >

> > ...My question is can they still be recovered depending on the amount of

damage done to the brain or are they autistic forever? ...

July 10, 2009

I called NACD yesterday, based on Janice's posts, and my son will be evaluated on Aug. 1 in St. Louis (we live in Madison, WI) so that is a 6 hr drive. I want to get started on the program ASAP. (The eval in Milwaukee in two weeks is full.)

I think this will be just the ticket for (my son) because we have done many of the biomedical procedures/supplements but his brain functioning still is quite sluggish. He seems to have memory and cognitive problems and it hurts his confidence hugely. In other areas--depression, OCD, mood--he has improved a lot. His is now 19 and just graduated from high school.

The application was interesting--in addition to personal info, they also ask about food cravings, how much exercise, special diets, supplements they are taking, etc. as if they are very aware of the whole biomedical protocol and how it relates to brain functioning.

I am very grateful for Janice's posts. I had never heard of this place.

This has really made my whole year!

Sally

To: mb12 valtrex Sent: Friday, July 10, 2009 6:35:20 PMSubject: Re: Can nerves in the brain regrow?

Does it matter? My son had an episode of post-vax brain swelling.Does that mean I don't try? No.The interventions are making him healthier.CGF> > >> > ...My question is can they still be recovered depending on the amount of damage done to the brain or are they autistic forever? ...

July 19, 2009

ABSOLUTELY!!! Please read " Train your mind, change your brains" By Sharon Begley. the process is called NEUROPLASTICITY and it jumps start NEUROGENESIS.Neurofeedback is very popular, I have seen children responding extremely well and some not so well. depends on the amount of time needed for ANY particular brain- some need less time, some need mroe time- usually seen in older children. And how long can the parents afford to keep their chidlren on it, also depends on the observational skills of your neurofeedback practitioner and how acutely aware is he/she of your child progress because then they have to adjust the program accordingly. And of course you have to help the body - a healthy brain can only function in healthy body, right? We are

working on a program just like this- but much more customised for children on teh spectrum and much more FUN and easy to do. We also start from level Zero- so it is good for eveyone- non verbal- vocalising, advanced. once we are ready we will need testers. POssibly in one month? This one is called Speed Smart and it is done at home- no charges, no visits, did I say no charges? :-) and no machines, you , the kid and the program. That easy!Let me know if you would be interested. MilenaMilena@...To: mb12 valtrex Sent: Wednesday, July 8, 2009 2:00:07 PMSubject: Re: Can nerves in the brain regrow?

I have never tried neurofeedback but hear that it helps some kids with ADD. I would think that this is a 'later' therapy.... more of a fine tuning item rather then a 'biggie'.

I know that at NACD they have used Play Attention for kids who were at the later stages of recovering from autism. I mean.... kids who you can't tell have autism anymore.... know what I mean? There are just a few ADD problems left. Those are the kids that I have met who have done this therapy successfully but that is just in the realm of my personal experience and that is pretty "limited"... to my own child predominantly.

Janice

Mother of Mark, 14

>

> Janice thanks for all your encouraging posts you and Marks stories keep me motivated.Do you know if neurofeedback therapy excerises the brain as you speak of? Thanks Caroline.

>

July 19, 2009

Janice, will you please email me privately to milenaautismalternative (DOT) com Your comment is of highest priority! I would like your permission to post it.Thank you!!MilenaTo: mb12 valtrex Sent: Wednesday, July 8, 2009 1:37:37 PMSubject: Re: Can nerves in the brain regrow?

I am forwarding this note to the board since I think that it would help many of you get an understanding of what sequential processing is and it's relationship to function, speech and language for our kids.....

Tomatis works auditory tonal processig and we did this step too using a home based program called "The Listening Program". Auditory tonal processing helps the child acurately interpret the sounds coming into his ear and helps to strengthen this neuronal pathway. It is important.

But it doesn't help sequential processing or the ability to "remember".

Okay.... so let me give my little lecture on processing to try to help you to understand how it works. Like all of this stuff, it's easier to understand when you're looking at it from the rear view mirror and you've left it behind! Oh joy, right?

We think in bits, just like a computer. The more 'bits' we can take in and hold in our mind at once, the more information we absorb and utilize. So, if we can only hold a small 'bit' of information in our mind, we will be unable to understand or process what is going on around us. But if we work our memory and our ability to hold more and more 'bits' at once, we can process more of our environment and 'collect' information about the world around us.

There are two methods by which most of the information is collected in our brain: through our eyes and through our ears. I believe that it is estimated that 80% of the kids with issues struggle with severe auditory processing problems. They are not properly taking in information with their ears, holding it to 'remember' what is said or to know what to do or to even process high enough to enable speech. Same thing with the eyes. We must be able to 'recognize' and remember what we have seen in order to progress. If we have issues in taking information through both our visual processes AND our auditory processes, then you will definately see a child who will get the diagnosis of severe MR. They are unable to take information in, store it, and remember it long enough to produce an adequate response. Every response will be a reaction to the moment rather then a stored memory of events.

Did this make any sense?

Because my son was verbal and because he was older, we were able to use digit spans to increase his processing. So, let me introduce you to how digit spans work. When they measure processing during IQ testing in grade school, the process is a very easy one. They basically give your child a random set of numbers to remember, either visually or verbally. The number of individual 'digits' the child remembers is a measure of their digit span. So..... 8 3 1 0 6 2 4 7 Most grown adults have a minimum digit span of 7; that is they can remember 7 digits (a telephone number) for easy recall, either verbally or visually. If you have a digit span of 8.... you've got enough to go to college (that's what I am). If you've got a digit span of 9, then you're probably doing extremely well at school. If you've got a digit span of 10 (Mark has this now)..... then learning will come easy to you. If you've got a digit span of 12 or more, then you're a genius and are really able to think outside the box. Doing auditory reverse digit spans (the child has to give the digit spans back to you in reverse order) is a measurement of working memory.

We need a base level of auditory processing to obtain speech. The rule of thumb is as follows: a normally developing child gets increases one digit every year of life up until the age of 7. So a one year old will have a digit span of 1. He generally verbalizes in single words. NO! Mamma, Dada, juice, etc. A two year old gets another digit and his language increases... . they begin to speak in couplets... want juice, no mommy, bad doggy. A three year old gets another digit and learns defiance! At NACD, they call this the "knock'em, block'em threes" because any child processing at this level despite their chronological age completely RESISTS therapy and it's probably the toughest stage to work with.....resulting in a lot of tearful moms! At this level, the child still speaks in couplets with the odd phrase thrown in. At a digit span of 4, the child can generally speak in phrases. At a digit span of 5 and there are disjointed attempts at sentences.

This was where we started at the age of 11. Because Mark's very low tone, part of his problem was also an oral motor issue and thus everyone confused his poor articulation and his poor language as one entitity. It wasn't. They were very separate entities and require very separate treatment to get whole speech. If you have a child who processes well but still cannot speak, then you need to address the low muscle tone and overall coordination of the mouth, tonge, vellum, throat and air flow. Often, poor auditory sequential processing is mistaken for ADD because the result is the same.... an inability to attend and to follow instructions.

When we got Mark up to a digit span of 6, his sentences became smoother. He stopped saying "What?" "HUH?" all of the time and could follow longer instructions. When we got him up to a digit span of 7, he started to be able to tell stories and his dry wit slowly began to emerge. This was very cool. Hidden away in my child was an awesome sense of humour that I didn't get to see until he was 12! A digit span of 8 produced an even keener wit. A digit span of 9 and 10 helped with function and grades and overall ability to compensate for his physical lack. Mark needs higher processing to be at the same level as other kids I think. His physical body is a major issue for him; poor muscle tone throughout, poor visual motor skills, poor hand coordination that really still does plague him..... but he compensates with his ability to think his way through situations now. He's smarter then the others now and can strategize his way through most problems that his body might give him.

So.... after we got a digit span of 8..... we had normal language fluency but TERRIBLE articulation. He still spoke as though he had a mouthful of marbles. We did about a year of oral motor therapy after that and today it is much, much better..... well, it's not perfect but who cares? After we got the language from increased processing, no one has really cared about his articulation. It presents itself as a minor affectation of speech. Slowly it fades. For a long time, it got worse with dietary infractions and this made a big difference to the 'slushy' sound. I tend to use Mark as a poison control barometer. Speech sounds like slush after eating..... hmmmmm..... must be poison in it! Sure enough, look to the item and there is some type of weird chemical every single time. High Fructose Corn syrup and MSG are the two WORST items for clear speech, imo. We don't need 'special' diets anymore but continue to fight high bacteria levels from a biomedical standpoint. Thus we continue to work the labs.

So, what do the gang do for the kids who have no words? Well, I don't know the complete program because we started late in the game. But I do know that they begin with one step commands and LOTS of them..... They give a lot of simple 'command' type of exercises designed to increase memory. They make you do these types of exercises as often as possible with the child.

Another item I should mention..... While Mark's auditory processing was functioning at the 5 year old level at age 11..... everything about him was 5 years old. He played better with the little kids, he spoke like a 5 year old, he followed instructions like a 5 year old and really did have the maturity of a 5 year old. As his processing was increased, so did his maturity. There was always a gap between attaining the new digit span level and this translating into skill. This is because a new wealth of knowledge becomes assimilated and that utilized over time..... takes about a month or two to see the benefits begin to emerge.

Our blessing. Our blessing was that while Marks ears were basically shot..... he had been compensating visually all along. The poor kid was using everything he could gleen from his environment to try to cope in this world of ours. This is pretty COMMON amongst our kids. They have hyper-peripheral vision which enables them to decode words easily and so you should work reading skills with your children even if they are non verbal. It is another method NaCD uses to teach some older non-verbal kids to speak.

I digress....

Thus, while eye contact was the pits, while his visual motor systems were atrocious, his visual memory was AMAAAAAAZING! He started out with NACD with a visual digit span of 9. This was and remains his gift. We increased his visual processing to a 10 and left it there. NOW..... mainstream folks called him hyperlexic because he could read and decode material at a very young age. When we caught up his auditory processing (reading comprehension is an auditory skill)..... they said that his hyperlexia had 'resolved' itself. (yeah, right! They don't know how much work I did!) At the end of grade 6, Mark tested out at the college level of reading comprehension. ...and thus was considered 'gifted'. Remember, hidden amongst the trauma of our children is a gift or two so keep an eye out for it so you can help them use it to their best advantage. As we worked auditory skills, I never prepared Mark orally for tests at school..... everything was written work and he retained it like CRAZY! He is also a very good writer due to the many books he read..... this gift has only begun to emerge in the last year.

So.... that is my last little 'processing' lecture for today. I hope some may benefit from this and that it provides a missing piece of the puzzle. It was a HUGE piece of our puzzle.

Below, I have cut and paste a story Mark wrote this past year at school in grade 8. He received no assistance from me in this story.... it's all him. Remember, this child had an IQ of about 77 in grade 2 and was considered mentally handicapped. They didn't even want to let him into the regular special ed program. I had to fight tooth and nail to get him in THAT (almost had to pull a Sally Field re Forest Gump!). If he can overcome, any child can overcome. At the age of 11, he couldn't string a sentence together. Who says that older children can't beat the odds? They can!

Janice

Mother of Mark, 14

The Lockout

It was winter time again, but it had snowed harder than any winter before. There was so much snow that my school looked as white as a cloud. I went into school and everyone was dressed in heavy parkas and wore their scarves wrapped tightly around their necks. I was opening my locker when my friend came up to me and asked, â€œDonâ€™t you think this is Edmontonâ€™s worst blizzard ever, Jake?â€ â€œYeah, my bus ride took about an hour,â€ I agreed. My first three periods seemed to pass by in minutes. At lunch , Max and Connor suggested we have a huge snowball fight. It felt colder than dry ice, but since I was wearing my jacket, mitts, and everything else, I decided to stay out and play.

; It was a lively game, with Max and I fighting against and Connor. quickly constructed a gigantic mound of glistening white snowballs and passed them to Connor who tried to pound us with them. Max and I made small lightly packed snowballs and threw them alone. At first, and Connorâ€™s strategy was beating ours as the large snowballs pounded us severely. I thought I saw an opening to hit , so I ran swiftly, trying to catch him off guard. Suddenly, turned towards me laughing and Max commanded in the background: â€œJake, look out!â€ I looked behind me and there was Connor armed with an enormous pile of snow. He threw it and the watery mixture hit my face. It was so cold that I shivered violently. As the icy droplets from the huge slush ball slid down my neck, I suddenly wanted vengeance. Connor skulked towards Max to pelt him with his small gleaming weapon. He chucked it, but Max dodged swiftly and countered with the snowball he was holding in his hand. He slammed it against Connor with a big splash. was left defenseless when Connor tried, but failed miserably, to hit Max. It gave me an opening to strike with my three weapons of tightly packed snow. Before I could attack, , with frosty white hair peaking out of his cap and shivering blue lips yelled, â€œI surrender!â€ Looking like frosty snowmen ourselves, everyone decided to go back inside, so we went towards the heavy door. I tried to open it, but it was frozen shut and we could see ice encrusting the hinges. â€œLetâ€™s try the other doors. Theyâ€™re probably open,â€ Max said optimistically. We tried every single door but they were all either locked or frozen shut. was the first one to panic, screaming, â€œWe are doomed! Tomorrow our bodies will be on the news, and some bald headed newscaster will be talking about our dead frozen corpses!â€ Thinking intelligently, Connor suggested, â€œDo any of you take the bus home from school?â€ Everyone said no, but right then, I remembered my cell phone in my pocket, so I took it out, but its batteries had died and you could see its metal covered with small white particles from the blistering cold. â€œThe ETS doesnâ€™t look like its running. Weâ€™re going to die out here!â€ cried. Just then Max collapsed in the snow, seeming not to breathe at all. â€œMax, are you all right? Max, Max!â€ screamed. Max remained motionless. I suddenly had had enough. I ran and found a heavy piece of ice and threw it at the school window. It broke, and I was just barely tall enough to climb through the shattered casement. â€œ, Connor, please help me carry Max into the school!â€ and Connor tried but didnâ€™t seem to be strong enough to bring Max in. Suddenly Max spoke very faintly and whispered, â€œGuys, its okay. You go in, itâ€™s okay.â€ found enough strength to lift Max up and he shoved him in through the window. He and Connor climbed in, embracing the warmth. was right --- we did get to go on the news, not as fatalities but as four survivors who worked together to overcome the odds.

July 19, 2009

I am interested!

Ward

cward_ri@...

Subject: Re: Re: Can nerves in the brain regrow?To: mb12 valtrex Date: Sunday, July 19, 2009, 3:57 PM

ABSOLUTELY!! ! Please read " Train your mind, change your brains" By Sharon Begley. the process is called NEUROPLASTICITY and it jumps start NEUROGENESIS.Neurofeedback is very popular, I have seen children responding extremely well and some not so well. depends on the amount of time needed for ANY particular brain- some need less time, some need mroe time- usually seen in older children. And how long can the parents afford to keep their chidlren on it, also depends on the observational skills of your neurofeedback practitioner and how acutely aware is he/she of your child progress because then they have to adjust the program accordingly. And of course you have to help the body - a healthy brain can only function in healthy body, right? We are working on a program just like this- but much more customised for children on teh spectrum and much more FUN and easy to do. We also start from level Zero- so it

is good for eveyone- non verbal- vocalising, advanced. once we are ready we will need testers. POssibly in one month? This one is called Speed Smart and it is done at home- no charges, no visits, did I say no charges? :-) and no machines, you , the kid and the program. That easy!Let me know if you would be interested. MilenaMilena@autismaltern ative.com

From: merlinmarkrooney <jscottinterbaun (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Wednesday, July 8, 2009 2:00:07 PMSubject: Re: Can nerves in the brain regrow?

I have never tried neurofeedback but hear that it helps some kids with ADD. I would think that this is a 'later' therapy.... more of a fine tuning item rather then a 'biggie'.I know that at NACD they have used Play Attention for kids who were at the later stages of recovering from autism. I mean.... kids who you can't tell have autism anymore.... know what I mean? There are just a few ADD problems left. Those are the kids that I have met who have done this therapy successfully but that is just in the realm of my personal experience and that is pretty "limited"... to my own child predominantly. :)JaniceMother of Mark, 14>> Janice thanks for all your encouraging posts you

and Marks stories keep me motivated.Do you know if neurofeedback therapy excerises the brain as you speak of? Thanks Caroline.>

July 20, 2009

, please email me to milena@...- keeping the track and the count form there. 7 more spot available.You are in!MilenaTo: mb12 valtrex Sent: Sunday, July 19, 2009 3:55:17 PMSubject: Re: Re: Can

nerves in the brain regrow?

I am interested!

Ward

cward_riyahoo (DOT) com

From: Milena <rednutmegyahoo (DOT) com>Subject: Re: Re: Can nerves in the brain regrow?To: mb12 valtrex@ yahoogroups. comDate: Sunday, July 19, 2009, 3:57 PM

ABSOLUTELY!! ! Please read " Train your mind, change your brains" By Sharon Begley. the process is called NEUROPLASTICITY and it jumps start NEUROGENESIS.Neurofeedback is very popular, I have seen children responding extremely well and some not so well. depends on the amount of time needed for ANY particular brain- some need less time, some need mroe time- usually seen in older children. And how long can the parents afford to keep their chidlren on it, also depends on the observational skills of your neurofeedback practitioner and how acutely aware is he/she of your child progress because then they have to adjust the program accordingly. And of course you have to help the body - a healthy brain can only function in healthy body, right? We are working on a program just like this- but much more customised for children on teh spectrum and much more FUN and easy to do. We also start from level Zero- so it

is good for eveyone- non verbal- vocalising, advanced. once we are ready we will need testers. POssibly in one month? This one is called Speed Smart and it is done at home- no charges, no visits, did I say no charges? :-) and no machines, you , the kid and the program. That easy!Let me know if you would be interested. MilenaMilena@autismaltern ative.com

From: merlinmarkrooney <jscottinterbaun (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Wednesday, July 8, 2009 2:00:07 PMSubject: Re: Can nerves in the brain regrow?

I have never tried neurofeedback but hear that it helps some kids with ADD. I would think that this is a 'later' therapy.... more of a fine tuning item rather then a 'biggie'.I know that at NACD they have used Play Attention for kids who were at the later stages of recovering from autism. I mean.... kids who you can't tell have autism anymore.... know what I mean? There are just a few ADD problems left. Those are the kids that I have met who have done this therapy successfully but that is just in the realm of my personal experience and that is pretty "limited"... to my own child predominantly. :)JaniceMother of Mark, 14>> Janice thanks for all your encouraging posts you

and Marks stories keep me motivated.Do you know if neurofeedback therapy excerises the brain as you speak of? Thanks Caroline.>

July 20, 2009

thank you Janice. My son is regressing since march. He is 3 and 1/2. I needed

to read this for hope. Is devastating to see the gains go.

I will keep fighting for him.

> >

> > A little thought on this......

> >

> > When my son was 3, they didn't know much about his condition and the doctors

told me that he would grow out of it. He didn't, he just got worse and worse

with time and grew 'into' it.

> >

> > When my son was 6, they diagnosed him as borderline mentally handicapped.

Nothing was to be done. OT services were denied as he was deemed 'unresponsive'

to therapy. (a cool way for the system to deny funding, imo)

> >

> > When my son was 9, he was considered a special education 'lifer' with not

really much hope and I should consider what would be done with him as he aged.

(ie. group home anyone?) The school decided that he would no longer need

testing to remain in the special programming. It was just a given that he would

never leave.

> >

> > When my son was 11, I discovered neurodevelopmental therapy in the US (

http://www.nacd.org .....non profit and very reasonably priced btw) and flew him

stateside for a program plan which we did at home (we are from Canada) and

special diets..... within 10 months, his processing was age appropriate and he

was mainstreamed but still noticeably 'affected'.

> >

> > When my son was 13, we started chelating and he started taking the public

transit on his own, flew to California on his own for an 'extreme' adventure

camp 6 months after we started and his relationships with his peers became

completely normal. He has TONS of friends now and OMG.... the girls are liking

him too! The only friends he could make before were other kids with issues.

Today, he is considered the 'cool' geeky kid.... the athelete of the nerdy

brainiacs! He now hangs out with the kids who are in the 'exceptions' program

in his school which requires an IQ of 135 or more and is placed in their

classes...... what a big change from the low IQ kid he used to be. (he still

sports a slight speech affectation but language is good) Chelation was a

godsend and we are still pulling mercury 1.5 years later.

> >

> > For me, the best thing about this was to see his personal happiness. I am

rarely able to deny him a sleep over with 5-6 fourteen year old boys tromping

through my house. The other great thing is the loss of that 'stare' that others

give you when you go out. It's funny, people looking and wondering, " What's

wrong with THAT boy? " became part of my existance. (I wonder if they know how

transparent they are when they think that?) I really only noticed it when we

stopped getting the 'look'. I still have to pinch myself. In my mind I almost

cannot believe that they can't still see 'it'. The 'it' that plagues my son's

body is quietly disappearing now..... only other moms with affected kids would

really guess it. None of the mothers of my son's friends can tell that he has

any type of condition and they know him well.

> >

> > When my son was 14, he was selected to go to France with a group of kids

from school. It's a difficult application process and while my boy's grades

were not as good as the other applicants, he is just so darn likeable that he

made it into the group. (as a child, my boy got the crap beat out of him for

being different.... today, he is loved by all and makes friends easily) He beat

out 50 other kids.....all NT. The principal was a bit concerned about his

organizational skills (or lack therof) for the trip but he's going next March!

> >

> > Today, my son is 14.5 and we started MB12 about 2 months ago. I notice an

enormous difference in his fine motor ability and his energy levels. We are

still fighting to build muscle on his low toned body and it is coming..... with

plenty of hard work. He has a 75% average and there is no question that he is

University bound. He uses a lap-top to write essay type exams but that is the

only special accomodations he receives. All other exams are written manually.

I am hoping that next year, he'll be able to eliminate this and that his writing

speed will be faster.

> >

> > I just dropped him off to summer school where he is taking a grade 9 math

prep course. He's not going because he has to. He's going because his buddy's

mom is making him and my boy asked to go in order to keep this other boy

company..... and to improve his math skills, of course! It will take him 2

buses to get home and he's never done this route before but I'm not worried. He

might even pop into the mall and check out the new video games on the way. He

has his cell phone with him and he'll call if there's any trouble.

> >

> > If you had asked me 5 years ago that my son would be where he is today, I

would have told you..... " only in my dreams " .

> >

> > The key in the end was not to listen to the doctors or anyone. When I

followed what mainstream said, we just went downhill further and further. When

I began to research and fight back, he thrived and blossomed. A few things were

key: daily therapy to work on processing, chelation, ridding the body of

bacteria/yeast/viruses, diet and finally B12 shots. He tested positive for mold

recently (the really BAD kinds) and we are doing a trial of amphoceterin B to

address this.

> >

> > The sky is the limit. Visualize your son as being completely NT. Then inch

by inch, step by step..... sometimes 2 steps forward and one step back into the

dreaded recession, you heal the body and you work the mind..... it heals too!

> >

> > Actually, it was much easier to heal the mind then the body. It was labour

intensive and we did about 3 hours of home therapy a day for about 2 years to

achieve it but today, the mind is completely healed while we continue to work

that pesky body. Did you know that you can actually increase processing to

bring a child who is considered MR to that of genius levels? It's amazingly

tough to do but we came close. I finally got tired of the work and stopped

short of genius but today my boy processes at a much higher level then myself.

When we started at the age of 11, he had the processing of a 5 year old so this

made a HUGE difference to his life. Along with chelation (which improves

processing too, imo), working the brain daily and working the processing daily

has been an enormous BIGGIE. And..... the great thing is, the results stick.

We haven't done any of those exercises for about 9 months now and every gain has

held. They were really booooooring, a pain in the rear..... I dreaded them

daily but did they ever work to change his abilities~!

> >

> > In all of this my son has developed this amazing spirit. Today, he will

admit to having some extreme depression as a youngster (neurotransmittors were

all messed up.... get good labs). He learned how to look at failure in the face

and to stare it down. He learned how to overcome and that if you are

persistant, you can do and be anything. I never taught him this; survival did.

He is a good kid who has this amazing ability to 'read' people..... something he

could never really seem to do when he was little (I guess all of the bullying

wised him up!) Inside his somewhat laid-back, slightly ADD-like demeanor, is a

young man who is competent, capable and steady. I don't know how or really when

this happened. His childhood has been tough..... unbelievably tough.....it was

completely unfair.... but hopefully he'll take his lessons with him through to

adulthood. In truth, he has learned so much more about life through this

experience then others can possibly imagine; he is an extremely evolved

individual for having had this condition. I have met middle-aged men who were

not nearly as insightful nor as wise as my boy. In the end, he is an absolute

hero.

> >

> > Good luck and never count your kid out. He is full of unlimited potential

beyond what anyone says and what anyone knows. Just BELIEVE and push forward.

Never stop.

> >

> > Janice

> > Mother of Mark, 14.5

> >

>

July 20, 2009

My daughter has done Neurofeedback for seizure control. I believe it has been on

of the reasons she remains med free and seizure free. Cognitive ability improved

too. Neurofeedback therapy along with improved nutrition have been our answers.

It has changed our world, and I highly recommend it.

Though I haven't posted in a while, you can read her story here

www.feedbackmatters.blogspot.com

Robin

July 20, 2009

interested would it be possible for us to get this program dealing with non

verbal on spectrum with chiari malformation Thanks for your time Dawn

> >

> > Janice thanks for all your encouraging posts you and Marks stories keep me

motivated.Do you know if neurofeedback therapy excerises the brain as you speak

of? Thanks Caroline.

> >

>

July 21, 2009

Janice,

My daughter will be eight next month and we've been actively and aggressively

pursuing biomed for almost 4 years. She has one of the best doctors in our

community. Despite this, her progress is minimal and I find myself getting VERY

frustrated lately and losing motivation. Thank you so much for your post below

on the late age progress of your son. Congratulations on his amazing recovery!

I'm almost to tears with hope that the same will be said for my Amirah. I'll

keep going today because of you.

-, Amirah's mom

> > >

> > > A little thought on this......

> > >

> > > When my son was 3, they didn't know much about his condition and the

doctors told me that he would grow out of it. He didn't, he just got worse and

worse with time and grew 'into' it.

> > >

> > > When my son was 6, they diagnosed him as borderline mentally handicapped.

Nothing was to be done. OT services were denied as he was deemed 'unresponsive'

to therapy. (a cool way for the system to deny funding, imo)

> > >

> > > When my son was 9, he was considered a special education 'lifer' with not

really much hope and I should consider what would be done with him as he aged.

(ie. group home anyone?) The school decided that he would no longer need

testing to remain in the special programming. It was just a given that he would

never leave.

> > >

> > > When my son was 11, I discovered neurodevelopmental therapy in the US (

http://www.nacd.org .....non profit and very reasonably priced btw) and flew him

stateside for a program plan which we did at home (we are from Canada) and

special diets..... within 10 months, his processing was age appropriate and he

was mainstreamed but still noticeably 'affected'.

> > >

> > > When my son was 13, we started chelating and he started taking the public