Guest guest Posted March 1, 2009 Report Share Posted March 1, 2009 Jayn, Hope the snow isn't to much were you are today. And how are you doing? Mom really liked the slushes we got at 7/11. It made her mouth feel good. You can make them at home with a blender too. Just need to put ice in and get it small enough. The 7/11 slush wasn't icey, so she liked it. If she has decided not to eat, or can't eat, best you start reading about Hospice. They can go a long time on half to one and a half cups of food. Mom had nothing at all for 7 days, She didn't even get water. But she had some food before she went into the hospital and it was enough to keep her going. Hope things are peaceful at your house. Hugs, Donna R Caregiver for Mom for 3 years and 4th year in a nh. (In MI) She was almost 89 when she died in '02. No dx other than mine. eating I have read many post about the lo's not eating, and now my sister Ruth is to that stage. I have tried everything I can think of to get her to eat, the only thing that helps is to threaten with a NH. Now you tell me is that awful or what? Even doing that, she is down to about a cup, at the most a cup and 1/2 per day. I have tried all the things that I have read here that others have tried, and it just doesn't work. I am praying now that God will give me a peace about this stage in the disease. There are some things you just can't do, and forcing someone to eat is one of them. If anyone has anything new, please let me know. Jayn in S GA **************You're invited to Hollywood's biggest party: Get s updates, red carpet pics and more at Moviefone. (http://movies.aol.com/oscars-academy-awards?ncid=emlcntusmovi00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2009 Report Share Posted March 2, 2009 Jayn, this is such a difficult stage to witness. Many of us have found cold offerings of food helpful, like ice cream, or as Donna found, slushies. A speech therapist told me that something cold like ice cream can help stimulate the swallow reflex. If Ruth is not eating because swallowing is difficult this might help. Maybe she just isn't hungry. It's so hard to know. You are being realistic in knowing you can't force someone to eat but it is still difficult. Sorry you have to go through this with your sister. > > > I have read many post about the lo's not eating, and now my sister > Ruth is to that stage. I have tried everything I can think of to get > her to eat, the only thing that helps is to threaten with a NH. > Now you tell me is that awful or what? Even doing that, she > is down to about a cup, at the most a cup and 1/2 per day. > I have tried all the things that I have read here that others > have tried, and it just doesn't work. > I am praying now that God will give me a peace about this > stage in the disease. There are some things you just can't do, > and forcing someone to eat is one of them. > If anyone has anything new, please let me know. > > Jayn > in S GA > > > > **************You're invited to Hollywood's biggest party: Get s > updates, red carpet pics and more at Moviefone. > (http://movies.aol.com/oscars-academy-awards?ncid=emlcntusmovi00000001) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2009 Report Share Posted March 2, 2009 Thanks Donna, I have had hospice about 2 years now. The one here will help as long as the patient has an incurable disease and you aren't doing anything to prolong their life. Someone comes Mon and Fri for an hour and does the bath thingy and 3 hours on Wed for respite help for me and then cleans the bath room, vacuums, dust and changes the linens, and does the bath. So that really helps. I am really having a hard time getting my mind around the fact that I can't make her eat. To those of you who pray; please pray God gives me peace in that area. Jayn in S G PS: yes we did get snow showers here for a couple of hours but nothing that stayed. The snow that stayed was about an hour north of us. We are not central Ga but almost, and that is where the snow line was. In a message dated 3/2/2009 12:58:34 A.M. Eastern Standard Time, twomido@... writes: Jayn, Hope the snow isn't to much were you are today. And how are you doing? Mom really liked the slushes we got at 7/11. It made her mouth feel good. You can make them at home with a blender too. Just need to put ice in and get it small enough. The 7/11 slush wasn't icey, so she liked it. If she has decided not to eat, or can't eat, best you start reading about Hospice. They can go a long time on half to one and a half cups of food. Mom had nothing at all for 7 days, She didn't even get water. But she had some food before she went into the hospital and it was enough to keep her going. Hope things are peaceful at your house. Hugs, Donna R Caregiver for Mom for 3 years and 4th year in a nh. (In MI) She was almost 89 when she died in '02. No dx other than mine. eating I have read many post about the lo's not eating, and now my sister Ruth is to that stage. I have tried everything I can think of to get her to eat, the only thing that helps is to threaten with a NH. Now you tell me is that awful or what? Even doing that, she is down to about a cup, at the most a cup and 1/2 per day. I have tried all the things that I have read here that others have tried, and it just doesn't work. I am praying now that God will give me a peace about this stage in the disease. There are some things you just can't do, and forcing someone to eat is one of them. If anyone has anything new, please let me know. Jayn in S GA ************************<WBR>**You're invited to Hollywood's biggest p updates, red carpet pics and more at Moviefone. (_http://movies.http://movies.http://movies.http://movies.<Whttp://mo_ (http://movies.aol.com/oscars-academy-awards?ncid=emlcntusmovi00000001) ) [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] **************Worried about job security? Check out the 5 safest jobs in a recession. (http://jobs.aol.com/gallery/growing-job-industries?ncid=emlcntuscare00000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2009 Report Share Posted March 2, 2009 Jayn, many prayers will be going out in yours, and your sisters, behalf. Whatever we pray for may not be part of God's plans. We all know we can't prolong LBD. So dear, try to relax the best you can. I know it's horribly hard, but do go along with the way your sister is following her body's lead. Love ever so much, Imogene In a message dated 3/2/2009 8:19:40 PM Central Standard Time, jja52538@... writes: Thanks Donna, I have had hospice about 2 years now. The one here will help as long as the patient has an incurable disease and you aren't doing anything to prolong their life. Someone comes Mon and Fri for an hour and does the bath thingy and 3 hours on Wed for respite help for me and then cleans the bath room, vacuums, dust and changes the linens, and does the bath. So that really helps. I am really having a hard time getting my mind around the fact that I can't make her eat. To those of you who pray; please pray God gives me peace in that area. Jayn in S G PS: yes we did get snow showers here for a couple of hours but nothing that stayed. The snow that stayed was about an hour north of us. We are not central Ga but almost, and that is where the snow line was. **************Worried about job security? Check out the 5 safest jobs in a recession. (http://jobs.aol.com/gallery/growing-job-industries?ncid=emlcntuscare00000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2009 Report Share Posted March 2, 2009 jayn please do not beat yourself up for not being able to make her eat,Ā eating and drinkng is the one thing she canĀ make up her own mind about, the one thing she can control.Ā her way of telling everyone she isĀ ready to go HOME. i pray for peace for you and your family, and comfort and peace on her journey, love, sharon Ā Daughter of Leonard whom was diagnosed in May 2004 and died of complicatons *blood pressure started dropping and wouldn't recover* on Sept 25, 2005. He had bad case of Dr Jekyl/Mr Hyde scenarios. He was showing hallucinations and falling issues since prior to 1994. We moved in to take care of him Jan 19, 2003 and still live in his house. And in feb 2009, i have been diagonosed with 99% probability of lbd. Subject: Re: eating To: LBDcaregivers Date: Monday, March 2, 2009, 6:17 PM Thanks Donna, I have had hospice about 2 years now. The one here will help as long as the patient has an incurable disease and you aren't doing anything to prolong their life. Someone comes Mon and Fri for an hour and does the bath thingy and 3 hours on Wed for respite help for me and then cleans the bath room, vacuums, dust and changes the linens, and does the bath. So that really helps. I am really having a hard time getting my mind around the fact that I can't make her eat. To those of you who pray; please pray God gives me peace in that area. Jayn in S G PS: yes we did get snow showers here for a couple of hours but nothing that stayed. The snow that stayed was about an hour north of us. We are not central Ga but almost, and that is where the snow line was. In a message dated 3/2/2009 12:58:34 A.M. Eastern Standard Time, twomidowebtv (DOT) net writes: Jayn, Hope the snow isn't to much were you are today. And how are you doing? Mom really liked the slushes we got at 7/11. It made her mouth feel good. You can make them at home with a blender too. Just need to put ice in and get it small enough. The 7/11 slush wasn't icey, so she liked it. If she has decided not to eat, or can't eat, best you start reading about Hospice. They can go a long time on half to one and a half cups of food. Mom had nothing at all for 7 days, She didn't even get water. But she had some food before she went into the hospital and it was enough to keep her going. Hope things are peaceful at your house. Hugs, Donna R Caregiver for Mom for 3 years and 4th year in a nh. (In MI) She was almost 89 when she died in '02. No dx other than mine. eating I have read many post about the lo's not eating, and now my sister Ruth is to that stage. I have tried everything I can think of to get her to eat, the only thing that helps is to threaten with a NH. Now you tell me is that awful or what? Even doing that, she is down to about a cup, at the most a cup and 1/2 per day. I have tried all the things that I have read here that others have tried, and it just doesn't work. I am praying now that God will give me a peace about this stage in the disease. There are some things you just can't do, and forcing someone to eat is one of them. If anyone has anything new, please let me know. Jayn in S GA ************ ********* ***<WBR>* *You're invited to Hollywood's biggest p updates, red carpet pics and more at Moviefone. (_http://movies. http://movies. http://movies. http://movies.<Whttp://mo_ (http://movies. aol.com/oscars- academy-awards? ncid=emlcntusmov i00000001) ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2009 Report Share Posted March 2, 2009 Jayn, Please read some of the End of Life material. You can find it in the files or on a Hospice site. If it is her body shutting down, it is actually more difficult for her to eat. It did help me to understand I wasn't doing Mom any favors by feeding her when she was moving on. The other thing I might suggest is Music. I had some spiritual music that Mom liked and it may be helpful to her. Glad you have some help. It gives you a break. Hugs, Donna R Caregiver for Mom for 3 years and 4th year in a nh. (In MI) She was almost 89 when she died in '02. No dx other than mine. eating I have read many post about the lo's not eating, and now my sister Ruth is to that stage. I have tried everything I can think of to get her to eat, the only thing that helps is to threaten with a NH. Now you tell me is that awful or what? Even doing that, she is down to about a cup, at the most a cup and 1/2 per day. I have tried all the things that I have read here that others have tried, and it just doesn't work. I am praying now that God will give me a peace about this stage in the disease. There are some things you just can't do, and forcing someone to eat is one of them. If anyone has anything new, please let me know. Jayn in S GA ************************<WBR>**You're invited to Hollywood's biggest p updates, red carpet pics and more at Moviefone. (_http://movies.http://movies.http://movies.http://movies.<Whttp://mo_ (http://movies.aol.com/oscars-academy-awards?ncid=emlcntusmovi00000001) ) [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] **************Worried about job security? Check out the 5 safest jobs in a recession. (http://jobs.aol.com/gallery/growing-job-industries?ncid=emlcntuscare00000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2009 Report Share Posted March 3, 2009 Ray is having eating issues. When he eats, he eats pretty good but I have noticed as recommended earlier, that cold things such as his ice cream and the McD sodas we take him, he always eats. I think I will fix some homemade applesauce to take tomorrow when I go to visit. They give him Ensure several times a day and he drinks that. Ray seldom talks much anymore--esp. anything that can be understood so when he does say something clear, it is a surprise. The other day I was feeding him and he wouldn't eat. I said " Ray, why won't you open your mouth and eat for me? " And he popped right back " cause, I don't want to " just as clear as a bell!! Ok, I guess he still knows what he wants to do. It gave me something to smile about. But I am sure he is losing weight again. I forwarded the kids the " phases " list that was on Dr. 's blog (From Donna, I believe, good job) and told them that I thought he was in Phase V. Hard as it is to deal with all this, it is harder to think about the alternative, which we know will come. Thanks for being here--all of you. Leona Leona: Caregiver for husband Ray, age 67, diagnosed 2/04 with Parkinson's Disease. Changed doctors, diagnosed 6/06 with LBD. Almost continual downhill slide no matter what drugs we try. 5/2/08 Ray was placed in Sunrise Nursing Home in Oswego, NY, 1 hour from home. So far, so good! Hardest thing I have ever done in my life, however. " Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2009 Report Share Posted March 3, 2009 Bless your heart, Leona. Ray sure enough knew what he wanted to do. You are helping in every way you can, and the rest is in Ray's and God's hands. Love you a lot, leona, Imogene Caregiver for my true Texas Gentleman Husband of 38 years. He is 74 years old. First diagnosed with Alzheimer's by a Neurologist OCT, 2005. (He was sick long before that date.) But, on May 2, 2006 Dr. Schillerstrom, Geriatric/Psychiatrist diagnosed LBD with Parkinsonism. My precious husband, Don is taking Zoloft for LBD. He is super sensitive to some medications. He takes Many Heart Medicines. A happy personality is contagious. Infect someone today In a message dated 3/3/2009 7:20:45 AM Central Standard Time, lchere@... writes: Ray is having eating issues. When he eats, he eats pretty good but I have noticed as recommended earlier, that cold things such as his ice cream and the McD sodas we take him, he always eats. I think I will fix some homemade applesauce to take tomorrow when I go to visit. They give him Ensure several times a day and he drinks that. Ray seldom talks much anymore--esp. anything that can be understood so when he does say something clear, it is a surprise. The other day I was feeding him and he wouldn't eat. I said " Ray, why won't you open your mouth and eat for me? " And he popped right back " cause, I don't want to " just as clear as a bell!! Ok, I guess he still knows what he wants to do. It gave me something to smile about. But I am sure he is losing weight again. I forwarded the kids the " phases " list that was on Dr. 's blog (From Donna, I believe, good job) and told them that I thought he was in Phase V. Hard as it is to deal with all this, it is harder to think about the alternative, which we know will come. Thanks for being here--all of you. Leona Leona: Caregiver for husband Ray, age 67, diagnosed 2/04 with Parkinson's Disease. Changed doctors, diagnosed 6/06 with LBD. Almost continual downhill slide no matter what drugs we try. 5/2/08 Ray was placed in Sunrise Nursing Home in Oswego, NY, 1 hour from home. So far, so good! Hardest thing I have ever done in my life, however. " Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference. " **************Worried about job security? Check out the 5 safest jobs in a recession. (http://jobs.aol.com/gallery/growing-job-industries?ncid=emlcntuscare00000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2009 Report Share Posted March 3, 2009 Prayers are going your way! It's probably just another stage of the disease. In my husband's case, it happenedĀ during the last week of his life, so be prepared, dear. He didn't want any extreme meassure, so I said no to feeding tubes and the like. I'll pray that you also may be strong. Hugs, Raquel Quote Link to comment Share on other sites More sharing options...
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