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Jayn,

Hope the snow isn't to much were you are today. And how are you doing?

Mom really liked the slushes we got at 7/11. It made her mouth feel good. You

can make them at home with a blender too. Just need to put ice in and get it

small enough. The 7/11 slush wasn't icey, so she liked it. If she has decided

not to eat, or can't eat, best you start reading about Hospice.

They can go a long time on half to one and a half cups of food. Mom had nothing

at all for 7 days, She didn't even get water. But she had some food before she

went into the hospital and it was enough to keep her going.

Hope things are peaceful at your house.

Hugs,

Donna R

Caregiver for Mom for 3

years and 4th year in a nh.

(In MI)

She was almost 89 when she

died in '02. No dx other

than mine.

eating

I have read many post about the lo's not eating, and now my sister

Ruth is to that stage. I have tried everything I can think of to get

her to eat, the only thing that helps is to threaten with a NH.

Now you tell me is that awful or what? Even doing that, she

is down to about a cup, at the most a cup and 1/2 per day.

I have tried all the things that I have read here that others

have tried, and it just doesn't work.

I am praying now that God will give me a peace about this

stage in the disease. There are some things you just can't do,

and forcing someone to eat is one of them.

If anyone has anything new, please let me know.

Jayn

in S GA

**************You're invited to Hollywood's biggest party: Get s

updates, red carpet pics and more at Moviefone.

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Jayn, this is such a difficult stage to witness. Many of us have found cold

offerings of food

helpful, like ice cream, or as Donna found, slushies. A speech therapist told

me that

something cold like ice cream can help stimulate the swallow reflex. If Ruth is

not eating

because swallowing is difficult this might help. Maybe she just isn't hungry.

It's so hard

to know.

You are being realistic in knowing you can't force someone to eat but it is

still difficult.

Sorry you have to go through this with your sister.

>

>

> I have read many post about the lo's not eating, and now my sister

> Ruth is to that stage. I have tried everything I can think of to get

> her to eat, the only thing that helps is to threaten with a NH.

> Now you tell me is that awful or what? Even doing that, she

> is down to about a cup, at the most a cup and 1/2 per day.

> I have tried all the things that I have read here that others

> have tried, and it just doesn't work.

> I am praying now that God will give me a peace about this

> stage in the disease. There are some things you just can't do,

> and forcing someone to eat is one of them.

> If anyone has anything new, please let me know.

>

> Jayn

> in S GA

>

>

>

> **************You're invited to Hollywood's biggest party: Get s

> updates, red carpet pics and more at Moviefone.

> (http://movies.aol.com/oscars-academy-awards?ncid=emlcntusmovi00000001)

>

>

>

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Thanks Donna,

I have had hospice about 2 years now. The one here will help as

long as the patient has an incurable disease and you aren't

doing anything to prolong their life.

Someone comes Mon and Fri for an hour and does the bath thingy

and 3 hours on Wed for respite help for me and then cleans the

bath room, vacuums, dust and changes the linens, and does the

bath. So that really helps.

I am really having a hard time getting my mind around the

fact that I can't make her eat.

To those of you who pray; please pray God gives me peace

in that area.

Jayn

in S G

PS: yes we did get snow showers here for a couple of hours but

nothing that stayed. The snow that stayed was about an hour

north of us. We are not central Ga but almost, and that is where

the snow line was.

In a message dated 3/2/2009 12:58:34 A.M. Eastern Standard Time,

twomido@... writes:

Jayn,

Hope the snow isn't to much were you are today. And how are you doing?

Mom really liked the slushes we got at 7/11. It made her mouth feel good.

You can make them at home with a blender too. Just need to put ice in and get

it small enough. The 7/11 slush wasn't icey, so she liked it. If she has

decided not to eat, or can't eat, best you start reading about Hospice.

They can go a long time on half to one and a half cups of food. Mom had

nothing at all for 7 days, She didn't even get water. But she had some food

before she went into the hospital and it was enough to keep her going.

Hope things are peaceful at your house.

Hugs,

Donna R

Caregiver for Mom for 3

years and 4th year in a nh.

(In MI)

She was almost 89 when she

died in '02. No dx other

than mine.

eating

I have read many post about the lo's not eating, and now my sister

Ruth is to that stage. I have tried everything I can think of to get

her to eat, the only thing that helps is to threaten with a NH.

Now you tell me is that awful or what? Even doing that, she

is down to about a cup, at the most a cup and 1/2 per day.

I have tried all the things that I have read here that others

have tried, and it just doesn't work.

I am praying now that God will give me a peace about this

stage in the disease. There are some things you just can't do,

and forcing someone to eat is one of them.

If anyone has anything new, please let me know.

Jayn

in S GA

************************<WBR>**You're invited to Hollywood's biggest p

updates, red carpet pics and more at Moviefone.

(_http://movies.http://movies.http://movies.http://movies.<Whttp://mo_

(http://movies.aol.com/oscars-academy-awards?ncid=emlcntusmovi00000001) )

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

**************Worried about job security? Check out the 5 safest jobs in a

recession.

(http://jobs.aol.com/gallery/growing-job-industries?ncid=emlcntuscare00000002)

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Jayn, many prayers will be going out in yours, and your sisters, behalf.

Whatever we pray for may not be part of God's plans. We all know we can't

prolong LBD. So dear, try to relax the best you can. I know it's horribly hard,

but

do go along with the way your sister is following her body's lead.

Love ever so much,

Imogene

In a message dated 3/2/2009 8:19:40 PM Central Standard Time,

jja52538@... writes:

Thanks Donna,

I have had hospice about 2 years now. The one here will help as

long as the patient has an incurable disease and you aren't

doing anything to prolong their life.

Someone comes Mon and Fri for an hour and does the bath thingy

and 3 hours on Wed for respite help for me and then cleans the

bath room, vacuums, dust and changes the linens, and does the

bath. So that really helps.

I am really having a hard time getting my mind around the

fact that I can't make her eat.

To those of you who pray; please pray God gives me peace

in that area.

Jayn

in S G

PS: yes we did get snow showers here for a couple of hours but

nothing that stayed. The snow that stayed was about an hour

north of us. We are not central Ga but almost, and that is where

the snow line was.

**************Worried about job security? Check out the 5 safest jobs in a

recession.

(http://jobs.aol.com/gallery/growing-job-industries?ncid=emlcntuscare00000002)

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jayn

please do not beat yourself up for not being able to make her eat,Ā  eating and

drinkng is the one thing she canĀ make up her own mind about, the one thing she

can control.Ā her way of telling everyone she isĀ ready to go HOME. i pray for

peace for you and your family, and comfort and peace on her journey, love,

sharon

Ā  Daughter of Leonard whom was diagnosed in May 2004 and died of complicatons

*blood pressure started dropping and wouldn't recover* on Sept 25, 2005. He had

bad case of Dr Jekyl/Mr Hyde scenarios. He was showing hallucinations and

falling issues since prior to 1994. We moved in to take care of him Jan 19, 2003

and still live in his house. And in feb 2009, i have been diagonosed with 99%

probability of lbd.

Subject: Re: eating

To: LBDcaregivers

Date: Monday, March 2, 2009, 6:17 PM

Thanks Donna,

I have had hospice about 2 years now. The one here will help as

long as the patient has an incurable disease and you aren't

doing anything to prolong their life.

Someone comes Mon and Fri for an hour and does the bath thingy

and 3 hours on Wed for respite help for me and then cleans the

bath room, vacuums, dust and changes the linens, and does the

bath. So that really helps.

I am really having a hard time getting my mind around the

fact that I can't make her eat.

To those of you who pray; please pray God gives me peace

in that area.

Jayn

in S G

PS: yes we did get snow showers here for a couple of hours but

nothing that stayed. The snow that stayed was about an hour

north of us. We are not central Ga but almost, and that is where

the snow line was.

In a message dated 3/2/2009 12:58:34 A.M. Eastern Standard Time,

twomidowebtv (DOT) net writes:

Jayn,

Hope the snow isn't to much were you are today. And how are you doing?

Mom really liked the slushes we got at 7/11. It made her mouth feel good.

You can make them at home with a blender too. Just need to put ice in and get

it small enough. The 7/11 slush wasn't icey, so she liked it. If she has

decided not to eat, or can't eat, best you start reading about Hospice.

They can go a long time on half to one and a half cups of food. Mom had

nothing at all for 7 days, She didn't even get water. But she had some food

before she went into the hospital and it was enough to keep her going.

Hope things are peaceful at your house.

Hugs,

Donna R

Caregiver for Mom for 3

years and 4th year in a nh.

(In MI)

She was almost 89 when she

died in '02. No dx other

than mine.

eating

I have read many post about the lo's not eating, and now my sister

Ruth is to that stage. I have tried everything I can think of to get

her to eat, the only thing that helps is to threaten with a NH.

Now you tell me is that awful or what? Even doing that, she

is down to about a cup, at the most a cup and 1/2 per day.

I have tried all the things that I have read here that others

have tried, and it just doesn't work.

I am praying now that God will give me a peace about this

stage in the disease. There are some things you just can't do,

and forcing someone to eat is one of them.

If anyone has anything new, please let me know.

Jayn

in S GA

************ ********* ***<WBR>* *You're invited to Hollywood's biggest p

updates, red carpet pics and more at Moviefone.

(_http://movies. http://movies. http://movies. http://movies.<Whttp://mo_

(http://movies. aol.com/oscars- academy-awards? ncid=emlcntusmov i00000001) )

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Jayn,

Please read some of the End of Life material. You can find it in the files or

on a Hospice site. If it is her body shutting down, it is actually more

difficult for her to eat. It did help me to understand I wasn't doing Mom any

favors by feeding her when she was moving on.

The other thing I might suggest is Music. I had some spiritual music that Mom

liked and it may be helpful to her.

Glad you have some help. It gives you a break.

Hugs,

Donna R

Caregiver for Mom for 3

years and 4th year in a nh.

(In MI)

She was almost 89 when she

died in '02. No dx other

than mine.

eating

I have read many post about the lo's not eating, and now my sister

Ruth is to that stage. I have tried everything I can think of to get

her to eat, the only thing that helps is to threaten with a NH.

Now you tell me is that awful or what? Even doing that, she

is down to about a cup, at the most a cup and 1/2 per day.

I have tried all the things that I have read here that others

have tried, and it just doesn't work.

I am praying now that God will give me a peace about this

stage in the disease. There are some things you just can't do,

and forcing someone to eat is one of them.

If anyone has anything new, please let me know.

Jayn

in S GA

************************<WBR>**You're invited to Hollywood's biggest p

updates, red carpet pics and more at Moviefone.

(_http://movies.http://movies.http://movies.http://movies.<Whttp://mo_

(http://movies.aol.com/oscars-academy-awards?ncid=emlcntusmovi00000001) )

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

**************Worried about job security? Check out the 5 safest jobs in a

recession.

(http://jobs.aol.com/gallery/growing-job-industries?ncid=emlcntuscare00000002)

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Ray is having eating issues. When he eats, he eats pretty good but I have

noticed as recommended earlier, that cold things such as his ice cream and

the McD sodas we take him, he always eats. I think I will fix some homemade

applesauce to take tomorrow when I go to visit. They give him Ensure several

times a day and he drinks that. Ray seldom talks much anymore--esp. anything

that can be understood so when he does say something clear, it is a

surprise. The other day I was feeding him and he wouldn't eat. I said " Ray,

why won't you open your mouth and eat for me? " And he popped right back

" cause, I don't want to " just as clear as a bell!! Ok, I guess he still

knows what he wants to do. It gave me something to smile about. But I am

sure he is losing weight again. I forwarded the kids the " phases " list that

was on Dr. 's blog (From Donna, I believe, good job) and told them that

I thought he was in Phase V. Hard as it is to deal with all this, it is

harder to think about the alternative, which we know will come. Thanks for

being here--all of you. Leona

Leona: Caregiver for husband Ray, age 67, diagnosed 2/04 with Parkinson's

Disease. Changed doctors, diagnosed 6/06 with LBD. Almost continual downhill

slide no matter what drugs we try. 5/2/08 Ray was placed in Sunrise Nursing

Home in Oswego, NY, 1 hour from home. So far, so good! Hardest thing I have

ever done in my life, however.

" Life is not the way it's supposed to be. It's the way it is. The way you

cope with it is what makes the difference. "

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Bless your heart, Leona. Ray sure enough knew what he wanted to do. You are

helping in every way you can, and the rest is in Ray's and God's hands.

Love you a lot, leona,

Imogene

Caregiver for my true Texas Gentleman Husband of 38 years. He is 74 years

old. First diagnosed with Alzheimer's by a Neurologist OCT, 2005. (He was

sick

long before that date.) But, on May 2, 2006 Dr. Schillerstrom,

Geriatric/Psychiatrist diagnosed LBD with Parkinsonism. My precious

husband, Don is

taking Zoloft for LBD. He is super sensitive to some medications. He takes

Many Heart Medicines.

A happy personality is contagious. Infect someone today

In a message dated 3/3/2009 7:20:45 AM Central Standard Time,

lchere@... writes:

Ray is having eating issues. When he eats, he eats pretty good but I have

noticed as recommended earlier, that cold things such as his ice cream and

the McD sodas we take him, he always eats. I think I will fix some homemade

applesauce to take tomorrow when I go to visit. They give him Ensure several

times a day and he drinks that. Ray seldom talks much anymore--esp. anything

that can be understood so when he does say something clear, it is a

surprise. The other day I was feeding him and he wouldn't eat. I said " Ray,

why won't you open your mouth and eat for me? " And he popped right back

" cause, I don't want to " just as clear as a bell!! Ok, I guess he still

knows what he wants to do. It gave me something to smile about. But I am

sure he is losing weight again. I forwarded the kids the " phases " list that

was on Dr. 's blog (From Donna, I believe, good job) and told them that

I thought he was in Phase V. Hard as it is to deal with all this, it is

harder to think about the alternative, which we know will come. Thanks for

being here--all of you. Leona

Leona: Caregiver for husband Ray, age 67, diagnosed 2/04 with Parkinson's

Disease. Changed doctors, diagnosed 6/06 with LBD. Almost continual downhill

slide no matter what drugs we try. 5/2/08 Ray was placed in Sunrise Nursing

Home in Oswego, NY, 1 hour from home. So far, so good! Hardest thing I have

ever done in my life, however.

" Life is not the way it's supposed to be. It's the way it is. The way you

cope with it is what makes the difference. "

**************Worried about job security? Check out the 5 safest jobs in a

recession.

(http://jobs.aol.com/gallery/growing-job-industries?ncid=emlcntuscare00000002)

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Prayers are going your way! It's probably just another stage of the disease. In

my husband's case, it happenedĀ during the last week of his life, so be prepared,

dear. He didn't want any extreme meassure, so I said no to feeding tubes and the

like. I'll pray that you also may be strong.

Hugs,

Raquel

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