Re: (unknown)

[Guest guest]

Hi Ramya, I"m sorry I forgot to tell you I lost over 100# If you need a little encouragement feel free to write anytime CelesteRamya V wrote: hiii everybody, i just need a little

information from all of u who lost 30 lbs or more. what are the workouts u did ,what kind of diet and how long did it take to loose ? thankx in advance. rammi __________________________________________________

[Guest guest]

<<i just need a little information from all of u who lost 30 lbs or more.

what are the workouts u did ,what kind of diet and how long did it take to loose >>>

I have lost 60 lbs - still have some more to lose, about 8 lbs away from my first goal.

Anyway, for me, the secret has been slow and steady. Its taken me four years of healthy low fat eating and working out. This last year, I have lost over 25 lbs, by amping uo my workouts ( mostly Taebo and Turbo Jam and some FIRMS) and by counting calories or WW points ( I am not a WW member bvt get ideas from websites and the WW magazines).

HTH!

Anny in Australia

[Guest guest]

Welcome philip,

We are s glad you wrote. And it is always nice to know others are reading and

getting some benefit.

And your two cents is worth every bit as anyone elses. And it is equally

important for us to know you are there and we aren't alone either.

Hugs,

Donna R

Caregiver for Mom for 3

years and 4th year in a nh.

(In MI)

She was almost 89 when she

died in '02. No dx other

than mine.

Re: My Heart Is Breaking

To: LBDcaregivers

Date: Saturday, February 7, 2009, 3:34 PM

Hello June K

Everything you have written, I have seen in my husband Don. It is so

heartbreaking and sad. He could not even open the Christmas presents

by himself, he really did not even know what to do with them. Lewy is

such a mean fellow, he leaves our LO's shuffleing along in a horrable

leaning posture and unsure of where they even want to go. I will

keep you in my prayers and know that this group is a rock that you

can count on. I know because they have all been a rock for me even

when I just read the posts. This group is one place that Lewy cannot

erode away at so it is a safe place. Hang in there.

Sherry in Colorado

husband, 73yo, in 8th year

of LBD. Married 33yrs.

>

> Hello everyone. I was typing a post earlier and I accidently hit the

> wrong key and my message disappeared. I guess it got lost on the

> information super highway. I will try once more. I have only been a

> member of this group for 4-5 weeks and have learned so much in that

> short time. I am impressed with the closeness of the members and how

> they all support each other. I really need a lift at this time.

Lately

> my sister, Joyce, has been wanting me with her all the time. Her

> husband visits everyday and her daughter visits 3-4 times a week

but

> for some reason she wants me there all the time. There is a small

> window on the door to her Memory Care Unit and the last two times I

> visited, I found her standing and peering out the little window. She

> said she was looking for me everywhere and could not find me. I

don't

> know how long she had been at the window and I don't know if she

does

> that on the days I don't visit. That really broke my heart. When I

> opened the door and went inside, she smiled big and said, " Hi June,

> I've been looking for you " . We were awfully close growing up. I

think

> I've told you that she is three years older than I and we are very

> different. I am outgoing, meet people easily, and have no problem

> speaking out. I've been described as a leader and Joyce has always

> been very shy, nervous, and is a follower. Growing up, Mom would

send

> us to the store. She would give Joyce the money to keep up with and

> make me go along to ask for what we wanted. Joyce was really that

shy.

> Before Joyce got sick, we loved to go shopping. I would always buy

> something pretty for my house and Joyce would buy pretty clothes.

One

> of her favorite remarks was, " June, if you can't wear it - I don't

buy

> it. " We always had so much fun. I visited her this afternoon and she

> was really low. I could bearly hear her when she spoke. Her walking

is

> getting more difficult and she just does not understand directions.

> She loves chocolate and I gave her a small piece of chocolate and

she

> didn't know how to take the wrapper off and then didn't know how to

> hold it until I showed her. My 87 year old brother-in-law,

lives

> in an Assisted Living Unit at Wesley Woods and he has a sweet

> miniature poodle named . Joyce and everyone else loves

. I

> walked Joyce down to 's apartment (did not have to go outside,

> just down another hall) and she really loved having in her

lap

> and rubbing her. We stayed about 30 minutes and she was awfully

tired

> so we returned to her apartment. I love her so much and it breaks my

> heart to see her this way. When she says she has been looking for me

> and can't find me, I tell her not to worry that I would find her. I

> just can't get her off my mind or out of my heart day and night. I

am

> really feeling the pain that I've heard all of you express. Please

> pray that I can stay strong and be there for Joyce as much as I

can. I

> fear that she will soon be unable to walk and then I don't know how

> she will cope with that.

> Love to all,

> June K.

>

[Guest guest]

Hello Phil, the Lurker (smile)

Glad you came out to play with us. Don't we wish!

Today, was one of those days I couldn't leave the NH. My husband was

pitching a " hissy fit. " Finally, one of the Nurses Aids took him to get a coke,

and

I was able to leave. He managed to put me through a ringer before I was able

to leave. Now, I blow out a big Whew!

Glad you joined us,

Love a lot, does a body good,

Imogene

Caregiver for my true Texas Gentleman Husband of 38 years. He is 74 years

old. First diagnosed with Alzheimer's by a Neurologist OCT, 2005. (He was

sick

long before that date.) But, on May 2, 2006 Dr. Schillerstrom,

Geriatric/Psychiatrist diagnosed LBD with Parkinsonism. My precious

husband, Don is

taking Zoloft for LBD. He is super sensitive to some medications. He takes

Many Heart Medicines.

A happy personality is contagious. Infect someone today

In a message dated 2/8/2009 12:35:34 AM Central Standard Time,

meditatewithme@... writes:

hello all...

i am one of the " lurkers " victoria talked about.

i read all the posts every day and i am so grateful i found this group.

but ive found the idea of jumping in with my own " two cents " a bit

overwelming.

but i just had to check in.

and express gratitude.

knowing i am not alone in the challenges and frustrations of taking care of

someone with LBD is such a great gift.

reading the posts and trying to incorporate some of the suggestions i read

has made a big difference.

thank you!!!

Phil, live-in caregiver for karin, age 69, diagnosed with LBD last year.

**************Nothing says I love you like flowers! Find a florist near you

now. (http://yellowpages.aol.com/search?query=florist & ncid=emlcntusyelp00000001)

[Guest guest]

Jannis, you have made me burst out laughing. That is so funny! I'm still

bouncing.

Love a lot,

Imogene

In a message dated 2/20/2009 5:18:06 PM Central Standard Time,

janthegoddess2003@... writes:

Well, the only thing I really know about hyperbaric oxygen chambers is that

has one in his home and spends a lot of time there...on a

daily basis...*LOL* Do we really want any of our LO's to turn out like him?

Jannis

Redefining Normal Every Day

**************You can't always choose whom you love, but you can choose how

to find them. Start with AOL Personals.

(http://personals.aol.com/?ncid=emlcntuslove00000002)

[Guest guest]

Dear F. I hope I sent you a welcome, but if I didn't I am sending you

one now, with a hug.

My Don saw many things. I was interested, and asked him to tell me about

them.

He had some gorillas in the back yard, and when I was at the kitchen sink

he would stand beside me just looking. I would ask him to tell me what they

were doing. He explained in detail. He told me of his visitors, and what

they did. It was like, " I'll tell you my dream if you tell me about yours. "

that we did as children.

Hallucinations are part of their life. I enjoyed talking about Don's

gorillas for months.

I never had any trouble getting him to go anywhere, but to do something

that I wanted him to do, I had to plant the idea, and let him think he

thought of it and wanted to do it.

It worked for us. But, each LBD LO is different. I have the confidence

you'll find

a way that fits your Mom.

Love with a smile,

Imogene

Caregiver for my True Texas Gentleman Husband. Diagnosed with AD in 2005.

And then, with LBD 2006.

A happy personality is contagious. Infect someone today.

Yours Truly

In a message dated 5/2/2009 7:15:36 P.M. Central Daylight Time,

outrunranch@... writes:

Wow--I was overwhelmed with the number of e-mails I received! Thanks for

the warm welcome! I have a, or some, questions. Do you try and insist or

encourage, going out? My mom will say yes to an outing of any sort, but

the day of, she calls and is " sick " or some such thing. Should I just let

it be? Also, what do you do when they go on and on about some very detailed

hallucination? Do you just say, Wow! that's amazing! and not really deal

with it other than that? Seems telling her its her LBD doesn't really help

too much. What do you all do that you've found to be helpful?

Thanks again, F

**************The Average US Credit Score is 692. See Yours in Just 2 Easy

Steps!

(http://pr.atwola.com/promoclk/100126575x1222376998x1201454298/aol?redir=http://\

www.freecreditreport.com/pm/default.aspx?sc=668072 & hmpgID=62 & bcd=M

ay5309AvgfooterNO62)

[Guest guest]

mary,

their hallucinations are very real to them, so do not try to convince them

otherwise, it will just frustrate you to no end. my dad was totally home body,

the only time i got him out was for thanksgivng to my best friend who is a drop

dead gorgeous woman and dad thought himself the dapper young man competing for

her attention   he was a devil lol, and when hurricane iven the terrible came

in, and we stayed at jennie's who lives further away from teh water then we do. 

the only time i got daddy to go out was for doctor appts but i had to call ahead

and make sure that we would be seen right away or he would make a scene.  so i

had arrangements made taht we would welk right in and be seen. daddy became very

paranoid when we were out of the house, he knew the kgb or cia or fbi was after

us. 

he was very scared so i didnt force the issue. 

as for chosing what to say or do, my rule was if it wasnt dangerous i wouldn't

lose sleep over it, i would chose my battles for the important ones like taking

his medications or going to his necesasry doctor appts. etc. it wasnt worth the

mental anguish for him or for me to enforce reality on him, or going out of hte

house or whatever. 

also unless your loved one is on a restricted diet of some sort, you may notice

that their appetite increases dramatically. daddy would eat all day long,

snacks, cookies, meals, desserts he would eat a box of cookies at 430 and be

ready for dinner at 530 or 6.  also set a routine up, always serve meals about

the same time, give medicines at the same time, bathe at teh same time, etc.  it

is very important to them that they have structure like that, also staart a

journal documenting medicines, food/fluid intake, any changes, you may need that

info for doctors or see a patterns of any type. 

feel free to ask away , hugs. sharon a-m

Daughter of Leonard whom was diagnosed in May 2004 and died of complicatons

*blood pressure started dropping and wouldn't recover* on Sept 25, 2005. He had

bad case of Dr Jekyl/Mr Hyde scenarios. He was showing hallucinations and

falling issues since prior to 1994. We moved in to take care of him Jan 19, 2003

and still live in his house. And in feb 2009, i have been diagonosed with 99%

probability of lbd.

Subject: (unknown)

To: LBDcaregivers

Date: Saturday, May 2, 2009, 5:09 PM

Wow--I was overwhelmed with the number of e-mails I received! Thanks for the

warm welcome! I have a, or some, questions. Do you try and insist or encourage,

going out? My mom will say yes to an outing of any sort, but the day of, she

calls and is " sick " or some such thing. Should I just let it be? Also, what do

you do when they go on and on about some very detailed hallucination? Do you

just say, Wow! that's amazing! and not really deal with it other than that?

Seems telling her its her LBD doesn't really help too much. What do you all do

that you've found to be helpful?

Thanks again, F

[Guest guest]

Google PANDAS and you will get the basics. It's a latent strep

infection that becomes an autoimmune response in the brain. Hallmark signs are

OCD, tics, emotional lability, and sleep disturbances.

Pamela

From:

mb12 valtrex [mailto:mb12 valtrex ] On Behalf

Of chatting_cells

Sent: Wednesday, May 20, 2009 1:28 PM

To: mb12 valtrex

Subject: (unknown)

Hi,

Can someone tell me what is a PANDAS kid ? Thanks!

rachel

[Guest guest]

Could a moderator get rid of

Kitty?

From: rhythmicliving

[mailto:rhythmicliving ] On Behalf Of kitty Haindl

Sent: Friday, December 10, 2010 2:00 AM

To: babygirl35326@...; PetMinkegroups;

greenbay1@...; rhythmicliving ; NaturalFerrets ;

coolnancy72@...; judiperrin@...; ina@...;

coolisjo@...

Subject: (unknown)

http://jk-escada.sk/images/st.php

[Guest guest]

It actually look like someone's hijacked her email--once she sees it

she'll probably let us know what happened. This one even happened to

one of my RT friends--we caught on quickly because I saw the email

seconds after it was sent but unless someone tells her it may be

awhile before she finds out. I'd hate to see her banned on that

account--this is happening to thousands of email addresses and it

doesn't show until someone tells the email's owner that someone is

hijacking it.

Deb

>

>

>

> Could a moderator get rid of Kitty?

>

>

--

Who wants to play trivia?

Come check out the monthly Fullmetal Trivia tournament!

www.funtrivia.com/private/main.cfm?tid=96820

[Guest guest]

This has happened to me with my hotmail account. Ghost emails were sent out to everyone in my address book and when I went to my sent items, there was no record of it. I had to remove everyone from my address book to stop them from getting these emails and now have to manually type in everyone's name. -

>

>

>

> Could a moderator get rid of Kitty?

>

>

--

Who wants to play trivia?

Come check out the monthly Fullmetal Trivia tournament!

www.funtrivia.com/private/main.cfm?tid=96820

[Guest guest]

Interesting what you say about teeth and bones. I believe it was the summer after we got off the WP that many of us started having really odd tooth problems. I talked to Dr Formby about it and he discussed mineral metabolism due to progesterone. I might have posted it on the website or the discussion is in the archives. At some point I stopped agonizing about my uterus and just wanted to be healthy. Whenever my mom gets worried about her uterus because of a doc worrying about it she invariably gets overdosed on P. I dunno what to tell women, but for me I need to keep my immune system healthy.Dr. Schwarzbein is an very experienced endo. I'd just keep checking in with her. The archives have many stores of other women's experience. You'll also see all the things that didn't work - ie Maca! LaurelLaurel, I'm now worrying if it is safe to take any WP Progesterone even while reducing and detoxing. Can you tell me what you are doing now and if you have managed to detox from the progesterone completely? How are you testing for hormone levels? I think Dr. Schwarzbein said I need some P for the uterus lining to slough off. Right now I am most worried that this protocol may have severely affected my teeth and bones. Do you know of anyone who had this problem and it got better as they weaned off the protocol and starting healing? Any encouragement of other's success would be greatly appreciated. Sheree

[Guest guest]

Hi ,

Not sure but I think having read things abotu NAET treatment and lupus as well as low dose natrexone sorry to be of such poor help

KIndly Marie

To: "Lyme_and_Rife " <Lyme_and_Rife > Sent: Thursday, April 5, 2012 8:28 PMSubject: (unknown)

Hi,

I am needing info. on a good NP Doc in Mn. My son was recently diagnosed with Lupus. He lives about 35 miles north of the Twin Cities.

Thank you and much love, you are all life savers,

D.

[Guest guest]

I would end up with bicarbonate of sodium as fungus lokes acid and alcalin kills them very fast ,

Kindly Marie

To: "Lyme_and_Rife " <Lyme_and_Rife > Sent: Saturday, April 28, 2012 9:05 AMSubject: (unknown)

Khaya

,I dont know , but I do know it kills ringworm and boric acid( primary ingredient in borax ) kills candida.I havent tried it for foot fungus but if it works for ringworm it probably will help under toenails.Personally i would start by soaking the feet in heavily salted water with epson salts and ten drops of tea tree oil for 20 minutes ,, then use boric acid( boric acid needs to be dissolved in very hot water ,or rub it straight on the area). You might also try undycelenic acid cream( I know CVS carries it,I havent found it anywhere else other than in capsule form ) You can buy boric acid online ,I think I got mine on ebay

OT: was Footbath now fungus Posted by: "khaya.davidson" khaya-davidson@... khaya.davidson Date: Fri Apr 27, 2012 8:24 am ((PDT))I think the lecithin & B complex are in addition to the foot bath, not in it.What is Benfotiamine ?Does borax kill fungus better than H2O2, baking powder, or vinegar? I have horrible toenails and flaky feet (and have tried lots of things over many, many years).Khaya

"Im not trying to counsel any of you to do anything really special,except to dare to think, and to dare to go with the truth ,and to dare to love completely." -R. Buckminster Fuller