Guest guest Posted January 14, 2009 Report Share Posted January 14, 2009 Dorothy, Bless your heart! My niece was dragged through the mill taking care of my sister for 5 or 6 years, until my sister died from Alzheimer's. Her symptoms sounded like LBD. She did not have good doctors. I feel for you. You actually have been caring for two parents, since you say your father was ill a long time before diagnosis. I don't know how you, and others of you, go through it with two parents at the same time. Maybe I could take it if I was younger. I am 76, and find between the mourning process of loosing my husband slowly, and becoming exhausted from helping even though he is in a nursing home, I have actually fallen into a slump lately. I guess depressed is what you would call it. So Imogene, How are you going to take care of yourself? Dorothy, we always say to the caregivers to take care of themselves. I need to learn those words a little better. We do have a bright sunny day, and a rocking chair by a sunny window, so I think that sounds like a good idea. Love a lot, Imogene In a message dated 1/14/2009 1:32:28 PM Central Standard Time, dedgekko@... writes: Hi to all members, Thought I'd introduce myself properly. My name is Dorothy and I'm the caregiver for my father. He has recently been diagnosed with LBD. He is 91 and luckily been in good health. This came after some recent falls and then the dementia just let loose like it had been in waiting. After looking into LBD I realized he had many of the symptoms for years but was undiagnosed. Glad to be a part of this group and I hope to learn as much as I can and offer support too. I do have experience with being a caregiver as I was for years for my mother who passed away from Alzheimers. Dorothy **************Inauguration '09: Get complete coverage from the nation's capital. (http://news.aol.com/main/politics/inauguration?ncid=emlcntusnews00000003) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2009 Report Share Posted January 14, 2009 Hi to all members, Thought I'd introduce myself properly. My name is Dorothy and I'm the caregiver for my father. He has recently been diagnosed with LBD. He is 91 and luckily been in good health. This came after some recent falls and then the dementia just let loose like it had been in waiting. After looking into LBD I realized he had many of the symptoms for years but was undiagnosed. Glad to be a part of this group and I hope to learn as much as I can and offer support too. I do have experience with being a caregiver as I was for years for my mother who passed away from Alzheimers. Dorothy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2009 Report Share Posted January 14, 2009 The old rocking chair did help, but the sun helped the most. Thank you Helene. You are so sweet. Love a lot, Imogene In a message dated 1/14/2009 5:57:23 PM Central Standard Time, hgm54@... writes: Dearest Imogene, I hope the sunny window and the rocking chair helped to cheer you up. Sending good thoughts your way. My Mom had a lousy day physically - needed a lot of help getting up, etc. etc.... BUT mentally she was great, and we had a nice conversation. Here's hoping for better days for us all. Sending many warm hugs from cold NY, Helene **************Inauguration '09: Get complete coverage from the nation's capital. (http://news.aol.com/main/politics/inauguration?ncid=emlcntusnews00000003) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2009 Report Share Posted January 14, 2009 Dear Dorothy, Welcome to the group! Helene Subject: New Member To: LBDcaregivers Date: Wednesday, January 14, 2009, 1:40 PM Hi to all members, Thought I'd introduce myself properly. My name is Dorothy and I'm the caregiver for my father. He has recently been diagnosed with LBD. He is 91 and luckily been in good health. This came after some recent falls and then the dementia just let loose like it had been in waiting. After looking into LBD I realized he had many of the symptoms for years but was undiagnosed. Glad to be a part of this group and I hope to learn as much as I can and offer support too. I do have experience with being a caregiver as I was for years for my mother who passed away from Alzheimers. Dorothy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2010 Report Share Posted October 8, 2010 Hi Kitty, I just posted this last night. http://www.buzzonbios.com/contents/web_video5.asp?id=787 & vn=2009As well, go search the group's archives on the yahoo page, but Dr. Vliet's info on that webinar is excellent. LaurelHello and thanks for letting me join!I have many questions but I am not sure where to start.What info is helpful for you guys? kitty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 I wish I knew, nothing but spam and garbage. --------------------------------------------------------------------------------\ --------------------------------------------------------------------  Hi everyone: I am a new member of this group. I just logged on to read past posts and what is happening to this group? Spam out the ying yang!! Does anyone monitor this group? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 > > I wish I knew, nothing but spam and garbage. > > > ------------------------------------------------------------------------\ ------------------------------------------------------------------------\ ---- > Â > Hi everyone: I am a new member of this group. I just logged on to read past posts and what is happening to this group? Spam out the ying yang!! Does anyone monitor this group? > > > That's all I am getting myself. I am also new. Mel > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 Well, it looks to me like this group has fizzled out.  I guess I will go to an interstitial cystitis group instead. ________________________________ To: Hugs-N-Pain Sent: Monday, March 19, 2012 3:59 PM Subject: Re: NEW MEMBER  > > I wish I knew, nothing but spam and garbage. > > > ----------------------------------------------------------\ ----------------------------------------------------------\ ---- > Â > Hi everyone: I am a new member of this group. I just logged on to read past posts and what is happening to this group? Spam out the ying yang!! Does anyone monitor this group? > > > That's all I am getting myself. I am also new. Mel > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 If anyone if interested, we can start it up by taking it over I believe. If enough people are interested. Big Pine Key, FL -- Re: NEW MEMBER > > I wish I knew, nothing but spam and garbage. > > > ----------------------------------------------------------\ ----------------------------------------------------------\ ---- > Â > Hi everyone: I am a new member of this group. I just logged on to read past posts and what is happening to this group? Spam out the ying yang!! Does anyone monitor this group? > > > That's all I am getting myself. I am also new. Mel > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 I'd be interested as I currently have osteoarthritis in my right knee.I'm supposed to have knee replacement surgery on April 17th. Also last night into early this morning I had diarhea.About 4 a.m. I took some Maalox.Then this afternoon I had something to eat.Afterward I had a bowel movement and I noticed the stool was black.I stopped taking the Maalox.I then did some research on the computer and noticed black stool can cause stomach cancer as well as Barrett's Esophagus.I'll check my stool color in the morning and if it's still black I'll go to the emergency room at my HMO. Subject: Re: Re: NEW MEMBER To: Hugs-N-Pain Date: Tuesday, March 20, 2012, 3:49 AM  If anyone if interested, we can start it up by taking it over I believe. If enough people are interested. Big Pine Key, FL -- Re: NEW MEMBER > > I wish I knew, nothing but spam and garbage. > > > ----------------------------------------------------------\ ----------------------------------------------------------\ ---- > Â > Hi everyone: I am a new member of this group. I just logged on to read past posts and what is happening to this group? Spam out the ying yang!! Does anyone monitor this group? > > > That's all I am getting myself. I am also new. Mel > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 Black stool can also be " caused " by too much iron or dark green vegetables. Review your medications and diet. Just a suggestion. I know if I take a multi bit that has iron and add an additional iron tab or eat spinach my stool always turns a dark deep green to black, after a few days of no iron or spinach my stool is " normal " . I would check that first before frightening yourself with the idea of cancer. Andria M. Simpson- PO Box 143 Conklin, NY 13748 > I'd be interested as I currently have osteoarthritis in my right knee.I'm supposed to have knee replacement surgery on April 17th. > Also last night into early this morning I had diarhea.About 4 a.m. I took some Maalox.Then this afternoon I had something to eat.Afterward I had a bowel movement and I noticed the stool was black.I stopped taking the Maalox.I then did some research on the computer and noticed black stool can cause stomach cancer as well as Barrett's Esophagus.I'll check my stool color in the morning and if it's still black I'll go to the emergency room at my HMO. > > > > > Subject: Re: Re: NEW MEMBER > To: Hugs-N-Pain > Date: Tuesday, March 20, 2012, 3:49 AM > > > > If anyone if interested, we can start it up by taking it over I believe. If > > enough people are interested. > > > > Big Pine Key, FL > > -- Re: NEW MEMBER > > > > > > > > I wish I knew, nothing but spam and garbage. > > > > > > > > > > > ----------------------------------------------------------\ > > ----------------------------------------------------------\ > > ---- > > > Â > > > Hi everyone: I am a new member of this group. I just logged on to > > read past posts and what is happening to this group? Spam out the ying > > yang!! Does anyone monitor this group? > > > > > > > > > That's all I am getting myself. I am also new. > > Mel > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2012 Report Share Posted March 20, 2012 I have a pain group too…if you're interested, send me a private message…. Marta From: Hugs-N-Pain [mailto:Hugs-N-Pain ] On Behalf Of countrygurl Sent: Monday, March 19, 2012 9:53 PM To: Hugs-N-Pain Subject: Re: Re: NEW MEMBER Well, it looks to me like this group has fizzled out. I guess I will go to an interstitial cystitis group instead. ________________________________ From: melmn2 <melmn2@... <mailto:melmn2%40hotmail.com> > To: Hugs-N-Pain <mailto:Hugs-N-Pain%40yahoogroups.com> Sent: Monday, March 19, 2012 3:59 PM Subject: Re: NEW MEMBER > > I wish I knew, nothing but spam and garbage. > > > ----------------------------------------------------------\ ----------------------------------------------------------\ ---- > Â > Hi everyone: I am a new member of this group. I just logged on to read past posts and what is happening to this group? Spam out the ying yang!! Does anyone monitor this group? > > > That's all I am getting myself. I am also new. Mel > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2012 Report Share Posted March 20, 2012 The group has not fizzed out. People just need a break every now and then. I would like to start something now about implanted medicine delivery pumps. It was identified to me that pumps were my likely next step. Scares the shit out of me. I would be afraid to roll over in bed. I and I presume many others in the group would like to hear from someone who has a pain pump implant. Much appreciated and love to all. To: Hugs-N-Pain From: myshadowridge@... Date: Tue, 20 Mar 2012 02:25:56 -0500 Subject: RE: Re: NEW MEMBER I have a pain group too…if you're interested, send me a private message…. Marta From: Hugs-N-Pain [mailto:Hugs-N-Pain ] On Behalf Of countrygurl Sent: Monday, March 19, 2012 9:53 PM To: Hugs-N-Pain Subject: Re: Re: NEW MEMBER Well, it looks to me like this group has fizzled out. I guess I will go to an interstitial cystitis group instead. ________________________________ From: melmn2 <melmn2@... <mailto:melmn2%40hotmail.com> > To: Hugs-N-Pain <mailto:Hugs-N-Pain%40yahoogroups.com> Sent: Monday, March 19, 2012 3:59 PM Subject: Re: NEW MEMBER > > I wish I knew, nothing but spam and garbage. > > > ----------------------------------------------------------\ ----------------------------------------------------------\ ---- > Â > Hi everyone: I am a new member of this group. I just logged on to read past posts and what is happening to this group? Spam out the ying yang!! Does anyone monitor this group? > > > That's all I am getting myself. I am also new. Mel > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2012 Report Share Posted March 20, 2012 Glad to hear that . I understand completely about needing breaks. I left all of my groups for a while not because of what any one person said or any groups did, I needed a break from hearing about everyones' pain. After a while, it sometimes takes a toll on my depression levels, which are very, very sensitive from outside sources. I would be interested in hearing about the implants also. Being offered that would be nice as now, the government is making it so hard to receive the medicine I truly need and my doctor is backing off dramatically. Very frustrating. > > > > > > I wish I knew, nothing but spam and garbage. > > > > > > > > > > > ----------------------------------------------------------\ > > ----------------------------------------------------------\ > > ---- > > > Â > > > Hi everyone: I am a new member of this group. I just logged on to > > read past posts and what is happening to this group? Spam out the ying > > yang!! Does anyone monitor this group? > > > > > > > > > > > That's all I am getting myself. I am also new. > > > > Mel > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2012 Report Share Posted March 20, 2012 Frustration indeed. I say let doctors be doctors. If there is a case of pain relief using canaboids instead of opiate based stuff, then let them do it. People just think about the buzz seekers. Few people focus on the pain sufferers who are also chronically constipated from codine based stuff. . If marinol or canabis causes less constipation in a certain amount of ptients then its use is justified right there. My 2 cents To: Hugs-N-Pain From: countrygurllisa@... Date: Tue, 20 Mar 2012 16:08:40 +0000 Subject: Re: NEW MEMBER Glad to hear that . I understand completely about needing breaks. I left all of my groups for a while not because of what any one person said or any groups did, I needed a break from hearing about everyones' pain. After a while, it sometimes takes a toll on my depression levels, which are very, very sensitive from outside sources. I would be interested in hearing about the implants also. Being offered that would be nice as now, the government is making it so hard to receive the medicine I truly need and my doctor is backing off dramatically. Very frustrating. > > > > > > I wish I knew, nothing but spam and garbage. > > > > > > > > > > > ----------------------------------------------------------\ > > ----------------------------------------------------------\ > > ---- > > > Â > > > Hi everyone: I am a new member of this group. I just logged on to > > read past posts and what is happening to this group? Spam out the ying > > yang!! Does anyone monitor this group? > > > > > > > > > > > That's all I am getting myself. I am also new. > > > > Mel > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2012 Report Share Posted March 29, 2012 Lynn Latham blue_texasgal@... lynnlatham@... " I Don't Do Mornings "  ________________________________ To: Hugs-N-Pain Sent: Sunday, March 18, 2012 10:04 AM Subject: NEW MEMBER  Hi everyone: I am a new member of this group. I just logged on to read past posts and what is happening to this group? Spam out the ying yang!! Does anyone monitor this group? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2012 Report Share Posted March 29, 2012 i have no idea, i have not been on in awhile.....and welcome . Lynn Latham blue_texasgal@... lynnlatham@... " I Don't Do Mornings "  ________________________________ To: Hugs-N-Pain Sent: Sunday, March 18, 2012 10:04 AM Subject: NEW MEMBER  Hi everyone: I am a new member of this group. I just logged on to read past posts and what is happening to this group? Spam out the ying yang!! Does anyone monitor this group? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2012 Report Share Posted March 29, 2012 i am on nucenta 150 mg time release. I was on the 50mg 4 times and day and that did not cut it. They want me to use methodone....don't want to unless i really have to. I have heard about the pain pumps....scares me too....I don't know what basis they use to make the decision to put the patient on it.....sounds like i repeated myself...think its bedtime anyway...wish I could answer for ya. Lynn Lynn Latham blue_texasgal@... lynnlatham@... " I Don't Do Mornings "  ________________________________ To: hugs-n-pain Sent: Tuesday, March 20, 2012 10:33 AM Subject: RE: Re: NEW MEMBER The group has not fizzed out. People just need a break every now and then. I would like to start something now about implanted medicine delivery pumps. It was identified to me that pumps were my likely next step. Scares the shit out of me. I would be afraid to roll over in bed. I and I presume many others in the group would like to hear from someone who has a pain pump implant. Much appreciated and love to all. To: Hugs-N-Pain From: myshadowridge@... Date: Tue, 20 Mar 2012 02:25:56 -0500 Subject: RE: Re: NEW MEMBER             I have a pain group too…if you're interested, send me a private message…. Marta From: Hugs-N-Pain [mailto:Hugs-N-Pain ] On Behalf Of countrygurl Sent: Monday, March 19, 2012 9:53 PM To: Hugs-N-Pain Subject: Re: Re: NEW MEMBER Well, it looks to me like this group has fizzled out. I guess I will go to an interstitial cystitis group instead. ________________________________ From: melmn2 <melmn2@... <mailto:melmn2%40hotmail.com> > To: Hugs-N-Pain <mailto:Hugs-N-Pain%40yahoogroups.com> Sent: Monday, March 19, 2012 3:59 PM Subject: Re: NEW MEMBER > > I wish I knew, nothing but spam and garbage. > > > ----------------------------------------------------------\ ----------------------------------------------------------\ ---- > Â > Hi everyone: I am a new member of this group. I just logged on to read past posts and what is happening to this group? Spam out the ying yang!! Does anyone monitor this group? > > > That's all I am getting myself. I am also new. Mel > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2012 Report Share Posted March 30, 2012 Thanks for the welcome Lynn.  I just wanted to let you know that I have been on methadone for about 4 years.  It has been the miracle in my painfully excruciating life and the only negative is the withdrawal symptoms.  It does nothing but take my chronic pain away.  My doctor here in Florida is so scared of the new law on the books about prescribing it and now told me he no longer will be able to give it to me and I must go to a pain management clinic.  Well, the clinics are backed up with 6 month waiting periods.   So, in the mean time, he gave me 50 percocets and I  just now found out he's out of the country on a mission trip until April14th and left me hanging high and dry! What I don't understand is........Methadone and Percoset are both Schedule II, controlled substances.  So why is he doing this to me?  Sometimes I just hate doctors even though he's been really good to me for the past 4 years.  He now seems to want me to leave as a patient because there is nothing he can do for me but just prescribe pain meds. There currently is no cure for Interstitial Cystitis.  It feels like I am being punished and I haven't done anything.  It's all of the druggy, pain med seeking addicts that have ruined it here in Florida for people with genuine pain.  It makes me so angry that I want to cry all of the time. ________________________________ To: " Hugs-N-Pain " <Hugs-N-Pain > Sent: Friday, March 30, 2012 1:09 AM Subject: Re: Re: NEW MEMBER  i am on nucenta 150 mg time release. I was on the 50mg 4 times and day and that did not cut it. They want me to use methodone....don't want to unless i really have to. I have heard about the pain pumps....scares me too....I don't know what basis they use to make the decision to put the patient on it.....sounds like i repeated myself...think its bedtime anyway...wish I could answer for ya. Lynn Lynn Latham blue_texasgal@... lynnlatham@... " I Don't Do Mornings "  ________________________________ To: hugs-n-pain Sent: Tuesday, March 20, 2012 10:33 AM Subject: RE: Re: NEW MEMBER The group has not fizzed out. People just need a break every now and then. I would like to start something now about implanted medicine delivery pumps. It was identified to me that pumps were my likely next step. Scares the shit out of me. I would be afraid to roll over in bed. I and I presume many others in the group would like to hear from someone who has a pain pump implant. Much appreciated and love to all. To: Hugs-N-Pain From: myshadowridge@... Date: Tue, 20 Mar 2012 02:25:56 -0500 Subject: RE: Re: NEW MEMBER             I have a pain group too…if you're interested, send me a private message…. Marta From: Hugs-N-Pain [mailto:Hugs-N-Pain ] On Behalf Of countrygurl Sent: Monday, March 19, 2012 9:53 PM To: Hugs-N-Pain Subject: Re: Re: NEW MEMBER Well, it looks to me like this group has fizzled out. I guess I will go to an interstitial cystitis group instead. ________________________________ From: melmn2 <melmn2@... <mailto:melmn2%40hotmail.com> > To: Hugs-N-Pain <mailto:Hugs-N-Pain%40yahoogroups.com> Sent: Monday, March 19, 2012 3:59 PM Subject: Re: NEW MEMBER > > I wish I knew, nothing but spam and garbage. > > > ----------------------------------------------------------\ ----------------------------------------------------------\ ---- > Â > Hi everyone: I am a new member of this group. I just logged on to read past posts and what is happening to this group? Spam out the ying yang!! Does anyone monitor this group? > > > That's all I am getting myself. I am also new. Mel > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2012 Report Share Posted March 31, 2012 I am glad to see activity here again. I know I am mainly a lurker, but I do read it all. Lynn, how long have you been going to pain clinics? It sounds like a good deal. Countrygirl, where are you in Florida? I'm down in the Keys. That new law (Thanks, The Idiot Limbaugh) has been making my life harder too. My neurologist has been prescribing my pain meds, but now I have to see her every month (another $40 wasted) and just started the pee tests, which, even with insurance were costly. Bastards. I just started seeing a spine doctor from Miami who comes down here once a month. I'm scheduled for spine surgery in Miami on April 16. Not looking forward to it for a couple of reasons. I trust this doctor, but I am terrified of having anyone cut near/on my spine or my eyes. Also, since it s so far away, I will be on my own. Hubby has to come back to care for the animals (we have 2 guinea pigs, 2 Chihuahuas, 1 Chiweenie & about 60 cockatiels) so he'll leave me up there after my surgery until he has to come pick me up. The only reason I'm going ahead with this surgery is that he said it should take 80-90% of my neck pain & headaches away. I'm having constant headaches now. Also, my left hand is not doing well, I'm dropping things a lot. But, this being my third year in hospitals, I'm so not looking forward to it. I had plans this year. I was supposed to have spent last week contacting galleries about putting my work in & going on appointments this coming week. NOT. I also had plans to restart my snorkeling this summer. That may be out too. My list of problems is so long I have to enter it as a document in my smartphone. I keep leaving stuff out. I have FMS, MPS, sleep apnea, chronic depression, bursitis, arthritis, carpal tunnel, NASH, IC, severe allergies, migraines, neuropathy. I probably forgot something but that is OK I've had FMS for most of my life. I was first diagnosed in 1982 when I was at college. Yes, there is no cure for IC (Interstitial Cystitis) but mine stays under control fairly well via diet. Which for me is a very tough diet as I LOVE citrus and berries. I feel really lucky since my only symptoms so far are urgency. I do keep my fingers crossed. Cheers   Little Dragon Designs Big Pine Key, FL http://www.etsy.com/shop/LittleDragonDesigns -- Re: NEW MEMBER > > I wish I knew, nothing but spam and garbage. > > > ----------------------------------------------------------\ ----------------------------------------------------------\ ---- > Â > Hi everyone: I am a new member of this group. I just logged on to read past posts and what is happening to this group? Spam out the ying yang!! Does anyone monitor this group? > > > That's all I am getting myself. I am also new. Mel > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2012 Report Share Posted March 31, 2012 I have been going to pain clinics since2006 or 2007....I also have epilepsy so my memory is on and off sometimes! I went to one clinic for 2 years and the doc and I really butted heads over everything....so hubby was being sent by the army before he retired to the one I am at now and boy I am sooo glad I changed over. These people want to not just stop your pain as much as possible, they offer counseling and physical therapy and other things. I am so glad I switched over. Cannot wait til the injections on Monday....its rough today and I am sure it will be tomorrow. I see the t-storms moving in now......great the weather seriously affects the pain and makes me grouchy....lol and that is the nice word for it... Gotta go Lynn Lynn Latham blue_texasgal@... lynnlatham@... " I Don't Do Mornings "  ________________________________ To: Hugs-N-Pain Sent: Saturday, March 31, 2012 1:32 PM Subject: Re: Re: NEW MEMBER  I am glad to see activity here again. I know I am mainly a lurker, but I do read it all. Lynn, how long have you been going to pain clinics? It sounds like a good deal. Countrygirl, where are you in Florida? I'm down in the Keys. That new law (Thanks, The Idiot Limbaugh) has been making my life harder too. My neurologist has been prescribing my pain meds, but now I have to see her every month (another $40 wasted) and just started the pee tests, which, even with insurance were costly. Bastards. I just started seeing a spine doctor from Miami who comes down here once a month. I'm scheduled for spine surgery in Miami on April 16. Not looking forward to it for a couple of reasons. I trust this doctor, but I am terrified of having anyone cut near/on my spine or my eyes. Also, since it s so far away, I will be on my own. Hubby has to come back to care for the animals (we have 2 guinea pigs, 2 Chihuahuas, 1 Chiweenie & about 60 cockatiels) so he'll leave me up there after my surgery until he has to come pick me up. The only reason I'm going ahead with this surgery is that he said it should take 80-90% of my neck pain & headaches away. I'm having constant headaches now. Also, my left hand is not doing well, I'm dropping things a lot. But, this being my third year in hospitals, I'm so not looking forward to it. I had plans this year. I was supposed to have spent last week contacting galleries about putting my work in & going on appointments this coming week. NOT. I also had plans to restart my snorkeling this summer. That may be out too. My list of problems is so long I have to enter it as a document in my smartphone. I keep leaving stuff out. I have FMS, MPS, sleep apnea, chronic depression, bursitis, arthritis, carpal tunnel, NASH, IC, severe allergies, migraines, neuropathy. I probably forgot something but that is OK I've had FMS for most of my life. I was first diagnosed in 1982 when I was at college. Yes, there is no cure for IC (Interstitial Cystitis) but mine stays under control fairly well via diet. Which for me is a very tough diet as I LOVE citrus and berries. I feel really lucky since my only symptoms so far are urgency. I do keep my fingers crossed. Cheers   Little Dragon Designs Big Pine Key, FL http://www.etsy.com/shop/LittleDragonDesigns -- Re: NEW MEMBER > > I wish I knew, nothing but spam and garbage. > > > ----------------------------------------------------------\ ----------------------------------------------------------\ ---- > Â > Hi everyone: I am a new member of this group. I just logged on to read past posts and what is happening to this group? Spam out the ying yang!! Does anyone monitor this group? > > > That's all I am getting myself. I am also new. Mel > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2012 Report Share Posted March 31, 2012 Hi all, I'm . I've been in pain management for almost 15 years. I've been through many, but have had the one I have now for the last 8 yrs. They do cortisone injections and radio frequency ablations. I like the doctor who does them. They also have PT (but I don't do it). I have lupus and neuropathy, including cranial neuropathies, a condition called trigeminal neuralgia which is a nightmare. I think a good pain doc will offer the meds you need plus offer treatments to help you. Mine gives me RFA in my neck (c3, c4) for herniated discs and bony spurs from OA. He gives me cortisone injections in my feet for connective tissue problems like recurring plantar fasciitis and radiculopathies in my shoulder and feet. They offer TN (trigeminal neuralgia) treatment but I haven't asked about it yet, I want to see a cranial specialist first, as it may be contraindicated with lupus. It's important to remember though that pain docs are like night and day, completely different from each other. With the dea cracking down, it's hard to find one to prescribe and not treat you like a criminal, but it IS possible. Don't give up. Love Phoenix, AZ ________________________________  I have been going to pain clinics since2006 or 2007....I also have epilepsy so my memory is on and off sometimes! I went to one clinic for 2 years and the doc and I really butted heads over everything....so hubby was being sent by the army before he retired to the one I am at now and boy I am sooo glad I changed over. These people want to not just stop your pain as much as possible, they offer counseling and physical therapy and other things. I am so glad I switched over. Cannot wait til the injections on Monday....its rough today and I am sure it will be tomorrow. I see the t-storms moving in now......great the weather seriously affects the pain and makes me grouchy....lol and that is the nice word for it... Gotta go Lynn Lynn Latham blue_texasgal@... lynnlatham@... " I Don't Do Mornings " Quote Link to comment Share on other sites More sharing options...
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