Guest guest Posted May 5, 2009 Report Share Posted May 5, 2009 Hello, I have a 2 1/2 yo son recently dx w/PPD NOS (late Feb). He is caisen free, takes kirkman's spectrum multivitamin, AFP peptizyde, omega 3, and now on a probiotic. He seems to be doing better. On rare occasions, very rare, he even spontaneously asks a relevent question or makes a relevent statement. He is verbal. I make him use his words ( " I want so and so, please " ). What else can I do? BTW- we are military living in Germany. But we are moving to VA in Aug. So then I can really get down to business. Am I doing something wrong here? What is the missing piece in our supplement intake? Any advice is greatly appreciated! Rosie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2009 Report Share Posted May 5, 2009 Have you tried anti-virals,Curcumin or chelation? We started much of the same supplements as you but once we added in anti-virals and curcumin we got better results (less hyper, more focused, less aggrevated). Here is the list of what we are giving our 6 yo PDD-NOS child: 1. Omega 3,6, 9 by Metagenics 2. Metalloclear " Curcumin " by Metagenics or you can try Enhansa by Lee Silsby Pharmacy but we had better luck with Metagenics 3. Oil of Oregano 4. Olive Leaf Extract 5. Vitamin C buffered 6. Zinc 7. Magnesium 8. Probiotics from Klaire labs 9. L-Acetyl Carnitine 10. AFP Peptizyde enzymes before breakfast and dinner We haven't tried the chelation but that is next as soon as summer vacation starts. Sandy > > Hello, > > I have a 2 1/2 yo son recently dx w/PPD NOS (late Feb). He is caisen free, takes kirkman's spectrum multivitamin, AFP peptizyde, omega 3, and now on a probiotic. He seems to be doing better. On rare occasions, very rare, he even spontaneously asks a relevent question or makes a relevent statement. He is verbal. I make him use his words ( " I want so and so, please " ). What else can I do? BTW- we are military living in Germany. But we are moving to VA in Aug. So then I can really get down to business. > > Am I doing something wrong here? What is the missing piece in our supplement intake? > > Any advice is greatly appreciated! > > Rosie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2009 Report Share Posted May 6, 2009 The Germans love homeopathy so you might think about trying to find a provider close to you and exploring that option. The Germans also grow more nourishing food than we do here. If you can (I know the exchange rate still sucks) try to buy your foods on the economy - at least the fruits and veggies. You mentioned that your son was casein free so I'm assuming that he's not yet gluten free right? My advice would be to explore that elimination as it helps a large number of children (and adults). Again, hard if you're only shopping in the commisary but doable. I just finished McCarthy's latest book and I highly recommend it for anyone starting out on the journey. It offers a nice roadmap of what the issues are and how to deal with them. The co-author is a DAN and they give good guidance on supplements and dosages etc. The book is also good to share with partners and close family members as they will get a better sense of everything that you're trying to accomplish. Subject: Re: Fairly new to thisTo: mb12 valtrex Date: Tuesday, May 5, 2009, 10:23 PM Have you tried anti-virals, Curcumin or chelation? We started much of the same supplements as you but once we added in anti-virals and curcumin we got better results (less hyper, more focused, less aggrevated). Here is the list of what we are giving our 6 yo PDD-NOS child:1. Omega 3,6, 9 by Metagenics2. Metalloclear "Curcumin" by Metagenics or you can try Enhansa by Lee Silsby Pharmacy but we had better luck with Metagenics3. Oil of Oregano4. Olive Leaf Extract5. Vitamin C buffered6. Zinc7. Magnesium8. Probiotics from Klaire labs9. L-Acetyl Carnitine10. AFP Peptizyde enzymes before breakfast and dinnerWe haven't tried the chelation but that is next as soon as summer vacation starts.Sandy>> Hello,> > I have a 2 1/2 yo son recently dx w/PPD NOS (late Feb). He is caisen free, takes kirkman's spectrum multivitamin, AFP peptizyde, omega 3, and now on a probiotic. He seems to be doing better. On rare occasions, very rare, he even spontaneously asks a relevent question or makes a relevent statement. He is verbal. I make him use his words ("I want so and so, please").. What else can I do? BTW- we are military living in Germany. But we are moving to VA in Aug. So then I can really get down to business.> > Am I doing something wrong here? What is the missing piece in our supplement intake? > > Any advice is greatly appreciated!> > Rosie> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2009 Report Share Posted May 7, 2009 I agree with the Homeopathy idea. We have been doing sequential homeopathy and it definitely works. I suggest adding Vitamin D3. Please listen to the autismone radio broadcasts I have posted below. One is about sequential homeopathy and the other is about Vitamin D3. The doses of vitamin D3 recommended are actually much, much higher than people think. You might also look into young coconut kefir. It is a probiotic drink that is made of young coconuts and a kefir starter. Sounds complicated, but it's really easy, once you do it. You can get lots of information on www.bedrokcommunity.org. I also recommend removing the gluten. It may take 6 months to see the results because it stays for so long in the body. Some kids also do better when removing soy, since the proteins in soy are very similar to those in casein. http://www.modavox.com/voiceamerica/vepisode.aspx?aid=37840 http://www.modavox.com/voiceamerica/vepisode.aspx?aid=36558 Once you are in VA and are able to do the testing to see what your primary issues are, a good DAN doctor will be able to give you more advice on what to do. In the meantime, there are some great DVD's on social skills. We use http://www.modelmekids.com/ but there are some others you might want to investigate. Eventually, you might consider Hyperbaric Oxygen Therapy. It works for some kids, but as far as I understand, it's important to get a lot of the supplementation in place, along with ridding the body of metal burden. Many kids also respond to MB12 injections or nasal spray. It didn't work for us, but it does work for a good number of kids. Finally, I would really make a big effort to remove all refined sugar, any additives or preservatives (whole foods are optimal) and to also avoid Agave, which has recently been shown to be just as bad as high fructose corn syrup. I wish you continued success! Irene p.s. Instead of Agave, I recommend Manuka Honey (from New Zeland), which has antibacterial properties. I still use it sparingly. You can also use Stevia, which is a sweetener that comes from a plant. I use it from KAL Pure Stevia, but I'm not sure if you'll be able to find it in Germany. Here is the info on Agave: From The Desk of Dr. Woeller April 28, 2009 Many parents of autism-spectrum children have worked hard to eliminate excess sugar from their child's diet to help reduce poor immune function, yeast overgrowth, and generally to improve overall health. Adults looking for improved health have also turned to the reduction of sugar to lessen their risk for diabetes, heart disease and even cancer. One product that has caught the attention of the health advocate community is Agave nectar which is commonly used as a sugar and honey substitute in teas, health drinks, coffee or cooking items that require sweetening. Agave nectar is now being sold in many health food or specialty markets as a superior sweetening agent often advertised as " natural " or " organic " to appeal to the health conscious individual. The problem is Agave nectar is anything but healthy, and recent evidence suggests that it is a toxic substance on par with high fructose corn syrup (HFCS). HFCS has been used for years as a sweetener in many processed food. HFCS is created by chemically altering corn syrup to increase its sweetness. The problem is HFCS is devoid of minerals and other nutrients often found in natural sugars such as fruit, and is a contributor to high triglycerides which predispose to heart disease. For children on the autism-spectrum the consumption of HFCS and Agave nectar the concern is certainly abnormal fat production, but also the increase in inflammation in the body which can weaken their immune system and adversely affect neurological function. In a recent article from food and nutrition researcher Rami Nagel you will learn about the dangers of HFCS and the hoax of Agave nectar as a healthy alternative sweetener. I would recommend avoiding the use of Agave nectar as a sweetener for your autism-spectrum child. It is definitely not a health product. See this link for the article on Agave Nectar. Please feel free to share this with friends or family members to assist in their health. Sincerely, Kurt N. Woeller, D.O. www.AutismActionPlan.org & Stillpoint Center Quote Link to comment Share on other sites More sharing options...
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