Guest guest Posted February 27, 2001 Report Share Posted February 27, 2001 hi..when i started Biaxin..same thing happened...for the taste...dip pill in peanut butter ...don't know why BUT..it works...works great for the flagly , too..dip it..swallow...got milk? i took pictuires too of all the lesions that came out all over my back when stratig Biaxin...it did'nt itch or bother me..just looked gross... you can take benedraly ,....rash will go away ..or just go with it and it goes away. cherlyme In a message dated 2/27/01 2:48:07 PM, rod@... writes: <<I have a friend that recently started this Drug. She was wondering about 2 things, how to help with the horrible aftertaste and mouth/throat dryness and she has lesions coming up all over and many many many! I mean probably close to 50, if not alot more. She has taken great pics of them LOL Is there anything to help clear them with no scaring? Thanks , Pepi >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2001 Report Share Posted February 27, 2001 Grapefruit juice will help the the aftertaste. Js -- Original Message -- >I have a friend that recently started this Drug. She was wondering about >2 things, how to help with the horrible aftertaste and mouth/throat dryness >and she has lesions coming up all over and many many many! I mean probably >close to 50, if not alot more. She has taken great pics of them LOL Is >there anything to help clear them with no scaring? Thanks , Pepi > >Metzler Chocolates >Fine Artisan candies, handmade >with the finest ingredients. > > ___~----..,,. > // ( )___ ) \.\ > // // // \\ > // // \\ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2001 Report Share Posted February 27, 2001 I didnt know about the grapefriut lol. BUT I do know I am allergic to that one too lol. I HATED the aftertaste. Tis nasty, especially in the AM when you wake up!! I got rashes, (got chronic hives now too lol) but I also got fevers, chills, stomach cramps, throat tightness etc. Let me know if the grapefruit helps ! Have spoken to some about that -michelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2001 Report Share Posted February 28, 2001 horrible aftertaste -Heard that potatoe chips helps kill the metalic taste -also if Biaxin upsets her stomach - the Biaxin Xl - is not as irritating Hope she is doing better soon! Lynn Lymemom LL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2001 Report Share Posted March 7, 2001 Hi Roni, What was the dose of the pill once you'd cut it in half? Dr. Chiu said that he gave his patients 250mg of clarithromycin on Tues and Thurs to start with. Chris. >It's me again..Roni. I have yet another problem to >solve here and hope you can help. If you remember my >doctor refuses to give me IV clindy, so I asked my >doctor for the clarithomycin (sp) or biaxin. I cut the >pill in half and took it. (Tues and Thursday) > >I thnk I am having an allergic reaction to the biaxin as >my hands have developed blisters, are very, very itchy >and swollen. I have stopped the biaxin and working on >the minocin. Any suggestions? Any other med I can do >besides the clarithomycin (biaxin)? My doctor also >won't give me the cliny in pill form. >Thanks, >Roni > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2001 Report Share Posted March 7, 2001 Hi Roni, If you've been on Biaxin before with no problems, it would seem worth trying it again. I'd give it a couple of weeks break and then try a quarter of a pill - 125mg roughly- on Tues and Thurs and stay on that for a couple of weeks. Then try a quarter of a pill Tues and a half a pill Thurs etc. Dr. Chiu said he'd seen some very severe herx reactions with Biaxin and told this group to always take a very small amount at first. Chris. >I'm sorry I didn't provide you with that info. I >took 250mg. on Tuesday and the whole pill on Thursday >which was 500 mg. Perhaps I over did it. > >If I should try this again, I need to give my hands some >time to get back to some normalacy again. Would >appreciate your advice. If my memory serves me right I >had been on biaxin for other problems with bronchitus in >the past and no problems, but don't remember the >dosage. Thanks again. Don't know what I'd do with out >you. >Roni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2003 Report Share Posted January 21, 2003 Jeff, It is considered a pretty potent Lyme antibiotic, strong enough that I've heard some docs prescribe it alone. It can be kind of hard on the belly, so be sure to take it with food, and be sure you increase the acidophilus since you are increasing the whammy to your digestive tract! Glad to hear this was added to your ammo -- kill those 'chetes!!!!! ~Judie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2003 Report Share Posted January 21, 2003 Tamara did that combination, amoxicillin and biaxin, for 6 months or more. It worked well for her and she was in remission, but only lasted about 4 weeks after stopping before feeling that she was relapsing. I wouldn't really draw any conclusions about what that might mean about it not being completely effective. She is now on zithromax and feeling better already. E. >Thanks again for your advice on my recent setback. My LLMD just >called in Biaxin to my pharmacy to supplement my amoxycillin. Anyone >have experience with this combination? I know nothing about Biaxin. >Anyone mind telling me what it is good for? > >Jeff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 Im on the Ketek/Mepron protocol. From what I understand, Ketek is a combo of Zithromax and Biaxin. I'd ask him about Ketek. -------------- Original message -------------- > I have been on the zith/mepron protocol for the past month and 1/2. > I > was on 1/2 doses because I couldn't take the herx's. I am currently > increasing the dose to the full dose. Now, my insurance company is > refusing to pay for Zithromax. They will only allow 6 tabs per 30 > days. In all the articles I have ever read about the treatment of > Babesia, it always states zith/mepron to be the best combination. My > doctor just said " we will have to put you on Biaxin instead " . I > asked > him to fight for me, that I didn't want to give up so quickly. He > sent 2 faxes to the insur.co. and they still denied it. > > Am I wrong to fight this battle? Is Biaxin just as good? I don't > feel like I am getting any better. I know it is a slow process. I > just feel like I barely got started and now I have to switch > protocols. Am I making a big deal out of nothing? Or is my doctor > not doing what he should (not being firm enough in his letters)? > > Suzy > > > > > > > > Questions and/or comments can be directed to the list owner at > -Owner > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 It is really hard to know what to take and not take. Right now, I am taking Cipro and Tetracycline. The Cipro is suppose to be good for the babesia. I think I read that in a quote from the book " Coping with Lyme " . Dr H from NY said it I believe. So far so good. I have not had huge improvement, but have stopped going downhill so fast. The Neuro symptoms are the main thing that eased off. My speech even seems a little better- kinda. Good luck and remember that there is no one drug to treat this. I even hear many say it is best to change every 3 months or so. Hang in there. Davy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2008 Report Share Posted April 15, 2008 Hi, anyone have any experience with your child and biaxin? We seem to have a horrible experience when my son takes this for respiratory infections. He gets really loopy on this. We have tried the liquid and pills....we have been on it for 8 days now, he still doesn't seem much better. I can't tell if it is the medicine or the fact he doesn't feel so great. Thanks for any input. Noel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2008 Report Share Posted April 15, 2008 We were able to get my daughter off all meds for asthma and chronic bronchitis using a natural product called Quercitin. It helps with inflamation and has no side effects. Do not get quercitin with nettles because some people react to the nettles which are also very good for you but you just don't want to start there. Dawn Sent via BlackBerry by AT & T Re: Biaxin Hi, anyone have any experience with your child and biaxin? We seem to have a horrible experience when my son takes this for respiratory infections. He gets really loopy on this. We have tried the liquid and pills....we have been on it for 8 days now, he still doesn't seem much better. I can't tell if it is the medicine or the fact he doesn't feel so great. Thanks for any input. Noel ------------------------------------ Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute, the Parent Coalition, or the list moderator(s). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2008 Report Share Posted April 15, 2008 Hi Noel - My son does the opposite - he improves and brightens up on the clarythromycin (Biaxin). I mean, he does really well. But that just means it's a good mix for him. I don't do well on erythromycin - not too far away, and I remember I refused to take Biaxin because it made me feel so bad - sparky and anxious and nauseas. But I jump for joy when my son gets it. Do you have any idea what type of respiratory infection he's getting? Like, has he been checked for mycoplasma and such? Could his behavior be more related to having been ill (like possible virus) as opposed to the antibiotic? Or is this a consistent to that antibiotic and not others? I do think it has immune stimulating effects but I'm not sure ... perhaps it pushes his further in a direction that doesn't work for him? Does he respond to others better? And last - could the infections actually be allergy? Sorry to not be of much help... Sometimes they just don't help one the way they do another. --- Noel Schneider <schneid99@...> wrote: > Hi, anyone have any experience with your child and > biaxin? We seem to > have a horrible experience when my son takes this > for respiratory > infections. He gets really loopy on this. We have > tried the liquid and > pills....we have been on it for 8 days now, he still > doesn't seem much > better. I can't tell if it is the medicine or the > fact he doesn't feel > so great. Thanks for any input. Noel > > ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2008 Report Share Posted April 15, 2008 My son was very sick at the end of Feb/ beginning of March. Dr. G px'd Biaxin. My son has had a lot of regression ever since ;-( Kristy Re: Biaxin Hi, anyone have any experience with your child and biaxin? We seem to have a horrible experience when my son takes this for respiratory infections. He gets really loopy on this. We have tried the liquid and pills....we have been on it for 8 days now, he still doesn't seem much better. I can't tell if it is the medicine or the fact he doesn't feel so great. Thanks for any input. Noel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2008 Report Share Posted April 15, 2008 Thank you Everyone...., He usually gets pneumonia after the start of a common cold..we did IVIG for 8 months, off for three now because it started to make him really sick, vomitting, loopy etc...nausea major headaches. He still has CVID though. It is hard to see this regression, He is indistinguishable from his peers when he is not sick and in regular preschool class. I have to keep him home when this goes on. He becomes so irritable, yelling, pouting, obsesses, it is frustrating. I have updated Dr. G with no response yet. Thanks for your response, Sincerely Noel <thecolemans4@...> wrote: Hi Noel - My son does the opposite - he improves and brightens up on the clarythromycin (Biaxin). I mean, he does really well. But that just means it's a good mix for him. I don't do well on erythromycin - not too far away, and I remember I refused to take Biaxin because it made me feel so bad - sparky and anxious and nauseas. But I jump for joy when my son gets it. Do you have any idea what type of respiratory infection he's getting? Like, has he been checked for mycoplasma and such? Could his behavior be more related to having been ill (like possible virus) as opposed to the antibiotic? Or is this a consistent to that antibiotic and not others? I do think it has immune stimulating effects but I'm not sure ... perhaps it pushes his further in a direction that doesn't work for him? Does he respond to others better? And last - could the infections actually be allergy? Sorry to not be of much help... Sometimes they just don't help one the way they do another. --- Noel Schneider <schneid99@...> wrote: > Hi, anyone have any experience with your child and > biaxin? We seem to > have a horrible experience when my son takes this > for respiratory > infections. He gets really loopy on this. We have > tried the liquid and > pills....we have been on it for 8 days now, he still > doesn't seem much > better. I can't tell if it is the medicine or the > fact he doesn't feel > so great. Thanks for any input. Noel > > __________________________________________________________ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Sincerely Noel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2008 Report Share Posted April 15, 2008 Wow - he has so much going on. Does Dr G give him the Biaxin? And do they know what type of pneumonia - i.e. is it mycoplasma pneumonia? I've carried that chronic, and I never really responded to anything (in a way that made me feel better while I was on the antibiotics, that is) other than doxycycline. I guess he's not old enough for doxycycline, huh? Will you let us know what Dr G says? --- NOEL SCHNEIDER <schneid99@...> wrote: > Thank you Everyone...., He usually gets > pneumonia after the start of a common cold..we did > IVIG for 8 months, off for three now because it > started to make him really sick, vomitting, loopy > etc...nausea major headaches. He still has CVID > though. It is hard to see this regression, He is > indistinguishable from his peers when he is not sick > and in regular preschool class. I have to keep him > home when this goes on. He becomes so irritable, > yelling, pouting, obsesses, it is frustrating. I > have updated Dr. G with no response yet. Thanks for > your response, Sincerely Noel > ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2008 Report Share Posted April 15, 2008 I will let you know, Doxycycline is what I want to ask for. The only antibiotic he ever did well on was Flagyl....but this isn't really for mycoplasmas? Dr. G did give him the Biaxin, this is the second time we have used it and the first time was a nightmare too, Dr. G wanted to use it again? We will see. Thanks <thecolemans4@...> wrote: Wow - he has so much going on. Does Dr G give him the Biaxin? And do they know what type of pneumonia - i.e. is it mycoplasma pneumonia? I've carried that chronic, and I never really responded to anything (in a way that made me feel better while I was on the antibiotics, that is) other than doxycycline. I guess he's not old enough for doxycycline, huh? Will you let us know what Dr G says? --- NOEL SCHNEIDER <schneid99@...> wrote: > Thank you Everyone...., He usually gets > pneumonia after the start of a common cold..we did > IVIG for 8 months, off for three now because it > started to make him really sick, vomitting, loopy > etc...nausea major headaches. He still has CVID > though. It is hard to see this regression, He is > indistinguishable from his peers when he is not sick > and in regular preschool class. I have to keep him > home when this goes on. He becomes so irritable, > yelling, pouting, obsesses, it is frustrating. I > have updated Dr. G with no response yet. Thanks for > your response, Sincerely Noel > __________________________________________________________ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Sincerely Noel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2008 Report Share Posted April 15, 2008 Hi, Dr. G wants to try pediazole.....sulfur drug I am a little scared...it still has erthyromicin in it though? We will see. Noel <thecolemans4@...> wrote: Wow - he has so much going on. Does Dr G give him the Biaxin? And do they know what type of pneumonia - i.e. is it mycoplasma pneumonia? I've carried that chronic, and I never really responded to anything (in a way that made me feel better while I was on the antibiotics, that is) other than doxycycline. I guess he's not old enough for doxycycline, huh? Will you let us know what Dr G says? --- NOEL SCHNEIDER <schneid99@...> wrote: > Thank you Everyone...., He usually gets > pneumonia after the start of a common cold..we did > IVIG for 8 months, off for three now because it > started to make him really sick, vomitting, loopy > etc...nausea major headaches. He still has CVID > though. It is hard to see this regression, He is > indistinguishable from his peers when he is not sick > and in regular preschool class. I have to keep him > home when this goes on. He becomes so irritable, > yelling, pouting, obsesses, it is frustrating. I > have updated Dr. G with no response yet. Thanks for > your response, Sincerely Noel > __________________________________________________________ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Sincerely Noel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2008 Report Share Posted April 15, 2008 My son also did well on sulfur ... but he's not exactly a gage for ya. I'm allergic to it but not severely enough that I couldn't take a couple of doses before I developed a sensitivity to it. My other son, who does not do well on Biaxin like his brother, did really well on Ery-Ped, which I believe has sulfur in it too. His brother did not. So if they're opposites, maybe you'll strike gold there. And sulfur is one of the oldie goodies that everything is still sensitive too. Maybe you'll strike gold this time! No fear - just optimism. There's always time to be disappointed later. If only I could learn to take that advice. --- NOEL SCHNEIDER <schneid99@...> wrote: > Hi, Dr. G wants to try pediazole.....sulfur drug I > am a little scared...it still has erthyromicin in it > though? We will see. Noel > > <thecolemans4@...> wrote: > Wow - he has so much going on. Does Dr G give > him the > Biaxin? And do they know what type of pneumonia - > i.e. is it mycoplasma pneumonia? I've carried that > chronic, and I never really responded to anything > (in > a way that made me feel better while I was on the > antibiotics, that is) other than doxycycline. > > I guess he's not old enough for doxycycline, huh? > > Will you let us know what Dr G says? > > > > --- NOEL SCHNEIDER <schneid99@...> wrote: > > > Thank you Everyone...., He usually gets > > pneumonia after the start of a common cold..we did > > IVIG for 8 months, off for three now because it > > started to make him really sick, vomitting, loopy > > etc...nausea major headaches. He still has CVID > > though. It is hard to see this regression, He is > > indistinguishable from his peers when he is not > sick > > and in regular preschool class. I have to keep him > > home when this goes on. He becomes so irritable, > > yelling, pouting, obsesses, it is frustrating. I > > have updated Dr. G with no response yet. Thanks > for > > your response, Sincerely Noel > > > > __________________________________________________________ > Be a better friend, newshound, and > know-it-all with Mobile. Try it now. > http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > > > > > Sincerely Noel > > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2008 Report Share Posted April 15, 2008 Doxycycline is hard on the bones, so it's not a good choice for younger kids. I really don't know the age group that responds. HTH- --- NOEL SCHNEIDER <schneid99@...> wrote: > I will let you know, Doxycycline is what I want to > ask for. The only antibiotic he ever did well on > was Flagyl....but this isn't really for mycoplasmas? > Dr. G did give him the Biaxin, this is the second > time we have used it and the first time was a > nightmare too, Dr. G wanted to use it again? We will > see. Thanks > > <thecolemans4@...> wrote: > Wow - he has so much going on. Does Dr G give > him the > Biaxin? And do they know what type of pneumonia - > i.e. is it mycoplasma pneumonia? I've carried that > chronic, and I never really responded to anything > (in > a way that made me feel better while I was on the > antibiotics, that is) other than doxycycline. > > I guess he's not old enough for doxycycline, huh? > > Will you let us know what Dr G says? > > > > --- NOEL SCHNEIDER <schneid99@...> wrote: > > > Thank you Everyone...., He usually gets > > pneumonia after the start of a common cold..we did > > IVIG for 8 months, off for three now because it > > started to make him really sick, vomitting, loopy > > etc...nausea major headaches. He still has CVID > > though. It is hard to see this regression, He is > > indistinguishable from his peers when he is not > sick > > and in regular preschool class. I have to keep him > > home when this goes on. He becomes so irritable, > > yelling, pouting, obsesses, it is frustrating. I > > have updated Dr. G with no response yet. Thanks > for > > your response, Sincerely Noel > > > > __________________________________________________________ > Be a better friend, newshound, and > know-it-all with Mobile. Try it now. > http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > > > > > Sincerely Noel > > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2008 Report Share Posted April 15, 2008 Thank you , anyway my son is on Ketoconazole and the pharmacist just informed me that Ery-Ped , pediazole, there is a drug interaction, so this is not an option. <thecolemans4@...> wrote: My son also did well on sulfur ... but he's not exactly a gage for ya. I'm allergic to it but not severely enough that I couldn't take a couple of doses before I developed a sensitivity to it. My other son, who does not do well on Biaxin like his brother, did really well on Ery-Ped, which I believe has sulfur in it too. His brother did not. So if they're opposites, maybe you'll strike gold there. And sulfur is one of the oldie goodies that everything is still sensitive too. Maybe you'll strike gold this time! No fear - just optimism. There's always time to be disappointed later. If only I could learn to take that advice. --- NOEL SCHNEIDER <schneid99@...> wrote: > Hi, Dr. G wants to try pediazole.....sulfur drug I > am a little scared...it still has erthyromicin in it > though? We will see. Noel > > <thecolemans4@...> wrote: > Wow - he has so much going on. Does Dr G give > him the > Biaxin? And do they know what type of pneumonia - > i.e. is it mycoplasma pneumonia? I've carried that > chronic, and I never really responded to anything > (in > a way that made me feel better while I was on the > antibiotics, that is) other than doxycycline. > > I guess he's not old enough for doxycycline, huh? > > Will you let us know what Dr G says? > > > > --- NOEL SCHNEIDER <schneid99@...> wrote: > > > Thank you Everyone...., He usually gets > > pneumonia after the start of a common cold..we did > > IVIG for 8 months, off for three now because it > > started to make him really sick, vomitting, loopy > > etc...nausea major headaches. He still has CVID > > though. It is hard to see this regression, He is > > indistinguishable from his peers when he is not > sick > > and in regular preschool class. I have to keep him > > home when this goes on. He becomes so irritable, > > yelling, pouting, obsesses, it is frustrating. I > > have updated Dr. G with no response yet. Thanks > for > > your response, Sincerely Noel > > > > __________________________________________________________ > Be a better friend, newshound, and > know-it-all with Mobile. Try it now. > http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > > > > > Sincerely Noel > > > [Non-text portions of this message have been > removed] > > __________________________________________________________ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Sincerely Noel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2008 Report Share Posted April 15, 2008 Biaxin seems to be one of those that some can do but most can¹t do. I have heard this from many doctor¹s. I would not continue to give it. Call & ask for something else. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2008 Report Share Posted April 15, 2008 Isn't Flagyl " the " drug for parasites? Maybe he is affected by parasites? Many of our kids are at some point or another. Kristy Re: Re: Biaxin I will let you know, Doxycycline is what I want to ask for. The only antibiotic he ever did well on was Flagyl....but this isn't really for mycoplasmas? Dr. G did give him the Biaxin, this is the second time we have used it and the first time was a nightmare too, Dr. G wanted to use it again? We will see. Thanks <thecolemans4@...> wrote: Wow - he has so much going on. Does Dr G give him the Biaxin? And do they know what type of pneumonia - i.e. is it mycoplasma pneumonia? I've carried that chronic, and I never really responded to anything (in a way that made me feel better while I was on the antibiotics, that is) other than doxycycline. I guess he's not old enough for doxycycline, huh? Will you let us know what Dr G says? --- NOEL SCHNEIDER <schneid99@...> wrote: > Thank you Everyone...., He usually gets > pneumonia after the start of a common cold..we did > IVIG for 8 months, off for three now because it > started to make him really sick, vomitting, loopy > etc...nausea major headaches. He still has CVID > though. It is hard to see this regression, He is > indistinguishable from his peers when he is not sick > and in regular preschool class. I have to keep him > home when this goes on. He becomes so irritable, > yelling, pouting, obsesses, it is frustrating. I > have updated Dr. G with no response yet. Thanks for > your response, Sincerely Noel > __________________________________________________________ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Sincerely Noel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2008 Report Share Posted April 15, 2008 I am sorry, this doesn't answer your question but it is interesting that you are talking about drug reactions just as we are in the throws of just that!! It is also interesting that he did well on Flagyl. My daughter is on Flagyl, as I was discussing last week, for a parasite and is totally " loopy " . She is hypersensitive to sound and touch (usually she has been hyposensitive). She has had a couple episodes of shaking out of fear of a noise. She is crying about everything, I mean absolutely everything. Does anyone know how long it takes for the side effects to abate after going off a medication?. Are we risking damaging her system permanently?? What does Dr. G do in this situation. Does he change the medication? We are not seeing him yet. NOEL SCHNEIDER wrote: > I will let you know, Doxycycline is what I want to ask for. The only > antibiotic he ever did well on was Flagyl....but this isn't really for > mycoplasmas? Dr. G did give him the Biaxin, this is the second time we > have used it and the first time was a nightmare too, Dr. G wanted to > use it again? We will see. Thanks > > <thecolemans4@... > <mailto:thecolemans4%40>> wrote: Wow - he has so much going > on. Does Dr G give him the > Biaxin? And do they know what type of pneumonia - > i.e. is it mycoplasma pneumonia? I've carried that > chronic, and I never really responded to anything (in > a way that made me feel better while I was on the > antibiotics, that is) other than doxycycline. > > I guess he's not old enough for doxycycline, huh? > > Will you let us know what Dr G says? > > > > --- NOEL SCHNEIDER <schneid99@... > <mailto:schneid99%40sbcglobal.net>> wrote: > > > Thank you Everyone...., He usually gets > > pneumonia after the start of a common cold..we did > > IVIG for 8 months, off for three now because it > > started to make him really sick, vomitting, loopy > > etc...nausea major headaches. He still has CVID > > though. It is hard to see this regression, He is > > indistinguishable from his peers when he is not sick > > and in regular preschool class. I have to keep him > > home when this goes on. He becomes so irritable, > > yelling, pouting, obsesses, it is frustrating. I > > have updated Dr. G with no response yet. Thanks for > > your response, Sincerely Noel > > > > __________________________________________________________ > Be a better friend, newshound, and > know-it-all with Mobile. Try it now. > http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > <http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ> > > Sincerely Noel > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2008 Report Share Posted April 15, 2008 Caroline, you won't damage her permanently. Cheryl may answer you better than I, but I would wait for about 7-10 days and see how she does. This is usually Dr. Gs rec. I don't know how he treats parasites? If at all. Dr. G does not like DAN I can tell you that. Is your daughter on Valtrex or yeast meds? hang in there, Noel Caroline <carrieps@...> wrote: I am sorry, this doesn't answer your question but it is interesting that you are talking about drug reactions just as we are in the throws of just that!! It is also interesting that he did well on Flagyl. My daughter is on Flagyl, as I was discussing last week, for a parasite and is totally " loopy " . She is hypersensitive to sound and touch (usually she has been hyposensitive). She has had a couple episodes of shaking out of fear of a noise. She is crying about everything, I mean absolutely everything. Does anyone know how long it takes for the side effects to abate after going off a medication?. Are we risking damaging her system permanently?? What does Dr. G do in this situation. Does he change the medication? We are not seeing him yet. NOEL SCHNEIDER wrote: > I will let you know, Doxycycline is what I want to ask for. The only > antibiotic he ever did well on was Flagyl....but this isn't really for > mycoplasmas? Dr. G did give him the Biaxin, this is the second time we > have used it and the first time was a nightmare too, Dr. G wanted to > use it again? We will see. Thanks > > <thecolemans4@... > <mailto:thecolemans4%40>> wrote: Wow - he has so much going > on. Does Dr G give him the > Biaxin? And do they know what type of pneumonia - > i.e. is it mycoplasma pneumonia? I've carried that > chronic, and I never really responded to anything (in > a way that made me feel better while I was on the > antibiotics, that is) other than doxycycline. > > I guess he's not old enough for doxycycline, huh? > > Will you let us know what Dr G says? > > > > --- NOEL SCHNEIDER <schneid99@... > <mailto:schneid99%40sbcglobal.net>> wrote: > > > Thank you Everyone...., He usually gets > > pneumonia after the start of a common cold..we did > > IVIG for 8 months, off for three now because it > > started to make him really sick, vomitting, loopy > > etc...nausea major headaches. He still has CVID > > though. It is hard to see this regression, He is > > indistinguishable from his peers when he is not sick > > and in regular preschool class. I have to keep him > > home when this goes on. He becomes so irritable, > > yelling, pouting, obsesses, it is frustrating. I > > have updated Dr. G with no response yet. Thanks for > > your response, Sincerely Noel > > > > __________________________________________________________ > Be a better friend, newshound, and > know-it-all with Mobile. Try it now. > http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > <http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ> > > Sincerely Noel > > Quote Link to comment Share on other sites More sharing options...
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