Re: Biaxin

February 27, 2001

hi..when i started Biaxin..same thing happened...for the taste...dip pill in

peanut butter ...don't know why BUT..it works...works great for the flagly ,

too..dip it..swallow...got milk?

i took pictuires too of all the lesions that came out all over my back

when stratig Biaxin...it did'nt itch or bother me..just looked gross...

you can take benedraly ,....rash will go away ..or just go with it and it

goes away.

cherlyme

In a message dated 2/27/01 2:48:07 PM, rod@... writes:

<<I have a friend that recently started this Drug. She was wondering about 2

things, how to help with the horrible aftertaste and mouth/throat dryness

and she has lesions coming up all over and many many many! I mean probably

close to 50, if not alot more. She has taken great pics of them LOL Is

there anything to help clear them with no scaring? Thanks , Pepi

>>

February 27, 2001

Grapefruit juice will help the the aftertaste.

Js

-- Original Message --

>I have a friend that recently started this Drug. She was wondering about

>2 things, how to help with the horrible aftertaste and mouth/throat dryness

>and she has lesions coming up all over and many many many! I mean probably

>close to 50, if not alot more. She has taken great pics of them LOL Is

>there anything to help clear them with no scaring? Thanks , Pepi

>

>Metzler Chocolates

>Fine Artisan candies, handmade

>with the finest ingredients.

>

> ___~----..,,.

> // ( )___ ) \.\

> // // // \\

> // // \\

>

February 27, 2001

I didnt know about the grapefriut lol. BUT I do know I am allergic to

that one too lol. I HATED the aftertaste. Tis nasty, especially in

the AM when you wake up!!

I got rashes, (got chronic hives now too lol) but I also got fevers,

chills, stomach cramps, throat tightness etc.

Let me know if the grapefruit helps !

Have spoken to some about that

-michelle

February 28, 2001

horrible aftertaste

-Heard that potatoe chips helps kill the metalic taste

-also if Biaxin upsets her stomach - the Biaxin Xl - is not as

irritating

Hope she is doing better soon!

Lynn Lymemom

LL

March 7, 2001

Hi Roni,

What was the dose of the pill once you'd cut it in half? Dr. Chiu said that

he gave his patients 250mg of clarithromycin on Tues and Thurs to start with.

Chris.

>It's me again..Roni. I have yet another problem to

>solve here and hope you can help. If you remember my

>doctor refuses to give me IV clindy, so I asked my

>doctor for the clarithomycin (sp) or biaxin. I cut the

>pill in half and took it. (Tues and Thursday)

>

>I thnk I am having an allergic reaction to the biaxin as

>my hands have developed blisters, are very, very itchy

>and swollen. I have stopped the biaxin and working on

>the minocin. Any suggestions? Any other med I can do

>besides the clarithomycin (biaxin)? My doctor also

>won't give me the cliny in pill form.

>Thanks,

>Roni

>

March 7, 2001

Hi Roni,

If you've been on Biaxin before with no problems, it would seem worth trying

it again. I'd give it a couple of weeks break and then try a quarter of a pill

- 125mg roughly- on Tues and Thurs and stay on that for a couple of weeks. Then

try a quarter of a pill Tues and a half a pill Thurs etc.

Dr. Chiu said he'd seen some very severe herx reactions with Biaxin and told

this group to always take a very small amount at first.

Chris.

>I'm sorry I didn't provide you with that info. I

>took 250mg. on Tuesday and the whole pill on Thursday

>which was 500 mg. Perhaps I over did it.

>

>If I should try this again, I need to give my hands some

>time to get back to some normalacy again. Would

>appreciate your advice. If my memory serves me right I

>had been on biaxin for other problems with bronchitus in

>the past and no problems, but don't remember the

>dosage. Thanks again. Don't know what I'd do with out

>you.

>Roni

January 21, 2003

Jeff,

It is considered a pretty potent Lyme antibiotic, strong enough that I've

heard some docs prescribe it alone. It can be kind of hard on the belly, so

be sure to take it with food, and be sure you increase the acidophilus since

you are increasing the whammy to your digestive tract!

Glad to hear this was added to your ammo -- kill those 'chetes!!!!!

~Judie

January 21, 2003

Tamara did that combination, amoxicillin and biaxin, for 6 months or

more. It worked well for her and she was in remission, but only

lasted about 4 weeks after stopping before feeling that she was

relapsing. I wouldn't really draw any conclusions about what that

might mean about it not being completely effective. She is now on

zithromax and feeling better already.

E.

>Thanks again for your advice on my recent setback. My LLMD just

>called in Biaxin to my pharmacy to supplement my amoxycillin. Anyone

>have experience with this combination? I know nothing about Biaxin.

>Anyone mind telling me what it is good for?

>

>Jeff

May 26, 2005

Im on the Ketek/Mepron protocol. From what I understand, Ketek is a combo of

Zithromax and Biaxin. I'd ask him about Ketek.

-------------- Original message --------------

> I have been on the zith/mepron protocol for the past month and 1/2.

> I

> was on 1/2 doses because I couldn't take the herx's. I am currently

> increasing the dose to the full dose. Now, my insurance company is

> refusing to pay for Zithromax. They will only allow 6 tabs per 30

> days. In all the articles I have ever read about the treatment of

> Babesia, it always states zith/mepron to be the best combination. My

> doctor just said " we will have to put you on Biaxin instead " . I

> asked

> him to fight for me, that I didn't want to give up so quickly. He

> sent 2 faxes to the insur.co. and they still denied it.

>

> Am I wrong to fight this battle? Is Biaxin just as good? I don't

> feel like I am getting any better. I know it is a slow process. I

> just feel like I barely got started and now I have to switch

> protocols. Am I making a big deal out of nothing? Or is my doctor

> not doing what he should (not being firm enough in his letters)?

>

> Suzy

>

> Questions and/or comments can be directed to the list owner at

> -Owner

>

May 26, 2005

It is really hard to know what to take and not take. Right now, I am

taking Cipro and Tetracycline. The Cipro is suppose to be good for the

babesia. I think I read that in a quote from the book " Coping with

Lyme " . Dr H from NY said it I believe. So far so good. I have not had

huge improvement, but have stopped going downhill so fast. The Neuro

symptoms are the main thing that eased off. My speech even seems a

little better- kinda. Good luck and remember that there is no one drug

to treat this. I even hear many say it is best to change every 3

months or so. Hang in there.

Davy

April 15, 2008

Hi, anyone have any experience with your child and biaxin? We seem to

have a horrible experience when my son takes this for respiratory

infections. He gets really loopy on this. We have tried the liquid and

pills....we have been on it for 8 days now, he still doesn't seem much

better. I can't tell if it is the medicine or the fact he doesn't feel

so great. Thanks for any input. Noel

April 15, 2008

We were able to get my daughter off all meds for asthma and chronic bronchitis

using a natural product called Quercitin. It helps with inflamation and has no

side effects. Do not get quercitin with nettles because some people react to the

nettles which are also very good for you but you just don't want to start there.

Dawn

Sent via BlackBerry by AT & T

Re: Biaxin

Hi, anyone have any experience with your child and biaxin? We seem to

have a horrible experience when my son takes this for respiratory

infections. He gets really loopy on this. We have tried the liquid and

pills....we have been on it for 8 days now, he still doesn't seem much

better. I can't tell if it is the medicine or the fact he doesn't feel

so great. Thanks for any input. Noel

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April 15, 2008

Hi Noel -

My son does the opposite - he improves and brightens

up on the clarythromycin (Biaxin). I mean, he does

really well. But that just means it's a good mix for

him. I don't do well on erythromycin - not too far

away, and I remember I refused to take Biaxin because

it made me feel so bad - sparky and anxious and

nauseas. But I jump for joy when my son gets it.

Do you have any idea what type of respiratory

infection he's getting? Like, has he been checked for

mycoplasma and such?

Could his behavior be more related to having been ill

(like possible virus) as opposed to the antibiotic?

Or is this a consistent to that antibiotic and not

others? I do think it has immune stimulating effects

but I'm not sure ... perhaps it pushes his further in

a direction that doesn't work for him? Does he

respond to others better? And last - could the

infections actually be allergy?

Sorry to not be of much help... Sometimes they just

don't help one the way they do another.

--- Noel Schneider <schneid99@...> wrote:

> Hi, anyone have any experience with your child and

> biaxin? We seem to

> have a horrible experience when my son takes this

> for respiratory

> infections. He gets really loopy on this. We have

> tried the liquid and

> pills....we have been on it for 8 days now, he still

> doesn't seem much

> better. I can't tell if it is the medicine or the

> fact he doesn't feel

> so great. Thanks for any input. Noel

>

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April 15, 2008

My son was very sick at the end of Feb/ beginning of March. Dr. G px'd

Biaxin. My son has had a lot of regression ever since ;-(

Kristy

Re: Biaxin

Hi, anyone have any experience with your child and biaxin? We seem to

have a horrible experience when my son takes this for respiratory

infections. He gets really loopy on this. We have tried the liquid and

pills....we have been on it for 8 days now, he still doesn't seem much

better. I can't tell if it is the medicine or the fact he doesn't feel

so great. Thanks for any input. Noel

April 15, 2008

Thank you Everyone...., He usually gets pneumonia after the start of a

common cold..we did IVIG for 8 months, off for three now because it started to

make him really sick, vomitting, loopy etc...nausea major headaches. He still

has CVID though. It is hard to see this regression, He is indistinguishable from

his peers when he is not sick and in regular preschool class. I have to keep him

home when this goes on. He becomes so irritable, yelling, pouting, obsesses, it

is frustrating. I have updated Dr. G with no response yet. Thanks for your

response, Sincerely Noel

<thecolemans4@...> wrote: Hi Noel -

My son does the opposite - he improves and brightens

up on the clarythromycin (Biaxin). I mean, he does

really well. But that just means it's a good mix for

him. I don't do well on erythromycin - not too far

away, and I remember I refused to take Biaxin because

it made me feel so bad - sparky and anxious and

nauseas. But I jump for joy when my son gets it.

Do you have any idea what type of respiratory

infection he's getting? Like, has he been checked for

mycoplasma and such?

Could his behavior be more related to having been ill

(like possible virus) as opposed to the antibiotic?

Or is this a consistent to that antibiotic and not

others? I do think it has immune stimulating effects

but I'm not sure ... perhaps it pushes his further in

a direction that doesn't work for him? Does he

respond to others better? And last - could the

infections actually be allergy?

Sorry to not be of much help... Sometimes they just

don't help one the way they do another.

--- Noel Schneider <schneid99@...> wrote:

> Hi, anyone have any experience with your child and

> biaxin? We seem to

> have a horrible experience when my son takes this

> for respiratory

> infections. He gets really loopy on this. We have

> tried the liquid and

> pills....we have been on it for 8 days now, he still

> doesn't seem much

> better. I can't tell if it is the medicine or the

> fact he doesn't feel

> so great. Thanks for any input. Noel

>

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Sincerely Noel

April 15, 2008

Wow - he has so much going on. Does Dr G give him the

Biaxin? And do they know what type of pneumonia -

i.e. is it mycoplasma pneumonia? I've carried that

chronic, and I never really responded to anything (in

a way that made me feel better while I was on the

antibiotics, that is) other than doxycycline.

I guess he's not old enough for doxycycline, huh?

Will you let us know what Dr G says?

--- NOEL SCHNEIDER <schneid99@...> wrote:

> Thank you Everyone...., He usually gets

> pneumonia after the start of a common cold..we did

> IVIG for 8 months, off for three now because it

> started to make him really sick, vomitting, loopy

> etc...nausea major headaches. He still has CVID

> though. It is hard to see this regression, He is

> indistinguishable from his peers when he is not sick

> and in regular preschool class. I have to keep him

> home when this goes on. He becomes so irritable,

> yelling, pouting, obsesses, it is frustrating. I

> have updated Dr. G with no response yet. Thanks for

> your response, Sincerely Noel

>

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April 15, 2008

I will let you know, Doxycycline is what I want to ask for. The only antibiotic

he ever did well on was Flagyl....but this isn't really for mycoplasmas? Dr. G

did give him the Biaxin, this is the second time we have used it and the first

time was a nightmare too, Dr. G wanted to use it again? We will see. Thanks

<thecolemans4@...> wrote: Wow - he has so much

going on. Does Dr G give him the

Biaxin? And do they know what type of pneumonia -

i.e. is it mycoplasma pneumonia? I've carried that

chronic, and I never really responded to anything (in

a way that made me feel better while I was on the

antibiotics, that is) other than doxycycline.

I guess he's not old enough for doxycycline, huh?

Will you let us know what Dr G says?

--- NOEL SCHNEIDER <schneid99@...> wrote:

> Thank you Everyone...., He usually gets

> pneumonia after the start of a common cold..we did

> IVIG for 8 months, off for three now because it

> started to make him really sick, vomitting, loopy

> etc...nausea major headaches. He still has CVID

> though. It is hard to see this regression, He is

> indistinguishable from his peers when he is not sick

> and in regular preschool class. I have to keep him

> home when this goes on. He becomes so irritable,

> yelling, pouting, obsesses, it is frustrating. I

> have updated Dr. G with no response yet. Thanks for

> your response, Sincerely Noel

>

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Sincerely Noel

April 15, 2008

Hi, Dr. G wants to try pediazole.....sulfur drug I am a little scared...it still

has erthyromicin in it though? We will see. Noel

<thecolemans4@...> wrote: Wow - he has so much

going on. Does Dr G give him the

Biaxin? And do they know what type of pneumonia -

i.e. is it mycoplasma pneumonia? I've carried that

chronic, and I never really responded to anything (in

a way that made me feel better while I was on the

antibiotics, that is) other than doxycycline.

I guess he's not old enough for doxycycline, huh?

Will you let us know what Dr G says?

--- NOEL SCHNEIDER <schneid99@...> wrote:

> Thank you Everyone...., He usually gets

> pneumonia after the start of a common cold..we did

> IVIG for 8 months, off for three now because it

> started to make him really sick, vomitting, loopy

> etc...nausea major headaches. He still has CVID

> though. It is hard to see this regression, He is

> indistinguishable from his peers when he is not sick

> and in regular preschool class. I have to keep him

> home when this goes on. He becomes so irritable,

> yelling, pouting, obsesses, it is frustrating. I

> have updated Dr. G with no response yet. Thanks for

> your response, Sincerely Noel

>

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Sincerely Noel

April 15, 2008

My son also did well on sulfur ... but he's not

exactly a gage for ya. I'm allergic to it but not

severely enough that I couldn't take a couple of doses

before I developed a sensitivity to it.

My other son, who does not do well on Biaxin like his

brother, did really well on Ery-Ped, which I believe

has sulfur in it too. His brother did not. So if

they're opposites, maybe you'll strike gold there.

And sulfur is one of the oldie goodies that everything

is still sensitive too.

Maybe you'll strike gold this time! No fear - just

optimism. There's always time to be disappointed

later. If only I could learn to take that advice.

--- NOEL SCHNEIDER <schneid99@...> wrote:

> Hi, Dr. G wants to try pediazole.....sulfur drug I

> am a little scared...it still has erthyromicin in it

> though? We will see. Noel

>

> <thecolemans4@...> wrote:

> Wow - he has so much going on. Does Dr G give

> him the

> Biaxin? And do they know what type of pneumonia -

> i.e. is it mycoplasma pneumonia? I've carried that

> chronic, and I never really responded to anything

> (in

> a way that made me feel better while I was on the

> antibiotics, that is) other than doxycycline.

>

> I guess he's not old enough for doxycycline, huh?

>

> Will you let us know what Dr G says?

>

> --- NOEL SCHNEIDER <schneid99@...> wrote:

>

> > Thank you Everyone...., He usually gets

> > pneumonia after the start of a common cold..we did

> > IVIG for 8 months, off for three now because it

> > started to make him really sick, vomitting, loopy

> > etc...nausea major headaches. He still has CVID

> > though. It is hard to see this regression, He is

> > indistinguishable from his peers when he is not

> sick

> > and in regular preschool class. I have to keep him

> > home when this goes on. He becomes so irritable,

> > yelling, pouting, obsesses, it is frustrating. I

> > have updated Dr. G with no response yet. Thanks

> for

> > your response, Sincerely Noel

> >

>

__________________________________________________________

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

>

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

> Sincerely Noel

>

> [Non-text portions of this message have been

> removed]

>

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April 15, 2008

Doxycycline is hard on the bones, so it's not a good

choice for younger kids. I really don't know the age

group that responds.

HTH-

--- NOEL SCHNEIDER <schneid99@...> wrote:

> I will let you know, Doxycycline is what I want to

> ask for. The only antibiotic he ever did well on

> was Flagyl....but this isn't really for mycoplasmas?

> Dr. G did give him the Biaxin, this is the second

> time we have used it and the first time was a

> nightmare too, Dr. G wanted to use it again? We will

> see. Thanks

>

> <thecolemans4@...> wrote:

> Wow - he has so much going on. Does Dr G give

> him the

> Biaxin? And do they know what type of pneumonia -

> i.e. is it mycoplasma pneumonia? I've carried that

> chronic, and I never really responded to anything

> (in

> a way that made me feel better while I was on the

> antibiotics, that is) other than doxycycline.

>

> I guess he's not old enough for doxycycline, huh?

>

> Will you let us know what Dr G says?

>

> --- NOEL SCHNEIDER <schneid99@...> wrote:

>

> > Thank you Everyone...., He usually gets

> > pneumonia after the start of a common cold..we did

> > IVIG for 8 months, off for three now because it

> > started to make him really sick, vomitting, loopy

> > etc...nausea major headaches. He still has CVID

> > though. It is hard to see this regression, He is

> > indistinguishable from his peers when he is not

> sick

> > and in regular preschool class. I have to keep him

> > home when this goes on. He becomes so irritable,

> > yelling, pouting, obsesses, it is frustrating. I

> > have updated Dr. G with no response yet. Thanks

> for

> > your response, Sincerely Noel

> >

>

__________________________________________________________

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

>

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>

> Sincerely Noel

>

> [Non-text portions of this message have been

> removed]

>

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April 15, 2008

Thank you , anyway my son is on Ketoconazole and the pharmacist just

informed me that Ery-Ped , pediazole, there is a drug interaction, so this is

not an option.

<thecolemans4@...> wrote: My son also did well on

sulfur ... but he's not

exactly a gage for ya. I'm allergic to it but not

severely enough that I couldn't take a couple of doses

before I developed a sensitivity to it.

My other son, who does not do well on Biaxin like his

brother, did really well on Ery-Ped, which I believe

has sulfur in it too. His brother did not. So if

they're opposites, maybe you'll strike gold there.

And sulfur is one of the oldie goodies that everything

is still sensitive too.

Maybe you'll strike gold this time! No fear - just

optimism. There's always time to be disappointed

later. If only I could learn to take that advice.

--- NOEL SCHNEIDER <schneid99@...> wrote:

> Hi, Dr. G wants to try pediazole.....sulfur drug I

> am a little scared...it still has erthyromicin in it

> though? We will see. Noel

>

> <thecolemans4@...> wrote:

> Wow - he has so much going on. Does Dr G give

> him the

> Biaxin? And do they know what type of pneumonia -

> i.e. is it mycoplasma pneumonia? I've carried that

> chronic, and I never really responded to anything

> (in

> a way that made me feel better while I was on the

> antibiotics, that is) other than doxycycline.

>

> I guess he's not old enough for doxycycline, huh?

>

> Will you let us know what Dr G says?

>

> --- NOEL SCHNEIDER <schneid99@...> wrote:

>

> > Thank you Everyone...., He usually gets

> > pneumonia after the start of a common cold..we did

> > IVIG for 8 months, off for three now because it

> > started to make him really sick, vomitting, loopy

> > etc...nausea major headaches. He still has CVID

> > though. It is hard to see this regression, He is

> > indistinguishable from his peers when he is not

> sick

> > and in regular preschool class. I have to keep him

> > home when this goes on. He becomes so irritable,

> > yelling, pouting, obsesses, it is frustrating. I

> > have updated Dr. G with no response yet. Thanks

> for

> > your response, Sincerely Noel

> >

>

__________________________________________________________

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

>

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

> Sincerely Noel

>

> [Non-text portions of this message have been

> removed]

>

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Sincerely Noel

April 15, 2008

Biaxin seems to be one of those that some can do but most can¹t do. I have

heard this from many doctor¹s. I would not continue to give it. Call & ask

for something else.

April 15, 2008

Isn't Flagyl " the " drug for parasites? Maybe he is affected by parasites?

Many of our kids are at some point or another.

Kristy

Re: Re: Biaxin

I will let you know, Doxycycline is what I want to ask for. The only

antibiotic he ever did well on was Flagyl....but this isn't really for

mycoplasmas? Dr. G did give him the Biaxin, this is the second time we have

used it and the first time was a nightmare too, Dr. G wanted to use it

again? We will see. Thanks

<thecolemans4@...> wrote: Wow - he has so much going

on. Does Dr G give him the

Biaxin? And do they know what type of pneumonia -

i.e. is it mycoplasma pneumonia? I've carried that

chronic, and I never really responded to anything (in

a way that made me feel better while I was on the

antibiotics, that is) other than doxycycline.

I guess he's not old enough for doxycycline, huh?

Will you let us know what Dr G says?

--- NOEL SCHNEIDER <schneid99@...> wrote:

> Thank you Everyone...., He usually gets

> pneumonia after the start of a common cold..we did

> IVIG for 8 months, off for three now because it

> started to make him really sick, vomitting, loopy

> etc...nausea major headaches. He still has CVID

> though. It is hard to see this regression, He is

> indistinguishable from his peers when he is not sick

> and in regular preschool class. I have to keep him

> home when this goes on. He becomes so irritable,

> yelling, pouting, obsesses, it is frustrating. I

> have updated Dr. G with no response yet. Thanks for

> your response, Sincerely Noel

>

__________________________________________________________

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know-it-all with Mobile. Try it now.

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Sincerely Noel

April 15, 2008

I am sorry, this doesn't answer your question but it is interesting that

you are talking about drug reactions just as we are in the throws of

just that!! It is also interesting that he did well on Flagyl.

My daughter is on Flagyl, as I was discussing last week, for a parasite

and is totally " loopy " . She is hypersensitive to sound and touch

(usually she has been hyposensitive). She has had a couple episodes of

shaking out of fear of a noise. She is crying about everything, I mean

absolutely everything. Does anyone know how long it takes for the side

effects to abate after going off a medication?. Are we risking damaging

her system permanently?? What does Dr. G do in this situation. Does he

change the medication? We are not seeing him yet.

NOEL SCHNEIDER wrote:

> I will let you know, Doxycycline is what I want to ask for. The only

> antibiotic he ever did well on was Flagyl....but this isn't really for

> mycoplasmas? Dr. G did give him the Biaxin, this is the second time we

> have used it and the first time was a nightmare too, Dr. G wanted to

> use it again? We will see. Thanks

>

> <thecolemans4@...

> <mailto:thecolemans4%40>> wrote: Wow - he has so much going

> on. Does Dr G give him the

> Biaxin? And do they know what type of pneumonia -

> i.e. is it mycoplasma pneumonia? I've carried that

> chronic, and I never really responded to anything (in

> a way that made me feel better while I was on the

> antibiotics, that is) other than doxycycline.

>

> I guess he's not old enough for doxycycline, huh?

>

> Will you let us know what Dr G says?

>

> --- NOEL SCHNEIDER <schneid99@...

> <mailto:schneid99%40sbcglobal.net>> wrote:

>

> > Thank you Everyone...., He usually gets

> > pneumonia after the start of a common cold..we did

> > IVIG for 8 months, off for three now because it

> > started to make him really sick, vomitting, loopy

> > etc...nausea major headaches. He still has CVID

> > though. It is hard to see this regression, He is

> > indistinguishable from his peers when he is not sick

> > and in regular preschool class. I have to keep him

> > home when this goes on. He becomes so irritable,

> > yelling, pouting, obsesses, it is frustrating. I

> > have updated Dr. G with no response yet. Thanks for

> > your response, Sincerely Noel

> >

>

> __________________________________________________________

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>

> Sincerely Noel

>

April 15, 2008

Caroline, you won't damage her permanently. Cheryl may answer you better than I,

but I would wait for about 7-10 days and see how she does. This is usually Dr.

Gs rec. I don't know how he treats parasites? If at all. Dr. G does not like

DAN I can tell you that. Is your daughter on Valtrex or yeast meds? hang in

there, Noel

Caroline <carrieps@...> wrote: I am sorry, this doesn't

answer your question but it is interesting that