Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 Yes, I DO totally believe that the Avonex contributed to the depression. I tried four different depression meds while I was on it, and only got minimal relief. I was so sad all the time. I am much better now, but I do realize I still have depression/anxiety issues to deal with, but they're not anywhere close to what they were while I was on Avonex. I have never heard of vitamin D for SAD (I forgot that's what it was called, thanks!) I may look into that, but since the weather is finally starting to warm up here in Virginia, I'm already feeling much better, but I will certainly look into that. Thank you so much, ~ I'm back/headaches Well, everyone, it's been a few months since I have posted here, but I periodically check in and sift through some of the posts. I had a difficult spell where I was angry about the MS and the circumstances involving everything around it, so I went through a period of time where I pretended I didn't have it, and that included stopping all meds, not going to Dr. appts, and sadly, not contributing to this group. I pretended and convinced myself that my symptoms were related to something other than MS & all kinds of crazy things. But, I'm slowly coming back to reality. I am trying to make ammends with myself & have re-scheduled all my appointments I missed, started back on *some* of my meds (not all, stopped Avonex and will not go back on any of the ABC drugs at this point) and I'm hoping to be welcomed back to this wonderful, supportive group of loving people I consider friends. I just felt like at one point everything in my life and every move i made was related to MS, and I got sick and tired of it. I'm trying to learn how to cope with everything MS and not allow it or feel like I'm allowing it to control every aspect of my life. Now for a little update, I just got back from a trip to my neuro (a 5 hour trip to UVA)and I don't think I done so well on my neurological exam, oh well. She also changed some of my meds, i had to stop baclofen due to the fact that it gave me migrains. She changed my dosing of neurontin from 600 mgs at night, to 100 mgs 4x during the day, and 300 mgs at night. I have been suffering from migrains, also, and she wrote me a script for Imitrex. I hope it works, haven't tried it yet. Also gave me phenegran (sp?) for the nausea associated with the headaches. She done bloodwork to check my b12 levels, horomone levels, thyroid and a cbc to check for infection because i've been suffering also from extreme fatigue. She wants me to see a urologist at UVA (my current uro is local) that specializes in urological disorders associated with neurological disease. One of the biggest health concerns at this point is my urological symptoms. I had the urodynamic testing done a few months back by my local urologist, and the results were not good. He said I had something called "detrussor hyporeflexia" that was moderate to severe. I keep a UTI that does not respond to antibiotics and kidney stones which I did not know could be caused by malfuntions in the urological symptoms due to neurological disorders. My local urologist does not like to give me narcotic pain killers because he says that it can slow down the urological system and make the problem worse. My current primary care physician does not like to give me pain killers becasue he's afraid i'll become addicted. So, sadly I have to get them elsewhere, because I cannot function without them due to the pain i have. Most of my pain is in my kidneys and bladder due to the several (10-15) stones i have in both kidneys, and the chronic inflamation I have in the bladder. I am so aggravated that the doctors here do not understand that I need the pain killers and i'm hoping that the new urologist will be more understanding and at least can do something to alleviate the pain so i won't need the pain killers. I can control my other pain (cramps, spasms, etc) with the neurontin and OTC meds to the point that it's tolerable, but the kidney and bladder pain incapacitates me at times. It's so frustrating. I still have not been approved for my social security disability yet. I have been turned down twice, and now have the hearing in front of the judge scheduled in a few months. Our financial situation is in the toilet, and i'm so frustrated over that, too. We just bought our new house and got settled in, and we need to finish some work on it, and don't have the money to do that, and i feel like it's my fault, because i'm not working anymore. I used to make really good money, and it's hard going from being able to do what you want, to struggling to feed your kids. My husband used to try to be supportive, but lately things haven't been so well in that area, either. We never discuss my health or anything MS. I don't even tell him anymore when I'm having a particularly "bad day" I just struggle through it alone and in silence. Which is difficult. So I really need this group to hear me whine!! LOL! Well, this was long, I just wanted to join back in the discussions, and hope to be welcomed back with open arms. OH, and about the headaches, has anyone tried the "head on" topical treatment, you know "head on apply directly to the forehead, head on apply directly to the forehead" it does not get rid of the headaches, but it does offer some relief sometimes for me, it just feels good when you have a headache. I rub it on my forehead and on my temples. There is a couple of formulas, I use the migraine formula that is in the green tube. Thanks for listening,~ Finding fabulous fares is fun.Let Yahoo! FareChase search your favorite travel sites to find flight and hotel bargains. Cheap Talk? Check out Yahoo! Messenger's low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 I still have not been approved for my social security disability yet. I have been turned down twice, and now have the hearing in front of the judge scheduled in a few months. ****** That's me too. I initially applied in 12/04. Denied twice, last time because " arms and legs work normally in between the times they don't " . I'm applying for SSI, not SSDI, since I've been home with kids the past 13 years. Their SS doc was so rude, and didn't even understand why I was applying since I hadn't been employed, didn't realize there was a separate program~ Hoping for good results - my doctor wrote a very good letter based on the template from the MSAA. If it passes, I'm using some of the money to be able to make the changes in the house to move our bedroom downstairs. It's upstairs, and that is a problem for me. The downstairs bedroom is 1/3 smaller, though, AND has to continue to function as an office. We'd been planning on moving, nad then hubby decided that NO, we are staying HERE. I measured every bit of furniture in the bedrooms, and figured out how to do it. It will involve a carpenter to do some built-ins, no other way around it. Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 I'm just N of you in WV...and it is snowing bigtime here, has been all day. I know we're wanting to move where it is even colder...maybe global warming? Peace and Blessings~*~ Akiba ~*~Pragmatic Visionary & Eternal Optimist! http://yodamamma.blogspot.com/ http://www.solay-twinflames.com -- Re: I'm back/headaches Yes, I DO totally believe that the Avonex contributed to the depression. I tried four different depression meds while I was on it, and only got minimal relief. I was so sad all the time. I am much better now, but I do realize I still have depression/anxiety issues to deal with, but they're not anywhere close to what they were while I was on Avonex. I have never heard of vitamin D for SAD (I forgot that's what it was called, thanks!) I may look into that, but since the weather is finally starting to warm up here in Virginia, I'm already feeling much better, but I will certainly look into that. Thank you so much, ~ I'm back/headaches Well, everyone, it's been a few months since I have posted here, but I periodically check in and sift through some of the posts. I had a difficult spell where I was angry about the MS and the circumstances involving everything around it, so I went through a period of time where I pretended I didn't have it, and that included stopping all meds, not going to Dr. appts, and sadly, not contributing to this group. I pretended and convinced myself that my symptoms were related to something other than MS & all kinds of crazy things. But, I'm slowly coming back to reality. I am trying to make ammends with myself & have re-scheduled all my appointments I missed, started back on *some* of my meds (not all, stopped Avonex and will not go back on any of the ABC drugs at this point) and I'm hoping to be welcomed back to this wonderful, supportive group of loving people I consider friends. I just felt like at one point everything in my life and every move i made was related to MS, and I got sick and tired of it. I'm trying to learn how to cope with everything MS and not allow it or feel like I'm allowing it to control every aspect of my life. Now for a little update, I just got back from a trip to my neuro (a 5 hour trip to UVA)and I don't think I done so well on my neurological exam, oh well. She also changed some of my meds, i had to stop baclofen due to the fact that it gave me migrains. She changed my dosing of neurontin from 600 mgs at night, to 100 mgs 4x during the day, and 300 mgs at night. I have been suffering from migrains, also, and she wrote me a script for Imitrex. I hope it works, haven't tried it yet. Also gave me phenegran (sp?) for the nausea associated with the headaches. She done bloodwork to check my b12 levels, horomone levels, thyroid and a cbc to check for infection because i've been suffering also from extreme fatigue. She wants me to see a urologist at UVA (my current uro is local) that specializes in urological disorders associated with neurological disease. One of the biggest health concerns at this point is my urological symptoms. I had the urodynamic testing done a few months back by my local urologist, and the results were not good. He said I had something called "detrussor hyporeflexia" that was moderate to severe. I keep a UTI that does not respond to antibiotics and kidney stones which I did not know could be caused by malfuntions in the urological symptoms due to neurological disorders. My local urologist does not like to give me narcotic pain killers because he says that it can slow down the urological system and make the problem worse. My current primary care physician does not like to give me pain killers becasue he's afraid i'll become addicted. So, sadly I have to get them elsewhere, because I cannot function without them due to the pain i have. Most of my pain is in my kidneys and bladder due to the several (10-15) stones i have in both kidneys, and the chronic inflamation I have in the bladder. I am so aggravated that the doctors here do not understand that I need the pain killers and i'm hoping that the new urologist will be more understanding and at least can do something to alleviate the pain so i won't need the pain killers. I can control my other pain (cramps, spasms, etc) with the neurontin and OTC meds to the point that it's tolerable, but the kidney and bladder pain incapacitates me at times. It's so frustrating. I still have not been approved for my social security disability yet. I have been turned down twice, and now have the hearing in front of the judge scheduled in a few months. Our financial situation is in the toilet, and i'm so frustrated over that, too. We just bought our new house and got settled in, and we need to finish some work on it, and don't have the money to do that, and i feel like it's my fault, because i'm not working anymore. I used to make really good money, and it's hard going from being able to do what you want, to struggling to feed your kids. My husband used to try to be supportive, but lately things haven't been so well in that area, either. We never discuss my health or anything MS. I don't even tell him anymore when I'm having a particularly "bad day" I just struggle through it alone and in silence. Which is difficult. So I really need this group to hear me whine!! LOL! Well, this was long, I just wanted to join back in the discussions, and hope to be welcomed back with open arms. OH, and about the headaches, has anyone tried the "head on" topical treatment, you know "head on apply directly to the forehead, head on apply directly to the forehead" it does not get rid of the headaches, but it does offer some relief sometimes for me, it just feels good when you have a headache. I rub it on my forehead and on my temples. There is a couple of formulas, I use the migraine formula that is in the green tube. Thanks for listening,~ Finding fabulous fares is fun.Let Yahoo! FareChase search your favorite travel sites to find flight and hotel bargains. Cheap Talk? Check out Yahoo! Messenger's low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 I feel like what is the point of going on? Kathi Re: I'm back/headaches Hi , I am so sorry to hear how difficult it has been on you lately with the MS. I totally understand. A few months ago I felt like I was going to snap with dealing with my MS. I have had MS for almost 16 years and it is difficult to deal with day in and day out. I finally realized that this disease for me is ever-changing and I can only count on that and in some ways continually redefine parts of myself but cling to others. Make sense? I am so sorry to hear about your doctors reluctance to give you pain meds. I had doctors awhile ago that I had that never liked to give pain meds as well. They always made me feel like I was a drug-seeker. But my neuro and gen. physician are great about it. I usually swap vicodin Rx one month and the other month a vicodin rx. My doctors and I have discussed that by changing them around I don't need to keep increasing the dosage because I am not developing a tolerance for one particular med. So maybe that's an angle you could try. I am sorry your husband isn't supportive about your MS. This must be exceptionally difficult. Please feel free to vent or whine anytime you need to. We are here to help you and you can be "real' with us. Love and hugs to you, Damron wrote: Well, everyone, it's been a few months since I have posted here, but I periodically check in and sift through some of the posts. I had a difficult spell where I was angry about the MS and the circumstances involving everything around it, so I went through a period of time where I pretended I didn't have it, and that included stopping all meds, not going to Dr. appts, and sadly, not contributing to this group. I pretended and convinced myself that my symptoms were related to something other than MS & all kinds of crazy things. But, I'm slowly coming back to reality. I am trying to make ammends with myself & have re-scheduled all my appointments I missed, started back on *some* of my meds (not all, stopped Avonex and will not go back on any of the ABC drugs at this point) and I'm hoping to be welcomed back to this wonderful, supportive group of loving people I consider friends. I just felt like at one point everything in my life and every move i made was related to MS, and I got sick and tired of it. I'm trying to learn how to cope with everything MS and not allow it or feel like I'm allowing it to control every aspect of my life. Now for a little update, I just got back from a trip to my neuro (a 5 hour trip to UVA)and I don't think I done so well on my neurological exam, oh well. She also changed some of my meds, i had to stop baclofen due to the fact that it gave me migrains. She changed my dosing of neurontin from 600 mgs at night, to 100 mgs 4x during the day, and 300 mgs at night. I have been suffering from migrains, also, and she wrote me a script for Imitrex. I hope it works, haven't tried it yet. Also gave me phenegran (sp?) for the nausea associated with the headaches. She done bloodwork to check my b12 levels, horomone levels, thyroid and a cbc to check for infection because i've been suffering also from extreme fatigue. She wants me to see a urologist at UVA (my current uro is local) that specializes in urological disorders associated with neurological disease. One of the biggest health concerns at this point is my urological symptoms. I had the urodynamic testing done a few months back by my local urologist, and the results were not good. He said I had something called "detrussor hyporeflexia" that was moderate to severe. I keep a UTI that does not respond to antibiotics and kidney stones which I did not know could be caused by malfuntions in the urological symptoms due to neurological disorders. My local urologist does not like to give me narcotic pain killers because he says that it can slow down the urological system and make the problem worse. My current primary care physician does not like to give me pain killers becasue he's afraid i'll become addicted. So, sadly I have to get them elsewhere, because I cannot function without them due to the pain i have. Most of my pain is in my kidneys and bladder due to the several (10-15) stones i have in both kidneys, and the chronic inflamation I have in the bladder. I am so aggravated that the doctors here do not understand that I need the pain killers and i'm hoping that the new urologist will be more understanding and at least can do something to alleviate the pain so i won't need the pain killers. I can control my other pain (cramps, spasms, etc) with the neurontin and OTC meds to the point that it's tolerable, but the kidney and bladder pain incapacitates me at times. It's so frustrating. I still have not been approved for my social security disability yet. I have been turned down twice, and now have the hearing in front of the judge scheduled in a few months. Our financial situation is in the toilet, and i'm so frustrated over that, too. We just bought our new house and got settled in, and we need to finish some work on it, and don't have the money to do that, and i feel like it's my fault, because i'm not working anymore. I used to make really good money, and it's hard going from being able to do what you want, to struggling to feed your kids. My husband used to try to be supportive, but lately things haven't been so well in that area, either. We never discuss my health or anything MS. I don't even tell him anymore when I'm having a particularly "bad day" I just struggle through it alone and in silence. Which is difficult. So I really need this group to hear me whine!! LOL! Well, this was long, I just wanted to join back in the discussions, and hope to be welcomed back with open arms. OH, and about the headaches, has anyone tried the "head on" topical treatment, you know "head on apply directly to the forehead, head on apply directly to the forehead" it does not get rid of the headaches, but it does offer some relief sometimes for me, it just feels good when you have a headache. I rub it on my forehead and on my temples. There is a couple of formulas, I use the migraine formula that is in the green tube. Thanks for listening,~ Finding fabulous fares is fun.Let Yahoo! FareChase search your favorite travel sites to find flight and hotel bargains. Internal Virus Database is out-of-date.Checked by AVG Free Edition.Version: 7.5.441 / Virus Database: 268.18.2/692 - Release Date: 2/18/2007 4:35 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 > > I feel like what is the point of going on? Kathi >**** The point of going on is that fundamentally life is good. Some parts of life, at various times, stink. My child has a disorder which went undiagnosed for many years. She lived in severe pain until age 9. Her life now is great. If she had given up then, she wouldn't have now. The point of going on is that other people in your life want you and need you. If that's not true, then you need to find people to be in your life who do. Sorry today is so hard. Hugs, Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 I have a horror story about taking the kids to a nursing home and seeing someone with MS who is "bad". I have a 20 year old daughter that has a boyfriend in the nursing field. He worked with a lady who had MS, who was very much in the last stages of life. She could not see, not talk and only groaned. Her legs had drawn up and she was in pain all the time. After my Dx, her boyfriend told her about this lady and took her to see her. My daughter at 19 was horrorifyed (sp). She cryed for days, thinking that this was her moms fate and they could not change it. I know the bad side of MS is very scary even to grown adults. I would never take my 12 and 14 year old to see someone else who was in those last stages of MS life. Now as to weither the final stages was do to MS or just old age is not known, so I helped my adult daughter through with knowledge. Like you said there have been alot of advances in medicines for MS. Scary things that we have to go through is scary for us MS'ers much less putting our children face to face with our "possible" demise. Thanks for listening, Amy Hugon wrote: This sounds like something I may look into for us to do as a mother/daughter. I hope it wouldn't frighten her too much thinking that one day I may end up there, but I'm confidant that I could talk to her and explain to her that thank goodness there have been a lot of advances in MS and it's treatment since most of those elderly people were first diagnosed. Or I could just not tell her that the person I am visiting has MS. ? What do you all think? She will be 16 next month. If it turns out not to be a good idea for us to do it together, I could always go one day while she is at school, and HECK I could go visit another person together with her!***My daughter is 13. I wouldn't take her to see worse-than-me MS people. The nursing home, for random older ones, yes.My daughter does know that others are worse, but I'm thinking that quite this much in-your-face worse might move into the realm of *too much*.I know one study showed that kids of MSers who had to do more CHORES were fine; those who had to do PERSONAL care (ie dressing, grooming, etc) of parents had psychological repercussions.Just my gut - I don't know your kid, so defer to your knowledge of HER, but my kid is great with older people - her best friends are 87 and 92, and they write frequently - but I dont' think she needs to see the *just how bad it can get* part. I do use the concept of *meds have improved* re the woman with MS in my town who is significantly worse - she has never been on medication, has been dx'd x 30 years, and is much worse than I am. Can I guarantee my meds will keep me *better than that*? Nope. But as far as my children are concerned, the answer is yes ... because that's what they can deal with, now.Amy Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr. Get your own web address. Have a HUGE year through Yahoo! Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 ~I think kids are real impressionable, and that we, as parents can really impact them, well, not us, but our sharing awesome things, like serving others. My 2 oldest-Kara and Lia, went to Argentina with our church's youth group when they were 17 and 14. They served in a real rural poor section of Argentina. What amazed and inspired the older of the 2 especially, was the incredible spirit of folks who have virtually nothing in terms of economic conditions, and yet are so full of joy, so full of their faith. They helped with fixing up a church for the community; made great friends...Last year, they went also with our church's youth group to serve in St. Louis in the Katrina aftermath--they tore down 2 homes that had been destroyed, so that 2 new ones could be built. Again, they grew tremendously in their faith, their love of service--and I think a sheer appreciation of the life that they have. This year, the oldest is in college, so next in line is Luke, 13; he and Lia will be serving in NYC--reaching out to the homeless. I used to take my kids to nursing homes when they were real little--man the old folk really love the bitty ones. I'd take my guitar and we'd sing songs, sometimes bring homemade cookes, or bring fruit, cause many are diabetic...Flowers gathered from the yard with pudgy hands bestowing them upon a frail hand...tis a touching site---words cannot describe it...blessings, kate Re: I'm back/headaches> > > > > > > > I feel like what is the point of going on? Kathi> > ----- Original Message ----- > > > > NOTE: Next time you want to google something, use: > Goodsearch.com. There is an account set up for Grace Fellowship > and all searches using Goodsearch (which uses Yahoo's search > engine) will result in about one cent being donated to Grace > Fellowship. Not much, but it can become significant if we and > others we tell consistently use Goodsearch for all our searches. > For example, 100 people using Goodsearch for two searches a day > will net us $730.00 a year. When you go to the site just type in > Grace Fellowship Orthodox Presbyterian Church as the benefactor. > This is right below the search bar. You can also change the > benefactor with each search and help other non-profits of your > choice (if they have an account). Thanks for your consideration > and God bless. > > > > > > NOTE: Next time you want to google something, use: Goodsearch.com. There is an account set up for Grace Fellowship and all searches using Goodsearch (which uses Yahoo's search engine) will result in about one cent being donated to Grace Fellowship. Not much, but it can become significant if we and others we tell consistently use Goodsearch for all our searches. For example, 100 people using Goodsearch for two searches a day will net us $730.00 a year. When you go to the site just type in Grace Fellowship Orthodox Presbyterian Church as the benefactor. This is right below the search bar. You can also change the benefactor with each search and help other non-profits of your choice (if they have an account). Thanks for your consideration and God bless. Attachment: vcard [not shown] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 Sorry, I miss understood the last post about going to nursing homes. I got the thought you were going to show her what MS is at the nusing home stage. I apoligize for the post I was completely misguided. I love going to the nursing homes to visit anyone, I worked in them for 25 years as a LPN and I would not trade any memorie that I have stored. I think your daughter and you would have a bond and make some friends. If you ask the staff to help you find someone who is not having family or friends visit, you mostly would be greeted with great joy.You can ask not to see the ones with MS or to see only those with it. You would be suprise at how many "throw away" people we have in this great country we have. I use to read to two people in the evenings, just as a volenteer. I know one really enjoyed it and the other never made a peep when I was there, the staff said he would yell for the book lady on days I couldnt make it. I think it would be great for you to go with her or alone. Damron wrote: I like what you said, also. I really like the idea of visiting someone in a nursing home with MS. I guess we are fortunate, because as rural an area as I am in (believe me honey, we are in the BOONDOCKS of Southwest Virginia.) we have three nursing homes with probably a 40 mile radius of where I live. Two are by the some outfit, and one is on a floor in a local hospital. My daughter visited two of them within the last year for activities she is involved at at school (cheerleading and FCCLA) and really talked about how she enjoyed it. She even mentioned volunteering at one part time, and I think that's a lovely idea. This sounds like something I may look into for us to do as a mother/daughter. I hope it wouldn't frighten her too much thinking that one day I may end up there, but I'm confidant that I could talk to her and explain to her that thank goodness there have been a lot of advances in MS and it's treatment since most of those elderly people were first diagnosed. Or I could just not tell her that the person I am visiting has MS. ? What do you all think? She will be 16 next month. If it turns out not to be a good idea for us to do it together, I could always go one day while she is at school, and HECK I could go visit another person together with her! ~ Re: I'm back/headaches> > > > I feel like what is the point of going on? Kathi> ----- Original Message ----- NOTE: Next time you want to google something, use: Goodsearch.com. There is an account set up for Grace Fellowship and all searches using Goodsearch (which uses Yahoo's search engine) will result in about one cent being donated to Grace Fellowship. Not much, but it can become significant if we and others we tell consistently use Goodsearch for all our searches. For example, 100 people using Goodsearch for two searches a day will net us $730.00 a year. When you go to the site just type in Grace Fellowship Orthodox Presbyterian Church as the benefactor. This is right below the search bar. You can also change the benefactor with each search and help other non-profits of your choice (if they have an account). Thanks for your consideration and God bless. Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr. Finding fabulous fares is fun.Let Yahoo! FareChase search your favorite travel sites to find flight and hotel bargains. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 Kathi, I agree with the others in the group. Life has a point you just have to look for it at times of great pain and hardships.I have to think that someone is carring me cause there is no way I can carry myself. Please, keep looking for tomorrow we will all help you. n Rojas wrote: Akiba, my mother's father was, too! A tragedy for the survivors, indeed! Love, n Rojas5915Comcast (DOT) net Re: I'm back/headaches >> I feel like what is the point of going on? Kathi>****The point of going on is that fundamentally life is good. Some parts of life, at various times, stink. My child has a disorder which went undiagnosed for many years. She lived in severe pain until age 9. Her life now is great. If she had given up then, she wouldn't have now.The point of going on is that other people in your life want you and need you. If that's not true, then you need to find people to be in your life who do.Sorry today is so hard. Hugs, Amy Need Mail bonding?Go to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users. Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr. TV dinner still cooling?Check out "Tonight's Picks" on Yahoo! TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 When I was on Avonex (for only 2 months) I noticed my depression level was worse then I had ever experienced. I found Rebif and almost immediately I had a change in my depression. I thought it was all in my head. I did talk to my doc about it and he upped my dose of depression meds. I am so glad I went off Avonex, I hated feeling like the flu bug had hit me all the time. OH, now I have a doc telling me that I could be bi-polar, that's why I have had stages of deep depression. Could never be cause I have MS and that is depressing in it self. Crazy docs ( not my reg doc) they think you need a pill for everything. Akiba wrote: I'm just N of you in WV...and it is snowing bigtime here, has been all day. I know we're wanting to move where it is even colder...maybe global warming? Peace and Blessings~*~ Akiba ~*~Pragmatic Visionary & Eternal Optimist! http://yodamamma.blogspot.com/ http://www.solay-twinflames.com -- Re: I'm back/headaches Yes, I DO totally believe that the Avonex contributed to the depression. I tried four different depression meds while I was on it, and only got minimal relief. I was so sad all the time. I am much better now, but I do realize I still have depression/anxiety issues to deal with, but they're not anywhere close to what they were while I was on Avonex. I have never heard of vitamin D for SAD (I forgot that's what it was called, thanks!) I may look into that, but since the weather is finally starting to warm up here in Virginia, I'm already feeling much better, but I will certainly look into that. Thank you so much, ~ I'm back/headaches Well, everyone, it's been a few months since I have posted here, but I periodically check in and sift through some of the posts. I had a difficult spell where I was angry about the MS and the circumstances involving everything around it, so I went through a period of time where I pretended I didn't have it, and that included stopping all meds, not going to Dr. appts, and sadly, not contributing to this group. I pretended and convinced myself that my symptoms were related to something other than MS & all kinds of crazy things. But, I'm slowly coming back to reality. I am trying to make ammends with myself & have re-scheduled all my appointments I missed, started back on *some* of my meds (not all, stopped Avonex and will not go back on any of the ABC drugs at this point) and I'm hoping to be welcomed back to this wonderful, supportive group of loving people I consider friends. I just felt like at one point everything in my life and every move i made was related to MS, and I got sick and tired of it. I'm trying to learn how to cope with everything MS and not allow it or feel like I'm allowing it to control every aspect of my life. Now for a little update, I just got back from a trip to my neuro (a 5 hour trip to UVA)and I don't think I done so well on my neurological exam, oh well. She also changed some of my meds, i had to stop baclofen due to the fact that it gave me migrains. She changed my dosing of neurontin from 600 mgs at night, to 100 mgs 4x during the day, and 300 mgs at night. I have been suffering from migrains, also, and she wrote me a script for Imitrex. I hope it works, haven't tried it yet. Also gave me phenegran (sp?) for the nausea associated with the headaches. She done bloodwork to check my b12 levels, horomone levels, thyroid and a cbc to check for infection because i've been suffering also from extreme fatigue. She wants me to see a urologist at UVA (my current uro is local) that specializes in urological disorders associated with neurological disease. One of the biggest health concerns at this point is my urological symptoms. I had the urodynamic testing done a few months back by my local urologist, and the results were not good. He said I had something called "detrussor hyporeflexia" that was moderate to severe. I keep a UTI that does not respond to antibiotics and kidney stones which I did not know could be caused by malfuntions in the urological symptoms due to neurological disorders. My local urologist does not like to give me narcotic pain killers because he says that it can slow down the urological system and make the problem worse. My current primary care physician does not like to give me pain killers becasue he's afraid i'll become addicted. So, sadly I have to get them elsewhere, because I cannot function without them due to the pain i have. Most of my pain is in my kidneys and bladder due to the several (10-15) stones i have in both kidneys, and the chronic inflamation I have in the bladder. I am so aggravated that the doctors here do not understand that I need the pain killers and i'm hoping that the new urologist will be more understanding and at least can do something to alleviate the pain so i won't need the pain killers. I can control my other pain (cramps, spasms, etc) with the neurontin and OTC meds to the point that it's tolerable, but the kidney and bladder pain incapacitates me at times. It's so frustrating. I still have not been approved for my social security disability yet. I have been turned down twice, and now have the hearing in front of the judge scheduled in a few months. Our financial situation is in the toilet, and i'm so frustrated over that, too. We just bought our new house and got settled in, and we need to finish some work on it, and don't have the money to do that, and i feel like it's my fault, because i'm not working anymore. I used to make really good money, and it's hard going from being able to do what you want, to struggling to feed your kids. My husband used to try to be supportive, but lately things haven't been so well in that area, either. We never discuss my health or anything MS. I don't even tell him anymore when I'm having a particularly "bad day" I just struggle through it alone and in silence. Which is difficult. So I really need this group to hear me whine!! LOL! Well, this was long, I just wanted to join back in the discussions, and hope to be welcomed back with open arms. OH, and about the headaches, has anyone tried the "head on" topical treatment, you know "head on apply directly to the forehead, head on apply directly to the forehead" it does not get rid of the headaches, but it does offer some relief sometimes for me, it just feels good when you have a headache. I rub it on my forehead and on my temples. There is a couple of formulas, I use the migraine formula that is in the green tube. Thanks for listening,~ Finding fabulous fares is fun.Let Yahoo! FareChase search your favorite travel sites to find flight and hotel bargains. Cheap Talk? Check out Yahoo! Messenger's low PC-to-Phone call rates. Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr. Finding fabulous fares is fun.Let Yahoo! FareChase search your favorite travel sites to find flight and hotel bargains. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 Thank you, . Kathi Re: I'm back/headaches Hi , I am so sorry to hear how difficult it has been on you lately with the MS. I totally understand. A few months ago I felt like I was going to snap with dealing with my MS. I have had MS for almost 16 years and it is difficult to deal with day in and day out. I finally realized that this disease for me is ever-changing and I can only count on that and in some ways continually redefine parts of myself but cling to others. Make sense? I am so sorry to hear about your doctors reluctance to give you pain meds. I had doctors awhile ago that I had that never liked to give pain meds as well. They always made me feel like I was a drug-seeker. But my neuro and gen. physician are great about it. I usually swap vicodin Rx one month and the other month a vicodin rx. My doctors and I have discussed that by changing them around I don't need to keep increasing the dosage because I am not developing a tolerance for one particular med. So maybe that's an angle you could try. I am sorry your husband isn't supportive about your MS. This must be exceptionally difficult. Please feel free to vent or whine anytime you need to. We are here to help you and you can be "real' with us. Love and hugs to you, Damron wrote: Well, everyone, it's been a few months since I have posted here, but I periodically check in and sift through some of the posts. I had a difficult spell where I was angry about the MS and the circumstances involving everything around it, so I went through a period of time where I pretended I didn't have it, and that included stopping all meds, not going to Dr. appts, and sadly, not contributing to this group. I pretended and convinced myself that my symptoms were related to something other than MS & all kinds of crazy things. But, I'm slowly coming back to reality. I am trying to make ammends with myself & have re-scheduled all my appointments I missed, started back on *some* of my meds (not all, stopped Avonex and will not go back on any of the ABC drugs at this point) and I'm hoping to be welcomed back to this wonderful, supportive group of loving people I consider friends. I just felt like at one point everything in my life and every move i made was related to MS, and I got sick and tired of it. I'm trying to learn how to cope with everything MS and not allow it or feel like I'm allowing it to control every aspect of my life. Now for a little update, I just got back from a trip to my neuro (a 5 hour trip to UVA)and I don't think I done so well on my neurological exam, oh well. She also changed some of my meds, i had to stop baclofen due to the fact that it gave me migrains. She changed my dosing of neurontin from 600 mgs at night, to 100 mgs 4x during the day, and 300 mgs at night. I have been suffering from migrains, also, and she wrote me a script for Imitrex. I hope it works, haven't tried it yet. Also gave me phenegran (sp?) for the nausea associated with the headaches. She done bloodwork to check my b12 levels, horomone levels, thyroid and a cbc to check for infection because i've been suffering also from extreme fatigue. She wants me to see a urologist at UVA (my current uro is local) that specializes in urological disorders associated with neurological disease. One of the biggest health concerns at this point is my urological symptoms. I had the urodynamic testing done a few months back by my local urologist, and the results were not good. He said I had something called "detrussor hyporeflexia" that was moderate to severe. I keep a UTI that does not respond to antibiotics and kidney stones which I did not know could be caused by malfuntions in the urological symptoms due to neurological disorders. My local urologist does not like to give me narcotic pain killers because he says that it can slow down the urological system and make the problem worse. My current primary care physician does not like to give me pain killers becasue he's afraid i'll become addicted. So, sadly I have to get them elsewhere, because I cannot function without them due to the pain i have. Most of my pain is in my kidneys and bladder due to the several (10-15) stones i have in both kidneys, and the chronic inflamation I have in the bladder. I am so aggravated that the doctors here do not understand that I need the pain killers and i'm hoping that the new urologist will be more understanding and at least can do something to alleviate the pain so i won't need the pain killers. I can control my other pain (cramps, spasms, etc) with the neurontin and OTC meds to the point that it's tolerable, but the kidney and bladder pain incapacitates me at times. It's so frustrating. I still have not been approved for my social security disability yet. I have been turned down twice, and now have the hearing in front of the judge scheduled in a few months. Our financial situation is in the toilet, and i'm so frustrated over that, too. We just bought our new house and got settled in, and we need to finish some work on it, and don't have the money to do that, and i feel like it's my fault, because i'm not working anymore. I used to make really good money, and it's hard going from being able to do what you want, to struggling to feed your kids. My husband used to try to be supportive, but lately things haven't been so well in that area, either. We never discuss my health or anything MS. I don't even tell him anymore when I'm having a particularly "bad day" I just struggle through it alone and in silence. Which is difficult. So I really need this group to hear me whine!! LOL! Well, this was long, I just wanted to join back in the discussions, and hope to be welcomed back with open arms. OH, and about the headaches, has anyone tried the "head on" topical treatment, you know "head on apply directly to the forehead, head on apply directly to the forehead" it does not get rid of the headaches, but it does offer some relief sometimes for me, it just feels good when you have a headache. I rub it on my forehead and on my temples. There is a couple of formulas, I use the migraine formula that is in the green tube. Thanks for listening,~ Finding fabulous fares is fun.Let Yahoo! FareChase search your favorite travel sites to find flight and hotel bargains. Internal Virus Database is out-of-date.Checked by AVG Free Edition.Version: 7.5.441 / Virus Database: 268.18.2/692 - Release Date: 2/18/2007 4:35 PM Internal Virus Database is out-of-date.Checked by AVG Free Edition.Version: 7.5.441 / Virus Database: 268.18.2/692 - Release Date: 2/18/2007 4:35 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 I went to the Soup Supper and Lenten service at Church and that really helped. Thank you all. Kathi Re: I'm back/headaches >> I feel like what is the point of going on? Kathi>****The point of going on is that fundamentally life is good. Some parts of life, at various times, stink. My child has a disorder which went undiagnosed for many years. She lived in severe pain until age 9. Her life now is great. If she had given up then, she wouldn't have now.The point of going on is that other people in your life want you and need you. If that's not true, then you need to find people to be in your life who do.Sorry today is so hard. Hugs, Amy Need Mail bonding?Go to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users. Internal Virus Database is out-of-date.Checked by AVG Free Edition.Version: 7.5.441 / Virus Database: 268.18.2/692 - Release Date: 2/18/2007 4:35 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 Did you see the movie, "In Her Shoes".....sounds like what you mentioned about reading to them. Re: I'm back/headaches> > > > I feel like what is the point of going on? Kathi> ----- Original Message ----- NOTE: Next time you want to google something, use: Goodsearch.com. There is an account set up for Grace Fellowship and all searches using Goodsearch (which uses Yahoo's search engine) will result in about one cent being donated to Grace Fellowship. Not much, but it can become significant if we and others we tell consistently use Goodsearch for all our searches. For example, 100 people using Goodsearch for two searches a day will net us $730.00 a year. When you go to the site just type in Grace Fellowship Orthodox Presbyterian Church as the benefactor. This is right below the search bar. You can also change the benefactor with each search and help other non-profits of your choice (if they have an account). Thanks for your consideration and God bless. Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr. Finding fabulous fares is fun.Let Yahoo! FareChase search your favorite travel sites to find flight and hotel bargains. Internal Virus Database is out-of-date.Checked by AVG Free Edition.Version: 7.5.441 / Virus Database: 268.18.2/692 - Release Date: 2/18/2007 4:35 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 Thank you.........I need you all............Kathi Re: I'm back/headaches >> I feel like what is the point of going on? Kathi>****The point of going on is that fundamentally life is good. Some parts of life, at various times, stink. My child has a disorder which went undiagnosed for many years. She lived in severe pain until age 9. Her life now is great. If she had given up then, she wouldn't have now.The point of going on is that other people in your life want you and need you. If that's not true, then you need to find people to be in your life who do.Sorry today is so hard. Hugs, Amy Need Mail bonding?Go to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users. Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr. TV dinner still cooling?Check out "Tonight's Picks" on Yahoo! TV. Internal Virus Database is out-of-date.Checked by AVG Free Edition.Version: 7.5.441 / Virus Database: 268.18.2/692 - Release Date: 2/18/2007 4:35 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 That's what I hate.............more pills. I don't want any more. Kathi I'm back/headaches Well, everyone, it's been a few months since I have posted here, but I periodically check in and sift through some of the posts. I had a difficult spell where I was angry about the MS and the circumstances involving everything around it, so I went through a period of time where I pretended I didn't have it, and that included stopping all meds, not going to Dr. appts, and sadly, not contributing to this group. I pretended and convinced myself that my symptoms were related to something other than MS & all kinds of crazy things. But, I'm slowly coming back to reality. I am trying to make ammends with myself & have re-scheduled all my appointments I missed, started back on *some* of my meds (not all, stopped Avonex and will not go back on any of the ABC drugs at this point) and I'm hoping to be welcomed back to this wonderful, supportive group of loving people I consider friends. I just felt like at one point everything in my life and every move i made was related to MS, and I got sick and tired of it. I'm trying to learn how to cope with everything MS and not allow it or feel like I'm allowing it to control every aspect of my life. Now for a little update, I just got back from a trip to my neuro (a 5 hour trip to UVA)and I don't think I done so well on my neurological exam, oh well. She also changed some of my meds, i had to stop baclofen due to the fact that it gave me migrains. She changed my dosing of neurontin from 600 mgs at night, to 100 mgs 4x during the day, and 300 mgs at night. I have been suffering from migrains, also, and she wrote me a script for Imitrex. I hope it works, haven't tried it yet. Also gave me phenegran (sp?) for the nausea associated with the headaches. She done bloodwork to check my b12 levels, horomone levels, thyroid and a cbc to check for infection because i've been suffering also from extreme fatigue. She wants me to see a urologist at UVA (my current uro is local) that specializes in urological disorders associated with neurological disease. One of the biggest health concerns at this point is my urological symptoms. I had the urodynamic testing done a few months back by my local urologist, and the results were not good. He said I had something called "detrussor hyporeflexia" that was moderate to severe. I keep a UTI that does not respond to antibiotics and kidney stones which I did not know could be caused by malfuntions in the urological symptoms due to neurological disorders. My local urologist does not like to give me narcotic pain killers because he says that it can slow down the urological system and make the problem worse. My current primary care physician does not like to give me pain killers becasue he's afraid i'll become addicted. So, sadly I have to get them elsewhere, because I cannot function without them due to the pain i have. Most of my pain is in my kidneys and bladder due to the several (10-15) stones i have in both kidneys, and the chronic inflamation I have in the bladder. I am so aggravated that the doctors here do not understand that I need the pain killers and i'm hoping that the new urologist will be more understanding and at least can do something to alleviate the pain so i won't need the pain killers. I can control my other pain (cramps, spasms, etc) with the neurontin and OTC meds to the point that it's tolerable, but the kidney and bladder pain incapacitates me at times. It's so frustrating. I still have not been approved for my social security disability yet. I have been turned down twice, and now have the hearing in front of the judge scheduled in a few months. Our financial situation is in the toilet, and i'm so frustrated over that, too. We just bought our new house and got settled in, and we need to finish some work on it, and don't have the money to do that, and i feel like it's my fault, because i'm not working anymore. I used to make really good money, and it's hard going from being able to do what you want, to struggling to feed your kids. My husband used to try to be supportive, but lately things haven't been so well in that area, either. We never discuss my health or anything MS. I don't even tell him anymore when I'm having a particularly "bad day" I just struggle through it alone and in silence. Which is difficult. So I really need this group to hear me whine!! LOL! Well, this was long, I just wanted to join back in the discussions, and hope to be welcomed back with open arms. OH, and about the headaches, has anyone tried the "head on" topical treatment, you know "head on apply directly to the forehead, head on apply directly to the forehead" it does not get rid of the headaches, but it does offer some relief sometimes for me, it just feels good when you have a headache. I rub it on my forehead and on my temples. There is a couple of formulas, I use the migraine formula that is in the green tube. Thanks for listening,~ Finding fabulous fares is fun.Let Yahoo! FareChase search your favorite travel sites to find flight and hotel bargains. Cheap Talk? Check out Yahoo! Messenger's low PC-to-Phone call rates. Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr. Finding fabulous fares is fun.Let Yahoo! FareChase search your favorite travel sites to find flight and hotel bargains. Internal Virus Database is out-of-date.Checked by AVG Free Edition.Version: 7.5.441 / Virus Database: 268.18.2/692 - Release Date: 2/18/2007 4:35 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 When I was in the hospital they had me have a psych eval and he asked me if I had ever had suicidal thoughts and I told him NEVER. and he said NEVER? and I told him "I have primary custody of my two children and there's no way in hell I would do something that would cause them to have to go live with their father" and he started laughing. In my lifetime I have literally been through hell and back but I have NEVER felt like that was and option. I feel like it's the easy way out because you leave the living to suffer. ' in Texas I also have a HUGE cup of french vanilla coffe by me...maybe the craving will were off in a moment.Akiba wrote: My Father was a suicide. If you love ANYONE you know, don't do that *to them*. You'll be gone, but they won't, and the guilt is incredible. "nuff said Peace and Blessings~*~ Akiba ~*~Pragmatic Visionary & Eternal Optimist! http://yodamamma.blogspot.com/ http://www.solay-twinflames.com -- Re: Re: I'm back/headaches Excellent response Amy! I loved it. Very inspiring!During the winter of 05/06 I was suffering from severe nocturnal leg pain. When I was able to sleep I would often wake up crying after dreaming about suicide. It was a very hard time for me. On the pain scale the pain was a 10. I dreamed of suicide and cried night after night. That said, I would NEVER commit suicide. I have a family who loves me, 8 grandchildren who would be forever scarred and suicide is a sin in my faith. I worked through it. I went to doctors, had tests and finally got relief through the right medications. It's easy to pull inside yourself when you are going through such bad pain. I understand that. I felt alone with my pain even though I live with family who loves me and cares about me. And I have more family just 3 hours away. But I felt alone with the pain.I understand the feelings of despair. But there are reasons to go on. I know a woman with Transverse Myelitis who is paralyzed, not able to do anything for herself, she's in severe pain and she keeps going. Life if very hard for her but she has fought the depression and the bad parts of her life to find the good parts that are still there. love to allSharon Re: I'm back/headaches >> I feel like what is the point of going on? Kathi>****The point of going on is that fundamentally life is good. Some parts of life, at various times, stink. My child has a disorder which went undiagnosed for many years. She lived in severe pain until age 9. Her life now is great. If she had given up then, she wouldn't have now.The point of going on is that other people in your life want you and need you. If that's not true, then you need to find people to be in your life who do.Sorry today is so hard. Hugs, Amy Need Mail bonding?Go to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 Her volunteering at one also looks great on a college app along with her other activities in Texas Damron wrote: I like what you said, also. I really like the idea of visiting someone in a nursing home with MS. I guess we are fortunate, because as rural an area as I am in (believe me honey, we are in the BOONDOCKS of Southwest Virginia.) we have three nursing homes with probably a 40 mile radius of where I live. Two are by the some outfit, and one is on a floor in a local hospital. My daughter visited two of them within the last year for activities she is involved at at school (cheerleading and FCCLA) and really talked about how she enjoyed it. She even mentioned volunteering at one part time, and I think that's a lovely idea. This sounds like something I may look into for us to do as a mother/daughter. I hope it wouldn't frighten her too much thinking that one day I may end up there, but I'm confidant that I could talk to her and explain to her that thank goodness there have been a lot of advances in MS and it's treatment since most of those elderly people were first diagnosed. Or I could just not tell her that the person I am visiting has MS. ? What do you all think? She will be 16 next month. If it turns out not to be a good idea for us to do it together, I could always go one day while she is at school, and HECK I could go visit another person together with her! ~ Re: I'm back/headaches> > > > I feel like what is the point of going on? Kathi> ----- Original Message ----- NOTE: Next time you want to google something, use: Goodsearch.com. There is an account set up for Grace Fellowship and all searches using Goodsearch (which uses Yahoo's search engine) will result in about one cent being donated to Grace Fellowship. Not much, but it can become significant if we and others we tell consistently use Goodsearch for all our searches. For example, 100 people using Goodsearch for two searches a day will net us $730.00 a year. When you go to the site just type in Grace Fellowship Orthodox Presbyterian Church as the benefactor. This is right below the search bar. You can also change the benefactor with each search and help other non-profits of your choice (if they have an account). Thanks for your consideration and God bless. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 How inspiring. I must admit, when my daughter told me how much she enjoyed visiting the nursing homes, I felt guilty for not encouraging her more in volunteering. She used to visit the homes frequently when her great grandmother was in one, and she always talked of how she would get bored sometimes, (they usually spent all day there with their grandmother) and she would go wandering the halls and visit other "old people" as she called them. When she went with the cheerleading group, they sang Christmas Carols. They went from room to room, and she said that one old lady stood in her doorway and watched them go from room to room as they got closer to her room, and by the time they got to her room, it was time for them to go to the Day room and have lunch and sing to the people there. She said that old lady looked so sad, and their coach told them they didn't have time to go to her. Well, my daughter (stubborn Taurus that she is) snuck out of her group and went to that old ladies room and sang to her all by herself. She said that little old lady was grinning from ear to ear and clapping her hands the whole time. And she said that when she went with the FCCLA, they took them lunch they made, and ate with the elderly, and that she had to assist feeding one lady at her table, and that lady couldn't talk (the way it sounded she had a tracheotomy) but when they left, my daughter hugged her, and that lady whispered in her ear "I love you". My daughter said she felt like crying that it was the most gratifying thing to hear, because she sounded like it was hard and painful for her to talk, but she said that to her. My son is 10, and also has a heart of gold, I'm really inspired to do this with them now. ~ Re: I'm back/headaches> > > > > > > > I feel like what is the point of going on? Kathi> > ----- Original Message ----- > > > > NOTE: Next time you want to google something, use: > Goodsearch.com. There is an account set up for Grace Fellowship > and all searches using Goodsearch (which uses Yahoo's search > engine) will result in about one cent being donated to Grace > Fellowship. Not much, but it can become significant if we and > others we tell consistently use Goodsearch for all our searches. > For example, 100 people using Goodsearch for two searches a day > will net us $730.00 a year. When you go to the site just type in > Grace Fellowship Orthodox Presbyterian Church as the benefactor. > This is right below the search bar. You can also change the > benefactor with each search and help other non-profits of your > choice (if they have an account). Thanks for your consideration > and God bless. > > > > > > NOTE: Next time you want to google something, use: Goodsearch.com. There is an account set up for Grace Fellowship and all searches using Goodsearch (which uses Yahoo's search engine) will result in about one cent being donated to Grace Fellowship. Not much, but it can become significant if we and others we tell consistently use Goodsearch for all our searches. For example, 100 people using Goodsearch for two searches a day will net us $730.00 a year. When you go to the site just type in Grace Fellowship Orthodox Presbyterian Church as the benefactor. This is right below the search bar. You can also change the benefactor with each search and help other non-profits of your choice (if they have an account). Thanks for your consideration and God bless. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 That is exactly what I am afraid of for my children to see. I'm scared that no matter if I explain the advances or what, they would accuse me of sugar coating the truth. I really want to visit a patient or resident with MS for my own reasons, but I'm thinking that until they are older and more mature, that it may be in their best interest to not make them aware of the residents that have MS. I'm still mulling this over in my head, and I certainly appreciate your story. Thank you so much. ~ Re: Re: I'm back/headaches I have a horror story about taking the kids to a nursing home and seeing someone with MS who is "bad". I have a 20 year old daughter that has a boyfriend in the nursing field. He worked with a lady who had MS, who was very much in the last stages of life. She could not see, not talk and only groaned. Her legs had drawn up and she was in pain all the time. After my Dx, her boyfriend told her about this lady and took her to see her. My daughter at 19 was horrorifyed (sp). She cryed for days, thinking that this was her moms fate and they could not change it. I know the bad side of MS is very scary even to grown adults. I would never take my 12 and 14 year old to see someone else who was in those last stages of MS life. Now as to weither the final stages was do to MS or just old age is not known, so I helped my adult daughter through with knowledge. Like you said there have been alot of advances in medicines for MS. Scary things that we have to go through is scary for us MS'ers much less putting our children face to face with our "possible" demise. Thanks for listening, Amy Hugon <amyhugon> wrote: This sounds like something I may look into for us to do as a mother/daughter. I hope it wouldn't frighten her too much thinking that one day I may end up there, but I'm confidant that I could talk to her and explain to her that thank goodness there have been a lot of advances in MS and it's treatment since most of those elderly people were first diagnosed. Or I could just not tell her that the person I am visiting has MS. ? What do you all think? She will be 16 next month. If it turns out not to be a good idea for us to do it together, I could always go one day while she is at school, and HECK I could go visit another person together with her!***My daughter is 13. I wouldn't take her to see worse-than-me MS people. The nursing home, for random older ones, yes.My daughter does know that others are worse, but I'm thinking that quite this much in-your-face worse might move into the realm of *too much*.I know one study showed that kids of MSers who had to do more CHORES were fine; those who had to do PERSONAL care (ie dressing, grooming, etc) of parents had psychological repercussions.Just my gut - I don't know your kid, so defer to your knowledge of HER, but my kid is great with older people - her best friends are 87 and 92, and they write frequently - but I dont' think she needs to see the *just how bad it can get* part. I do use the concept of *meds have improved* re the woman with MS in my town who is significantly worse - she has never been on medication, has been dx'd x 30 years, and is much worse than I am. Can I guarantee my meds will keep me *better than that*? Nope. But as far as my children are concerned, the answer is yes ... because that's what they can deal with, now.Amy Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr. Get your own web address.Have a HUGE year through Yahoo! Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 Listen, our kids are smart; they are brighter than we give them credit for sometimes--instinctively, they KNOW MS is a progressive illness. My angle of looking at it is this: to not SCARE them, or make them fearful that I'll wind up in a nursing home ~I mean it as a hopeful thing--like look how great I'm doing; and as a life lesson to our kids, that no matter where WE each are in life--there is someone else that is better off, and there are those who are much worse off. For those who are better are--be happy for them; for those worse off--how can WE help; serve; pray?? I think it is empowering for a young person, not a wee one, but a child of 7 or 8 or older to see, hey, even if mom or dad or grandma or grandpa has MS or any other affliction, here is someone who is so much worse off--it gives them perspective, reflection. It could be introduced in this way. I'm not trying to upset you, or scare you, or give you thoughts or ideas that I will be like this someday--because the world of science and medicine is growing and learning and expanding every day--I can only be more helped by what doctor's know today, and what they will continue discovering. Chances are, the folks with MS in a nursing home situation did NOT have ANY disease modifying drugs available to them. I know many don't think they even work; but I do tend to believe there is a moderate slowing down of disease process. That's how it can be presented. See, these men and women didn't have the great advantages of the wealth of supplements,medications, etc--but I DO!. Let's try and help them as they struggle in this chapter of their lives~and be grateful that I am much more able to do for myself... Sorry, I didn't mean this to be a dissertation, but rather, I'm feeling quite passionate about the idea of sharing it with my kids.Could ya tell? I also try to be kinda persuasive, if I can, in my ideas...blessings for a harmonious day! You really touched my heart with your depictions of your children--how precious---write down your impressions of them in a journal you make for each of them... I've been attempting to do that, but with 5 kids, gets a bit tricky...Like when they say something profound, or witty, or funny, or touching or reflective-- They will treasure the fact that you took time to write about it, ponder it, and they'll have a keepsake too... kate Re: I'm back/headachesTo: MSersLife > How inspiring. I must admit, when my daughter told me how much > she enjoyed visiting the nursing homes, I felt guilty for not > encouraging her more in volunteering. She used to visit the > homes frequently when her great grandmother was in one, and she > always talked of how she would get bored sometimes, (they > usually spent all day there with their grandmother) and she > would go wandering the halls and visit other "old people" as she > called them. When she went with the cheerleading group, they > sang Christmas Carols. They went from room to room, and she said > that one old lady stood in her doorway and watched them go from > room to room as they got closer to her room, and by the time > they got to her room, it was time for them to go to the Day room > and have lunch and sing to the people there. She said that old > lady looked so sad, and their coach told them they didn't have > time to go to her. Well, my daughter (stubborn Taurus that she > is) snuck out of her group and went to that old ladies room and > sang to her all by herself. She said that little old lady was > grinning from ear to ear and clapping her hands the whole time. > And she said that when she went with the FCCLA, they took them > lunch they made, and ate with the elderly, and that she had to > assist feeding one lady at her table, and that lady couldn't > talk (the way it sounded she had a tracheotomy) but when they > left, my daughter hugged her, and that lady whispered in her ear > "I love you". My daughter said she felt like crying that it was > the most gratifying thing to hear, because she sounded like it > was hard and painful for her to talk, but she said that to her. > My son is 10, and also has a heart of gold, I'm really inspired > to do this with them now. > ~NOTE: Next time you want to google something, use: Goodsearch.com. There is an account set up for Grace Fellowship and all searches using Goodsearch (which uses Yahoo's search engine) will result in about one cent being donated to Grace Fellowship. Not much, but it can become significant if we and others we tell consistently use Goodsearch for all our searches. For example, 100 people using Goodsearch for two searches a day will net us $730.00 a year. When you go to the site just type in Grace Fellowship Orthodox Presbyterian Church as the benefactor. This is right below the search bar. You can also change the benefactor with each search and help other non-profits of your choice (if they have an account). Thanks for your consideration and God bless. Attachment: vcard [not shown] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 ,how sweet of your daughter.She sounds like a very sweet young lady.Shows alot about her as a person to sneak and risk getting in trouble because she new how important it was to that lady.that is very sincere and genuine.you must be very proud.big hugzz,cassy [LisDam@...] wrote: How inspiring. I must admit, when my daughter told me how much she enjoyed visiting the nursing homes, I felt guilty for not encouraging her more in volunteering. She used to visit the homes frequently when her great grandmother was in one, and she always talked of how she would get bored sometimes, (they usually spent all day there with their grandmother) and she would go wandering the halls and visit other " old people " as she called them. When she went with the cheerleading group, they sang Christmas Carols. They went from room to room, and she said that one old lady stood in her doorway and watched them go from room to room as they got closer to her room, and by the time they got to her room, it was time for them to go to the Day room and have lunch and sing to the people there. She said that old lady looked so sad, and their coach told them they didn't have time to go to her. Well, my daughter (stubborn Taurus that she is) snuck out of her group and went to that old ladies room and sang to her all by herself. She said that little old lady was grinning from ear to ear and clapping her hands the whole time. And she said that when she went with the FCCLA, they took them lunch they made, and ate with the elderly, and that she had to assist feeding one lady at her table, and that lady couldn't talk (the way it sounded she had a tracheotomy) but when they left, my daughter hugged her, and that lady whispered in her ear " I love you " . My daughter said she felt like crying that it was the most gratifying thing to hear, because she sounded like it was hard and painful for her to talk, but she said that to her. My son is 10, and also has a heart of gold, I'm really inspired to do this with them now. ~ Re: I'm back/headaches ~I think kids are real impressionable, and that we, as parents can really impact them, well, not us, but our sharing awesome things, like serving others. My 2 oldest-Kara and Lia, went to Argentina with our church's youth group when they were 17 and 14. They served in a real rural poor section of Argentina. What amazed and inspired the older of the 2 especially, was the incredible spirit of folks who have virtually nothing in terms of economic conditions, and yet are so full of joy, so full of their faith. They helped with fixing up a church for the community; made great friends...Last year, they went also with our church's youth group to serve in St. Louis in the Katrina aftermath--they tore down 2 homes that had been destroyed, so that 2 new ones could be built. Again, they grew tremendously in their faith, their love of service--and I think a sheer appreciation of the life that they have. This year, the oldest is in college, so next in line is Luke, 13; he and Lia will be serving in.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 I think they get a kick back to prescibe more. I hope I am wrong but, it sure seems like some of them just want you to rattle when you walk. Kathi Benedict wrote: That's what I hate.............more pills. I don't want any more. Kathi I'm back/headaches Well, everyone, it's been a few months since I have posted here, but I periodically check in and sift through some of the posts. I had a difficult spell where I was angry about the MS and the circumstances involving everything around it, so I went through a period of time where I pretended I didn't have it, and that included stopping all meds, not going to Dr. appts, and sadly, not contributing to this group. I pretended and convinced myself that my symptoms were related to something other than MS & all kinds of crazy things. But, I'm slowly coming back to reality. I am trying to make ammends with myself & have re-scheduled all my appointments I missed, started back on *some* of my meds (not all, stopped Avonex and will not go back on any of the ABC drugs at this point) and I'm hoping to be welcomed back to this wonderful, supportive group of loving people I consider friends. I just felt like at one point everything in my life and every move i made was related to MS, and I got sick and tired of it. I'm trying to learn how to cope with everything MS and not allow it or feel like I'm allowing it to control every aspect of my life. Now for a little update, I just got back from a trip to my neuro (a 5 hour trip to UVA)and I don't think I done so well on my neurological exam, oh well. She also changed some of my meds, i had to stop baclofen due to the fact that it gave me migrains. She changed my dosing of neurontin from 600 mgs at night, to 100 mgs 4x during the day, and 300 mgs at night. I have been suffering from migrains, also, and she wrote me a script for Imitrex. I hope it works, haven't tried it yet. Also gave me phenegran (sp?) for the nausea associated with the headaches. She done bloodwork to check my b12 levels, horomone levels, thyroid and a cbc to check for infection because i've been suffering also from extreme fatigue. She wants me to see a urologist at UVA (my current uro is local) that specializes in urological disorders associated with neurological disease. One of the biggest health concerns at this point is my urological symptoms. I had the urodynamic testing done a few months back by my local urologist, and the results were not good. He said I had something called "detrussor hyporeflexia" that was moderate to severe. I keep a UTI that does not respond to antibiotics and kidney stones which I did not know could be caused by malfuntions in the urological symptoms due to neurological disorders. My local urologist does not like to give me narcotic pain killers because he says that it can slow down the urological system and make the problem worse. My current primary care physician does not like to give me pain killers becasue he's afraid i'll become addicted. So, sadly I have to get them elsewhere, because I cannot function without them due to the pain i have. Most of my pain is in my kidneys and bladder due to the several (10-15) stones i have in both kidneys, and the chronic inflamation I have in the bladder. I am so aggravated that the doctors here do not understand that I need the pain killers and i'm hoping that the new urologist will be more understanding and at least can do something to alleviate the pain so i won't need the pain killers. I can control my other pain (cramps, spasms, etc) with the neurontin and OTC meds to the point that it's tolerable, but the kidney and bladder pain incapacitates me at times. It's so frustrating. I still have not been approved for my social security disability yet. I have been turned down twice, and now have the hearing in front of the judge scheduled in a few months. Our financial situation is in the toilet, and i'm so frustrated over that, too. We just bought our new house and got settled in, and we need to finish some work on it, and don't have the money to do that, and i feel like it's my fault, because i'm not working anymore. I used to make really good money, and it's hard going from being able to do what you want, to struggling to feed your kids. My husband used to try to be supportive, but lately things haven't been so well in that area, either. We never discuss my health or anything MS. I don't even tell him anymore when I'm having a particularly "bad day" I just struggle through it alone and in silence. Which is difficult. So I really need this group to hear me whine!! LOL! Well, this was long, I just wanted to join back in the discussions, and hope to be welcomed back with open arms. OH, and about the headaches, has anyone tried the "head on" topical treatment, you know "head on apply directly to the forehead, head on apply directly to the forehead" it does not get rid of the headaches, but it does offer some relief sometimes for me, it just feels good when you have a headache. I rub it on my forehead and on my temples. There is a couple of formulas, I use the migraine formula that is in the green tube. Thanks for listening,~ Finding fabulous fares is fun.Let Yahoo! FareChase search your favorite travel sites to find flight and hotel bargains. Cheap Talk? Check out Yahoo! Messenger's low PC-to-Phone call rates. Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr. Finding fabulous fares is fun.Let Yahoo! FareChase search your favorite travel sites to find flight and hotel bargains. Internal Virus Database is out-of-date.Checked by AVG Free Edition.Version: 7.5.441 / Virus Database: 268.18.2/692 - Release Date: 2/18/2007 4:35 PM Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr. Bored stiff? Loosen up...Download and play hundreds of games for free on Yahoo! Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 , Moms do sugar coat things if we can. Anything to help them see the best in all things huh?..!!!! Anytime, to help. Damron wrote: That is exactly what I am afraid of for my children to see. I'm scared that no matter if I explain the advances or what, they would accuse me of sugar coating the truth. I really want to visit a patient or resident with MS for my own reasons, but I'm thinking that until they are older and more mature, that it may be in their best interest to not make them aware of the residents that have MS. I'm still mulling this over in my head, and I certainly appreciate your story. Thank you so much. ~ Re: Re: I'm back/headaches I have a horror story about taking the kids to a nursing home and seeing someone with MS who is "bad". I have a 20 year old daughter that has a boyfriend in the nursing field. He worked with a lady who had MS, who was very much in the last stages of life. She could not see, not talk and only groaned. Her legs had drawn up and she was in pain all the time. After my Dx, her boyfriend told her about this lady and took her to see her. My daughter at 19 was horrorifyed (sp). She cryed for days, thinking that this was her moms fate and they could not change it. I know the bad side of MS is very scary even to grown adults. I would never take my 12 and 14 year old to see someone else who was in those last stages of MS life. Now as to weither the final stages was do to MS or just old age is not known, so I helped my adult daughter through with knowledge. Like you said there have been alot of advances in medicines for MS. Scary things that we have to go through is scary for us MS'ers much less putting our children face to face with our "possible" demise. Thanks for listening, Amy Hugon <amyhugon> wrote: This sounds like something I may look into for us to do as a mother/daughter. I hope it wouldn't frighten her too much thinking that one day I may end up there, but I'm confidant that I could talk to her and explain to her that thank goodness there have been a lot of advances in MS and it's treatment since most of those elderly people were first diagnosed. Or I could just not tell her that the person I am visiting has MS. ? What do you all think? She will be 16 next month. If it turns out not to be a good idea for us to do it together, I could always go one day while she is at school, and HECK I could go visit another person together with her!***My daughter is 13. I wouldn't take her to see worse-than-me MS people. The nursing home, for random older ones, yes.My daughter does know that others are worse, but I'm thinking that quite this much in-your-face worse might move into the realm of *too much*.I know one study showed that kids of MSers who had to do more CHORES were fine; those who had to do PERSONAL care (ie dressing, grooming, etc) of parents had psychological repercussions.Just my gut - I don't know your kid, so defer to your knowledge of HER, but my kid is great with older people - her best friends are 87 and 92, and they write frequently - but I dont' think she needs to see the *just how bad it can get* part. I do use the concept of *meds have improved* re the woman with MS in my town who is significantly worse - she has never been on medication, has been dx'd x 30 years, and is much worse than I am. Can I guarantee my meds will keep me *better than that*? Nope. But as far as my children are concerned, the answer is yes ... because that's what they can deal with, now.Amy Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr. Get your own web address.Have a HUGE year through Yahoo! Small Business. Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr. Need Mail bonding?Go to the Yahoo! Mail Q&A for great tips from Yahoo! Answers users. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2007 Report Share Posted March 9, 2007 He basically took his life by accident. He was a raging alcoholic. The booze changed him, I guess, I say I guess since I never knew him not to drink, never knew him before, never knew the man my mother fell for and married. I had a restraining order out on him, he had tried to kill me. He was desperate to make me go to him, so he slit his wrist, one wrist, crossways. HE wanted to endd up in the hospital, to make me go to him. But he had about a gallon of vodka in him, and it thinned his blood. He bled out. They found a lot of blood on the bed, but he was 1/2way to the door when they found him. So he did end up in the hospital, wrong room, though. But he had threatened suicide for years, used it to control us, and finally I think God said "Ok, I'm tired of this, come on, time's up." He used to take my shotgun and my dog and disappear for hours. When I asked him why he always took MY gun (it was my Christmas gift, when I was 11, a reward for making marksman) he said it was because it was the only one he could reach his mouth with. He took my dog just because he knew how much I loved that dog, a big ol' brindle Boxer...awesome dog, I still miss her. I can't say I miss him, more's the shame. Peace and Blessings~*~ Akiba ~*~Pragmatic Visionary & Eternal Optimist! http://yodamamma.blogspot.com/ http://www.solay-twinflames.com -- Re: Re: I'm back/headaches Im so sorry Akiba.this jus broke my heart.I dont know why your dad took his life,but I wish he woulda gave it more of a chance.It was his own demons,and nothing anyone coulda done to change it.Im sure he was very proud of you and loved you very much,and I know he would love Robbin.Sometimes people dont show how they feel,gratitude,love and a good relationship and just like that it is gone.for whatever the reason.They just dont think what about my life in front of me?my family?friends?people that love me?you should be very proud of the person you are and the son you have raised,and im sure your dad is to.I believe the same.I am going to enjoy and do right in this life because whatever does happen once we die im sure all we have done and all the love we have shared will only be of benefit once we reach our eternal destination.Not to mention how we are remembered by those we love.much love to you akiba! Hugz,cassy[akybacomcast (DOT) net] wrote:As the daughter of a suicide I will say...I thought my dad was a very strongman, he was, after all, a full Navy Commander. But he was also weak, and inthe end, thought nothing of the guilt he would leave as his legacy, but onlyof taking the coward's way out.For years I went through the "if only's"... You know, if only I had been abetter daughter. If only I had been a son. Well, now I realize...if only hehad been a better dad I might have been a better daughter. It wasn't myfault, but I took that guilt within for years and it damaged me. It tookover 20 years for me to realize that. It has been almost 30 years now. I'mbetter, insofar as I never think about it anymore, and when I *do* thinkabout him it is to think he would have loved his grandson...my son...so eventhough I was not the son he always wanted, if he had hung around a few moreyears, he would have had a grandson to spoil (like he never spoiled me,ever) Example, my sisters both got cars for their 18th birthday. I got alighted beauty mirror. And Now of the three girls I'm the ONLY one to have achild, and it was a son! Makes one believe in Karma.Ok, I'm rambling now...just remember, suicide ain't all it's cracked up tobe. It doesn't make it all go away. It is ugly and painful. And I believeyou take your problems with you and will have to deal with them all overagain next time. And Yes, I do believe there is a next time. So I try toresolve issues this time, so I don't have to deal with them next time, and Itry to learn the lessons this time, so I don't have to deal with them nexttime.Peace and Blessings~*~ Akiba ~*~Pragmatic Visionary & Eternal Optimist!http://yodamamma.blogspot.com/http://www.solay-twinflames.com-------Original Message-------From: cassandra workmnDate: 3/8/2007 8:14:26 PMTo: MSersLife Subject: Re: Re: I'm back/headachesthats so sad..How could anyone do that to themselves,and their family? Verysad.I know people get depressed or sad but its even sadder when they do killthemselves before asking for help..I will fight for my life till the day Idie.I feel so bad for any family that has to grieve a loss any way,let aloneby suicide.Sorry to all the families here that have had to grieve a loss ofsomeone they loved that have died by suicide.My deepest sympathy's....hugzzzcassy[wobbletowalk] wrote:And one of my nephews killed himself when he was in his 20s. It's left hisbrothers, sisters, parents and other family members grieving forever. love..Sharon Re: Re: I'm back/headachesMy Father was a suicide. If you love ANYONE you know, don't do that *tothem*. You'll be gone, but they won't, and the guilt is incredible. "nuffsaidPeace and Blessings~*~ Akiba ~*~Pragmatic Visionary & Eternal.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2007 Report Share Posted March 9, 2007 Now, I'm slightly concerned that you all might not like me any more. I would like to explain something. My mother and my aunt were here not too long ago and I said something about doing something about it if I got too bad because I wouldn't want to live and they said "nothing" so I pretty much got the feeling they felt that I should do it. I do realize that you all don't know what my family is like. My mother and my aunt love me but I was raised as if looks are very important and my father lived only 3 weeks in a nursing home and then he decided he didn't want to live, so he stopped eating and drinking and died within 3 days. And, I have never even tried to commit suicide or thought what I would do. I just feel totally scared to live in a nursing home or being unable to do anything about bodily functions, etc. Kathi My own children and grandchildren dearly love me. You all have given me some interesting things to think about and I do thank you for your support and caring. It has truly helped me look at things differently. Kathi As the daughter of a suicide I will say...I thought my dad was a very strong man, he was, after all, a full Navy Commander. But he was also weak, and in the end, thought nothing of the guilt he would leave as his legacy, but only of taking the coward's way out. For years I went through the "if only's"... You know, if only I had been a better daughter. If only I had been a son. Well, now I realize...if only he had been a better dad I might have been a better daughter. It wasn't my fault, but I took that guilt within for years and it damaged me. It took over 20 years for me to realize that. It has been almost 30 years now. I'm better, insofar as I never think about it anymore, and when I *do* think about him it is to think he would have loved his grandson...my son...so even though I was not the son he always wanted, if he had hung around a few more years, he would have had a grandson to spoil (like he never spoiled me, ever) Example, my sisters both got cars for their 18th birthday. I got a lighted beauty mirror. And Now of the three girls I'm the ONLY one to have a child, and it was a son! Makes one believe in Karma. Ok, I'm rambling now...just remember, suicide ain't all it's cracked up to be. It doesn't make it all go away. It is ugly and painful. And I believe you take your problems with you and will have to deal with them all over again next time. And Yes, I do believe there is a next time. So I try to resolve issues this time, so I don't have to deal with them next time, and I try to learn the lessons this time, so I don't have to deal with them next time. Peace and Blessings~*~ Akiba ~*~Pragmatic Visionary & Eternal Optimist! http://yodamamma.blogspot.com/ http://www.solay-twinflames.com -- Re: Re: I'm back/headaches thats so sad..How could anyone do that to themselves,and their family? Very sad.I know people get depressed or sad but its even sadder when they do kill themselves before asking for help..I will fight for my life till the day I die.I feel so bad for any family that has to grieve a loss any way,let alone by suicide.Sorry to all the families here that have had to grieve a loss of someone they loved that have died by suicide.My deepest sympathy's....hugzzz,cassy[wobbletowalk] wrote:And one of my nephews killed himself when he was in his 20s. It's left his brothers, sisters, parents and other family members grieving forever. love..Sharon Re: I'm back/headaches>> I feel like what is the point of going on? Kathi>****The point of going on is that fundamentally life is good. Some parts of life, at various times, stink. My child has a disorder which went undiagnosed for many years. She lived in severe pain until age 9. Her life now is great. If she had given up then, she wouldn't have now.The point of going on is that other people in your life want you and need you. If that's not true, then you need to find people to be in your life who do.Sorry today is so hard. Hugs, AmyNeed Mail bonding?Go to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users..... Internal Virus Database is out-of-date.Checked by AVG Free Edition.Version: 7.5.441 / Virus Database: 268.18.2/692 - Release Date: 2/18/2007 4:35 PM Quote Link to comment Share on other sites More sharing options...
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