Fw: Re: Pulm. to Barbara

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Sher, I was just fixing to call 911 when my husband came in from his fishing trip and loaded me in the car and took me to the local ER. Boy was that a joke. My husband is normally very quiet and laid back but he got his dander up with the Triage nurse last night when she told him she would see me when it was my turn. Here I was gasping for breath like a fish out of water and she tells him that, not smart on her part. Needless to say I was back in a room hooked to their O2 in short order.

After much poking and probing and a ton of labs and x-rays I was told that I am now in congestive heart failure. The doc gave me the choice of coming home or staying in the hospital for the night and I chose to come home. I will call my Pulmo in the morning and take it from there.

Thank you for your prayers and your caring. It meant the world to me just knowing that there was someone I could ask to pray and they would. My pastor and his family were in TN for the week-end so I couldn't reach him, but God always has a plan doesn't He. I did get the chance to witness to several of the nurses and the neuclear medicine person and maybe that was why I needed to go to the ER. The one nurse was crying when I told her the story of my oldest grand daughter and her concern that I was going to die when I first got sick. Once I told her that I wasn't going to die one min before or one min after God got ready for me she was ok. God is just so good to His children and this morning I am for sure praising and blessing His precious name.

Hugs and Prayers!

Barbara R IPF 1/2003 ()> >> > To .> > I just read your post and I wish I could be with you to talk and visit awhile. I understand your fatigue and feelings of hopelessness. I had that awhile back too and the new antidepressant my Dr. put me on (Cymbalta) has helped me immensely!> > A great many of us on this board are on varied anti-depressants and all say they feel better.> > Does your Dr. know your insurance won't cover the new medication? Perhaps he has samples he will give you or can recommend help. Often, if you contact the manufacture directly with your situation, they will provide free or greatly reduced cost!> > I think your Dr. sounds extremely insensitive! I changed Drs only two days ago because I don't think he has my best interests at heart.> > I read your helplessness in your post . I feel sad whenever any one of us has to face the reality of our ! common disease. > > Do you have another oxygen supplier that may work with your needs better than the current one? For me, I had one supplier...Apria...and I'm so fed up with them I am changing insurance to Regence Blue Cross simply to get away from Apria!> > , none of know how to "be sick" and don't apologize for feeling depressed and/or discouraged. How else could you possible feel?> > If you really believe you have reached the place where you do need to accept the end stage of the disease, there are still things you can do to feel in control....Get your affairs in order; do a living will or some document that will carry out your wishes; write letters to family members and have good conversations with each person. Make plans for your personal things, even make plans for your funeral. I know, this stuff is heart-wrenching and it feels like you've been gut-shot. But when it's all done you will feel a great burden lifted and will find a sense of peace.> We're all here for you. If I can personally be of help, write me at bofus@> > Most of all do what you know you need to do, no matter what anyone says. This is OUR battle and we each fight it with our chosen weapon.> > You are not alone dear heart.> > Love, Sher ipf 5-06> > > > > > > > > > Re: Pulm. Visit- > > > > > > Hi , I hate to hear your having such a rough time. I think at one time or another we have all been told nothing will cure this disease, That is so very hard to hear.> > Please remember you do have life so live it to it's fullest. Fight the good fight. Only God knows when we're going home. > > As far as the antidepressant, I strongly recommend it. I didn't realize how down I actually was unti! l I started on wellbrutrin. You will feel like living and like yourself. This monster as we call it, is hard enough on our emotions. > > We are here to support you in what ever way you need us, so vent away. I will be praying for you. God grant you peace...> > Love and Prayers, Peggy 9/04 ipf> > > > > > > > I went to my pulm. yesterday. Sats were 82, even though I use > > oxygen continuously. Am having a real difficulty now with getting > > in and out of chairs, doing simple things in the house. I just get > > so out of breath. The Dr. said the increased SOB is because of my > > pulmonary hypertension, which is worsening. There is a new med. for > > it but Cigna does not approve it and therefore I have to pay > > privately. I am going to do that for a while. But I wonder what is > > the use? My dr. told me yesterday that he knows of nothing else > > that can be done and that I need to start accepting things.! He said > > that with a terminal illness, I should expect to get worse instead > > of hoping. He said the time for hope is over now and that maybe I > > need to see a therapist to help me through this. He then wanted to > > write me a script for Zoloft to "help". He did say that I would > > probably need to think about going into the hospital again soon, to > > drain some of the fluid out of me. I have already done that but it > > just comes back. I read that with the hypertension, that your legs > > cana get very large and heavy. And that is what is happening. Also > > having a problem with my portable oxygen. Since I am now on liquid > > oxygen, the tank I havae to carry is so heavy that it takes all my > > energy to carry it. Evidently the office called the supplier and I > > just got a call from them stating that Cigna does not authorize the > > really small one. I am calling Cigna. I know I sound depressed ! in > > this post. I know I am discouraged. Really really tired of > > everything. Tired of the tube in my nose, tired of calculating what > > I can do because of limited breath, tired of sitting. Just tired. > > Tired of being told that I have lived longer than most people with > > my disease.> > I dont know how to be a sick person.> > Thanks for listening.> > > >>