Guest guest Posted November 19, 2006 Report Share Posted November 19, 2006 HI - Is anyone taking NAC as well as insulin and the other meds that go along with diabetes? I bought some NAC for Bud, but don't really want to ask a doc if it will affect his blood sugar levels until I have some first hand accounts. Of course, it was the pulm doc who gave him prednisone without consulting diabetes doc (they are in same practice -arghhh-) and of course, it was the heart doc who gave him amiodarone without consulting the pulm doc - double arghh - We are really ready for just one doctor to be in charge of everything. I told my sister I was looking for a doctor's office that just had 4 parking spaces in front - one for the doc, one for the nurse, one for me and one for the next patient. Wouldn't it be loverly? Joanie and the Budster - In Breathe-Support , " Sher K Bauman " wrote: > > My two cents here.....when I saw Dr for 2nd opinion ( I wrote about it earlier) he said, " Stay on the NAC. " So I feel extremely comfortable taking it. Try www.puritan.com for good prices if you decide to use it. My 1st Dr and my Naturopathic Physician also recommend it for mucus/coughing. When I was first dx I had bad coughing and spitting up gunk. No more. > Hope this helps. Sher ipf 5-06 > Re: Re: Pulm. Visit > > If you cough has muscus take NAC P > > http://www.drkoop.com/newsdetail/408/529255_3.html > > http://www.puritan.com/pages/file.asp? xs=03B293C4CFBA482798B5C7A7CE3CD82D & PID=324 & CPID=39 & np=1 > > acapulco_cottonwoodcove wrote: > , I am so sorry that you are having such a hard time of it. I know how you feel about being sick and tired of being sick and tired. I get fed up somedays with all of the coughing that I do and being so short of breath that all I really feel like doing is setting on my backside and doing nothing. Somedays that is what I do all day long, nothing and others I wear myself out doing to much. I need to find a middle ground so I can do a little bit each day. For me it has always been full speed ahead and damn the torpedos. I have tried to pace myself, just haven't made it yet. > Your doc sounds like a real peice of work. Some docs have the bed side manners of a chimp, and some are so kind and compassionate and will do all that they can for us. > I have been coughing around the clock for the past week and nothing I do helps. I can't take cough syrup with codine in it and the otc stuff doesn't work, do you have any suggestions? > You take care of yourself and we will all be praying that your O2 supplier will find some way for you to be able to ambulate without tiring yourself out with the heavy tank that you have been saddled with. > Hugs and Prayers! > Barbara R IPF 1/2003 > > > > > I went to my pulm. yesterday. Sats were 82, even though I use > > oxygen continuously. Am having a real difficulty now with getting > > in and out of chairs, doing simple things in the house. I just get > > so out of breath. The Dr. said the increased SOB is because of my > > pulmonary hypertension, which is worsening. There is a new med. for > > it but Cigna does not approve it and therefore I have to pay > > privately. I am going to do that for a while. But I wonder what is > > the use? My dr. told me yesterday that he knows of nothing else > > that can be done and that I need to start accepting things. He said > > that with a terminal illness, I should expect to get worse instead > > of hoping. He said the time for hope is over now and that ! maybe I > > need to see a therapist to help me through this. He then wanted to > > write me a script for Zoloft to " help " . He did say that I would > > probably need to think about going into the hospital again soon, to > > drain some of the fluid out of me. I have already done that but it > > just comes back. I read that with the hypertension, that your legs > > cana get very large and heavy. And that is what is happening. Also > > having a problem with my portable oxygen. Since I am now on liquid > > oxygen, the tank I havae to carry is so heavy that it takes all my > > energy to carry it. Evidently the office called the supplier and I > > just got a call from them stating that Cigna does not authorize the > > really small one. I am calling Cigna. I know I sound depressed in > > this post. I know I am discouraged. Really really tired of > > everything. Tired of the tube in my nose, tired of calculating what > ! > I can do because of limited breath, tired of sitting. Just tired. > > Tired of being told that I have lived longer than most people with > > my disease. > > I dont know how to be a sick person. > > Thanks for listening. > > > > > > > > > > ------------------------------------------------------------------- ----- > Sponsored Link > > Mortgage rates near 39yr lows. $420,000 Mortgage for $1,399/mo - Calculate new house payment > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 Thanks, - that's exactly what I wanted to hear! Happy Thanksgiving - Joanie > > > > > > I went to my pulm. yesterday. Sats were 82, even though > I use > > > oxygen continuously. Am having a real difficulty now > with getting > > > in and out of chairs, doing simple things in the house. > I just get > > > so out of breath. The Dr. said the increased SOB is > because of my > > > pulmonary hypertension, which is worsening. There is a > new med. for > > > it but Cigna does not approve it and therefore I have to > pay > > > privately. I am going to do that for a while. But I > wonder what is > > > the use? My dr. told me yesterday that he knows of > nothing else > > > that can be done and that I need to start accepting > things. He said > > > that with a terminal illness, I should expect to get > worse instead > > > of hoping. He said the time for hope is over now and > that ! maybe I > > > need to see a therapist to help me through this. He then > wanted to > > > write me a script for Zoloft to " help " . He did say that > I would > > > probably need to think about going into the hospital > again soon, to > > > drain some of the fluid out of me. I have already done > that but it > > > just comes back. I read that with the hypertension, that > your legs > > > cana get very large and heavy. And that is what is > happening. Also > > > having a problem with my portable oxygen. Since I am now > on liquid > > > oxygen, the tank I havae to carry is so heavy that it > takes all my > > > energy to carry it. Evidently the office called the > supplier and I > > > just got a call from them stating that Cigna does not > authorize the > > > really small one. I am calling Cigna. I know I sound > depressed in > > > this post. I know I am discouraged. Really really tired > of > > > everything. Tired of the tube in my nose, tired of > calculating what > > ! > I can do because of limited breath, tired of sitting. > Just tired. > > > Tired of being told that I have lived longer than most > people with > > > my disease. > > > I dont know how to be a sick person. > > > Thanks for listening. > > > > > > > > > > > > > > > > > > ---------------------------------------------------------- > ----- > > Sponsored Link > > > > Mortgage rates near 39yr lows. $420,000 Mortgage for > $1,399/mo - Calculate new house payment > > > > > > > > > --------------------------------- > Sponsored Link > > $420,000 Mortgage for $1,399/month - Think You Pay Too Much For Your Mortgage? Find Out! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 Hi Vicky! How nice to hear from you. Thanks for the info on NAC. Hope you have a great holiday - Joanie > > I take NAC and insulin and steroids and all I can say is the NAC is > fantastic!!!! I feel better on it and it hasnt effected my sugar... > > Vicky81856 IPH/PF PH 4/06 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 NAC To: Breathe-Support Hello , Three a day with food or a glass of water. Have a good night. Grey 10-05 ipf > > > > > _____ > > > > Hello everyone. > > My NAC capsules arrived today. > > If I remember correctly take one 600 capsule a day? > > Are there any noticeable side effects if it doesn't agree with you? > > Florida > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2006 Report Share Posted November 28, 2006 Dear Dee, Here are a couple of links to NAC. You can get them from this website's home page in the links and files section: http://wholehealthmd.com/ME2/dirmod.asp?sid=17E09E7CFFF640448FFB0B4FC1B7FEF0 & nm=Reference+Library & type=AWHN_Supplements & mod=Supplements & mid= & id=C0CA6C130441483CA96EC8EDF51CA4D3 & tier=2 http://f1.grp.yahoofs.com/v1/0DJsRRvA7m10Jrue_TwnAimnOTfA60io9G-z_WH19ud_-0vpVxLPysX4qoxra1EUcHC4xj4Zbiw26Dk0Yi0Tvw/Antioxidant%20Improves%20Pulmonary%20Fibrosis%20Treatment http://f1.grp.yahoofs.com/v1/0DJsRZAwb7p0JrueqpFUQ1NSx8MZ8wv7JBTHeZIdUC-efZaIIfBoT6rVKbEgHhZCJe2BCu88erKgoQK5ba-jPg/Prime%20Cause%20of%20Lung%20Problems.doc Hope this helps. Leanne dee-andy wrote: What does NAC stand for? I would like to do research on it to see if it might help me. Thanks, Dee NAC Hello everyone. My NAC capsules arrived today. If I remember correctly take one 600 capsule a day? Are there any noticeable side effects if it doesn’t agree with you? Florida Everyone is raving about the all-new Yahoo! Mail beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 You Betcha. It would be fun. I know it would make my day. Florida. From: Breathe-Support [mailto:Breathe-Support ] On Behalf Of Joyce Sent: Wednesday, November 29, 2006 1:25 PM To: Breathe-Support Subject: Re: NAC , RE: We have an extra bedroom and my hubbie wil go back to Ohio in March. Im not leaving. Woo Hoo, all of us girls can come have a sleepover party!! Hugs, Joyce > > > _____ > > > Hello everyone. > & gt; My NAC capsules arrived today. > > If I remember correctly take one 600 capsule a day? > > Are there any noticeable side effects if it doesn?t agree with you? > > Florida > > > > > > _____ > > Want to start your own business? Learn how on Yahoo! Small Business. > <http://us.rd.yahoo.com/evt=41244/*http:/smallbusiness.yahoo.com/r-index> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 I wanna party tooooooo. I've got 4 extra bedrooms. on our property..It is in the 70's and 80's. I don't have a pool.. Love and Prayers, Peggy 9/04 ipf Florida , RE: We have an extra bedroom and my hubbie wil go back to Ohio in March. Im not leaving. Woo Hoo, all of us girls can come have a sleepover party!! Hugs, Joyce > > Hi, > > The reason I am asking all these questions is my pulmo said he was a > mountain climber and his sats went down. He never gave advice. He just shook > his head and said he could bring me back to baseline. > > I upped my o2 to 4 last night. It was in the high 90s this a.m. When I did > any activity, made the beds brushed my teeth etc it went to 79. > > Is this normal? > > I see a new Dr. in Fl in Jan. I purposely did not pick a pulmo. > > Don't mean to bug anyone I just need some realistic answers and this group > has them. > > We have an extra bedroom and my hubbie wil go back to Ohio in March. Im not > leaving. > > Florida > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 Dear : First of all asking questions is not bugging us, its what we are all here for, to help and support one another. As to your question, yes it is normal for those with this disease for their O2 sats to drop while doing activity. The more you do the more oxygen your body needs and if your lungs cant keep up with the demand then you need to increase the oxygen while you are active and then return it to a lower setting when NOT active. Any reading below 88 (I personally feel 90 should be the lowest) is too low for your body's needs and leads to organ damage, especially the heart and brain as they require the oxygen to be steady constantly or damage occurs within minutes. I am curious as to why you did not pick a Pulmonologist? Carolyn Carolyn Merritt One more day of life to praise Jehovah www.watchtower.org Desquamative Interstitial Pneumonitis Diagnosed by Biopsy 9/06 -- RE: NAC Hi, The reason I am asking all these questions is my pulmo said he was a mountain climber and his sats went down. He never gave advice. He just shook his head and said he could bring me back to baseline. I upped my o2 to 4 last night. It was in the high 90s this a.m. When I did any activity, made the beds brushed my teeth etc it went to 79. Is this normal? I see a new Dr. in Fl in Jan. I purposely did not pick a pulmo. Don’t mean to bug anyone I just need some realistic answers and this group has them. We have an extra bedroom and my hubbie wil go back to Ohio in March. Im not leaving. Florida love some company. Fl. From: Breathe-Support [mailto:Breathe-Support ] On Behalf Of BethSent: Tuesday, November 28, 2006 10:02 PMTo: Breathe-Support Subject: Re: NAC , It's true that if we keep our O2 turned up higher than we need it can keep our lungs from working as hard as they are capable of. However, in order for our bodies to be able to function well we have to maintain O2 sats of at least 90 and preferably 93. O2 sats in the 70's or 80's are doing you harm. You mentioned huffing and puffing which to me shows your lungs are working as hard as they can and yet your O2 levels are still low. I would take that as a clear sign you need to turn the O2 up. Perhaps you should discuss this with your doctor? Did he/she tell you to turn it down? What you want is to use enough O2 to keep you as active as possible while maintaining reasonable (above 90) O2 sats. Does that make sense? I'm sure Carolyn will correct me if I'm mistaken or not stating it well. I'm really only speaking from personal experience and what my doctors and the staff at rehab has told me. Beth (Fibrotic NSIP 06/06)Draw close. Hold hands. Life is short. God is good. Re: NAC You need to take 3 @ 600 a day but I would start out on one and take it for a few days and work up to the three. Been on NAC for over a year no side effects P 8/00 Holloway <dhollowaysaa (DOT) net> wrote: Hello everyone. My NAC capsules arrived today. If I remember correctly take one 600 capsule a day? Are there any noticeable side effects if it doesnʼt agree with you? Florida Want to start your own business? Learn how on Yahoo! Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2006 Report Share Posted November 30, 2006 Peggy,We can do without the pool,we'll just laze under the water hose and sprinkler. Peggy wrote: I wanna party tooooooo. I've got 4 extra bedrooms. on our property..It is in the 70's and 80's. I don't have a pool..Love and Prayers, Peggy 9/04 ipf Florida , RE: We have an extra bedroom and my hubbie wil go back to Ohio in March. Im not leaving. Woo Hoo, all of us girls can come have a sleepover party!! Hugs, Joyce >> Hi,> > The reason I am asking all these questions is my pulmo said he was a> mountain climber and his sats went down. He never gave advice. He just shook> his head and said he could bring me back to baseline. > > I upped my o2 to 4 last night. It was in the high 90s this a.m. When I did> any activity, made the beds brushed my teeth etc it went to 79.> > Is this normal? > > I see a new Dr. in Fl in Jan. I purposely did not pick a pulmo. > > Don't mean to bug anyone I just need some realistic answers and this group> has them.> > We have an extra bedroom and my hubbie wil go back to Ohio in March. Im not> leaving. > > Florida> > > Cheap Talk? Check out Yahoo! Messenger's low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2006 Report Share Posted November 30, 2006 Hi, It was very difficult to find a Dr. here in Fl even though we have very good insurance. I found a pulmo in a city near us but it was all financial questions and very little about the client. I also needed a referral. It turned me off. You pay up front and have to send in your own paperwork. When I changed my air over to a local company they got me a referral to a local Dr. They see a lot of patients on oxygen. He also has several nurse ARNTS??? who I will see first. They take my insurance and I liked their warmth and positive attitude. My pulmo in Ohio was referred when I was hospitalized. My other Dr. an allegist who I adored is the one who took me off the pred and got me through the bad times.  The pulmo would shake his head and bring in his other team to look at my xrays and say come back next month. He didn’t get it that I had previous scarring from hypersensitivity pneumonitis and had a huge flare up which caused me to go into P.F. My own Dr. kept trying to explain it to him.  Hopefully the new team will actually read my records. They have a pulmo who evidently comes to my area regularly. As you can see from all my questions I knew absolutely nothing except that I couldn’t breathe and had this strange sounding disease. Thank god I found this group. I am so ignorant about the o2. Florida P.F. 4/2006 From: Breathe-Support [mailto:Breathe-Support ] On Behalf Of cmmerritt Sent: Wednesday, November 29, 2006 6:30 PM To: Breathe-Support Subject: RE: NAC Dear : First of all asking questions is not bugging us, its what we are all here for, to help and support one another. As to your question, yes it is normal for those with this disease for their O2 sats to drop while doing activity. The more you do the more oxygen your body needs and if your lungs cant keep up with the demand then you need to increase the oxygen while you are active and then return it to a lower setting when NOT active. Any reading below 88 (I personally feel 90 should be the lowest) is too low for your body's needs and leads to organ damage, especially the heart and brain as they require the oxygen to be steady constantly or damage occurs within minutes. I am curious as to why you did not pick a Pulmonologist? Carolyn Carolyn Merritt One more day of life to praise Jehovah www.watchtower.org Desquamative Interstitial Pneumonitis Diagnosed by Biopsy 9/06 -- Re: NAC You need to take 3 @ 600 a day but I would start out on one and take it for a few days and work up to the three. Been on NAC for over a year no side effects P 8/00 Holloway <dhollowaysaa (DOT) net> wrote: Hello everyone. My NAC capsules arrived today. If I remember correctly take one 600 capsule a day? Are there any noticeable side effects if it doesn¢t agree with you? Florida Want to start your own business? Learn how on Yahoo! Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2006 Report Share Posted December 23, 2006 Joyce, Do you have any autoimmune disorders. I have Sjogren's Syndrome that goes along with all my other stuff. It causes eyes, skin and mouth to be dry. There is mediciation but it has side effects. I drink gallons of water every day....even sleep with my water bottle...it is non spill. My teeth suffer from dry mouth. My eyes drive me nuts. I use Biotene products. You can buy it almost all drug stores and Walmart, etc. It is especially for dry mouth. They make special toothpaste and gel for dry mouth. Hugs, Joyce PF 1997 Bronchiectasis 2004 INDIANA > >> > Does anyone get a dry mouth from taking NAC? After taking morning> vitamins and supplements this happens. The others are E C B I really do> not think it could be them. Please let me know.> > Laurie> >> > __________________________________________________> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2006 Report Share Posted December 23, 2006 BTW-what is NAC?!!! Joy 3/6l e wrote: Does anyone get a dry mouth from taking NAC? After taking morning vitamins and supplements this happens. The others are E C B I really do not think it could be them. Please let me know.Laurie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2006 Report Share Posted December 23, 2006 What is BTW?Joy wrote: BTW-what is NAC?!!! Joy 3/6l e <rmje3> wrote: Does anyone get a dry mouth from taking NAC? After taking morning vitamins and supplements this happens. The others are E C B I really do not think it could be them. Please let me know.Laurie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2006 Report Share Posted December 24, 2006 Joyc e When I went to the doctor on Wednesday, I told her about the dry mouth and dry eyes. She told me about Sjogren's Syndrome, ordered blood work, and told me to discuss it with the eye doctor. I have an appt with an optometrist after New Year's. But I might need to see an opthamologist. Will find out next year. Dentist told me about Biotene products and I bought their mouthwash and toothpaste also. Didn't seem to help. I drink at least 3 diet cokes per day. The NAC needs to be mixed with diet cola. They might have a drying effect also. I always drink the diet coke on the " rocks " . The ice helps water it down a bit. pink joyce > > > > > > Does anyone get a dry mouth from taking NAC? After taking morning > > vitamins and supplements this happens. The others are E C B I really > do > > not think it could be them. Please let me know. > > > Laurie > > > > > > __________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2006 Report Share Posted December 24, 2006 Joy NAC is N-acetylcysteine (spelling?). Pulmonary doc prescribed it in liquid form last April. A lot of people on the board take it in pill form over the counter. It's kind of like mucinex, but in a different form. pink joyce Does anyone get a dry mouth from taking NAC? After taking morning vitamins and supplements this happens. The others are E C B I really do not think it could be them. Please let me know. > Laurie > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2006 Report Share Posted December 24, 2006 by the way > Does anyone get a dry mouth from taking NAC? After taking morning vitamins and supplements this happens. The others are E C B I really do not think it could be them. Please let me know. > Laurie > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2006 Report Share Posted December 24, 2006 BTW is computer talk for by-the-way... Joy l e wrote: What is BTW?Joy <joynoel3208> wrote: BTW-what is NAC?!!! Joy 3/6l e <rmje3> wrote: Does anyone get a dry mouth from taking NAC? After taking morning vitamins and supplements this happens. The others are E C B I really do not think it could be them. Please let me know.Laurie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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