Guest guest Posted November 18, 2006 Report Share Posted November 18, 2006 .... You're on a roll today! Yeah, I've had the hose in that pose too.....4 times. lol. Sher [breathe-Supp! ort] Pulm. Visit I went to my pulm. yesterday. Sats were 82, even though I use oxygen continuously. Am having a real difficulty now with getting in and out of chairs, doing simple things in the house. I just get so out of breath. The Dr. said the increased SOB is because of my pulmonary hypertension, which is worsening. There is a new med. for it but Cigna does not approve it and therefore I have to pay privately. I am going to do that for a while. But I wonder what is the use? My dr. told me yesterday that he knows of nothing else that can be done and that I need to start accepting things. He said that with a terminal illness, I should expect to get worse instead of hoping. He said the time for hope is over now and that maybe I need to see a therapist to help me through this. He then wanted to write me a script for Zoloft to "help". He did say that I would probably need to think about going into the hospital again soon, to drain some of the fluid out of me. I have already done that but it just comes back. I read that with the hypertension, that your legs cana get very large and heavy. And that is what is happening. Also having a problem with my portable oxygen. Since I am now on liquid oxygen, the tank I havae to carry is so heavy that it takes all my energy to carry it. Evidently the office called the supplier and I just got a call from them stating that Cigna does not authorize the really small one. I am calling Cigna. I know I sound depressed in this post. I know I am discouraged. Really really tired of everything. Tired of the tube in my nose, tired of calculating what I can do because of limited breath, tired of sitting. Just tired. Tired of being told that I have lived longer than most people with my disease.I dont know how to be a sick person.Thanks for listening. Sponsored LinkDegrees online in as fast as 1 Yr - MBA, Bachelor's, Master's, Associate - Click now to apply Sponsored LinkMortgage rates near 39yr lows. $420,000 Mortgage for $1,399/mo - Calculate new house payment Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2006 Report Share Posted November 18, 2006 ; I think the doctor that gave me my colonoscopy had the hots for me....He told me I had a cute collitis. Gordon ipf/uip 12/03 [breathe-Supp! ort] Pulm. Visit I went to my pulm. yesterday. Sats were 82, even though I use oxygen continuously. Am having a real difficulty now with getting in and out of chairs, doing simple things in the house. I just get so out of breath. The Dr. said the increased SOB is because of my pulmonary hypertension, which is worsening. There is a new med. for it but Cigna does not approve it and therefore I have to pay privately. I am going to do that for a while. But I wonder what is the use? My dr. told me yesterday that he knows of nothing else that can be done and that I need to start accepting things. He said that with a terminal illness, I should expect to get worse instead of hoping. He said the time for hope is over now and that maybe I need to see a therapist to help me through this. He then wanted to write me a script for Zoloft to "help". He did say that I would probably need to think about going into the hospital again soon, to drain some of the fluid out of me. I have already done that but it just comes back. I read that with the hypertension, that your legs cana get very large and heavy. And that is what is happening. Also having a problem with my portable oxygen. Since I am now on liquid oxygen, the tank I havae to carry is so heavy that it takes all my energy to carry it. Evidently the office called the supplier and I just got a call from them stating that Cigna does not authorize the really small one. I am calling Cigna. I know I sound depressed in this post. I know I am discouraged. Really really tired of everything. Tired of the tube in my nose, tired of calculating what I can do because of limited breath, tired of sitting. Just tired. Tired of being told that I have lived longer than most people with my disease.I dont know how to be a sick person.Thanks for listening. Sponsored LinkDegrees online in as fast as 1 Yr - MBA, Bachelor's, Master's, Associate - Click now to apply Sponsored LinkMortgage rates near 39yr lows. $420,000 Mortgage for $1,399/mo - Calculate new house payment No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.5.430 / Virus Database: 268.14.7/537 - Release Date: 11/17/2006 5:56 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2006 Report Share Posted November 18, 2006 Peggy, I haven't had it either.....I just always figured that was a one way street. Joyce > > > > > ,> > I think it helps to vent. Then we have a little more hummmph to do what> needs to be done.> > Gee, sounds like your Dr. is a bit insensitive the way he spoke to you.> > I do understand just plain being sick and tired of being sick and tired.> I've felt that way too.> > Right now, I'm doing better but I'm sorry you are having sick and tired> days.> > > > > I went to my pulm. yesterday. Sats were 82, even though I use> oxygen continuously. Am having a real difficulty now with getting> in and out of chairs, doing simple things in the house. I just get> so out of breath. The Dr. said the increased SOB is because of my> pulmonary hypertension, which is worsening. There is a new med. for> it but Cigna does not approve it and therefore I have to pay> privately. I am going to do that for a while. But I wonder what is> the use? My dr. told me yesterday that he knows of nothing else> that can be done and that I need to start accepting things. He said> that with a terminal illness, I should expect to get worse instead> of hoping. He said the time for hope is over now and that maybe I> need to see a therapist to help me through this. He then wanted to> write me a script for Zoloft to "help". He did say that I would> probably need to think about going into the hospital again soon, to> drain some of the fluid out of me. I have already done that but it> just comes back. I read that with the hypertension, that your legs> cana get very large and heavy. And that is what is happening. Also> having a problem with my portable oxygen. Since I am now on liquid> oxygen, the tank I havae to carry is so heavy that it takes all my> energy to carry it. Evidently the office called the supplier and I> just got a call from them stating that Cigna does not authorize the> really small one. I am calling Cigna. I know I sound depressed in> this post. I know I am discouraged. Really really tired of> everything. Tired of the tube in my nose, tired of calculating what> I can do because of limited breath, tired of sitting. Just tired.> Tired of being told that I have lived longer than most people with> my disease.> I dont know how to be a sick person.> Thanks for listening.> > > > > > > > > > Sponsored Link> > Degrees online in as fast as 1 Yr - MBA, Bachelor's, Master's, Associate -> Click now to apply > <http://online.degrees.info/forms/form.jsp?ADEL=D3sPPz6WYLD7%2FD1DxMxP%2BbXo> oR4YcdmONmTWaUizNjh6q2wGRcnxuw%3D%3D & amp;PI=y_mail_textlink>> > > > > > > > > Sponsored Link> > Mortgage rates near 39yr lows. $420,000 Mortgage for $1,399/mo - Calculate> new house payment > <http://www.lowermybills.com/lre/index.jsp?sourceid=lmb-9132-16414 & moid=4116> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2006 Report Share Posted November 18, 2006 boy I came close but safe for now. I read somewhere ya get one when you are evaluated?? How did you not get one, I will remember..LOL Love and Prayers, Peggy 9/04 ipf Peggy, I haven't had it either.....I just always figured that was a one way street. Joyce > > > > I yell that out to , but my husband asks me not to yell so loud or the > neighbors will think he is abusing me. LOL Ever heard of someone being > abused by having a hose shoved up their nose? Hee hee. Go ahead and yell > anytime you want, I can always turn my speaker down if you need to vent. LOL > > Carolyn > > > > -------Original Message------- > > > > > From: <mailto:kpoooh9@... > > Date: 11/17/06 19:07:11 > > To: Breathe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2006 Report Share Posted November 18, 2006 Me too , wasnt nice of the doctor to do that to us was it? Must be his way of getting even for something. LOL Carolyn -- Sick and Tired I am sick and tired!. I said I am SICK AND TIRED!. I SAID I AM SICK AND TIRED OF THIS DAM HOSE UP MY NOSE Sorry about yelling like that but I need to! P o2 24/7 8/04 Sher K Bauman <bofuswbcable (DOT) net> wrote: , I think it helps to vent. Then we have a little more hummmph to do what needs to be done. Gee, sounds like your Dr. is a bit insensitive the way he spoke to you. I do understand just plain being sick and tired of being sick and tired. I've felt that way too. Right now, I'm doing better but I'm sorry you are having sick and tired days. I thought your oxygen supplier would find you something that works for you since your tank is so heavy. Yeah, maybe calling them yourself will help you. I pray for your solutions. Hang in there. Sher ipf 5-06 Pulm. Visit I went to my pulm. yesterday. Sats were 82, even though I use oxygen continuously. Am having a real difficulty now with getting in and out of chairs, doing simple things in the house. I just get so out of breath. The Dr. said the increased SOB is because of my pulmonary hypertension, which is worsening. There is a new med. for it but Cigna does not approve it and therefore I have to pay privately. I am going to do that for a while. But I wonder what is the use? My dr. told me yesterday that he knows of nothing else that can be done and that I need to start accepting things. He said that with a terminal illness, I should expect to get worse instead of hoping. He said the time for hope is over now and that maybe I need to see a therapist to help me through this. He then wanted to write me a script for Zoloft to "help". He did say that I would probably need to think about going into the hospital again soon, to drain some of the fluid out of me. I have already done that but it just comes back. I read that with the hypertension, that your legs cana get very large and heavy. And that is what is happening. Also having a problem with my portable oxygen. Since I am now on liquid oxygen, the tank I havae to carry is so heavy that it takes all my energy to carry it. Evidently the office called the supplier and I just got a call from them stating that Cigna does not authorize the really small one. I am calling Cigna. I know I sound depressed in this post. I know I am discouraged. Really really tired of everything. Tired of the tube in my nose, tired of calculating what I can do because of limited breath, tired of sitting. Just tired. Tired of being told that I have lived longer than most people with my disease.I dont know how to be a sick person.Thanks for listening. Sponsored LinkDegrees online in as fast as 1 Yr - MBA, Bachelor's, Master's, Associate - Click now to apply Sponsored LinkMortgage rates near 39yr lows. $420,000 Mortgage for $1,399/mo - Calculate new house payment Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2006 Report Share Posted November 18, 2006 Well as to higher levels of o2 i will find out this week as i am retiring R2D2 that can only go to 5 LPM and getting a brand new shinny concentrator R2D2 the 2nd that will go to 10 LPM. My last six minute stroll started at 4 than had to raise up to 6 LPM. Not a good sign PJoyce wrote: I am sick and tired!. I said I am SICK AND TIRED!. I SAID I AM SICK AND TIRED OF THIS DAM HOSE UP MY NOSE P. Ohhhh, I am so glad to see that you too have a boiling point. I have had 02 for so long that it is just something that I don't think about until something goes wrong and causes me frustration. But, the higher setting is blowing my nose out! I am on 5 a lot. I don't know how I will stand it any higher. Scream away, good friend, we are listening and screaming too. Hugs, Joyce PF 1997 Bronchiectasis 2004 INDIANA > ,> I think it helps to vent. Then we have a little more hummmph to do what needs to be done.> Gee, sounds like your Dr. is a bit insensitive the way he spoke to you.> I do understand just plain being sick and tired of being sick and tired. I've felt that way too.> Right now, I'm doing better but I'm sorry you are having sick and tired days.> I thought your oxygen supplier would find you something that works for you since your tank is so heavy. Yeah, maybe calling them yourself will help you.> I pray for your solutions.> Hang in there. Sher ipf 5-06> > Pulm. Visit> > > I went to my pulm. yesterday. Sats were 82, even though I use > oxygen continuously. Am having a real difficulty now with getting > in and out of chairs, doing simple things in the house. I just get > so out of breath. The Dr. said the increased SOB is because of my > pulmonary hypertension, which is worsening. There is a new med. for > it but Cigna does not approve it and therefore I have to pay > privately. I am going to do that for a while. But I wonder what is > the use? My dr. told me yesterday that he knows of nothing else > that can be done and that I need to start accepting things. He said > that with a terminal illness, I should expect to get worse instead > of hoping. He said the time for hope is over now and that maybe I > need to see a therapist to help me through this. He then wanted to > write me a script for Zoloft to "help". He did say that I would > probably need to think about going into the hospital again soon, to > drain some of the fluid out of me. I have already done that but it > just comes back. I read that with the hypertension, that your legs > cana get very large and heavy. And that is what is happening. Also > having a problem with my portable oxygen. Since I am now on liquid > oxygen, the tank I havae to carry is so heavy that it takes all my > energy to carry it. Evidently the office called the supplier and I > just got a call from them stating that Cigna does not authorize the > really small one. I am calling Cigna. I know I sound depressed in > this post. I know I am discouraged. Really really tired of > everything. Tired of the tube in my nose, tired of calculating what > I can do because of limited breath, tired of sitting. Just tired. > Tired of being told that I have lived longer than most people with > my disease.> I dont know how to be a sick person.> Thanks for listening.> > > > > > > > > > ---------------------------------> Sponsored Link> > Degrees online in as fast as 1 Yr - MBA, Bachelor's, Master's, Associate - Click now to apply> Sponsored LinkMortgage rates near 39yr lows. $510,000 Mortgage for $1,698/mo - Calculate new house payment Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2006 Report Share Posted November 18, 2006 Peggy, When I did my tx evaluation, the doc said that I would have to do one when I got home, but then I was rejected. I know what I should do, but that just creeps me out. One of my very best friends has had colorectal cancer. She is three years out and preaches to me. I am just so tired of all the humiliating medical procedures. Hugs, Joyce > > > > > > > > I yell that out to , but my husband asks me not to yell so loud or the> > neighbors will think he is abusing me. LOL Ever heard of someone being> > abused by having a hose shoved up their nose? Hee hee. Go ahead and yell> > anytime you want, I can always turn my speaker down if you need to vent. LOL> > > > Carolyn> > > > > > > > -------Original Message-------> > > > > > > > > > From: <mailto:kpoooh9@> > > > Date: 11/17/06 19:07:11> > > > To: Breathe> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2006 Report Share Posted November 19, 2006 Please do not apologise . Those are my sentiments exactly!!!!!!!!! Thank you for expressing what has been in my heart and I'm sure many other's. None of us have this coming, and then add the rude arse MD's, incompetent Pulmos and blood sucking HMO's. The family members who cant cope, the loved ones who damn me at the thought of me leaving them, the friends who disappear, the strangers that feel its their duty to make sure I know I'm not entitled to their even holding the door for me because they assume I'm on a tank because I smoked. People who refuse to look me in the eye because all they see is their own mortality in front of them. And my NOSE HURTS!!!!!!!!! > ,> I think it helps to vent. Then we have a little more hummmph to do what needs to be done.> Gee, sounds like your Dr. is a bit insensitive the way he spoke to you.> I do understand just plain being sick and tired of being sick and tired. I've felt that way too.> Right now, I'm doing better but I'm sorry you are having sick and tired days.> I thought your oxygen supplier would find you something that works for you since your tank is so heavy. Yeah, maybe calling them yourself will help you.> I pray for your solutions.> Hang in there. Sher ipf 5-06> > Pulm. Visit> > > I went to my pulm. yesterday. Sats were 82, even though I use > oxygen continuously. Am having a real difficulty now with getting > in and out of chairs, doing simple things in the house. I just get > so out of breath. The Dr. said the increased SOB is because of my > pulmonary hypertension, which is worsening. There is a new med. for > it but Cigna does not approve it and therefore I have to pay > privately. I am going to do that for a while. But I wonder what is > the use? My dr. told me yesterday that he knows of nothing else > that can be done and that I need to start accepting things. He said > that with a terminal illness, I should expect to get worse instead > of hoping. He said the time for hope is over now and that maybe I > need to see a therapist to help me through this. He then wanted to > write me a script for Zoloft to "help". He did say that I would > probably need to think about going into the hospital again soon, to > drain some of the fluid out of me. I have already done that but it > just comes back. I read that with the hypertension, that your legs > cana get very large and heavy. And that is what is happening. Also > having a problem with my portable oxygen. Since I am now on liquid > oxygen, the tank I havae to carry is so heavy that it takes all my > energy to carry it. Evidently the office called the supplier and I > just got a call from them stating that Cigna does not authorize the > really small one. I am calling Cigna. I know I sound depressed in > this post. I know I am discouraged. Really really tired of > everything. Tired of the tube in my nose, tired of calculating what > I can do because of limited breath, tired of sitting. Just tired. > Tired of being told that I have lived longer than most people with > my disease.> I dont know how to be a sick person.> Thanks for listening.> > > > > > > > > > ---------------------------------> Sponsored Link> > Degrees online in as fast as 1 Yr - MBA, Bachelor's, Master's, Associate - Click now to apply> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2006 Report Share Posted November 19, 2006 Lynn, Wow! Vibes......I think it, you say it! I'm sure many other's. None of us have this coming, and then add the rude arse MD's, incompetent Pulmos and blood sucking HMO's. The family members who cant cope, the loved ones who damn me at the thought of me leaving them, the friends who disappear, the strangers that feel its their duty to make sure I know I'm not entitled to their even holding the door for me because they assume I'm on a tank because I smoked. People who refuse to look me in the eye because all they see is their own mortality in front of them. Hugs, Joyce PF 1997 Bronchiectasis INDIANA p.s. my teenage grandsons get a charge out of me because I use this word rather than say the other 'bad' word. They tell me, "Mamaw, it is still a curse word"....If they would pull thier jeans up over thier 'arse', it would be a mute point! > > ,> > I think it helps to vent. Then we have a little more hummmph to do> what needs to be done.> > Gee, sounds like your Dr. is a bit insensitive the way he spoke to> you.> > I do understand just plain being sick and tired of being sick and> tired. I've felt that way too.> > Right now, I'm doing better but I'm sorry you are having sick and> tired days.> > I thought your oxygen supplier would find you something that works for> you since your tank is so heavy. Yeah, maybe calling them yourself will> help you.> > I pray for your solutions.> > Hang in there. Sher ipf 5-06> >> > Pulm. Visit> >> >> > I went to my pulm. yesterday. Sats were 82, even though I use> > oxygen continuously. Am having a real difficulty now with getting> > in and out of chairs, doing simple things in the house. I just get> > so out of breath. The Dr. said the increased SOB is because of my> > pulmonary hypertension, which is worsening. There is a new med. for> > it but Cigna does not approve it and therefore I have to pay> > privately. I am going to do that for a while. But I wonder what is> > the use? My dr. told me yesterday that he knows of nothing else> > that can be done and that I need to start accepting things. He said> > that with a terminal illness, I should expect to get worse instead> > of hoping. He said the time for hope is over now and that maybe I> > need to see a therapist to help me through this. He then wanted to> > write me a script for Zoloft to "help". He did say that I would> > probably need to think about going into the hospital again soon, to> > drain some of the fluid out of me. I have already done that but it> > just comes back. I read that with the hypertension, that your legs> > cana get very large and heavy. And that is what is happening. Also> > having a problem with my portable oxygen. Since I am now on liquid> > oxygen, the tank I havae to carry is so heavy that it takes all my> > energy to carry it. Evidently the office called the supplier and I> > just got a call from them stating that Cigna does not authorize the> > really small one. I am calling Cigna. I know I sound depressed in> > this post. I know I am discouraged. Really really tired of> > everything. Tired of the tube in my nose, tired of calculating what> > I can do because of limited breath, tired of sitting. Just tired.> > Tired of being told that I have lived longer than most people with> > my disease.> > I dont know how to be a sick person.> > Thanks for listening.> > > >> >> >> >> >> >> >> >> > ---------------------------------> > Sponsored Link> >> > Degrees online in as fast as 1 Yr - MBA, Bachelor's, Master's,> Associate - Click now to apply> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2006 Report Share Posted November 19, 2006 Hi , I'm joining in with your sentiments, speaking for my husband because those are precisely the words he uses!! Sometimes the nose bleeds, a little. He's fed up with, at times, having such difficulty with breathing. And... the pulmonologist thinks he should go ahead with the aorta aneurism operation, 50/50 chance, does not know how long he'll be on the ventilator. But we all have decided to let it ride. I don't go on the computer that often, and I'm a rather passive contributor, but I do receive so much from you"active" ones; some of your messages and contributions are beautiful! And I've learned so much! I'm glad Vicky is home again. Carolyn and , you're so calm, most of the times, Sher and Ginger, your thoughts are beautiful. Joyce, you speak from the heart, you express sometimes what I think. Where's Cyndi, the Californian! Will we meet at the conference? Thank you all ( I'm not leaving) Gretel wrote: I am sick and tired!. I said I am SICK AND TIRED!. I SAID I AM SICK AND TIRED OF THIS DAM HOSE UP MY NOSE Sorry about yelling like that but I need to! P o2 24/7 8/04 Sher K Bauman <bofuswbcable (DOT) net> wrote: , I think it helps to vent. Then we have a little more hummmph to do what needs to be done. Gee, sounds like your Dr. is a bit insensitive the way he spoke to you. I do understand just plain being sick and tired of being sick and tired. I've felt that way too. Right now, I'm doing better but I'm sorry you are having sick and tired days. I thought your oxygen supplier would find you something that works for you since your tank is so heavy. Yeah, maybe calling them yourself will help you. I pray for your solutions. Hang in there. Sher ipf 5-06 Pulm. Visit I went to my pulm. yesterday. Sats were 82, even though I use oxygen continuously. Am having a real difficulty now with getting in and out of chairs, doing simple things in the house. I just get so out of breath. The Dr. said the increased SOB is because of my pulmonary hypertension, which is worsening. There is a new med. for it but Cigna does not approve it and therefore I have to pay privately. I am going to do that for a while. But I wonder what is the use? My dr. told me yesterday that he knows of nothing else that can be done and that I need to start accepting things. He said that with a terminal illness, I should expect to get worse instead of hoping. He said the time for hope is over now and that maybe I need to see a therapist to help me through this. He then wanted to write me a script for Zoloft to "help". He did say that I would probably need to think about going into the hospital again soon, to drain some of the fluid out of me. I have already done that but it just comes back. I read that with the hypertension, that your legs cana get very large and heavy. And that is what is happening. Also having a problem with my portable oxygen. Since I am now on liquid oxygen, the tank I havae to carry is so heavy that it takes all my energy to carry it. Evidently the office called the supplier and I just got a call from them stating that Cigna does not authorize the really small one. I am calling Cigna. I know I sound depressed in this post. I know I am discouraged. Really really tired of everything. Tired of the tube in my nose, tired of calculating what I can do because of limited breath, tired of sitting. Just tired. Tired of being told that I have lived longer than most people with my disease.I dont know how to be a sick person.Thanks for listening. Sponsored LinkDegrees online in as fast as 1 Yr - MBA, Bachelor's, Master's, Associate - Click now to apply Sponsored Link$420,000 Mortgage for $1,399/month - Think You Pay Too Much For Your Mortgage? Find Out! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2006 Report Share Posted November 19, 2006 Joyce said; "....If they would pull thier jeans up over thier 'arse', it would be a mute point! That is too funny! I can't stand sagging pants! My nephews know not to come around me "sagging" - I'll give them a "murphy" in a hot minute!!!! Their drawers will end up pulled up over thier heard if I catch them sagging. LOL!!! > > > ,> > > I think it helps to vent. Then we have a little more hummmph to do> > what needs to be done.> > > Gee, sounds like your Dr. is a bit insensitive the way he spoke to> > you.> > > I do understand just plain being sick and tired of being sick and> > tired. I've felt that way too.> > > Right now, I'm doing better but I'm sorry you are having sick and> > tired days.> > > I thought your oxygen supplier would find you something that works> for> > you since your tank is so heavy. Yeah, maybe calling them yourself> will> > help you.> > > I pray for your solutions.> > > Hang in there. Sher ipf 5-06> > >> > > Pulm. Visit> > >> > >> > > I went to my pulm. yesterday. Sats were 82, even though I use> > > oxygen continuously. Am having a real difficulty now with getting> > > in and out of chairs, doing simple things in the house. I just get> > > so out of breath. The Dr. said the increased SOB is because of my> > > pulmonary hypertension, which is worsening. There is a new med. for> > > it but Cigna does not approve it and therefore I have to pay> > > privately. I am going to do that for a while. But I wonder what is> > > the use? My dr. told me yesterday that he knows of nothing else> > > that can be done and that I need to start accepting things. He said> > > that with a terminal illness, I should expect to get worse instead> > > of hoping. He said the time for hope is over now and that maybe I> > > need to see a therapist to help me through this. He then wanted to> > > write me a script for Zoloft to "help". He did say that I would> > > probably need to think about going into the hospital again soon, to> > > drain some of the fluid out of me. I have already done that but it> > > just comes back. I read that with the hypertension, that your legs> > > cana get very large and heavy. And that is what is happening. Also> > > having a problem with my portable oxygen. Since I am now on liquid> > > oxygen, the tank I havae to carry is so heavy that it takes all my> > > energy to carry it. Evidently the office called the supplier and I> > > just got a call from them stating that Cigna does not authorize the> > > really small one. I am calling Cigna. I know I sound depressed in> > > this post. I know I am discouraged. Really really tired of> > > everything. Tired of the tube in my nose, tired of calculating what> > > I can do because of limited breath, tired of sitting. Just tired.> > > Tired of being told that I have lived longer than most people with> > > my disease.> > > I dont know how to be a sick person.> > > Thanks for listening.> > > > > >> > >> > >> > >> > >> > >> > >> > >> > > ---------------------------------> > > Sponsored Link> > >> > > Degrees online in as fast as 1 Yr - MBA, Bachelor's, Master's,> > Associate - Click now to apply> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 Carolyn, Very good...I will remember this the next time I get accused of cursing! Joyce > > > > ,> > > > I think it helps to vent. Then we have a little more hummmph to > do> > > what needs to be done.> > > > Gee, sounds like your Dr. is a bit insensitive the way he spoke > to> > > you.> > > > I do understand just plain being sick and tired of being sick > and> > > tired. I've felt that way too.> > > > Right now, I'm doing better but I'm sorry you are having sick > and> > > tired days.> > > > I thought your oxygen supplier would find you something that > works> > for> > > you since your tank is so heavy. Yeah, maybe calling them yourself> > will> > > help you.> > > > I pray for your solutions.> > > > Hang in there. Sher ipf 5-06> > > >> > > > Pulm. Visit> > > >> > > >> > > > I went to my pulm. yesterday. Sats were 82, even though I use> > > > oxygen continuously. Am having a real difficulty now with > getting> > > > in and out of chairs, doing simple things in the house. I just > get> > > > so out of breath. The Dr. said the increased SOB is because of > my> > > > pulmonary hypertension, which is worsening. There is a new med. > for> > > > it but Cigna does not approve it and therefore I have to pay> > > > privately. I am going to do that for a while. But I wonder what > is> > > > the use? My dr. told me yesterday that he knows of nothing else> > > > that can be done and that I need to start accepting things. He > said> > > > that with a terminal illness, I should expect to get worse > instead> > > > of hoping. He said the time for hope is over now and that maybe > I> > > > need to see a therapist to help me through this. He then wanted > to> > > > write me a script for Zoloft to "help". He did say that I would> > > > probably need to think about going into the hospital again > soon, to> > > > drain some of the fluid out of me. I have already done that but > it> > > > just comes back. I read that with the hypertension, that your > legs> > > > cana get very large and heavy. And that is what is happening. > Also> > > > having a problem with my portable oxygen. Since I am now on > liquid> > > > oxygen, the tank I havae to carry is so heavy that it takes all > my> > > > energy to carry it. Evidently the office called the supplier > and I> > > > just got a call from them stating that Cigna does not authorize > the> > > > really small one. I am calling Cigna. I know I sound depressed > in> > > > this post. I know I am discouraged. Really really tired of> > > > everything. Tired of the tube in my nose, tired of calculating > what> > > > I can do because of limited breath, tired of sitting. Just > tired.> > > > Tired of being told that I have lived longer than most people > with> > > > my disease.> > > > I dont know how to be a sick person.> > > > Thanks for listening.> > > > > > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > > ---------------------------------> > > > Sponsored Link> > > >> > > > Degrees online in as fast as 1 Yr - MBA, Bachelor's, Master's,> > > Associate - Click now to apply> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
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