Re: Pulm. Visit

[Guest guest]

,

I think it helps to vent. Then we have a little more hummmph to do what needs to be done.

Gee, sounds like your Dr. is a bit insensitive the way he spoke to you.

I do understand just plain being sick and tired of being sick and tired. I've felt that way too.

Right now, I'm doing better but I'm sorry you are having sick and tired days.

I thought your oxygen supplier would find you something that works for you since your tank is so heavy. Yeah, maybe calling them yourself will help you.

I pray for your solutions.

Hang in there. Sher ipf 5-06

Pulm. Visit

I went to my pulm. yesterday. Sats were 82, even though I use oxygen continuously. Am having a real difficulty now with getting in and out of chairs, doing simple things in the house. I just get so out of breath. The Dr. said the increased SOB is because of my pulmonary hypertension, which is worsening. There is a new med. for it but Cigna does not approve it and therefore I have to pay privately. I am going to do that for a while. But I wonder what is the use? My dr. told me yesterday that he knows of nothing else that can be done and that I need to start accepting things. He said that with a terminal illness, I should expect to get worse instead of hoping. He said the time for hope is over now and that maybe I need to see a therapist to help me through this. He then wanted to write me a script for Zoloft to "help". He did say that I would probably need to think about going into the hospital again soon, to drain some of the fluid out of me. I have already done that but it just comes back. I read that with the hypertension, that your legs cana get very large and heavy. And that is what is happening. Also having a problem with my portable oxygen. Since I am now on liquid oxygen, the tank I havae to carry is so heavy that it takes all my energy to carry it. Evidently the office called the supplier and I just got a call from them stating that Cigna does not authorize the really small one. I am calling Cigna. I know I sound depressed in this post. I know I am discouraged. Really really tired of everything. Tired of the tube in my nose, tired of calculating what I can do because of limited breath, tired of sitting. Just tired. Tired of being told that I have lived longer than most people with my disease.I dont know how to be a sick person.Thanks for listening.

[Guest guest]

Oh lord ,

You are right on. Not breathing is tiring,

depressing and downright awful.

I don’t know how to be a sick person

either. I have found that getting the right equipment etc. is all about the

almighty dollar in the health care system. I expected more. More compassion more

consideration but its not there with the insurance companies and most Drs. How can

we be expected to fight for what we need when we are so debilitated? It makes

me furious. Making phone calls is tiring and frustrating. You hang in there.

Florida P.F. 4/2006

From: Breathe-Support [mailto:Breathe-Support ] On Behalf Of tuliparizona

Sent: Friday, November 17, 2006

4:59 PM

To: Breathe-Support

Subject: Pulm.

Visit

I went to my pulm. yesterday. Sats were 82, even

though I use

oxygen continuously. Am having a real difficulty now with getting

in and out of chairs, doing simple things in the house. I just get

so out of breath. The Dr. said the increased SOB is because of my

pulmonary hypertension, which is worsening. There is a new med. for

it but Cigna does not approve it and therefore I have to pay

privately. I am going to do that for a while. But I wonder what is

the use? My dr. told me yesterday that he knows of nothing else

that can be done and that I need to start accepting things. He said

that with a terminal illness, I should expect to get worse instead

of hoping. He said the time for hope is over now and that maybe I

need to see a therapist to help me through this. He then wanted to

write me a script for Zoloft to " help " . He did say that I would

probably need to think about going into the hospital again soon, to

drain some of the fluid out of me. I have already done that but it

just comes back. I read that with the hypertension, that your legs

cana get very large and heavy. And that is what is happening. Also

having a problem with my portable oxygen. Since I am now on liquid

oxygen, the tank I havae to carry is so heavy that it takes all my

energy to carry it. Evidently the office called the supplier and I

just got a call from them stating that Cigna does not authorize the

really small one. I am calling Cigna. I know I sound depressed in

this post. I know I am discouraged. Really really tired of

everything. Tired of the tube in my nose, tired of calculating what

I can do because of limited breath, tired of sitting. Just tired.

Tired of being told that I have lived longer than most people with

my disease.

I dont know how to be a sick person.

Thanks for listening.

[Guest guest]

Dear :

I sure do understand how you feel about being sick of being sick. It seems though that your doctor isnt very supportive right now and now is when he should be the most supportive. Some doctors though are uncomfortable around patients in the end-stage of their disease because they feel like failures for not being able to "cure" the patient. They receive little training in med school about persons who have terminal diseases. They instead are trained to treat and cure not be compassionate and empathetic. There are some doctors out there though who are naturally compassionate and supportive, perhaps you need to seek out another doctor for this time in your life. I wish there was something I could do or say to make you feel better. Please know that I care and I continually offer up prayers over these difficult times we are going through. Hang in there, and dont let the doctor just write you off, he needs to be told that you still have a right to support and if he cant give it then refer you to someone who will. I hate it when doctors basically tell you to just go home and wait to die after all you may be around a lot longer than he thinks you will be and you need care during that time. I hope you have success with Cigna about the oxygen.

Hugs,

Carolyn

-- Pulm. Visit

I went to my pulm. yesterday. Sats were 82, even though I use

oxygen continuously. Am having a real difficulty now with getting

in and out of chairs, doing simple things in the house. I just get

so out of breath. The Dr. said the increased SOB is because of my

pulmonary hypertension, which is worsening. There is a new med. for

it but Cigna does not approve it and therefore I have to pay

privately. I am going to do that for a while. But I wonder what is

the use? My dr. told me yesterday that he knows of nothing else

that can be done and that I need to start accepting things. He said

that with a terminal illness, I should expect to get worse instead

of hoping. He said the time for hope is over now and that maybe I

need to see a therapist to help me through this. He then wanted to

write me a script for Zoloft to "help". He did say that I would

probably need to think about going into the hospital again soon, to

drain some of the fluid out of me. I have already done that but it

just comes back. I read that with the hypertension, that your legs

cana get very large and heavy. And that is what is happening. Also

having a problem with my portable oxygen. Since I am now on liquid

oxygen, the tank I havae to carry is so heavy that it takes all my

energy to carry it. Evidently the office called the supplier and I

just got a call from them stating that Cigna does not authorize the

really small one. I am calling Cigna. I know I sound depressed in

this post. I know I am discouraged. Really really tired of

everything. Tired of the tube in my nose, tired of calculating what

I can do because of limited breath, tired of sitting. Just tired.

Tired of being told that I have lived longer than most people with

my disease.

I dont know how to be a sick person.

Thanks for listening.

[Guest guest]

Screw Signa! I dont know where you live but if it is in Ca. then call the Department of Insurance/Consumer Affairs Bureau (1 (800) 9274357 and file a complaint. Also, there is the Department of Managed Health Care 1(888)hmo-2219. In addition your insurance must have a "dispute resolution" process. Look on the back of one of the explanation of benefits they send you, it may be there. If not call and tell them that you are disputing their findings and you want to be advised of the process you need to go through. Have them send it to you in writing. If you do not live in Ca. there probably is one in your state also? Do you have someone who can act as your advocate? They can call the local offices of your representatives and let them know what is happening to you. It is hard to argue when you cannot

breathe. If I can help just let me know. Louise/ipf/96 tuliparizona wrote: I went to my pulm. yesterday. Sats were 82, even though I use oxygen continuously. Am having a real difficulty now with getting in and out of chairs, doing simple things in the house. I just get so out of breath. The Dr. said the increased SOB is because of my pulmonary hypertension, which is worsening. There is a new med. for it

but Cigna does not approve it and therefore I have to pay privately. I am going to do that for a while. But I wonder what is the use? My dr. told me yesterday that he knows of nothing else that can be done and that I need to start accepting things. He said that with a terminal illness, I should expect to get worse instead of hoping. He said the time for hope is over now and that maybe I need to see a therapist to help me through this. He then wanted to write me a script for Zoloft to "help". He did say that I would probably need to think about going into the hospital again soon, to drain some of the fluid out of me. I have already done that but it just comes back. I read that with the hypertension, that your legs cana get very large and heavy. And that is what is happening. Also having a problem with my portable oxygen. Since I am now on liquid oxygen, the tank I havae to carry is so heavy that it takes all my energy

to carry it. Evidently the office called the supplier and I just got a call from them stating that Cigna does not authorize the really small one. I am calling Cigna. I know I sound depressed in this post. I know I am discouraged. Really really tired of everything. Tired of the tube in my nose, tired of calculating what I can do because of limited breath, tired of sitting. Just tired. Tired of being told that I have lived longer than most people with my disease.I dont know how to be a sick person.Thanks for listening.

Sponsored Link Degrees for working adults in as fast as 1 year. Bachelors, Masters, Associates. Top schools

[Guest guest]

, I am so sorry that you are having such a hard time of it. I know how you feel about being sick and tired of being sick and tired. I get fed up somedays with all of the coughing that I do and being so short of breath that all I really feel like doing is setting on my backside and doing nothing. Somedays that is what I do all day long, nothing and others I wear myself out doing to much. I need to find a middle ground so I can do a little bit each day. For me it has always been full speed ahead and damn the torpedos. I have tried to pace myself, just haven't made it yet.

Your doc sounds like a real peice of work. Some docs have the bed side manners of a chimp, and some are so kind and compassionate and will do all that they can for us.

I have been coughing around the clock for the past week and nothing I do helps. I can't take cough syrup with codine in it and the otc stuff doesn't work, do you have any suggestions?

You take care of yourself and we will all be praying that your O2 supplier will find some way for you to be able to ambulate without tiring yourself out with the heavy tank that you have been saddled with.

Hugs and Prayers!

Barbara R IPF 1/2003>> I went to my pulm. yesterday. Sats were 82, even though I use > oxygen continuously. Am having a real difficulty now with getting > in and out of chairs, doing simple things in the house. I just get > so out of breath. The Dr. said the increased SOB is because of my > pulmonary hypertension, which is worsening. There is a new med. for > it but Cigna does not approve it and therefore I have to pay > privately. I am going to do that for a while. But I wonder what is > the use? My dr. told me yesterday that he knows of nothing else > that can be done and that I need to start accepting things. He said > that with a terminal illness, I should expect to get worse instead > of hoping. He said the time for hope is over now and that maybe I > need to see a therapist to help me through this. He then wanted to > write me a script for Zoloft to "help". He did say that I would > probably need to think about going into the hospital again soon, to > drain some of the fluid out of me. I have already done that but it > just comes back. I read that with the hypertension, that your legs > cana get very large and heavy. And that is what is happening. Also > having a problem with my portable oxygen. Since I am now on liquid > oxygen, the tank I havae to carry is so heavy that it takes all my > energy to carry it. Evidently the office called the supplier and I > just got a call from them stating that Cigna does not authorize the > really small one. I am calling Cigna. I know I sound depressed in > this post. I know I am discouraged. Really really tired of > everything. Tired of the tube in my nose, tired of calculating what > I can do because of limited breath, tired of sitting. Just tired. > Tired of being told that I have lived longer than most people with > my disease.> I dont know how to be a sick person.> Thanks for listening.> >

[Guest guest]

Hi ,

Your doc sounds like a real winner! Not!

I suppose the medication that you are using for PH is Bosentan or Tracleer. Why isn't Cigna covering that ???? Has your doctor written a letter to them. There is no substitute. How can they deny this?

I have Cigna HMO and have fought my fights. Worse is that my prescriptions are through a company called CAREMARK. They have been a nightmare. I argued and fought with them all last winter because they pulled a medication from me that was a major reason I am alive today. They just stopped it. They have changed dosages and try to make medical decisions over my doctor's advice. I am so sick of them.

It is all about money. Certainly not about our lives! I am so sorry that you are caught in the insurance vice grip. It is so tiresome when you are feeling so badly. It is just a shame that they will not cover the PH treatment. I asked one guy on the phone how he slept at night.

I, too, am sick and tired of being sick and tired. My doctor has just put me on an antidepressant. I felt like it was weak to take it, but I have been strong for as long as I could. I am just tired. They hand me a crutch....I'll take it.

Visit back with us and maybe we can help prop you up with hope and faith....and good old fashioned friendship. Certainly we will understand your tears and fears. They are ours.

Hugs,

Joyce PF 1997 Bronchiectasis 2004 INDIANA >> I went to my pulm. yesterday. Sats were 82, even though I use > oxygen continuously. Am having a real difficulty now with getting > in and out of chairs, doing simple things in the house. I just get > so out of breath. The Dr. said the increased SOB is because of my > pulmonary hypertension, which is worsening. There is a new med. for > it but Cigna does not approve it and therefore I have to pay > privately. I am going to do that for a while. But I wonder what is > the use? My dr. told me yesterday that he knows of nothing else > that can be done and that I need to start accepting things. He said > that with a terminal illness, I should expect to get worse instead > of hoping. He said the time for hope is over now and that maybe I > need to see a therapist to help me through this. He then wanted to > write me a script for Zoloft to "help". He did say that I would > probably need to think about going into the hospital again soon, to > drain some of the fluid out of me. I have already done that but it > just comes back. I read that with the hypertension, that your legs > cana get very large and heavy. And that is what is happening. Also > having a problem with my portable oxygen. Since I am now on liquid > oxygen, the tank I havae to carry is so heavy that it takes all my > energy to carry it. Evidently the office called the supplier and I > just got a call from them stating that Cigna does not authorize the > really small one. I am calling Cigna. I know I sound depressed in > this post. I know I am discouraged. Really really tired of > everything. Tired of the tube in my nose, tired of calculating what > I can do because of limited breath, tired of sitting. Just tired. > Tired of being told that I have lived longer than most people with > my disease.> I dont know how to be a sick person.> Thanks for listening.> >

[Guest guest]

from Sher

I just switched Drs. yesterday and I'm sooo glad I did. I'm the one who receives better care, be it physically or emotionally. I now drive longer and will have to go a hospital a long distance from home but I like him and if he is on the other end it's worth it to me.

You can still change Drs. Find one who can offer good care at this point. At least compassion!

Sher ipf 5-06

Pulm. Visit

I went to my pulm. yesterday. Sats were 82, even though I use

oxygen continuously. Am having a real difficulty now with getting

in and out of chairs, doing simple things in the house. I just get

so out of breath. The Dr. said the increased SOB is because of my

pulmonary hypertension, which is worsening. There is a new med. for

it but Cigna does not approve it and therefore I have to pay

privately. I am going to do that for a while. But I wonder what is

the use? My dr. told me yesterday that he knows of nothing else

that can be done and that I need to start accepting things. He said

that with a terminal illness, I should expect to get worse instead

of hoping. He said the time for hope is over now and that maybe I

need to see a therapist to help me through this. He then wanted to

write me a script for Zoloft to "help". He did say that I would

probably need to think about going into the hospital again soon, to

drain some of the fluid out of me. I have already done that but it

just comes back. I read that with the hypertension, that your legs

cana get very large and heavy. And that is what is happening. Also

having a problem with my portable oxygen. Since I am now on liquid

oxygen, the tank I havae to carry is so heavy that it takes all my

energy to carry it. Evidently the office called the supplier and I

just got a call from them stating that Cigna does not authorize the

really small one. I am calling Cigna. I know I sound depressed in

this post. I know I am discouraged. Really really tired of

everything. Tired of the tube in my nose, tired of calculating what

I can do because of limited breath, tired of sitting. Just tired.

Tired of being told that I have lived longer than most people with

my disease.

I dont know how to be a sick person.

Thanks for listening.

[Guest guest]

Amen Joyce.

As always, you have such good advice/suggestions.

Love ya. Sher

Re: Pulm. Visit

Hi ,

Your doc sounds like a real winner! Not!

I suppose the medication that you are using for PH is Bosentan or Tracleer. Why isn't Cigna covering that ???? Has your doctor written a letter to them. There is no substitute. How can they deny this?

I have Cigna HMO and have fought my fights. Worse is that my prescriptions are through a company called CAREMARK. They have been a nightmare. I argued and fought with them all last winter because they pulled a medication from me that was a major reason I am alive today. They just stopped it. They have changed dosages and try to make medical decisions over my doctor's advice. I am so sick of them.

It is all about money. Certainly not about our lives! I am so sorry that you are caught in the insurance vice grip. It is so tiresome when you are feeling so badly. It is just a shame that they will not cover the PH treatment. I asked one guy on the phone how he slept at night.

I, too, am sick and tired of being sick and tired. My doctor has just put me on an antidepressant. I felt like it was weak to take it, but I have been strong for as long as I could. I am just tired. They hand me a crutch....I'll take it.

Visit back with us and maybe we can help prop you up with hope and faith....and good old fashioned friendship. Certainly we will understand your tears and fears. They are ours.

Hugs,

Joyce PF 1997 Bronchiectasis 2004 INDIANA >> I went to my pulm. yesterday. Sats were 82, even though I use > oxygen continuously. Am having a real difficulty now with getting > in and out of chairs, doing simple things in the house. I just get > so out of breath. The Dr. said the increased SOB is because of my > pulmonary hypertension, which is worsening. There is a new med. for > it but Cigna does not approve it and therefore I have to pay > privately. I am going to do that for a while. But I wonder what is > the use? My dr. told me yesterday that he knows of nothing else > that can be done and that I need to start accepting things. He said > that with a terminal illness, I should expect to get worse instead > of hoping. He said the ! time for hope is over now and that maybe I > need to see a therapist to help me through this. He then wanted to > write me a script for Zoloft to "help". He did say that I would > probably need to think about going into the hospital again soon, to > drain some of the fluid out of me. I have already done that but it > just comes back. I read that with the hypertension, that your legs > cana get very large and heavy. And that is what is happening. Also > having a problem with my portable oxygen. Since I am now on liquid > oxygen, the tank I havae to carry is so heavy that it takes all my > energy to carry it. Evidently the office called the supplier and I > just got a call from them stating that Cigna does not authorize the > really small one. I am calling Cigna. I know I sound depressed in > this post. I know I am discouraged. Really really tired of > everything. Tired of the tube in my n! ose, tired of calculating what > I can do because of limited breath, tired of sitting. Just tired. > Tired of being told that I have lived longer than most people with > my disease.> I dont know how to be a sick person.> Thanks for listening.> >

[Guest guest]

Hi I have Cigna through my old employer, not the HMO. They are paying for my PH meds. Bosentan (Tracleer) real expensive $3,000 a month, I copay $20 a month. It seems to be helping, been on it about a month and a half. Will have a heart test after the first of the year to check the pressure. The Doc said I could go on Viagra to help the lungs. Medco that does the meds for Cigna has a web site that tells me about the drugs and the generics I can ask for. Just dropped Prevacid for a generic went from $80 every three months to $20 every three months P 58 UIP 8/00 PH 3/06 Gerds 7/06tuliparizona wrote: I went to my pulm. yesterday. Sats were 82, even though I use oxygen continuously. Am having a real difficulty now with getting in and out of chairs, doing simple things in the house. I just get so out of breath. The Dr. said the increased SOB is because of my pulmonary hypertension, which is worsening. There is a new med. for it but Cigna does not approve it and therefore I have to pay privately. I am going to do that for a while. But I wonder what is the use? My dr. told me yesterday that he knows of nothing else that can be done and that I need to start accepting things. He said that with a terminal illness, I should expect to get worse instead of hoping. He said the time for hope is over now and that maybe I need to

see a therapist to help me through this. He then wanted to write me a script for Zoloft to "help". He did say that I would probably need to think about going into the hospital again soon, to drain some of the fluid out of me. I have already done that but it just comes back. I read that with the hypertension, that your legs cana get very large and heavy. And that is what is happening. Also having a problem with my portable oxygen. Since I am now on liquid oxygen, the tank I havae to carry is so heavy that it takes all my energy to carry it. Evidently the office called the supplier and I just got a call from them stating that Cigna does not authorize the really small one. I am calling Cigna. I know I sound depressed in this post. I know I am discouraged. Really really tired of everything. Tired of the tube in my nose, tired of calculating what I can do because of limited breath, tired of sitting. Just tired. Tired of

being told that I have lived longer than most people with my disease.I dont know how to be a sick person.Thanks for listening.

Sponsored Link Mortgage rates as low as 4.625% - $150,000 loan for $579 a month. Intro-*Terms

[Guest guest]

http://www.hmohardball.com/ Pjohn closs wrote: Screw Signa! I dont know where you live but if it is in Ca. then call the Department of Insurance/Consumer Affairs Bureau (1 (800) 9274357 and file a complaint. Also, there is the Department of Managed Health Care 1(888)hmo-2219. In addition your insurance must have a "dispute resolution"

process. Look on the back of one of the explanation of benefits they send you, it may be there. If not call and tell them that you are disputing their findings and you want to be advised of the process you need to go through. Have them send it to you in writing. If you do not live in Ca. there probably is one in your state also? Do you have someone who can act as your advocate? They can call the local offices of your representatives and let them know what is happening to you. It is hard to argue when you cannot breathe. If I can help just let me know. Louise/ipf/96 tuliparizona <nctulip> wrote: I went to my pulm. yesterday. Sats

were 82, even though I use oxygen continuously. Am having a real difficulty now with getting in and out of chairs, doing simple things in the house. I just get so out of breath. The Dr. said the increased SOB is because of my pulmonary hypertension, which is worsening. There is a new med. for it but Cigna does not approve it and therefore I have to pay privately. I am going to do that for a while. But I wonder what is the use? My dr. told me yesterday that he knows of nothing else that can be done and that I need to start accepting things. He said that with a terminal illness, I should expect to get worse instead of hoping. He said the time for hope is over now and that maybe I need to see a therapist to help me through this. He then wanted to write me a script for Zoloft to "help". He did say that I would probably need to think about going into the hospital again soon, to drain some of the fluid out of me. I have

already done that but it just comes back. I read that with the hypertension, that your legs cana get very large and heavy. And that is what is happening. Also having a problem with my portable oxygen. Since I am now on liquid oxygen, the tank I havae to carry is so heavy that it takes all my energy to carry it. Evidently the office called the supplier and I just got a call from them stating that Cigna does not authorize the really small one. I am calling Cigna. I know I sound depressed in this post. I know I am discouraged. Really really tired of everything. Tired of the tube in my nose, tired of calculating what I can do because of limited breath, tired of sitting. Just tired. Tired of being told that I have lived longer than most people with my disease.I dont know how to be a sick person.Thanks for listening.

Sponsored LinkDegrees for working adults in as fast as 1 year. Bachelors, Masters, Associates. Top schools

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[Guest guest]

If you cough has muscus take NAC P http://www.drkoop.com/newsdetail/408/529255_3.html http://www.puritan.com/pages/file.asp?xs=03B293C4CFBA482798B5C7A7CE3CD82D & PID=324 & CPID=39 & np=1acapulco_cottonwoodcove wrote: , I am so sorry that you are having such a hard time of it. I know how you feel about being sick and tired of being sick and tired. I get fed up somedays with all of the coughing that I do and being so short of breath that all I really feel like doing is setting on my backside and doing nothing. Somedays that is what I do all day long, nothing and others I wear myself out doing to much. I need to find a middle ground so I can do a little bit each day. For me it has always been full speed ahead and damn the torpedos. I have tried to pace myself, just haven't made it yet. Your doc sounds like a real peice of work. Some docs have the bed side manners of a chimp, and some are so kind and compassionate and will do all that they can for us. I have been coughing around the clock for the past week and nothing I do helps. I can't take cough syrup with codine

in it and the otc stuff doesn't work, do you have any suggestions? You take care of yourself and we will all be praying that your O2 supplier will find some way for you to be able to ambulate without tiring yourself out with the heavy tank that you have been saddled with. Hugs and Prayers! Barbara R IPF 1/2003>> I went to my pulm. yesterday. Sats were 82, even though I use > oxygen continuously. Am having a real difficulty now with getting > in and out of chairs, doing simple things in the house. I just get > so out of breath. The Dr. said the increased SOB is because of my > pulmonary hypertension, which is worsening. There is a new med. for > it but Cigna does not approve it

and therefore I have to pay > privately. I am going to do that for a while. But I wonder what is > the use? My dr. told me yesterday that he knows of nothing else > that can be done and that I need to start accepting things. He said > that with a terminal illness, I should expect to get worse instead > of hoping. He said the time for hope is over now and that maybe I > need to see a therapist to help me through this. He then wanted to > write me a script for Zoloft to "help". He did say that I would > probably need to think about going into the hospital again soon, to > drain some of the fluid out of me. I have already done that but it > just comes back. I read that with the hypertension, that your legs > cana get very large and heavy. And that is what is happening. Also > having a problem with my portable oxygen. Since I am now on liquid > oxygen, the tank I havae to carry is so

heavy that it takes all my > energy to carry it. Evidently the office called the supplier and I > just got a call from them stating that Cigna does not authorize the > really small one. I am calling Cigna. I know I sound depressed in > this post. I know I am discouraged. Really really tired of > everything. Tired of the tube in my nose, tired of calculating what > I can do because of limited breath, tired of sitting. Just tired. > Tired of being told that I have lived longer than most people with > my disease.> I dont know how to be a sick person.> Thanks for listening.> >

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[Guest guest]

Hi , I am sorry you have to trade R2D2 for a newer model. How does that work to get out and about ? Are there tanks small enough to carry around? Push maybe?? Are you listed yet? Boy I'm just full of questions this morning.. sorry about the dropping numbers. Keep us posted Mr. Answer Man.. God Bless...

Love and Prayers, Peggy 9/04 ipf

NAC also helps to clean the unused air sacks in your lungs from being a couch potato. When I first started it my PFT number went up, but now after a year they are going down again. Retiring my concentrator R2D2 cause he only blows out 5 LPM so will get new R2D2 the 2nd next week that can blow 10 LPM P 58 UIP 8/00 O2 8/04, PH 3/06 GERDS 7/06 and list goes on and on and on

Carolyn Merritt wrote:

Thanks for sharing that article , I am going to take it to my pulmonologist who knows less than me about this disease. I dont have any mucous time of it. I know how you feel about being sick and tired of being sick and tired. I get fed up somedays with all of the coughing that I do and being so short of breath that all I really feel like doing is setting on my backside and doing nothing. Somedays that is what I do all day long, nothing and others I wear myself out doing to much. I need to find a middle ground so I can do a little bit each day. For me it has always been full speed ahead and damn the torpedos. I have tried to pace myself, just haven't made it yet.

Your doc sounds like a real peice of work. Some docs have the bed side manners of a chimp, and some are so kind and compassionate and will do all that they can for us.

I have been coughing around the clock for the past week and nothing I do helps. I can't take cough syrup with codine in it and the otc stuff doesn't work, do you have any suggestions?

You take care of yourself and we will all be praying that your O2 supplier will find some way for you to be able to ambulate without tiring yourself out with the heavy tank that you have been saddled with.

Hugs and Prayers!

Barbara R IPF 1/2003

>

> I went to my pulm. yesterday. Sats were 82, even though I use

> oxygen continuously. Am having a real difficulty now with getting

> in and out of chairs, doing simple things in the house. I just get

> so out of breath. The Dr. said the increased SOB is because of my

> pulmonary hypertension, which is worsening. There is a new med. for

> it but Cigna does not approve it and therefore I have to pay

> privately. I am going to do that for a while. But I wonder what is

> the use? My dr. told me yesterday that he knows of nothing else

> that can be done and that I need to start accepting things. He said

> that with a terminal illness, I should expect to get worse instead

> of hoping. He said the time for hope is over now and that maybe I

> need to see a therapist to help me through this. He then wanted to

> write me a script for Zoloft to " help " . He did say that I would

> probably need to think about going into the hospital again soon, to

> drain some of the fluid out of me. I have already done that but it

> just comes back. I read that with the hypertension, that your legs

> cana get very large and heavy. And that is what is happening. Also

> having a problem with my portable oxygen. Since I am now on liquid

> oxygen, the tank I havae to carry is so heavy that it takes all my

> energy to carry it. Evidently the office called the supplier and I

> just got a call from them stating that Cigna does not authorize the

> really small one. I am calling Cigna. I know I sound depressed in

> this post. I know I am discouraged. Really really tired of

> everything. Tired of the tube in my nose, tired of calculating what

> I can do because of limited breath, tired of sitting. Just tired.

> Tired of being told that I have lived longer than most people with

> my disease.

> I dont know how to be a sick person.

> Thanks for listening.

>

>

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[Guest guest]

Hi Bev. Have y'all tried NAC. It really helps a lot of us. I'm praying for y'all

Love and Prayers, Peggy 9/04 ipf

-

My husband,Bob,has the blues every morning-he says I just wish I

could have a good day & be able to breathe.

He also has that terrible cough--a resp therapist told him to drink

hot tea made with 2 t-bags per cup as hot as he could stand it.It

does work most of the time--even after it has cooled off--I don't

know why but who cares as long as it helps.I have been up many times

in the night to make him " 2 bag tea " .I don't mind if it helps him.

Someone mentioned Tranquility Complex for sleep.Where can you get

this? I haven't had much to say recently-- but I have read all the

mail

daily. D--

Dr, added to his enourmous list of meds -Proventil inhaler 3 times a

day. He is up to 5 liters 02 most of the time & 4l at rest,with

supplemental by mask especially when he has a bad coughing

spell,which he passes out from coughing which we know is lack of 02.

Where does all this end & how can we all get relief? I know if any

of us had the answer to this,we would make a million.

Hugs & prayers to all of you.

Bev from Ill

Bob pf 9/05

In Breathe-Support <mailto:Breathe-Support%40yahoogroups.com> , " acapulco_cottonwoodcove "

wrote:

>

>

> , I am so sorry that you are having such a hard time of it.

I know

> how you feel about being sick and tired of being sick and tired. I

get

> fed up somedays with all of the coughing that I do and being so

short of

> breath that all I really feel like doing is setting on my backside

and

> doing nothing. Somedays that is what I do all day long, nothing and

> others I wear myself out doing to much. I need to find a middle

ground

> so I can do a little bit each day. For me it has always been full

speed

> ahead and damn the torpedos. I have tried to pace myself, just

haven't

> made it yet.

>

> Your doc sounds like a real peice of work. Some docs have the bed

side

> manners of a chimp, and some are so kind and compassionate and

will do

> all that they can for us.

>

> I have been coughing around the clock for the past week and

nothing I do

> helps. I can't take cough syrup with codine in it and the otc stuff

> doesn't work, do you have any suggestions?

>

> You take care of yourself and we will all be praying that your O2

> supplier will find some way for you to be able to ambulate without

> tiring yourself out with the heavy tank that you have been saddled

with.

>

> Hugs and Prayers!

>

> Barbara R IPF 1/2003

>

> >

> > I went to my pulm. yesterday. Sats were 82, even though I use

> > oxygen continuously. Am having a real difficulty now with getting

> > in and out of chairs, doing simple things in the house. I just

get

> > so out of breath. The Dr. said the increased SOB is because of my

> > pulmonary hypertension, which is worsening. There is a new med.

for

> > it but Cigna does not approve it and therefore I have to pay

> > privately. I am going to do that for a while. But I wonder what

is

> > the use? My dr. told me yesterday that he knows of nothing else

> > that can be done and that I need to start accepting things. He

said

> > that with a terminal illness, I should expect to get worse

instead

> > of hoping. He said the time for hope is over now and that maybe I

> > need to see a therapist to help me through this. He then wanted

to

> > write me a script for Zoloft to " help " . He did say that I would

> > probably need to think about going into the hospital again soon,

to

> > drain some of the fluid out of me. I have already done that but

it

> > just comes back. I read that with the hypertension, that your

legs

> > cana get very large and heavy. And that is what is happening.

Also

> > having a problem with my portable oxygen. Since I am now on

liquid

> > oxygen, the tank I havae to carry is so heavy that it takes all

my

> > energy to carry it. Evidently the office called the supplier and

I

> > just got a call from them stating that Cigna does not authorize

the

> > really small one. I am calling Cigna. I know I sound depressed in

> > this post. I know I am discouraged. Really really tired of

> > everything. Tired of the tube in my nose, tired of calculating

what

> > I can do because of limited breath, tired of sitting. Just tired.

> > Tired of being told that I have lived longer than most people

with

> > my disease.

> > I dont know how to be a sick person.

> > Thanks for listening.

> >

> >

>

[Guest guest]

I just ordered the NAC from Puritan. They are

having a “deal”. Buy 2 and get 4 free and so on and so on.

Too bad we don’t live close to each

other and could share. Hope it helps.

Florida

From: Breathe-Support [mailto:Breathe-Support ] On Behalf Of Sher K Bauman

Sent: Saturday, November 18, 2006

11:54 AM

To: Breathe-Support

Subject: Re: Re:

Pulm. Visit

My two cents here.....when I saw Dr for

2nd opinion ( I wrote about it earlier) he said, " Stay on the NAC. "

So I feel extremely comfortable taking it. Try www.puritan.com

for good prices if you decide to use it. My 1st Dr and my Naturopathic Physician also

recommend it for mucus/coughing. When I was first dx I had bad coughing and

spitting up gunk. No more.

Hope this helps. Sher ipf 5-06

Re: Re: Pulm. Visit

If you cough has muscus take NAC P

http://www.drkoop.com/newsdetail/408/529255_3.html

http://www.puritan.com/pages/file.asp?xs=03B293C4CFBA482798B5C7A7CE3CD82D & PID=324 & CPID=39 & np=1

acapulco_cottonwoodcove

<russellshihaol> wrote:

, I am so sorry that you

are having such a hard time of it. I know how you feel about being sick and

tired of being sick and tired. I get fed up somedays with all of the coughing

that I do and being so short of breath that all I really feel like doing is

setting on my backside and doing nothing. Somedays that is what I do all day

long, nothing and others I wear myself out doing to much. I need to find a

middle ground so I can do a little bit each day. For me it has always been

full speed ahead and damn the torpedos. I have tried to pace myself, just

haven't made it yet.

Your doc sounds like a real peice of

work. Some docs have the bed side manners of a chimp, and some are so kind

and compassionate and will do all that they can for us.

I have been coughing around the clock

for the past week and nothing I do helps. I can't take cough syrup with

codine in it and the otc stuff doesn't work, do you have any suggestions?

You take care of yourself and we will

all be praying that your O2 supplier will find some way for you to be able to

ambulate without tiring yourself out with the heavy tank that you have been

saddled with.

Hugs and Prayers!

Barbara R IPF 1/2003

>

> I went to my pulm. yesterday. Sats were 82, even though I use

> oxygen continuously. Am having a real difficulty now with getting

> in and out of chairs, doing simple things in the house. I just get

> so out of breath. The Dr. said the increased SOB is because of my

> pulmonary hypertension, which is worsening. There is a new med. for

> it but Cigna does not approve it and therefore I have to pay

> privately. I am going to do that for a while. But I wonder what is

> the use? My dr. told me yesterday that he knows of nothing else

> that can be done and that I need to start accepting things. He said

> that with a terminal illness, I should expect to get worse instead

> of hoping. He said the time for hope is over now and that ! maybe I

> need to see a therapist to help me through this. He then wanted to

> write me a script for Zoloft to " help " . He did say that I

would

> probably need to think about going into the hospital again soon, to

> drain some of the fluid out of me. I have already done that but it

> just comes back. I read that with the hypertension, that your legs

> cana get very large and heavy. And that is what is happening. Also

> having a problem with my portable oxygen. Since I am now on liquid

> oxygen, the tank I havae to carry is so heavy that it takes all my

> energy to carry it. Evidently the office called the supplier and I

> just got a call from them stating that Cigna does not authorize the

> really small one. I am calling Cigna. I know I sound depressed in

> this post. I know I am discouraged. Really really tired of

> everything. Tired of the tube in my nose, tired of calculating what

! > I can do because of limited breath, tired of sitting. Just tired.

> Tired of being told that I have lived longer than most people with

> my disease.

> I dont know how to be a sick person.

> Thanks for listening.

>

>

Sponsored Link

Mortgage rates near 39yr lows. $420,000 Mortgage for $1,399/mo - Calculate

new house payment

[Guest guest]

,

Tell me how it helps...are you not as short of breath? Are you legs really big? Does it help that?

Re: Pulm. Visit

Hi I have Cigna through my old employer, not the HMO. They are paying for my PH meds. Bosentan (Tracleer) real expensive $3,000 a month, I copay $20 a month. It seems to be helping, been on it about a month and a half. Will have a heart test after the first of the year to check the pressure. The Doc said I could go on Viagra to help the lungs. Medco that does the meds for Cigna has a web site that tells me about the drugs and the generics I can ask for. Just dropped Prevacid for a generic went from $80 every three months to $20 every three months P 58 UIP 8/00 PH 3/06 Gerds 7/06tuliparizona <nctulip> wrote:

I went to my pulm. yesterday. Sats were 82, even though I use oxygen continuously. Am having a real difficulty now with getting in and out of chairs, doing simple things in the house. I just get so out of breath. The Dr. said the increased SOB is because of my pulmonary hypertension, which is worsening. There is a new med. for it but Cigna does not approve it and therefore I have to pay privately. I am going to do that for a while. But I wonder what is the use? My dr. told me yesterday that he knows of nothing else that can be done and that I need to start accepting things. He said that with a terminal illness, I should expect to get worse instead of hoping. He said the time for hope is over now and that maybe I need to see a therapist to help me through this. He then wanted to write me a script for Zoloft to "help". He did say that I would probably need to think about going into the hospital again soon, to drain some of the fluid out of me. I have already done that but it just comes back. I read that with the hypertension, that your legs cana get very large and heavy. And that is what is happening. Also having a problem with my portable oxygen. Since I am now on liquid oxygen, the tank I havae to carry is so heavy that it takes all my energy to carry it. Evidently the office called the supplier and I just got a call from them stating that Cigna does not authorize the really small one. I am calling Cigna. I know I sound depressed in this post. I know I am discouraged. Really really tired of everything. Tired of the tube in my nose, tired of calculating what I can do because of limited breath, tired of sitting. Just tired. Tired of being told that I have lived longer than most people with my disease.I dont know how to be a sick person.Thanks for listening.

Sponsored LinkMortgage rates as low as 4.625% - $150,000 loan for $579 a month. Intro-*Terms

[Guest guest]

The main ingredient in the Tranquility Complex from what I understand is L-Tryptophan, which helps you sleep, so you could just get a bottle of that at any drug store or health food store.

Carolyn

-- Re: Pulm. Visit

-

My husband,Bob,has the blues every morning-he says I just wish I

could have a good day & be able to breathe.

He also has that terrible cough--a resp therapist told him to drink

hot tea made with 2 t-bags per cup as hot as he could stand it.It

does work most of the time--even after it has cooled off--I don't

know why but who cares as long as it helps.I have been up many times

in the night to make him "2 bag tea".I don't mind if it helps him.

Someone mentioned Tranquility Complex for sleep.Where can you get

this? I haven't had much to say recently-- but I have read all the

mail

daily. D--

Dr, added to his enourmous list of meds -Proventil inhaler 3 times a

day. He is up to 5 liters 02 most of the time & 4l at rest,with

supplemental by mask especially when he has a bad coughing

spell,which he passes out from coughing which we know is lack of 02.

Where does all this end & how can we all get relief? I know if any

of us had the answer to this,we would make a million.

Hugs & prayers to all of you.

Bev from Ill

Bob pf 9/05

In Breathe-Support , "acapulco_cottonwoodcove"

wrote:

>

>

> , I am so sorry that you are having such a hard time of it.

I know

> how you feel about being sick and tired of being sick and tired. I

get

> fed up somedays with all of the coughing that I do and being so

short of

> breath that all I really feel like doing is setting on my backside

and

> doing nothing. Somedays that is what I do all day long, nothing and

> others I wear myself out doing to much. I need to find a middle

ground

> so I can do a little bit each day. For me it has always been full

speed

> ahead and damn the torpedos. I have tried to pace myself, just

haven't

> made it yet.

>

> Your doc sounds like a real peice of work. Some docs have the bed

side

> manners of a chimp, and some are so kind and compassionate and

will do

> all that they can for us.

>

> I have been coughing around the clock for the past week and

nothing I do

> helps. I can't take cough syrup with codine in it and the otc stuff

> doesn't work, do you have any suggestions?

>

> You take care of yourself and we will all be praying that your O2

> supplier will find some way for you to be able to ambulate without

> tiring yourself out with the heavy tank that you have been saddled

with.

>

> Hugs and Prayers!

>

> Barbara R IPF 1/2003

>

> >

> > I went to my pulm. yesterday. Sats were 82, even though I use

> > oxygen continuously. Am having a real difficulty now with getting

> > in and out of chairs, doing simple things in the house. I just

get

> > so out of breath. The Dr. said the increased SOB is because of my

> > pulmonary hypertension, which is worsening. There is a new med.

for

> > it but Cigna does not approve it and therefore I have to pay

> > privately. I am going to do that for a while. But I wonder what

is

> > the use? My dr. told me yesterday that he knows of nothing else

> > that can be done and that I need to start accepting things. He

said

> > that with a terminal illness, I should expect to get worse

instead

> > of hoping. He said the time for hope is over now and that maybe I

> > need to see a therapist to help me through this. He then wanted

to

> > write me a script for Zoloft to "help". He did say that I would

> > probably need to think about going into the hospital again soon,

to

> > drain some of the fluid out of me. I have already done that but

it

> > just comes back. I read that with the hypertension, that your

legs

> > cana get very large and heavy. And that is what is happening.

Also

> > having a problem with my portable oxygen. Since I am now on

liquid

> > oxygen, the tank I havae to carry is so heavy that it takes all

my

> > energy to carry it. Evidently the office called the supplier and

I

> > just got a call from them stating that Cigna does not authorize

the

> > really small one. I am calling Cigna. I know I sound depressed in

> > this post. I know I am discouraged. Really really tired of

> > everything. Tired of the tube in my nose, tired of calculating

what

> > I can do because of limited breath, tired of sitting. Just tired.

> > Tired of being told that I have lived longer than most people

with

> > my disease.

> > I dont know how to be a sick person.

> > Thanks for listening.

> >

> >

>

[Guest guest]

Carolyn, no, there is no l-tryptophan in Tranquility Complex. It is manf. by Quantum Nutritional Labs and sells: Quantum Rx. It's a dietary supplement.

It works for those who have trouble sleeping.........Sher

Re: Pulm. Visit

-

My husband,Bob,has the blues every morning-he says I just wish I

could have a good day & be able to breathe.

He also has that terrible cough--a resp therapist told him to drink

hot tea made with 2 t-bags per cup as hot as he could stand it.It

does work most of the time--even after it has cooled off--I don't

know why but who cares as long as it helps.I have been up many times

in the night to make him "2 bag tea".I don't mind if it helps him.

Someone mentioned Tranquility Complex for sleep.Where can you get

this? I haven't had much to say recently-- but I have read all the

mail

daily. D--

Dr, added to his enourmous list of meds -Proventil inhaler 3 times a

day. He is up to 5 liters 02 most of the time & 4l at rest,with

supplemental by mask especially when he has a bad coughing

spell,which he passes out from coughing which we know is lack of 02.

Where does all this end & how can we all get relief? I know if any

of us had the answer to this,we would make a million.

Hugs & prayers to all of you.

Bev from Ill

Bob pf 9/05

In Breathe-Support , "acapulco_cottonwoodcove"

wrote:

>

>

> , I am so sorry that you are having such a hard time of it.

I know

> how you feel about being sick and tired of being sick and tired. I

get

> fed up somedays with all of the coughing that I do and being so

short of

> breath that all I really feel like doing is setting on my backside

and

> doing nothing. Somedays that is what I do all day long, nothing and

> others I wear myself out doing to much. I need to find a middle

ground

> so I can do a little bit each day. For me it has always been full

speed

> ahead and damn the torpedos. I have tried to pace myself, just

haven't

> made it yet.

>

> Your doc sounds like a real peice of work. Some docs have the bed

side

> manners of a chimp, and some are so kind and compassionate and

will do

> all that they can for us.

>

> I have been coughing around the clock for the past week and

nothing I do

> helps. I can't take cough syrup with codine in it and the otc stuff

> doesn't work, do you have any suggestions?

>

> You take care of yourself and we will all be praying that your O2

> supplier will find some way for you to be able to ambulate without

> tiring yourself out with the heavy tank that you have been saddled

with.

>

> Hugs and Prayers!

>

> Barbara R IPF 1/2003

>

> >

> > I went to my pulm. yesterday. Sats were 82, even though I use

> > oxygen continuously. Am having a real difficulty now with getting

> > in and out of chairs, doing simple things in the house. I just

get

> > so out of breath. The Dr. said the increased SOB is because of my

> > pulmonary hypertension, which is worsening. There is a new med.

for

> > it but Cigna does not approve it and therefore I have to pay

> > privately. I am going to do that for a while. But I wonder what

is

> > the use? My dr. told me yesterday that he knows of nothing else

> > that can be done and that I need to start accepting things. He

said

> > that with a terminal illness, I should expect to get worse

instead

> > of hoping. He said the time for hope is over now and that maybe I

> > need to see a therapist to help me through this. He then wanted

to

> > write me a script for Zoloft to "help". He did say that I would

> > probably need to think about going into the hospital again soon,

to

> > drain some of the fluid out of me. I have already done that but

it

> > just comes back. I read that with the hypertension, that your

legs

> > cana get very large and heavy. And that is what is happening.

Also

> > having a problem with my portable oxygen. Since I am now on

liquid

> > oxygen, the tank I havae to carry is so heavy that it takes all

my

> > energy to carry it. Evidently the office called the supplier and

I

> > just got a call from them stating that Cigna does not authorize

the

> > really small one. I am calling Cigna. I know I sound depressed in

> > this post. I know I am discouraged. Really really tired of

> > everything. Tired of the tube in my nose, tired of calculating

what

> > I can do because of limited breath, tired of sitting. Just tired.

> > Tired of being told that I have lived longer than most people

with

> > my disease.

> > I dont know how to be a sick person.

> > Thanks for listening.

> >

> >

>

[Guest guest]

Hi Peggy I have a home fill system that uses m6 and m9 tanks that are almost easy to carry. Also have a Inogen that I use mostly in the car so my tanks can be used when I am out walking. No can't be listed, my PF is secondary to Polymositis (12/98) so a new lung wold just get reinfected P UIP 8/00 Peggy wrote: Hi , I am sorry you have to trade R2D2 for a newer model. How does that work to get out and about ? Are there tanks small enough to carry

around? Push maybe?? Are you listed yet? Boy I'm just full of questions this morning.. sorry about the dropping numbers. Keep us posted Mr. Answer Man.. God Bless...Love and Prayers, Peggy 9/04 ipf NAC also helps to clean the unused air sacks in your lungs from being a couch potato. When I first started it my PFT number went up, but now after a year they are going down again. Retiring my concentrator R2D2 cause he only blows out 5 LPM so will get new R2D2 the 2nd next week that can blow 10 LPM P 58 UIP 8/00 O2 8/04, PH 3/06 GERDS 7/06 and list goes on and on and on Carolyn Merritt <cmmerrittsbcglobal (DOT) net> wrote: Thanks for sharing that article , I am going to take it to my pulmonologist who knows less than me about this

disease. I dont have any mucous time of it. I know how you feel about being sick and tired of being sick and tired. I get fed up somedays with all of the coughing that I do and being so short of breath that all I really feel like doing is setting on my backside and doing nothing. Somedays that is what I do all day long, nothing and others I wear myself out doing to much. I need to find a middle ground so I can do a little bit each day. For me it has always been full speed ahead and damn the torpedos. I have tried to pace myself, just haven't made it yet. Your doc sounds like a real peice of work. Some docs have the bed side manners of a chimp, and some are so kind and compassionate and will do all that they can for us. I have been coughing around the clock for the past week and nothing I do helps. I can't take cough syrup with codine in it and the otc stuff doesn't work, do you have any

suggestions?You take care of yourself and we will all be praying that your O2 supplier will find some way for you to be able to ambulate without tiring yourself out with the heavy tank that you have been saddled with. Hugs and Prayers! Barbara R IPF 1/2003>> I went to my pulm. yesterday. Sats were 82, even though I use > oxygen continuously. Am having a real difficulty now with getting > in and out of chairs, doing simple things in the house. I just get > so out of breath. The Dr. said the increased SOB is because of my > pulmonary hypertension, which is worsening. There is a new med. for > it but Cigna does not approve it and therefore I have to pay > privately. I am going to do that for a

while. But I wonder what is > the use? My dr. told me yesterday that he knows of nothing else > that can be done and that I need to start accepting things. He said > that with a terminal illness, I should expect to get worse instead > of hoping. He said the time for hope is over now and that maybe I > need to see a therapist to help me through this. He then wanted to > write me a script for Zoloft to "help". He did say that I would > probably need to think about going into the hospital again soon, to > drain some of the fluid out of me. I have already done that but it > just comes back. I read that with the hypertension, that your legs > cana get very large and heavy. And that is what is happening. Also > having a problem with my portable oxygen. Since I am now on liquid > oxygen, the tank I havae to carry is so heavy that it takes all my > energy to carry it. Evidently the office

called the supplier and I > just got a call from them stating that Cigna does not authorize the > really small one. I am calling Cigna. I know I sound depressed in > this post. I know I am discouraged. Really really tired of > everything. Tired of the tube in my nose, tired of calculating what > I can do because of limited breath, tired of sitting. Just tired. > Tired of being told that I have lived longer than most people with > my disease.> I dont know how to be a sick person.> Thanks for listening.> > Sponsored LinkMortgage rates near 39yr lows. $420,000 Mortgage for $1,399/mo - Calculate new house payment <http://www.lowermybills.com/lre/index.jsp?sourceid=lmb-9132-16414 & amp;moid=4116>

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[Guest guest]

Sorry, the one I was thinking of is just called "Tranquility" which is made of L-Tryptophan, and not "Tranquility Complex".

Carolyn

-- Re: Re: Pulm. Visit

Carolyn, no, there is no l-tryptophan in Tranquility Complex. It is manf. by Quantum Nutritional Labs and sells: Quantum Rx. It's a dietary supplement.

It works for those who have trouble sleeping.........Sher

Re: Pulm. Visit

-

My husband,Bob,has the blues every morning-he says I just wish I

could have a good day & be able to breathe.

He also has that terrible cough--a resp therapist told him to drink

hot tea made with 2 t-bags per cup as hot as he could stand it.It

does work most of the time--even after it has cooled off--I don't

know why but who cares as long as it helps.I have been up many times

in the night to make him "2 bag tea".I don't mind if it helps him.

Someone mentioned Tranquility Complex for sleep.Where can you get

this? I haven't had much to say recently-- but I have read all the

mail

daily. D--

Dr, added to his enourmous list of meds -Proventil inhaler 3 times a

day. He is up to 5 liters 02 most of the time & 4l at rest,with

supplemental by mask especially when he has a bad coughing

spell,which he passes out from coughing which we know is lack of 02.

Where does all this end & how can we all get relief? I know if any

of us had the answer to this,we would make a million.

Hugs & prayers to all of you.

Bev from Ill

Bob pf 9/05

In Breathe-Support , "acapulco_cottonwoodcove"

wrote:

>

>

> , I am so sorry that you are having such a hard time of it.

I know

> how you feel about being sick and tired of being sick and tired. I

get

> fed up somedays with all of the coughing that I do and being so

short of

> breath that all I really feel like doing is setting on my backside

and

> doing nothing. Somedays that is what I do all day long, nothing and

> others I wear myself out doing to much. I need to find a middle

ground

> so I can do a little bit each day. For me it has always been full

speed

> ahead and damn the torpedos. I have tried to pace myself, just

haven't

> made it yet.

>

> Your doc sounds like a real peice of work. Some docs have the bed

side

> manners of a chimp, and some are so kind and compassionate and

will do

> all that they can for us.

>

> I have been coughing around the clock for the past week and

nothing I do

> helps. I can't take cough syrup with codine in it and the otc stuff

> doesn't work, do you have any suggestions?

>

> You take care of yourself and we will all be praying that your O2

> supplier will find some way for you to be able to ambulate without

> tiring yourself out with the heavy tank that you have been saddled

with.

>

> Hugs and Prayers!

>

> Barbara R IPF 1/2003

>

> >

> > I went to my pulm. yesterday. Sats were 82, even though I use

> > oxygen continuously. Am having a real difficulty now with getting

> > in and out of chairs, doing simple things in the house. I just

get

> > so out of breath. The Dr. said the increased SOB is because of my

> > pulmonary hypertension, which is worsening. There is a new med.

for

> > it but Cigna does not approve it and therefore I have to pay

> > privately. I am going to do that for a while. But I wonder what

is

> > the use? My dr. told me yesterday that he knows of nothing else

> > that can be done and that I need to start accepting things. He

said

> > that with a terminal illness, I should expect to get worse

instead

> > of hoping. He said the time for hope is over now and that maybe I

> > need to see a therapist to help me through this. He then wanted

to

> > write me a script for Zoloft to "help". He did say that I would

> > probably need to think about going into the hospital again soon,

to

> > drain some of the fluid out of me. I have already done that but

it

> > just comes back. I read that with the hypertension, that your

legs

> > cana get very large and heavy. And that is what is happening.

Also

> > having a problem with my portable oxygen. Since I am now on

liquid

> > oxygen, the tank I havae to carry is so heavy that it takes all

my

> > energy to carry it. Evidently the office called the supplier and

I

> > just got a call from them stating that Cigna does not authorize

the

> > really small one. I am calling Cigna. I know I sound depressed in

> > this post. I know I am discouraged. Really really tired of

> > everything. Tired of the tube in my nose, tired of calculating

what

> > I can do because of limited breath, tired of sitting. Just tired.

> > Tired of being told that I have lived longer than most people

with

> > my disease.

> > I dont know how to be a sick person.

> > Thanks for listening.

> >

> >

>

[Guest guest]

Well I hope R3D3 work out for you. I can't figure out why, if we ipfers get a new lung, how it does not infect the new one. Boy I am sure not a Rocket Surgeon. hee hee

hang in there, we're all in this together..

Love and Prayers, Peggy 9/04 ipf

Hi Peggy I have a home fill system that uses m6 and m9 tanks that are almost easy to carry. Also have a Inogen that I use mostly in the car so my tanks can be used when I am out walking. No can't be listed, my PF is secondary to Polymositis (12/98) so a new lung wold just get reinfected P UIP 8/00

Peggy wrote:

Hi , I am sorry you have to trade R2D2 for a newer model. How does that work to get out and about ? Are there tanks small enough to carry around? Push maybe?? Are you listed yet? Boy I'm just full of questions this morning.. sorry about the dropping numbers. Keep us posted Mr. Answer Man.. God Bless...

Love and Prayers, Peggy 9/04 ipf

NAC also helps to clean the unused air sacks in your lungs from being a couch potato. When I first started it my PFT number went up, but now after a year they are going down again. Retiring my concentrator R2D2 cause he only blows out 5 LPM so will get new R2D2 the 2nd next week that can blow 10 LPM P 58 UIP 8/00 O2 8/04, PH 3/06 GERDS 7/06 and list goes on and on and on

Carolyn Merritt wrote:

Thanks for sharing that article , I am going to take it to my pulmonologist who knows less than me about this disease. I dont have any mucous time of it. I know how you feel about being sick and tired of being sick and tired. I get fed up somedays with all of the coughing that I do and being so short of breath that all I really feel like doing is setting on my backside and doing nothing. Somedays that is what I do all day long, nothing and others I wear myself out doing to much. I need to find a middle ground so I can do a little bit each day. For me it has always been full speed ahead and damn the torpedos. I have tried to pace myself, just haven't made it yet.

Your doc sounds like a real peice of work. Some docs have the bed side manners of a chimp, and some are so kind and compassionate and will do all that they can for us.

I have been coughing around the clock for the past week and nothing I do helps. I can't take cough syrup with codine in it and the otc stuff doesn't work, do you have any suggestions?

You take care of yourself and we will all be praying that your O2 supplier will find some way for you to be able to ambulate without tiring yourself out with the heavy tank that you have been saddled with.

Hugs and Prayers!

Barbara R IPF 1/2003

>

> I went to my pulm. yesterday. Sats were 82, even though I use

> oxygen continuously. Am having a real difficulty now with getting

> in and out of chairs, doing simple things in the house. I just get

> so out of breath. The Dr. said the increased SOB is because of my

> pulmonary hypertension, which is worsening. There is a new med. for

> it but Cigna does not approve it and therefore I have to pay

> privately. I am going to do that for a while. But I wonder what is

> the use? My dr. told me yesterday that he knows of nothing else

> that can be done and that I need to start accepting things. He said

> that with a terminal illness, I should expect to get worse instead

> of hoping. He said the time for hope is over now and that maybe I

> need to see a therapist to help me through this. He then wanted to

> write me a script for Zoloft to " help " . He did say that I would

> probably need to think about going into the hospital again soon, to

> drain some of the fluid out of me. I have already done that but it

> just comes back. I read that with the hypertension, that your legs

> cana get very large and heavy. And that is what is happening. Also

> having a problem with my portable oxygen. Since I am now on liquid

> oxygen, the tank I havae to carry is so heavy that it takes all my

> energy to carry it. Evidently the office called the supplier and I

> just got a call from them stating that Cigna does not authorize the

> really small one. I am calling Cigna. I know I sound depressed in

> this post. I know I am discouraged. Really really tired of

> everything. Tired of the tube in my nose, tired of calculating what

> I can do because of limited breath, tired of sitting. Just tired.

> Tired of being told that I have lived longer than most people with

> my disease.

> I dont know how to be a sick person.

> Thanks for listening.

>

>

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[Guest guest]

, I am so saddened, angry and exasperated by how that dr had the audacity to talk to you. They are so clueless and cold. They just don't get it. How dare he tell you to give up, how dare he not get on that phone and fight for what ever size o2 you need instead of handing you a line of crud.

That son of a bum is turning his impotence around and putting it on you. If I were a different kind of person...that guy brings some really God-less thoughts to my mind. Please don't give up , don't buy into his bull puckie. The things he said have nothing to do with you, they were about him and his lack of humanness, his ineptness and lack of integrity. He dared speak to the things that are known by you and God alone. You are worth fighting for and if he were a real Dr, that is just what he would be doing.

Pleeeeeze continue to be yourself, not that butt heads definition of a "sick" person. You have every right to be sick and tired, not him. You have every right to define who and what you are. Sick and tired may be what you feel, but that is not who you are.

Peace, love and much respect, LynnA

-- In Breathe-Support , "tuliparizona" wrote:>> I went to my palm. yesterday. Sats were 82, even though I use > oxygen continuously. Am having a real difficulty now with getting > in and out of chairs, doing simple things in the house. I just get > so out of breath. The Dr. said the increased SOB is because of my > pulmonary hypertension, which is worsening. There is a new med. for > it but Cigna does not approve it and therefore I have to pay > privately. I am going to do that for a while. But I wonder what is > the use? My dr. told me yesterday that he knows of nothing else > that can be done and that I need to start accepting things. He said > that with a terminal illness, I should expect to get worse instead > of hoping. He said the time for hope is over now and that maybe I > need to see a therapist to help me through this. He then wanted to > write me a script for Zoloft to "help". He did say that I would > probably need to think about going into the hospital again soon, to > drain some of the fluid out of me. I have already done that but it > just comes back. I read that with the hypertension, that your legs > can get very large and heavy. And that is what is happening. Also > having a problem with my portable oxygen. Since I am now on liquid > oxygen, the tank I have to carry is so heavy that it takes all my > energy to carry it. Evidently the office called the supplier and I > just got a call from them stating that Cigna does not authorize the > really small one. I am calling Cigna. I know I sound depressed in > this post. I know I am discouraged. Really really tired of > everything. Tired of the tube in my nose, tired of calculating what > I can do because of limited breath, tired of sitting. Just tired. > Tired of being told that I have lived longer than most people with > my disease.> I dont know how to be a sick person.> Thanks for listening.> >

[Guest guest]

Lynn,

Bravo Lynn!! This is something we all need to hear!! Thank you for saying it!

"Pleeeeeze continue to be yourself, not that butt heads definition of a "sick" person. You have every right to be sick and tired, not him. You have every right to define who and what you are. Sick and tired may be what you feel, but that is not who you are." Beth (Fibrotic NSIP 06/06)Draw close. Hold hands. Life is short. God is good.

Re: Pulm. Visit

, I am so saddened, angry and exasperated by how that dr had the audacity to talk to you. They are so clueless and cold. They just don't get it. How dare he tell you to give up, how dare he not get on that phone and fight for what ever size o2 you need instead of handing you a line of crud.

That son of a bum is turning his impotence around and putting it on you. If I were a different kind of person...that guy brings some really God-less thoughts to my mind. Please don't give up , don't buy into his bull puckie. The things he said have nothing to do with you, they were about him and his lack of humanness, his ineptness and lack of integrity. He dared speak to the things that are known by you and God alone. You are worth fighting for and if he were a real Dr, that is just what he would be doing.

Pleeeeeze continue to be yourself, not that butt heads definition of a "sick" person. You have every right to be sick and tired, not him. You have every right to define who and what you are. Sick and tired may be what you feel, but that is not who you are.

Peace, love and much respect, LynnA

-- In Breathe-Support@ yahoogroups. com, "tuliparizona" wrote:>> I went to my palm. yesterday. Sats were 82, even though I use > oxygen continuously. Am having a real difficulty now with getting > in and out of chairs, doing simple things in the house. I just get > so out of breath. The Dr. said the increased SOB is because of my > pulmonary hypertension, which is worsening. There is a new med. for > it but Cigna does not approve it and therefore I have to pay > privately. I am going to do that for a while. But I wonder what is > the use? My dr. told me yesterday that he knows of nothing else > that can be done and that I need to start accepting things. He said > that with a terminal illness, I should expect to get worse instead > of hoping. He said the time for hope is over now and that maybe I > need to see a

therapist to help me through this. He then wanted to > write me a script for Zoloft to "help". He did say that I would > probably need to think about going into the hospital again soon, to > drain some of the fluid out of me. I have already done that but it > just comes back. I read that with the hypertension, that your legs > can get very large and heavy. And that is what is happening. Also > having a problem with my portable oxygen. Since I am now on liquid > oxygen, the tank I have to carry is so heavy that it takes all my > energy to carry it. Evidently the office called the supplier and I > just got a call from them stating that Cigna does not authorize the > really small one. I am calling Cigna. I know I sound depressed in > this post. I know I am discouraged. Really really tired of > everything. Tired of the tube in my nose, tired of calculating what > I can do because of

limited breath, tired of sitting. Just tired. > Tired of being told that I have lived longer than most people with > my disease.> I dont know how to be a sick person.> Thanks for listening.> >

[Guest guest]

Lynn,

Amen, preach it sister! You should give us a sermon every day, Ginger could give us a prayer, could sing to us, P could research interesting antidotes, Gordon could lend some humor, Peggy could bring cake...etc.....

Hugs, Joyce

> >> > I went to my palm. yesterday. Sats were 82, even though I use> > oxygen continuously. Am having a real difficulty now with getting> > in and out of chairs, doing simple things in the house. I just get> > so out of breath. The Dr. said the increased SOB is because of my> > pulmonary hypertension, which is worsening. There is a new med. for> > it but Cigna does not approve it and therefore I have to pay> > privately. I am going to do that for a while. But I wonder what is> > the use? My dr. told me yesterday that he knows of nothing else> > that can be done and that I need to start accepting things. He said> > that with a terminal illness, I should expect to get worse instead> > of hoping. He said the time for hope is over now and that maybe I> > need to see a therapist to help me through this. He then wanted to> > write me a script for Zoloft to "help". He did say that I would> > probably need to think about going into the hospital again soon, to> > drain some of the fluid out of me. I have already done that but it> > just comes back. I read that with the hypertension, that your legs> > can get very large and heavy. And that is what is happening. Also> > having a problem with my portable oxygen. Since I am now on liquid> > oxygen, the tank I have to carry is so heavy that it takes all my> > energy to carry it. Evidently the office called the supplier and I> > just got a call from them stating that Cigna does not authorize the> > really small one. I am calling Cigna. I know I sound depressed in> > this post. I know I am discouraged. Really really tired of> > everything. Tired of the tube in my nose, tired of calculating what> > I can do because of limited breath, tired of sitting. Just tired.> > Tired of being told that I have lived longer than most people with> > my disease.> > I dont know how to be a sick person.> > Thanks for listening.> > > >>

[Guest guest]

Lynn.

In reading your post I am reminded of one of the reasons I wrote my book. I too was taught "Don't talk", "Don't see" and "Don't tell" and it followed each generation. I broke it wide open!

I too am sad/angry/frustrated for .

Hey ...did you get my post?

How well you expressed yourself Lynn. I think we can all relate to your "well chosen words".

Way to go girl.

I will check out your site.........

Hear me talk! Sher

Re: Pulm. Visit

, I am so saddened, angry and exasperated by how that dr had the audacity to talk to you. They are so clueless and cold. They just don't get it. How dare he tell you to give up, how dare he not get on that phone and fight for what ever size o2 you need instead of handing you a line of crud.

That son of a bum is turning his impotence around and putting it on you. If I were a different kind of person...that guy brings some really God-less thoughts to my mind. Please don't give up , don't buy into his bull puckie. The things he said have nothing to do with you, they were about him and his lack of humanness, his ineptness and lack of integrity. He dared speak to the things that are known by you and God alone. You are worth fighting for and if he were a real Dr, that is just what he would be doing.

Pleeeeeze continue to be yourself, not that butt heads definition of a "sick" person. You have every right to be sick and tired, not him. You have every right to define who and what you are. Sick and tired may be what you feel, but that is not who you are.

Peace, love and much respect, LynnA

-- In Breathe-Support , "tuliparizona" wrote:>> I went to my palm. yesterday. Sats were 82, even though I use > oxygen continuously. Am having a real difficulty now with getting > in and out of chairs, doing simple things in the house. I just get > so out of breath. The Dr. said the increased SOB is because of my > pulmonary hypertension, which is worsening. There is a new med. for > it but Cigna does not approve it and therefore I have to pay > privately. I am going to do that for a while. But I wonder what is > the use? My dr. told me yesterday that he knows of nothing else > that can be done and that I need to start accepting things. He said > that with a terminal illness, I should expect to get worse instead > of hoping. He said the time for hope is over now and that maybe I > need to se! e a therapist to help me through this. He then wanted to > write me a script for Zoloft to "help". He did say that I would > probably need to think about going into the hospital again soon, to > drain some of the fluid out of me. I have already done that but it > just comes back. I read that with the hypertension, that your legs > can get very large and heavy. And that is what is happening. Also > having a problem with my portable oxygen. Since I am now on liquid > oxygen, the tank I have to carry is so heavy that it takes all my > energy to carry it. Evidently the office called the supplier and I > just got a call from them stating that Cigna does not authorize the > really small one. I am calling Cigna. I know I sound depressed in > this post. I know I am discouraged. Really really tired of > everything. Tired of the tube in my nose, tired of calculating what > I can do because of limi! ted breath, tired of sitting. Just tired. > Tired of being told that I have lived longer than most people with > my disease.> I dont know how to be a sick person.> Thanks for listening.> >

[Guest guest]

Joyce, you are so sweet. I agree though, together - this group would be a force to be reconded with for sure. I can picture us all just 'workin' those legislators in DC. United, we could put the words PF on everyones lips.> > >> > > I went to my palm. yesterday. Sats were 82, even though I use> > > oxygen continuously. Am having a real difficulty now with getting> > > in and out of chairs, doing simple things in the house. I just get> > > so out of breath. The Dr. said the increased SOB is because of my> > > pulmonary hypertension, which is worsening. There is a new med. for> > > it but Cigna does not approve it and therefore I have to pay> > > privately. I am going to do that for a while. But I wonder what is> > > the use? My dr. told me yesterday that he knows of nothing else> > > that can be done and that I need to start accepting things. He said> > > that with a terminal illness, I should expect to get worse instead> > > of hoping. He said the time for hope is over now and that maybe I> > > need to see a therapist to help me through this. He then wanted to> > > write me a script for Zoloft to "help". He did say that I would> > > probably need to think about going into the hospital again soon, to> > > drain some of the fluid out of me. I have already done that but it> > > just comes back. I read that with the hypertension, that your legs> > > can get very large and heavy. And that is what is happening. Also> > > having a problem with my portable oxygen. Since I am now on liquid> > > oxygen, the tank I have to carry is so heavy that it takes all my> > > energy to carry it. Evidently the office called the supplier and I> > > just got a call from them stating that Cigna does not authorize the> > > really small one. I am calling Cigna. I know I sound depressed in> > > this post. I know I am discouraged. Really really tired of> > > everything. Tired of the tube in my nose, tired of calculating what> > > I can do because of limited breath, tired of sitting. Just tired.> > > Tired of being told that I have lived longer than most people with> > > my disease.> > > I dont know how to be a sick person.> > > Thanks for listening.> > > > > >> >> > > > > > > > <http://smiley.smileycentral.com/download/index.jhtml?partner=ZSzeb098_Z\> SXXXXXX37 & utm_id=7926>>