Guest guest Posted November 9, 2001 Report Share Posted November 9, 2001 You can find a great deal of information on Tikosyn by going to our links page: http://groups.yahoo.com/group/AFIBsupport/links and selecting the " medications " link, then " Tikosyn " . Also you can find some polls conducted here within the group by going to: http://groups.yahoo.com/group/AFIBsupport/polls and scrolling down to the closed polls; you will find several that pertain to Tikosyn. To search in our archives to see what has been said in the past, see: http://groups.yahoo.com/group/AFIBsupport/messagesearch?query=dofetilide As one who is currently taking Tambocor, I believe that Tikosyn would be the first choice on the surface. Although both are relatively gentle when it comes to side effects, I don't believe Tikosyn causes the " visual disturbances " that Tambocor does. There can, of course, be adverse reactions to any medication, but I believe these are the best two available. And you can consider yourself lucky that your doctor includes them, as there are doctors out there that will not use Tambocor and/or has not been trained for Tikosyn. Lastly, in many (most?) cases Tikosyn therapy is started combined with a hospital stay for monitoring, while such a stay is less common with Tambocor. (no subject) Can anyone fill me in on the drug " Tikosyn/dofetilide " . What your success is or failure is. My Cardio wants me to take it instead of tambocor. The groups thoughts would be appreciated. Thanks Rich Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2001 Report Share Posted November 9, 2001 Just testing - my former messages did not appear. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2001 Report Share Posted November 21, 2001 Hi Tina, I am in the Uk a long way off but I feel for you. How long does you husband stay at 210 for. for short periods of a few hours it is by no means good but not too dangerous. Is you husband in constant AF? If not then the drugs are not working.. I do feel your husband is very young to get this and this makes it more difficult to treat as he is still very Active. I would suggest you find a good EP and go through what is going on and see if you cannot find a root cause, it may be there is not one. I would not think at 28 your husband would want to stay on meds for the rest of his life. He is on a beta blocker this takes about two weeks to get into his system and settle him dow. Make a diary of what is going on and see how many attacks he is getting. mention this to the Dr and see if your not happy what other meds can be found. good luck and try and contact somebody to talk to near you in the USA. I can be contact directly but there is not better than somebody who understand your system. god Luck C Ps two golden rules It aint gonna kill you that is if its under control If you not happy with your Dr then change him and try and find a good EP. we are all thinking of you!!!!! > (no subject) > > Has anyone been on the Atonal. My husband has been on this for about two > weeks now and does not like the way it makes him feel. He just had his > first > AFIB episode two weeks ago and he is only 28. It was so scary to see him > going through it when we had no idea what it was at first. He spent four > days > in the hospital. For the first day they couldn't get his heart rate down. > He > was at 210. I am new at this so some advice or input would be greatly > appreciated. > Tina > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2001 Report Share Posted November 21, 2001 >Has anyone been on the Atonal. My husband has been on this for about two >weeks now and does not like the way it makes him feel. He just had his first >AFIB episode two weeks ago and he is only 28. It was so scary to see him >going through it when we had no idea what it was at first. He spent four days >in the hospital. For the first day they couldn't get his heart rate down. He >was at 210. I am new at this so some advice or input would be greatly >appreciated. >Tina Hi Tina - I had a similar experience 3 years ago. I was 29 at the time and my heart was going between 200 and 280 for about 24 hours - not pleasant but I got through it. The only thing I can say is that things will get better. Finding the right drug is pretty much a case of trial and error but once it is found the symptoms should be more tolerable -and hopefully will go away altogether! Do you mean atenolol? I've not tried it myself but there are 48 entries in the database that have tried it (around 18 are still using it). see http://www.dialsolutions.com/af/database/index.html?Adv=1 & _atenolol=1 If this isn't working there are many more drugs to try so your husband shouldn't hesitate in asking to try another one. All the best -- D (32, Leeds, UK) AFibbers Database http://www.dialsolutions.com/af AFib Support Group http://groups.yahoo.com/group/AFIBsupport Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2001 Report Share Posted November 21, 2001 Tina, You probably mean atenolol. It is commonly prescribed and seems to have few negative side effects. It is a beta blocker. A number of people in this group use it, including me, and have no problem with it. It was probably prescribed to keep your husband's heart rate down if and when he has another episode of a/fib. The docs will want to do some thorough testing of your husband's heart to see what the underlying problem is and then they may suggest different medication or another course of action. Much of the drug treatment in this area is done by trial and error. Hopefully the errors are small ones. Tell your husband he has now joined a group of about 5 million people in the world who suffer from a/fib! It will take him awhile to adjust to it but eventually he should realize that he can get on with life without a/fib getting in his way. Greg > Has anyone been on the Atonal. My husband has been on this for about two > weeks now and does not like the way it makes him feel. He just had his first > AFIB episode two weeks ago and he is only 28. It was so scary to see him > going through it when we had no idea what it was at first. He spent four days > in the hospital. For the first day they couldn't get his heart rate down. He > was at 210. I am new at this so some advice or input would be greatly > appreciated. > Tina > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2001 Report Share Posted November 21, 2001 >>Tina wrote: >>Has anyone been on the Atonal. My husband has been on this for about two >>weeks now and does not like the way it makes him feel. He just had his first >>AFIB episode two weeks ago and he is only 28. It was so scary to see him >>going through it when we had no idea what it was at first. He spent four days >>in the hospital. For the first day they couldn't get his heart rate down. He >>was at 210. I am new at this so some advice or input would be greatly >>appreciated. >>Tina Hi Tina, I would like to say that if eveything checks out ok, except for him having Afib, he should try to keep his life going as usual as much as possible. After getting Afib i sorta withdrew from 'normal' life in small steps...and slowly i limited myself and my life more and more. Right now i have a panic disorder and agoraphobia because of the anxiety and worrying i do. And i find that in the end dealing with that is much harder than dealing with Afib. It might take quite an effort to keep going with normal things as much as possible but in the end i think the effort it takes in the beginning is far less than the effort it would take when ending up with a load of mental problems as a result of the worrying over Afib. > D wrote: >Hi Tina - I had a similar experience 3 years ago. I was 29 at the time and my >heart was going between 200 and 280 for about 24 hours - not pleasant but I got >through it. The only thing I can say is that things will get better. Finding the >right drug is pretty much a case of trial and error but once it is found the >symptoms should be more tolerable -and hopefully will go away altogether! , how did you deal with this when in that AF run? I'd be scared stiff. I have had those rates but never longer than 2 hours and that was both physically and mentally utterly draining. And how did you eventually return to NSR?..in the ER? Take care, Willem _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2001 Report Share Posted November 30, 2001 Hi all, Well, I've finally given up trying to control afib with diet alone and have decided to try Rhythmol and have an appointment Monday for a final consultation before beginning it and now I see from a number of posts that it is a beta blocker and I have the vagal form and very seldom stress related afib. My experience prior to Thanksgiving of tremendous stress and physical exertion (it really is taxing this getting ready for guests) was really good, no afib at all until Thanksgiving morning and it began as I arose from bed, but it was a very mild case not exacerbated by some wine with dinner. The days following Thanksgiving, however, have been daily 18 hour episodes so I decided to go with the Rhythmol and am now second guessing my decision because of all the recent postings. My EC doesn't really acknowledge there are vagally and adrenergically mediated forms of af--he just mentions a vagal component and I've given him the info on Philippe Coumel's study regarding the use of beta blockers with vagal af. My EC had me on Toprol for three years and I finally eliminated it from my daily regimen because my episodes of af had become a daily event and were extremely uncomfortable. Another posting mentioned calcium/potassium and sodium channel blockers to be a better choice for vagal af. I seem to recall someone also mentioning that Rhythmol had only a very slight beta effect. Any feedback would be appreciated as my doctor has been reluctantly open to my fiddling with diet and exercise before trying Rhythmol. Re: (no subject) > Hi, Tina, I think you mean atenolol, which is a beta blocker. I am > on another beta blocker, toprol. I also do not like the way it makes > me feel - very tired, short of breath, etc. There are a few > possibilities - the doc may reduce the dosage; I am on 25 mg and > anything more than that sinks me like a stone. Or, you should find > out if your hubby has adrenergic or vagal afib - quick, somewhat > inaccurate, clue is stress makes adrenergic afib worse, vagal afib > tends to happen when one is relaxed. For vagal afib, beta blockers > make it worse. Also, some people, like my brothers adust to the beta > blocker in time and it no longer hampers them. Both take 50 mg. > > Your hubby should have an echocardiogram and maybe a stress test to > see if he has an underlying heart problem or if he has what is called > lone afib - just the electrical system is not quite right. Has that > been done? If he has a heart problem, dealing with that may help the > afib. > > Besides the beta blocker, I am on digoxin, which tends to lower the > heart rate without the lethargy effects of a beta blocker. I still > take the beta blocker because that has another beneficial effect - > reducing the number of extra beats, which can trigger afib. > > If he has no underlying heart problem, he may luck out and not have > afib again. Some people go into afib when under great stress, and > then when things are back to normal, the go along for years with no > recurrence. > > There are a lot of useful writeups on the web site > http://groups.yahoo.com/group/AFIBsupport in the files, bookmarks, > etc. section. One of my favorite links is > http://www.mikecowley.co.uk/markhammerschmidt/ArrhythmiaReview.htm > which shows you exactly what is happening in the heart with different > arrhythmias. > > > > > > Web Page http://groups.yahoo.com/group/AFIBsupport > For more information: http://www.dialsolutions.com/af > Post message: AFIBsupport > Subscribe: AFIBsupport-subscribe > Unsubscribe: AFIBsupport-unsubscribe > List owner: AFIBsupport-owner > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2006 Report Share Posted November 14, 2006 My husband just started NAC today I read on a web site http://wholehealthmd.com that when taking NAC you should take copper and zinc. Has anyone heard about this and does anyone take it? I would appreciate any info. Thanks, Laurie Everyone is raving about the all-new Yahoo! Mail beta. Quote Link to comment Share on other sites More sharing options...
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