Guest guest Posted November 6, 2007 Report Share Posted November 6, 2007 Hi Everybody, I have been working with my regular pediatrician to get allergy testing for my two sons. I had a follow up appt with my neurologist yesterday and discovered that my son had an allergic reaction to his sedation drugs when getting his MRI last month. He had both Fentanyl and Pentobarbital. The comments to the reaction was Resp. Distress, Shallow resp., desats when used with pentobarbital for procedural sedation. I must tell you, I was scared to death when they had to put the oxygen on him. I didn't understand what happened to . His behaviours were out of control that week. Two nights after the MRI, he stayed up all night and then crashed the next afternoon. My neurologist referred me to an allergist but I originally wanted a comprehensive allergy test to foods but I am wondering if it is possible to do this with medications as well? Any thoughts or suggestions would be most welcome. I also want to mention that his MRI looked good. The doctor said he has a " beautiful brain " . He also had extensive genetic testing done (using microarray technology at Signature Genomic Laboratories) and they did not detect any significant copy number abormalities in the DNA. I don't know what that means exactly but the doctor said that his DNA was normal. He had basic genetic testing (e.g. fragile X) six years ago and that was negative but I was curious to see if he had any deletions or copies of genes that had been found in a subset of the autism population. Thank you, Jill __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2007 Report Share Posted November 6, 2007 Most, if not all, kids with autism, adhd, etc... come back fine on their MRI. What is needed is a SPECT Scan, if one has not already been done. >From: Jill Boyer <sjillboyer@...> >Date: 2007/11/06 Tue AM 10:17:33 CST >nids <nids > >Subject: Allergies to medicines > >Hi Everybody, > >I have been working with my regular pediatrician to get allergy testing for my two sons. I had a follow up appt with my neurologist yesterday and discovered that my son had an allergic reaction to his sedation drugs when getting his MRI last month. He had both Fentanyl and Pentobarbital. The comments to the reaction was Resp. Distress, Shallow resp., desats when used with pentobarbital for procedural sedation. I must tell you, I was scared to death when they had to put the oxygen on him. I didn't understand what happened to . His behaviours were out of control that week. Two nights after the MRI, he stayed up all night and then crashed the next afternoon. > >My neurologist referred me to an allergist but I originally wanted a comprehensive allergy test to foods but I am wondering if it is possible to do this with medications as well? Any thoughts or suggestions would be most welcome. > >I also want to mention that his MRI looked good. The doctor said he has a " beautiful brain " . He also had extensive genetic testing done (using microarray technology at Signature Genomic Laboratories) and they did not detect any significant copy number abormalities in the DNA. I don't know what that means exactly but the doctor said that his DNA was normal. He had basic genetic testing (e.g. fragile X) six years ago and that was negative but I was curious to see if he had any deletions or copies of genes that had been found in a subset of the autism population. > >Thank you, > >Jill > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2007 Report Share Posted November 6, 2007 Oh My, I have to disagree with on on this. I can tell you that many, many children with autism also have brain malformations. Specifically Chiari Malformations. This disorder is often overlooked as an incidental finding and not even mentioned in an MRI report. So very sad, because the correct diagnoses can mean the difference between life or death or living in constant pain /hell with a disability that looks like autism for the rest of their lives !! Please do not put out such blanket ignorant statements like " Most, if not all. kids with autism, adhd, ect... come back fine on their MRI " because in the hands of a trained neuro-radiologist, doing the correct studies many,many children have undiagnosed Chiari and /or tethered spinal cords that cause most, if not all of their symptoms. Get your facts straight before giving false information to parents who need to get their children checked for these disorders before throwing in the towel !! As for the allergies, my son is allergic to Chloral-Hydrate, and Nebutal ( It took him 24 hours to recover from these drugs.) When he has his MRI's now we use Propofol, he wakes up as if nothing has happened and is ready for the rest of the day . Take good care, @...: jamieandsal@...: Tue, 6 Nov 2007 13:45:58 -0600Subject: Re: Allergies to medicines Most, if not all, kids with autism, adhd, etc... come back fine on their MRI. What is needed is a SPECT Scan, if one has not already been done. >From: Jill Boyer <sjillboyer@...>>Date: 2007/11/06 Tue AM 10:17:33 CST>nids <nids >>Subject: Allergies to medicines> >Hi Everybody,>>I have been working with my regular pediatrician to get allergy testing for my two sons. I had a follow up appt with my neurologist yesterday and discovered that my son had an allergic reaction to his sedation drugs when getting his MRI last month. He had both Fentanyl and Pentobarbital. The comments to the reaction was Resp. Distress, Shallow resp., desats when used with pentobarbital for procedural sedation. I must tell you, I was scared to death when they had to put the oxygen on him. I didn't understand what happened to . His behaviours were out of control that week. Two nights after the MRI, he stayed up all night and then crashed the next afternoon. >>My neurologist referred me to an allergist but I originally wanted a comprehensive allergy test to foods but I am wondering if it is possible to do this with medications as well? Any thoughts or suggestions would be most welcome. >>I also want to mention that his MRI looked good. The doctor said he has a " beautiful brain " . He also had extensive genetic testing done (using microarray technology at Signature Genomic Laboratories) and they did not detect any significant copy number abormalities in the DNA. I don't know what that means exactly but the doctor said that his DNA was normal. He had basic genetic testing (e.g. fragile X) six years ago and that was negative but I was curious to see if he had any deletions or copies of genes that had been found in a subset of the autism population. >>Thank you,>>Jill> > __________________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2007 Report Share Posted November 7, 2007 Hey - To identify Chiari Malformations, don't they have to do something like a CINE (sp?) flow in addition to the MRI? As far as I understand, this is rarely done. I wanted it w/my youngest (but he doesn't have that many major problems and isn't ASD or developmentally delayed) but they just did a standard MRI. I wonder how helpful it would be if that particular study (assuming I was correct that it's required to identify a mild one) was done on most MRIs and if neurologists would be willing to add it upon our requests? --- LINDA A <lsa5885@...> wrote: > > Oh My, I have to disagree with on on this. I can > tell you that many, many children with autism also > have brain malformations. Specifically Chiari > Malformations. This disorder is often overlooked as > an incidental finding and not even mentioned in an > MRI report. > > So very sad, because the correct diagnoses can mean > the difference between life or death or living in > constant pain /hell with a disability that looks > like autism for the rest of their lives !! > > Please do not put out such blanket ignorant > statements like " Most, if not all. kids with > autism, adhd, ect... come back fine on their MRI " > because in the hands of a trained neuro-radiologist, > doing the correct studies many,many children have > undiagnosed Chiari and /or tethered spinal cords > that cause most, if not all of their symptoms. > > Get your facts straight before giving false > information to parents who need to get their > children checked for these disorders before throwing > in the towel !! > > As for the allergies, my son is allergic to > Chloral-Hydrate, and Nebutal ( It took him 24 hours > to recover from these drugs.) When he has his MRI's > now we use Propofol, he wakes up as if nothing has > happened and is ready for the rest of the day . > > Take good care, > > > > > @...: > jamieandsal@...: Tue, 6 Nov 2007 > 13:45:58 -0600Subject: Re: Allergies to > medicines > > > > > > Most, if not all, kids with autism, adhd, etc... > come back fine on their MRI. What is needed is a > SPECT Scan, if one has not already been done. >From: > Jill Boyer <sjillboyer@...>>Date: 2007/11/06 > Tue AM 10:17:33 CST>nids > <nids >>Subject: Allergies to > medicines> >Hi Everybody,>>I have been working with > my regular pediatrician to get allergy testing for > my two sons. I had a follow up appt with my > neurologist yesterday and discovered that my son had > an allergic reaction to his sedation drugs when > getting his MRI last month. He had both Fentanyl and > Pentobarbital. The comments to the reaction was > Resp. Distress, Shallow resp., desats when used with > pentobarbital for procedural sedation. I must tell > you, I was scared to death when they had to put the > oxygen on him. I didn't understand what happened to > . His behaviours were out of control that > week. Two nights after the MRI, he stayed up all > night and then crashed the next afternoon. >>My > neurologist referred me to an allergist but I > originally wanted a comprehensive allergy test to > foods but I am wondering if it is possible to do > this with medications as well? Any thoughts or > suggestions would be most welcome. >>I also want to > mention that his MRI looked good. The doctor said he > has a " beautiful brain " . He also had extensive > genetic testing done (using microarray technology at > Signature Genomic Laboratories) and they did not > detect any significant copy number abormalities in > the DNA. I don't know what that means exactly but > the doctor said that his DNA was normal. He had > basic genetic testing (e.g. fragile X) six years ago > and that was negative but I was curious to see if he > had any deletions or copies of genes that had been > found in a subset of the autism population. >>Thank > you,>>Jill> > > __________________________________________________>Do > You ?>Tired of spam? has the best > spam protection around >http://mail. > >>[Non-text portions of this message have been > removed]>> Sincerely, Juarez, M.S., Marriage > and Family Therapist > > > > > > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2007 Report Share Posted November 7, 2007 The whole point of the statement of most kids come back fine on their MRI's was in fact addressing the fact that doctors overlook things and to never give up. For the millionth time, this is an open forum and negative, degorative misinterpretations makes it very difficult for people feeling comfortable here. Opinions should be give, but attacks on participants is completely obsurd. We are all in this together people, let's do it with kindness!!! >From: LINDA A <lsa5885@...> >Date: 2007/11/06 Tue PM 09:50:15 CST >nids >Subject: RE: Allergies to medicines > > >Oh My, I have to disagree with on on this. I can tell you that many, many children with autism also have brain malformations. Specifically Chiari Malformations. This disorder is often overlooked as an incidental finding and not even mentioned in an MRI report. > >So very sad, because the correct diagnoses can mean the difference between life or death or living in constant pain /hell with a disability that looks like autism for the rest of their lives !! > >Please do not put out such blanket ignorant statements like " Most, if not all. kids with autism, adhd, ect... come back fine on their MRI " because in the hands of a trained neuro-radiologist, doing the correct studies many,many children have undiagnosed Chiari and /or tethered spinal cords that cause most, if not all of their symptoms. > >Get your facts straight before giving false information to parents who need to get their children checked for these disorders before throwing in the towel !! > >As for the allergies, my son is allergic to Chloral-Hydrate, and Nebutal ( It took him 24 hours to recover from these drugs.) When he has his MRI's now we use Propofol, he wakes up as if nothing has happened and is ready for the rest of the day . > >Take good care, > >@...: jamieandsal@...: Tue, 6 Nov 2007 13:45:58 -0600Subject: Re: Allergies to medicines > >Most, if not all, kids with autism, adhd, etc... come back fine on their MRI. What is needed is a SPECT Scan, if one has not already been done. >From: Jill Boyer <sjillboyer@...>>Date: 2007/11/06 Tue AM 10:17:33 CST>nids <nids >>Subject: Allergies to medicines> >Hi Everybody,>>I have been working with my regular pediatrician to get allergy testing for my two sons. I had a follow up appt with my neurologist yesterday and discovered that my son had an allergic reaction to his sedation drugs when getting his MRI last month. He had both Fentanyl and Pentobarbital. The comments to the reaction was Resp. Distress, Shallow resp., desats when used with pentobarbital for procedural sedation. I must tell you, I was scared to death when they had to put the oxygen on him. I didn't understand what happened to . His behaviours were out of control that week. Two nights after the MRI, he stayed up all night and then crashed the next afternoon. >>My neurologist referred me to an allergist but I originally wanted a comprehensive allergy test to foods but I am wondering if it is possible to do this with medications as well? Any thoughts or suggestions would be most welcome. >>I also want to mention that his MRI looked good. The doctor said he has a " beautiful brain " . He also had extensive genetic testing done (using microarray technology at Signature Genomic Laboratories) and they did not detect any significant copy number abormalities in the DNA. I don't know what that means exactly but the doctor said that his DNA was normal. He had basic genetic testing (e.g. fragile X) six years ago and that was negative but I was curious to see if he had any deletions or copies of genes that had been found in a subset of the autism population. >>Thank you,>>Jill> > __________________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2007 Report Share Posted November 8, 2007 Hi , Your right, a CINE flow study is often done with an MRI to check the CSF flow to and from the brain. Remember children(and adults for that matter) can have a 0mm. Chiari and be very symptomatic due to lack of flow to their brains. This disorder is very difficult to treat and you really need to use a good neuro-radiologist to interpret the MRI as well as a neurosurgeon who specializes in Chiari Malformation/ syringomyelia and tethered cord syndrome. You have the right to ask for any test that you believe your child may need. It's no big deal to add a CINE flow study to an MRI order, just a few more words. Take care, @...: thecolemans4@...: Wed, 7 Nov 2007 06:16:51 -0800Subject: RE: Allergies to medicines Hey -To identify Chiari Malformations, don't they have todo something like a CINE (sp?) flow in addition to theMRI? As far as I understand, this is rarely done. Iwanted it w/my youngest (but he doesn't have that manymajor problems and isn't ASD or developmentallydelayed) but they just did a standard MRI.I wonder how helpful it would be if that particularstudy (assuming I was correct that it's required toidentify a mild one) was done on most MRIs and ifneurologists would be willing to add it upon ourrequests?--- LINDA A <lsa5885@...> wrote:> > Oh My, I have to disagree with on on this. I can> tell you that many, many children with autism also> have brain malformations. Specifically Chiari> Malformations. This disorder is often overlooked as> an incidental finding and not even mentioned in an> MRI report.> > So very sad, because the correct diagnoses can mean> the difference between life or death or living in> constant pain /hell with a disability that looks> like autism for the rest of their lives !!> > Please do not put out such blanket ignorant> statements like " Most, if not all. kids with> autism, adhd, ect... come back fine on their MRI " > because in the hands of a trained neuro-radiologist,> doing the correct studies many,many children have> undiagnosed Chiari and /or tethered spinal cords> that cause most, if not all of their symptoms. > > Get your facts straight before giving false> information to parents who need to get their> children checked for these disorders before throwing> in the towel !! > > As for the allergies, my son is allergic to> Chloral-Hydrate, and Nebutal ( It took him 24 hours> to recover from these drugs.) When he has his MRI's> now we use Propofol, he wakes up as if nothing has> happened and is ready for the rest of the day . > > Take good care, > > > > > @...:> jamieandsal@...: Tue, 6 Nov 2007> 13:45:58 -0600Subject: Re: Allergies to> medicines> > > > > > Most, if not all, kids with autism, adhd, etc...> come back fine on their MRI. What is needed is a> SPECT Scan, if one has not already been done. >From:> Jill Boyer <sjillboyer@...>>Date: 2007/11/06> Tue AM 10:17:33 CST>nids> <nids >>Subject: Allergies to> medicines> >Hi Everybody,>>I have been working with> my regular pediatrician to get allergy testing for> my two sons. I had a follow up appt with my> neurologist yesterday and discovered that my son had> an allergic reaction to his sedation drugs when> getting his MRI last month. He had both Fentanyl and> Pentobarbital. The comments to the reaction was> Resp. Distress, Shallow resp., desats when used with> pentobarbital for procedural sedation. I must tell> you, I was scared to death when they had to put the> oxygen on him. I didn't understand what happened to> . His behaviours were out of control that> week. Two nights after the MRI, he stayed up all> night and then crashed the next afternoon. >>My> neurologist referred me to an allergist but I> originally wanted a comprehensive allergy test to> foods but I am wondering if it is possible to do> this with medications as well? Any thoughts or> suggestions would be most welcome. >>I also want to> mention that his MRI looked good. The doctor said he> has a " beautiful brain " . He also had extensive> genetic testing done (using microarray technology at> Signature Genomic Laboratories) and they did not> detect any significant copy number abormalities in> the DNA. I don't know what that means exactly but> the doctor said that his DNA was normal. He had> basic genetic testing (e.g. fragile X) six years ago> and that was negative but I was curious to see if he> had any deletions or copies of genes that had been> found in a subset of the autism population. >>Thank> you,>>Jill> >>__________________________________________________>Do> You ?>Tired of spam? has the best> spam protection around >http://mail.> >>[Non-text portions of this message have been> removed]>> Sincerely, Juarez, M.S., Marriage> and Family Therapist > > > > > > > > [Non-text portions of this message have been> removed]> > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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