Re: Sara Tropiano: One of God's Angels

[Guest guest]

I am SO sorry you had to lose your precious baby- my thoughts,

prayers & deepest sympathy are with you- may God give you & your

family strength & peace.

Lori:Mom2Cheyenne-CHaRgE

> It give us incredible grief as parents to report that our little

> " Princess " has passed away this evening at 8:05pm in Children's PICU

> from complications post her surgery. Our family was by our sides

> through the entire ordeal, but no words can describe the feelings

> you have in this situation.

>

> I want to thank all of you who have given us the hope and strength

> to give Sara the chance. We left it in God's hands, and the

decision

> was made. Everyone, and most especially the staff at CHOA from

> Dr. Dewan, Dr. Shapiro, Dr. Porter, the PICU nurses and of course

> our dear friends and nurses, and from NICU, who took

> care of Sara and were there by our side on their day and night

off.

>

> Dr. Dewan and his team of over 10, worked for six hours from 7:30am

> till shortly after 1:30pm when we finally got to see Sara wheeled

from

> OR to the PICU. She got over the many hurdles from on to off of the

> heart/lung bypass machine. Over an hour later we got to see her at

> her bedside in ICU. Her vitals were apparently stable for the time

> being, but the uphill battle was just beginning.

>

> Many episodes of vitals and saturations were apparent while we

> watched in the background as sometimes a dozen or more medical

> professionals did their work. Medication after medication she was

> given. Baby steps were taken, but larger leaps backwards were

> more the norm.

>

> Dr. Dewan, as a skilled surgeon had to pull us aside to comfort

> and give the facts. She wasn't getting better, and everything he

> could do was on the table. We immediately called back the family,

> who went home only an hour or so before. We called our Rabbi, and

> our other out of town relatives. Soon we were in tears converged

> by her side. The beeping and buzzing was deafening, and soon the

> silence was abound us. All was left was tears and her lifeless

> body.

>

> We loved her for the short amount of time she had to spend with

us.

> She touched many lives, but probably her parents she touched the

> deepest. I write this out of catharsis, and out of love for

> our child.

>

> Tomorrow we continue the journey with confronting our 5 year old

> son, , with the news. We're sure he'll amaze us with the

> strength and innocence he has. Empathy is his strong point. He'll

> give us strength.

>

> Funeral arrangements are still pending, we're working with our

> clergy and family to make it happen. We'll let everyone know as

> soon as something is set. Please refrain on flowers, as we'll

likely

> ask for any efforts to go towards a charitable donation to

> an organization of our choice, in her name. More later on that

> too.

>

> With love to all,

>

> Debbie and Lenny Tropiano

[Guest guest]

I am SO sorry you had to lose your precious baby- my thoughts,

prayers & deepest sympathy are with you- may God give you & your

family strength & peace.

Lori:Mom2Cheyenne-CHaRgE

> It give us incredible grief as parents to report that our little

> " Princess " has passed away this evening at 8:05pm in Children's PICU

> from complications post her surgery. Our family was by our sides

> through the entire ordeal, but no words can describe the feelings

> you have in this situation.

>

> I want to thank all of you who have given us the hope and strength

> to give Sara the chance. We left it in God's hands, and the

decision

> was made. Everyone, and most especially the staff at CHOA from

> Dr. Dewan, Dr. Shapiro, Dr. Porter, the PICU nurses and of course

> our dear friends and nurses, and from NICU, who took

> care of Sara and were there by our side on their day and night

off.

>

> Dr. Dewan and his team of over 10, worked for six hours from 7:30am

> till shortly after 1:30pm when we finally got to see Sara wheeled

from

> OR to the PICU. She got over the many hurdles from on to off of the

> heart/lung bypass machine. Over an hour later we got to see her at

> her bedside in ICU. Her vitals were apparently stable for the time

> being, but the uphill battle was just beginning.

>

> Many episodes of vitals and saturations were apparent while we

> watched in the background as sometimes a dozen or more medical

> professionals did their work. Medication after medication she was

> given. Baby steps were taken, but larger leaps backwards were

> more the norm.

>

> Dr. Dewan, as a skilled surgeon had to pull us aside to comfort

> and give the facts. She wasn't getting better, and everything he

> could do was on the table. We immediately called back the family,

> who went home only an hour or so before. We called our Rabbi, and

> our other out of town relatives. Soon we were in tears converged

> by her side. The beeping and buzzing was deafening, and soon the

> silence was abound us. All was left was tears and her lifeless

> body.

>

> We loved her for the short amount of time she had to spend with

us.

> She touched many lives, but probably her parents she touched the

> deepest. I write this out of catharsis, and out of love for

> our child.

>

> Tomorrow we continue the journey with confronting our 5 year old

> son, , with the news. We're sure he'll amaze us with the

> strength and innocence he has. Empathy is his strong point. He'll

> give us strength.

>

> Funeral arrangements are still pending, we're working with our

> clergy and family to make it happen. We'll let everyone know as

> soon as something is set. Please refrain on flowers, as we'll

likely

> ask for any efforts to go towards a charitable donation to

> an organization of our choice, in her name. More later on that

> too.

>

> With love to all,

>

> Debbie and Lenny Tropiano

[Guest guest]

Dear Tropiano Family:

We are just so sorry for your loss that I can't even find the words. 14 and 1/2

yrs. ago we loss our newborn to complications. Cherish the memories

of Sara and she will give you the strenght to carry on. I know it is of no help

but, we are all here for you.

Love to you all

You will remain in our prayer's

, , and Kis

>

> It give us incredible grief as parents to report that our little

> " Princess " has passed away this evening at 8:05pm in Children's PICU

> from complications post her surgery. Our family was by our sides

> through the entire ordeal, but no words can describe the feelings

> you have in this situation.

>

> I want to thank all of you who have given us the hope and strength

> to give Sara the chance. We left it in God's hands, and the decision

> was made. Everyone, and most especially the staff at CHOA from

> Dr. Dewan, Dr. Shapiro, Dr. Porter, the PICU nurses and of course

> our dear friends and nurses, and from NICU, who took

> care of Sara and were there by our side on their day and night off.

>

> Dr. Dewan and his team of over 10, worked for six hours from 7:30am

> till shortly after 1:30pm when we finally got to see Sara wheeled from

> OR to the PICU. She got over the many hurdles from on to off of the

> heart/lung bypass machine. Over an hour later we got to see her at

> her bedside in ICU. Her vitals were apparently stable for the time

> being, but the uphill battle was just beginning.

>

> Many episodes of vitals and saturations were apparent while we

> watched in the background as sometimes a dozen or more medical

> professionals did their work. Medication after medication she was

> given. Baby steps were taken, but larger leaps backwards were

> more the norm.

>

> Dr. Dewan, as a skilled surgeon had to pull us aside to comfort

> and give the facts. She wasn't getting better, and everything he

> could do was on the table. We immediately called back the family,

> who went home only an hour or so before. We called our Rabbi, and

> our other out of town relatives. Soon we were in tears converged

> by her side. The beeping and buzzing was deafening, and soon the

> silence was abound us. All was left was tears and her lifeless

> body.

>

> We loved her for the short amount of time she had to spend with us.

> She touched many lives, but probably her parents she touched the

> deepest. I write this out of catharsis, and out of love for

> our child.

>

> Tomorrow we continue the journey with confronting our 5 year old

> son, , with the news. We're sure he'll amaze us with the

> strength and innocence he has. Empathy is his strong point. He'll

> give us strength.

>

> Funeral arrangements are still pending, we're working with our

> clergy and family to make it happen. We'll let everyone know as

> soon as something is set. Please refrain on flowers, as we'll likely

> ask for any efforts to go towards a charitable donation to

> an organization of our choice, in her name. More later on that

> too.

>

> With love to all,

>

> Debbie and Lenny Tropiano

>

>

>

> " 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July

> 20-22, 2001. Information will be available first in CHARGE Accounts, the

> CHARGE Syndrome Foundation's newsletter. "

>

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

__________________________________________________________

Get your FREE personalized e-mail at http://www.canada.com

[Guest guest]

Dear Tropiano Family:

We are just so sorry for your loss that I can't even find the words. 14 and 1/2

yrs. ago we loss our newborn to complications. Cherish the memories

of Sara and she will give you the strenght to carry on. I know it is of no help

but, we are all here for you.

Love to you all

You will remain in our prayer's

, , and Kis

>

> It give us incredible grief as parents to report that our little

> " Princess " has passed away this evening at 8:05pm in Children's PICU

> from complications post her surgery. Our family was by our sides

> through the entire ordeal, but no words can describe the feelings

> you have in this situation.

>

> I want to thank all of you who have given us the hope and strength

> to give Sara the chance. We left it in God's hands, and the decision

> was made. Everyone, and most especially the staff at CHOA from

> Dr. Dewan, Dr. Shapiro, Dr. Porter, the PICU nurses and of course

> our dear friends and nurses, and from NICU, who took

> care of Sara and were there by our side on their day and night off.

>

> Dr. Dewan and his team of over 10, worked for six hours from 7:30am

> till shortly after 1:30pm when we finally got to see Sara wheeled from

> OR to the PICU. She got over the many hurdles from on to off of the

> heart/lung bypass machine. Over an hour later we got to see her at

> her bedside in ICU. Her vitals were apparently stable for the time

> being, but the uphill battle was just beginning.

>

> Many episodes of vitals and saturations were apparent while we

> watched in the background as sometimes a dozen or more medical

> professionals did their work. Medication after medication she was

> given. Baby steps were taken, but larger leaps backwards were

> more the norm.

>

> Dr. Dewan, as a skilled surgeon had to pull us aside to comfort

> and give the facts. She wasn't getting better, and everything he

> could do was on the table. We immediately called back the family,

> who went home only an hour or so before. We called our Rabbi, and

> our other out of town relatives. Soon we were in tears converged

> by her side. The beeping and buzzing was deafening, and soon the

> silence was abound us. All was left was tears and her lifeless

> body.

>

> We loved her for the short amount of time she had to spend with us.

> She touched many lives, but probably her parents she touched the

> deepest. I write this out of catharsis, and out of love for

> our child.

>

> Tomorrow we continue the journey with confronting our 5 year old

> son, , with the news. We're sure he'll amaze us with the

> strength and innocence he has. Empathy is his strong point. He'll

> give us strength.

>

> Funeral arrangements are still pending, we're working with our

> clergy and family to make it happen. We'll let everyone know as

> soon as something is set. Please refrain on flowers, as we'll likely

> ask for any efforts to go towards a charitable donation to

> an organization of our choice, in her name. More later on that

> too.

>

> With love to all,

>

> Debbie and Lenny Tropiano

>

>

>

> " 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July

> 20-22, 2001. Information will be available first in CHARGE Accounts, the

> CHARGE Syndrome Foundation's newsletter. "

>

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

__________________________________________________________

Get your FREE personalized e-mail at http://www.canada.com

[Guest guest]

I don't know what to say, except that my wife and I

are thinking of you guys. We are very sorry.

Ken and

--- christina_kis@... wrote:

> Dear Tropiano Family:

>

> We are just so sorry for your loss that I can't even

> find the words. 14 and 1/2 yrs. ago we loss our

> newborn to complications. Cherish the

> memories of Sara and she will give you the strenght

> to carry on. I know it is of no help but, we are

> all here for you.

>

> Love to you all

> You will remain in our prayer's

> , , and Kis

>

>

>

>

> >

> > It give us incredible grief as parents to report

> that our little

> > " Princess " has passed away this evening at 8:05pm

> in Children's PICU

> > from complications post her surgery. Our family

> was by our sides

> > through the entire ordeal, but no words can

> describe the feelings

> > you have in this situation.

> >

> > I want to thank all of you who have given us the

> hope and strength

> > to give Sara the chance. We left it in God's

> hands, and the decision

> > was made. Everyone, and most especially the staff

> at CHOA from

> > Dr. Dewan, Dr. Shapiro, Dr. Porter, the PICU

> nurses and of course

> > our dear friends and nurses, and from

> NICU, who took

> > care of Sara and were there by our side on their

> day and night off.

> >

> > Dr. Dewan and his team of over 10, worked for six

> hours from 7:30am

> > till shortly after 1:30pm when we finally got to

> see Sara wheeled from

> > OR to the PICU. She got over the many hurdles

> from on to off of the

> > heart/lung bypass machine. Over an hour later we

> got to see her at

> > her bedside in ICU. Her vitals were apparently

> stable for the time

> > being, but the uphill battle was just beginning.

> >

> > Many episodes of vitals and saturations were

> apparent while we

> > watched in the background as sometimes a dozen or

> more medical

> > professionals did their work. Medication after

> medication she was

> > given. Baby steps were taken, but larger leaps

> backwards were

> > more the norm.

> >

> > Dr. Dewan, as a skilled surgeon had to pull us

> aside to comfort

> > and give the facts. She wasn't getting better,

> and everything he

> > could do was on the table. We immediately called

> back the family,

> > who went home only an hour or so before. We

> called our Rabbi, and

> > our other out of town relatives. Soon we were in

> tears converged

> > by her side. The beeping and buzzing was

> deafening, and soon the

> > silence was abound us. All was left was tears and

> her lifeless

> > body.

> >

> > We loved her for the short amount of time she had

> to spend with us.

> > She touched many lives, but probably her parents

> she touched the

> > deepest. I write this out of catharsis, and out

> of love for

> > our child.

> >

> > Tomorrow we continue the journey with confronting

> our 5 year old

> > son, , with the news. We're sure he'll

> amaze us with the

> > strength and innocence he has. Empathy is his

> strong point. He'll

> > give us strength.

> >

> > Funeral arrangements are still pending, we're

> working with our

> > clergy and family to make it happen. We'll let

> everyone know as

> > soon as something is set. Please refrain on

> flowers, as we'll likely

> > ask for any efforts to go towards a charitable

> donation to

> > an organization of our choice, in her name. More

> later on that

> > too.

> >

> > With love to all,

> >

> > Debbie and Lenny Tropiano

> >

> >

> >

> > " 5th CHARGE Syndrome International Conference,

> Indianapolis, Indiana, July

> > 20-22, 2001. Information will be available first

> in CHARGE Accounts, the

> > CHARGE Syndrome Foundation's newsletter. "

> >

> > For information about the CHARGE Syndrome

> > Foundation or to become a member (and get the

> newsletter)

> > please contact marion@... or visit

> > the CHARGE Syndrome Foundation web page

> > at http://www.chargesyndrome.org

>

>

>

__________________________________________________________

> Get your FREE personalized e-mail at

> http://www.canada.com

>

__________________________________________________