Vagal Afib Web Pages Update + Update

[Guest guest]

Hi Vicky:

Good to hear from you........and so glad you're going to give Dofetilide a

shot. Hopefully, you'll have the same success that I have had.

Please keep us posted!

Ellen

********************

----- Original Message -----

(big snip) Anyway, now the good news: I hope to be approved and scheduled

for

> Dofetilide in a few weeks time. (snip)

*********************

[Guest guest]

Hi Vicky:

Good to hear from you........and so glad you're going to give Dofetilide a

shot. Hopefully, you'll have the same success that I have had.

Please keep us posted!

Ellen

********************

----- Original Message -----

(big snip) Anyway, now the good news: I hope to be approved and scheduled

for

> Dofetilide in a few weeks time. (snip)

*********************

[Guest guest]

Dear All,

I've updated my web site (see signature area below) with a summary page

for quick reference, and an important aspect which I have

(unfortunately) learnt - about the importance of adopting a pro-active

(and successful) management of AF - this comes across loud and clear in

Johan Waktari / Prof Camm's book.

As for me, I've given up on Disopyramide (too many anti-cholinergic side

effects, plus it made me depressed, plus (minor point! it eventually

had stopped working). I reacted violently to Propafenone (just about

every side effect listed - badly). Verapamil was a long-time-back

failure, and I'm now back on Flecainide 100 mg/day with some success,

though I am in AF probably 75% of the time. Above 100 mg it is (still)

pro-arrhythmic.

I think my AF has gone from paroxysmal to persistent (i.e. can be

stopped but needs drugs to do it). It seems to respond to rest, these

days, (which my AF never used to), hence the experience others have of

their vagal AF modifying to a mixed vagal/adrenergic pattern. Not

working also helps - at least I can veg out when I have to, which is

most of the time ! Doing gentle house and garden tidying an hour at a

time. I had not realised the effect of long-term chronic stress.

Since I stopped wheat products 7 months ago, my digestion has slowly

come back to just about normal - and I'm loving eating more or less

normally again, except for bread, pasta, etc. However, I think my

gastric problems went on too long (years) and the constant vagal

stimulation has altered the heart muscle conduction properties. This

could also account for a but of a swing from vagal to some

adrenergically-mediated tendencies.

Anyway, now the good news: I hope to be approved and scheduled for

Dofetilide in a few weeks time. I'll let you all know how I get on.

Good luck to you all - I'm still lurking here from time to time.

Best of health to all,

Vicky

London, UK

(1954 vintage)

http://www.vagalafibportal.fsnet.co.uk/

" You can convert some of the people some of the time, but you can't convert all

of the people all of the time "

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[Guest guest]

Vicki,

It's good to hear that you will have a chance to try Ellen's wonder drug.

Since your afib has become persistent, Dofetilide would seem to be a good

choice since so many people suffering persistent afib have had good luck with

it. I wish you the best success with your new regimen. Keep us posted.

I've wondered how you were doing but could certainly understand your decision

to focus less on afib. I think that helps me, too.

Best wishes,

in Seattle

[Guest guest]

Vicki,

It's good to hear that you will have a chance to try Ellen's wonder drug.

Since your afib has become persistent, Dofetilide would seem to be a good

choice since so many people suffering persistent afib have had good luck with

it. I wish you the best success with your new regimen. Keep us posted.

I've wondered how you were doing but could certainly understand your decision

to focus less on afib. I think that helps me, too.

Best wishes,

in Seattle