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Lesley,

Thank you for your input on this topic. I have not paid too much attention to

all the growth hormone posts as it hadn'tapplied to me, but now it may as she

seems to be getting smaller and smaller when next to her peers. Emma's 18 mo.

old cousins are just a head shorter than she is now. After i receive the

results from the blood tests, which should be by early next week, i think it

will be time to get a second opinion.

Jen k

Chantelle, thank you for your explanation on the bone age xray. It was

helpful.

Jen k

Cheryl,

I wrote my post regarding labels to but i am sure you figured out i

meant you.

I think i did that once before as well. :-)

Jen k

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Thanks Jen!

We have experience with growth hormone too. had an endocrinology

appointment yesterday for his one year GH checkup and he was described as a

rocket. : )

Cheryl, , (7), (5, CHaRGE)

MI

>>> jandmkat@... 11/21/00 09:56AM >>>

Lesley,

Thank you for your input on this topic. I have not paid too much attention to

all the growth hormone posts as it hadn'tapplied to me, but now it may as she

seems to be getting smaller and smaller when next to her peers. Emma's 18 mo.

old cousins are just a head shorter than she is now. After i receive the

results from the blood tests, which should be by early next week, i think it

will be time to get a second opinion.

Jen k

Chantelle, thank you for your explanation on the bone age xray. It was

helpful.

Jen k

Cheryl,

I wrote my post regarding labels to but i am sure you figured out i

meant you.

I think i did that once before as well. :-)

Jen k

" 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July

20-22, 2001. Information will be available first in CHARGE Accounts, the

CHARGE Syndrome Foundation's newsletter. "

For information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter)

please contact marion@... or visit

the CHARGE Syndrome Foundation web page

at http://www.chargesyndrome.org

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  • 9 months later...

In a message dated 8/23/2001 7:56:41 PM Pacific Daylight Time,

joks@... writes:

<< I am so sick and tired of all of this. I used to be an active, athletic

person, now I am lucky if I can walk for a little while. >>

I don't know anything about heart block, but I'm wondering if you had the

condition before the first PVA? Or is that known? Also, is it just since

the PVA that you are no longer able to be as active and can only " walk for a

little while? " If so, perhaps this is a temporary result of the PVA which

will disappear with time? I am sorry for you and am sure we can all relate

to that feeling of being " sick and tired " of the effects of afib.

in Seattle

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Hi

I don't know if I had a heart block before my PVA. No one ever mentioned

it. I suspect not. Even a month before the PVA I did a 43 mile walk in

one day, on a very hilly logging road. I went into AF at the beginning of

the walk, it lasted for about an hour and at the end of the walk, 11:30

hours, i went into afib again for the night. Now when I walk, I get short

of breath, my heart does all kinds of strange things and in general I feel

lethargic. I am trying to shake this depressed kind of feeling, which I am

sure adds to it all. Thanks for your supportive words. Leo

> << I am so sick and tired of all of this. I used to be an active,

athletic

> person, now I am lucky if I can walk for a little while. >>

>

> I don't know anything about heart block, but I'm wondering if you had the

> condition before the first PVA? Or is that known? Also, is it just since

> the PVA that you are no longer able to be as active and can only " walk for

a

> little while? " If so, perhaps this is a temporary result of the PVA which

> will disappear with time? I am sorry for you and am sure we can all

relate

> to that feeling of being " sick and tired " of the effects of afib.

> in Seattle

>

>

> Web Page http://groups.yahoo.com/group/AFIBsupport

> For more information: http://www.dialsolutions.com/af

> Post message: AFIBsupport

> Subscribe: AFIBsupport-subscribe

> Unsubscribe: AFIBsupport-unsubscribe

> List owner: AFIBsupport-owner

>

>

>

>

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Leo - I had a pacemaker implanted last year on June 8. Before the

pacemaker I could hardly walk across the yard and planting a few

flowers took me all day. Right afterward, I felt so much better.

Also, I visit another website for pacemakers, implantable.com, where

there are alot of others who are very athletic. One young man even

lifts weights competatively besides others who are runners, etc.

Also, there are people with heart block who can answer questions for

you.

Maybe this will do the trick for you and you will feel better. Also,

my AFib is basically under control. I do take amiodarone but was

taking it before the pacemaker and it wasn't helping at all. It was

like night and day after getting the pacemaker but I also have to say

I have had no problems with my pacer. Will be thinking of you and

hope your problems are resolved.

JanMarie

> Hi

>

> I don't know if I had a heart block before my PVA. No one ever

mentioned

> it. I suspect not. Even a month before the PVA I did a 43 mile

walk in

> one day, on a very hilly logging road. I went into AF at the

beginning of

> the walk, it lasted for about an hour and at the end of the walk,

11:30

> hours, i went into afib again for the night. Now when I walk, I

get short

> of breath, my heart does all kinds of strange things and in general

I feel

> lethargic. I am trying to shake this depressed kind of feeling,

which I am

> sure adds to it all. Thanks for your supportive words. Leo

>

> > << I am so sick and tired of all of this. I used to be an active,

> athletic

> > person, now I am lucky if I can walk for a little while. >>

> >

> > I don't know anything about heart block, but I'm wondering if you

had the

> > condition before the first PVA? Or is that known? Also, is it

just since

> > the PVA that you are no longer able to be as active and can

only " walk for

> a

> > little while? " If so, perhaps this is a temporary result of the

PVA which

> > will disappear with time? I am sorry for you and am sure we can

all

> relate

> > to that feeling of being " sick and tired " of the effects of afib.

> > in Seattle

> >

> >

> > Web Page http://groups.yahoo.com/group/AFIBsupport

> > For more information: http://www.dialsolutions.com/af

> > Post message: AFIBsupport@y...

> > Subscribe: AFIBsupport-subscribe@y...

> > Unsubscribe: AFIBsupport-unsubscribe@y...

> > List owner: AFIBsupport-owner@y...

> >

> >

> >

> >

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  • 3 weeks later...

Leo -- I hope you are doing well! Sandy

I'd like to add my words of condolence to our American neighbours.

The day after this enormous tragedy I had my second PVA. Now I am back home.

I am in nsr, but i have to sit and wait for a couple of weeks to see if it

actually worked. Will keep you informed. It has only been 24 hours since it was

done. Leo

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The cardiologist explained to me that aspirin and coumadin serve different

functions. The asa makes the platelets less sticky, and the coumadin thins

the blood differently. Both appear to have a different effect on the

clotting of the blood. After the PVA he said that both were necessary. Leo

> I was recently advised by my dr. to increase the daily aspirin from 81mg

to 325mg. Coumadin is not part of treatment plan, and my understanding is

that you need either one or the other. Sandy

>

>

>

> For several years I have been taking 81 mg. ASA daily, but after my PVA,

the EP said that newer research is now saying again that this dosage is too

low, and I should go back to a regular aspirin a day, in addition to

Coumadin. I was too dozy to question him on more details about this

research. Does anyone have any knowledge or opinions about this?

>

>

>

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The cardiologist explained to me that aspirin and coumadin serve different

functions. The asa makes the platelets less sticky, and the coumadin thins

the blood differently. Both appear to have a different effect on the

clotting of the blood. After the PVA he said that both were necessary. Leo

> I was recently advised by my dr. to increase the daily aspirin from 81mg

to 325mg. Coumadin is not part of treatment plan, and my understanding is

that you need either one or the other. Sandy

>

>

>

> For several years I have been taking 81 mg. ASA daily, but after my PVA,

the EP said that newer research is now saying again that this dosage is too

low, and I should go back to a regular aspirin a day, in addition to

Coumadin. I was too dozy to question him on more details about this

research. Does anyone have any knowledge or opinions about this?

>

>

>

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  • 2 weeks later...

In a message dated 9/28/2001 12:11:35 AM Eastern Daylight Time,

joks@... writes:

> I've got riddum, I've got sinus. I have hardly felt my heart at all over

> the last 3 days. I am now 2 weeks and a day, post-PVA. Just a few 'off'

> beats, but hardly disconcerting. This, even with the fact that I've done

> some hard cycling and long walking. My eyes hurt from keeping them crossed,

> together with my fingers and toes. Will see how it goes in a week or so.

> Leo

>

>

leo-

good to hear about your rhythm-hope this is finally the cure for you-jerry

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In a message dated 9/27/2001 9:11:34 PM Pacific Daylight Time,

joks@... writes:

<< I've got riddum, I've got sinus. I have hardly felt my heart at all over

the last 3 days. I am now 2 weeks and a day, post-PVA. Just a few 'off'

beats >>

Leo,

This is great news! I am so happy for you. Your news is also encouraging to

the rest of us who might be considering ablation at some point. Just keep

that heart dancing in sinus rhythm!

in sinus in Seattle

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In a message dated 9/27/2001 9:11:34 PM Pacific Daylight Time,

joks@... writes:

<< I've got riddum, I've got sinus. I have hardly felt my heart at all over

the last 3 days. I am now 2 weeks and a day, post-PVA. Just a few 'off'

beats >>

Leo,

This is great news! I am so happy for you. Your news is also encouraging to

the rest of us who might be considering ablation at some point. Just keep

that heart dancing in sinus rhythm!

in sinus in Seattle

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  • 3 years later...

,

That is so awesome!!! It will be no time before you can slide those new pants on

and not much longer after that before you will be thinking " dang it they are too

big! " . I love buying new clothes but I do admit hate saying goodbye to the ones

I just barely grew in and out of! I know while you are in those sizes you

continue to feel big but girl...LOOK HOW FAR YOU " VE COME! You are NOT ANYWHERE

NEAR The same size and you look fantastic the change already!!! You still have

some more fun to go ...each day a new journey on this trail to your new you!

Enjoy Enjoy...it is all coming to you one day at a time!

Hugs my surgery sis,

Kat

Shaffer wrote:

Darcy

I was at my grandmother's party for the whole afternoon till around 3:30

when I decided it was time to start the 3 hour drive home to where I

live and teach. I had a lot of stuff in the back of my truck to unload

once I got here. Some cousins kept looking at me over and over again.

Ok, I have not been to family gatherings on that side for many years to

see some of these people. The teenager's were in diapers the last time

I saw them! Eventually the staring souls must have asked someone else

WHO is that sitting over there????? A couple of them came up to me and

said I finally figured out WHO you were! I wear my hair short now, and

with the color and weight loss, it is a big change from their old image

in their brains. My cousin's girl, Doneille (who now has two kids of

her own and just saw me in a store in the past year) came over to me

with wide eyes and said wow, you have lost a ton of weight. She

repeated it twice. So it is nice that other's notice it. I keep taking

my pants in yet with water retention issues I still feel as fat as before.

Saturday I bought an XL sweatshirt at our fair elections & association's

yearly meal, and thought oh it will be a while till this fits. I was

just in 2XL and feeling comfy. I tried it on when we got home later it

fit. I am still convinced it will shrink when washed. But I will be

wearing it to school today. Friday night I broke down a bought a couple

light weight ribbed shirts with lace around their neckline at Walmart on

reduced clearence. 22/24 from a 30/32. I also liked some ribbed pastel

colored pants. Largest they came was XL 16/18 size. Since they were on

sale I bought them knowing eventually they would fit. When home I tried

them on. The tops are perfect now, the pants... I actually squeaked my

butt into them. They fit snug and show every evil bulge I want covered-

but they fit all the way up to the hips. I won't be wearing them in

public just yet till they do not fit as snug.

--

Lap RNY April 7, 2004

Dr. Petrick, Geisinger Medical Center, Danville, Pa.

SW 445, DOS 412, CW 316, GW 200

Friedabob on Yahoo Messenger if anyone wants to chat.

http://www.tiu11.org/~kshaffer/myphotos.html

Darcy wrote:

>

> thanks for sharing pictures, I can sure see the difference.

> But others can better than we can. There were people at the party

> last night that honestly didn't know it was me and I'm like look at

> my face, it's me.

>

To visit your group on the web, go to:

http://groups.yahoo.com/group/GastricBypass-LOSERS/

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Kat

Explaining the new clothes: I have been stuck in a locked scale numbers

rut for the longest time. LOL, I thought maybe if I bought some NEW

clothes... it might move? LOL, isn't that the case? Buy some pretty

new colors and you will soon become too small to wear them faster than

you can get them in and out of the washer dryer shuffle? SO, we will

see. The stuff I have been taking in is needing a more serious

altering- in the area of where the side pockets are. I could sew the

pockets shut and have them altered just right but an art teacher needs

her pockets. Altering around the pockets is just plain rude to do.

I have some classes that I should be taking coming up in the next couple

months so my time line will be altering to get some credits for Act 48

certification which runs out this June. Heard today from some other

teachers a Curves will be opening locally. WOuld be nice to have the

time- but I have my own gym in my spare bedroom. Just rarely have the

time to use it with the stuff I have been doing for school and chores

around the house that have gone undone for years.

Katharine wrote:

> ,

> That is so awesome!!! It will be no time before you can slide those new

> pants on and not much longer after that before you will be thinking

> " dang it they are too big! " . I love buying new clothes but I do admit

> hate saying goodbye to the ones I just barely grew in and out of! I know

> while you are in those sizes you continue to feel big but girl...LOOK

> HOW FAR YOU " VE COME! You are NOT ANYWHERE NEAR The same size and you

> look fantastic the change already!!! You still have some more fun to go

> ...each day a new journey on this trail to your new you! Enjoy

> Enjoy...it is all coming to you one day at a time!

>

> Hugs my surgery sis,

> Kat

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  • 1 year later...

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