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They are definitely still in business. Try:

www.sundancerebounders.com

When you get on that page, there are different ones you can click on. Ours is

the 50 " mega soft.

Let me know if that works.

Rhoda

Re: Trampolines

>

> My kids love it. They used it so much that I ended up

> having to replace it again seven months later. I just

> replaced it on August 18th (my son's birthday). It is

> in the middle of the family room and they take turns

> jumping to music on the television. I will never go

> another winter again without one.

>

> All the best,

>

> Jill

>

> __________________________________________________________Ready for

> the edge of your seat?

> Check out tonight's top picks on TV.

> http://tv./

>

>

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Hi ,

My sister-in-law with CFS (or is it CFIDS?) has

breathing difficulties. It scares me at times when I

see her or talk to her on the phone.

On another topic....

I was wondering, I know of a mother (from an autism

group) that had child on the spectrum and she suspects

that her child is suffering from CFS as well. Would

you mind if I gave her your email address? I think you

will be very helpful to her.

Thanks,

Jill

________________________________________________________________________________\

____

Moody friends. Drama queens. Your life? Nope! - their life, your story. Play

Sims Stories at Games.

http://sims./

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Thanks!!

On Aug 29, 2007, at 9:47 AM, Rhoda Boyd wrote:

> They are definitely still in business. Try:

>

> www.sundancerebounders.com

>

> When you get on that page, there are different ones you can click

> on. Ours is the 50 " mega soft.

>

> Let me know if that works.

>

> Rhoda

> Re: Trampolines

> >

> > My kids love it. They used it so much that I ended up

> > having to replace it again seven months later. I just

> > replaced it on August 18th (my son's birthday). It is

> > in the middle of the family room and they take turns

> > jumping to music on the television. I will never go

> > another winter again without one.

> >

> > All the best,

> >

> > Jill

> >

> > __________________________________________________________Ready for

> > the edge of your seat?

> > Check out tonight's top picks on TV.

> > http://tv./

> >

> >

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Good OTRs who are trained in sensory integration/regulation issues can be

very helpful in identifying what to do to get the necessary input--and

when...and how...and teaching the kids to start to recognize these needs and

how they can go about getting their needs met. Respirtatory dysregulation

could be considered a type of sensory regulation issue, I would think

ann

On 8/29/07, <thecolemans4@...> wrote:

>

> No he sure isn't. I sometimes think briefly of that,

> but it quickly escapes my mind. But he does love deep

> proprioceptive input - squishing, deep pressure, etc.

> He doesn't particularly show that many signs, though,

> of sensory problems that stand out as classic to me

> ... but then, he did last year - tepid water was

> 'hot', any little bump 'hurt'... while he was deep in

> CFIDS.

>

> I was thinking that it is dysautonomia, though.

> That's one of the things trampolines can help regulate

> from what I read. He has this breathing dysregulation

> too (which I think can be part of the symptom but I

> haven't looked it up lately) - sighs and 'gasps' and

> stuff, and it comes and goes without obvious triggers.

> I know he's going to have a rough time when I hear

> him start doing this. It's not anxiety that I can

> tell, though I do think he's more anxious and

> irritable when it's happening.

>

> I wouldn't be surprised if dysautonomia and sensory

> dysregulation go together or are one and the same.

>

> Thanks for the suggestion...

>

>

> --- Ann Osterling <aosterling@... <aosterling%40gmail.com>> wrote:

>

> > Is working with an OT for sensory

> > integration/self-regulation

> > issues? Use of deep pressure, as you can get from a

> > trampoline, can be a

> > very effective way of improving regulation,

> > attention, alertness, etc. If

> > this is working, you may want to see if an OT who is

> > trained in sensory

> > regulation issues is available to help you identify

> > additional ways to

> > achieve this improvement. Isn't it great that the

> > teacher saw such a

> > difference?

> > ann

> >

> >

> > On 8/28/07,

<thecolemans4@...<thecolemans4%40>

> >

> > wrote:

> > >

> > > Hi -

> > >

> > > I think I've mentioned this before, but want to

> > share

> > > w/you all again.

> > >

> > > After reading Dr Klimas talking about rebounders

> > for

> > > CFIDS, I had bought the boys a trampoline

> > (w/enclosure

> > > of course) to see if it helped w/his CFS

> > last

> > > year. It did.

> > >

> > > I think I also mentioned it seems to make him

> > sharper

> > > and brighter mentally. He had been having some

> > good

> > > days at school, then last week regressed pretty

> > badly.

> > > Yesterday we had a call from the teacher and a

> > long

> > > note (and you could pick up her frustration).

> > Today

> > > she called to ask what we had done or said because

> > he

> > > was sooo much better today ... very on task,

> > hearing

> > > directions immediately, etc ... The only thing

> > > different was he had spent at least 1/2 an hour on

> > the

> > > trampoline last night for the first time in a

> > week.

> > >

> > > That thing is cool. This isn't a proven hypothesis

> > > here, but it really does seem to increase his

> > focus a

> > > great deal.

> > >

> > > So anyway - I'm throwing that one out there again.

> > I

> > > would love to know if anyone else has had this

> > > experience too.

> > >

> > > Later-

> > >

> > >

> > >

> >

> __________________________________________________________

> > > Choose the right car based on your needs. Check

> > out Autos new Car

> > > Finder tool.

> > > http://autos./carfinder/

> > >

> > >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

> __________________________________________________________

> Moody friends. Drama queens. Your life? Nope! - their life, your story.

> Play Sims Stories at Games.

> http://sims./

>

>

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  • 3 years later...
Guest guest

>2a. Re: White water rafting

> Posted by: " " christinejones51@... christinejones333

> Date: Mon Aug 8, 2011 8:28 am ((PDT))

>

>Oh, sorry to butt in on a different subject but I just bought a 'family'

>trampoline.... Is that a big no no for my achon daughter? My daughter has had

>decompression surgery. Lailou is nearly 4. Any further advice most welcome.

>

, the Medical Advisory Board docs told me to stay away from

trampolines. Given the achon spine, landing on our back/neck the wrong way, or,

a fall on the metal or off the trampoline could cause serious injury. We used

the trampoline in gym when I was in junior high school (35-40 years ago) and I

never had a problem, but once I was told not to use it by the doctors, I

stopped. The chances of anything bad happening probably weren't real real high,

but given what could happen (paralysis, spinal damage, etc) my thinking was " why

take the risk? " .

Digest Number 5003

>

>There are 9 messages in this issue.

>

>Topics in this digest:

>

>1a. ear infections and ear tubes

> From: candilux_tade

>1b. Re: ear infections and ear tubes

> From: Casey Hubelbank

>

>2a. Re: White water rafting

> From:

>2b. Re: White water rafting

> From: My Email

>

>3a. Re: Knee docs around DeKalb, IL?

> From: Tolliver

>3b. Knee docs around DeKalb, IL?

> From: Tolliver

>

>4. UPCOMING EVENTS,REMINDERS,NOTICES FROM CHAPTER 13 D4

> From: Michele Charbonneau

>

>5. UPCOMING EVENTS,REMINDERS,NOTICES FROM CHAPTER 13 D4þ

> From: Michele Charbonneau

>

>6. loan or grant

> From: Ebarb

>

>

>Messages

>________________________________________________________________________

>1a. ear infections and ear tubes

> Posted by: " candilux_tade " canditorres@... candilux_tade

> Date: Mon Aug 8, 2011 8:28 am ((PDT))

>

>Hi everyone,

>I am new in the group, and still not sure how it works... I have a question,

and i would love some help. My nephew is 6 Y.O. he has achondroplasia and he

suffered from several ear infections.. After a while, the doctor recommended ear

tubes to drain his ears. They worked wonderfully, he could hear better and no

more infections!! and after a while they came out. Now, he has lost some

hearing.. ( not sure if this is permanent) and the doctor wants to treat the

ear infections with more meds.. but there is some concern about putting new

tubes ( more permanent ones). My question is.. have you gone through something

similar?? any suggestions or comments?? is it worthwhile to put the ear tubes??

>Thanks for your help!!!!!! ;-)

>

>

>

>

>

>

>Messages in this topic (2)

>________________________________________________________________________

>1b. Re: ear infections and ear tubes

> Posted by: " Casey Hubelbank " caseyhubelbank@...

caseyhubelbank@...

> Date: Mon Aug 8, 2011 9:08 am ((PDT))

>

>Hello,

>

> As this will be an ongoing issue, you would probably want to look into

>permanent T-Tubes in the ears. Replacing tubes every couple of years will

>lead to significant scaring which will lead to hearing loss. Doing it once

>with the t-tubes will last several years. I had them for 15-20 years. I can

>tell you that it was absolutely necessary in my case. In the past couple

>of years they have come out. I haven't had an infection yet so it seems as

>though I have grown out of them at this point. I went snorkling for the

>first time a couple months ago and loved it. My wife (also in her 30's) on

>the other hand who also had them for a similar amount of time and also

>currently lost them, has had some minor infections over the past couple of

>years easily treated with drops and antibiotics. (nothing like we had when

>we were kids)

>

>-Casey

>

>

>

>

>

>On Sun, Jul 31, 2011 at 10:35 PM, candilux_tade <canditorres@...>wrote:

>

>> **

>>

>>

>> Hi everyone,

>> I am new in the group, and still not sure how it works... I have a

>> question, and i would love some help. My nephew is 6 Y.O. he has

>> achondroplasia and he suffered from several ear infections.. After a while,

>> the doctor recommended ear tubes to drain his ears. They worked wonderfully,

>> he could hear better and no more infections!! and after a while they came

>> out. Now, he has lost some hearing.. ( not sure if this is permanent) and

>> the doctor wants to treat the ear infections with more meds.. but there is

>> some concern about putting new tubes ( more permanent ones). My question

>> is.. have you gone through something similar?? any suggestions or comments??

>> is it worthwhile to put the ear tubes??

>> Thanks for your help!!!!!! ;-)

>>

>>

>>

>

>

>

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