Amy Paddick

[Guest guest]

East Anglian Daily Times Letters.

They never really were true friends if, when Amy Paddick (Amy so tired of

coping with ME, East Anglian Daily Times, 10 May 2007) was diagnosed with M.E.

(Myalgic Encephalomyelitis) , they left her feeling alone and isolated.

It's their way of dealing with the ignorance of this dreadfully debilitating

illness; they disbelieve it, they create myths and they make jokes, belittling

the illness and the sufferer.

Sadly, it's not only kids who do this to each other. Some sceptical doctors do

exactly the same things to avoid having to say they don't understand M.E. and

some researchers are spending £millions on sticking plaster solutions, instead

of admitting there is a physical cause, waiting to be discovered and crying out

for the money they are squandering on management techniques of Cognitive

Behaviour Therapy (CBT) and Graded Exercise Treatment (GET) that either do not

work, or make matters worse.

It will take some time but we will get there sooner if Government advisers

change the priority of funding to biomedical research.

Yours sincerely