Any suggestions very welcome

[Guest guest]

Hi,

I am new here and would love to have some feedback please.

I went to see my doctor (about 2 yrs ago) because of some on-going pain

in my back, arm and hand, these symptoms went along with low-mood

(can't-be-bothered-to-do-anything mood), severe dizziness & tiredness

(i had also just had a baby so tht wld have explained the tiredness).

The doctor pressed the sore point in my back, said i had fibrocitis and

with that almost pushed me out of the door. On asking for more info, I

was told it was an inflamation of the muscles. Anyhow on searching the

net, I believe that in his opinion I have fibromyalgia.

I now visit a different surgery, and the doctors here have not shown

much interest in me questioning FM. I have had lots of tests to rule

out anything 'testable', but FM is not really talked about.

Now I don't really know whether I do have FM, especially as on reading

the messages on here it seems tht people must be in an awful lot more

pain than I am. I am not on any medications.

I have had upper back ache, where I could not lift my head up of the

pillow without supporting it- basically pushing my head up with my

hands. And for the last few weeks been suffering with lower back pain.

Here again I noticed this weakness,where I had to move/support my legs

in order to make certain movements. It's like some muscles get so weak

that I cannot use them at all. I don't know if any of this makes any

sense to anyone..

Then there's the dizziness which has not been too bad recently and of

course the brain fog and the pains in my legs, restless leg??, hmm I

don't know, it feels like I want to digg something into my leg, but I

also get that same sensation in my arms, hands and feet.. but as I

don't have all the symptoms all the time and I can manage without pain

killers, (except the back ache)I almost feel like my symptoms are not

bad enough for me to be here. But I am hoping that some of you can give

me a bit of feedback please, to be able to get an idea of these

illnesses..

From what I have read I have some of the symptoms of FM and CFS, but

what is it really?

Thank you very much in advance.

[Guest guest]

I have FMS and have problems with my lower back quite

a bit. I don't think inflammation is a sign of FMS

though. I have Rheumatoid Arthritis with my FMS and

CFS. He might want to do some blood tests though to

see if the inflammation is an inflammatory arthritis

going on.

--- msjanata wrote:

> Hi,

> I am new here and would love to have some feedback

> please.

>

> I went to see my doctor (about 2 yrs ago) because of

> some on-going pain

> in my back, arm and hand, these symptoms went along

> with low-mood

> (can't-be-bothered-to-do-anything mood), severe

> dizziness & tiredness

> (i had also just had a baby so tht wld have

> explained the tiredness).

>

[Guest guest]

Hi and Welcome, what’s your name? Sounds like you should see a

Rheumatologist and a Neurologist to me…where do you live –

Britain/US/Canada? What you are experiencing could be many things and it

sounds like you need a thorough workup. Meanwhile, have you tried

chiropractic or acupuncture? Both may help to resolve these symptoms,

depending on what is actually going on. (I don’t mean either is a cure for

ME/CFS/FM). Sandrea is right, the amount of pain varies widely and our

reactions to it. I mostly don’t do meds because of many drug allergies, so I

suck it up, but sometimes it’s hard. I’m not in pain all the time, but I do

a lot of other stuff (treatments and supplements) which help to a degree

..But there are those here on Morphine and a lot worse off than me. It’s all

relative…TC and Good Luck, Aylwin

[Guest guest]

Hi, well as someone who has shifted from Fibro more towards RA, I would say

that the pain is different…right in the joints, although for me that sets

off the muscle inflammation too. Your doc is very behind the times if s/he

is calling it fibrocitis. IMHO inflammation is inflammation, it just occurs

in different ways & places. Aylwin xox