Guest guest Posted May 4, 2004 Report Share Posted May 4, 2004 Elana: The first thing you did right was to find this wonderful group. They have " been there, done that " and have the answers to prove it. I am fairly new also. I like knowing what to expect. It takes away the shock value when new things happens. You can just say, " Someone says that happens to their loved one so it must be Lewy. " They understand all areas of frustration and, most important, feelings. My 66 year old husband has LBD and was dx 11/2003 but showed symptoms since 2000 or before. I belong to both " spouse " and " caregiver " groups. Let us know what meds your mother is on and where you are located. Location isn't important since we are only an e-mail away. in Texas new to this > Hi all - > I'm new to this group plus I've never posted anything before so > hopefully I'm doing this right. Have been trying to read through the > slew of emails I got over the past two days since joining. > My mom has LB and was diagnosed several years ago. Originally she > was diagnosed with Alzheimer's but as her symptoms of twitching and > tremors progressed, her neurologist rediagnosed her with LB. I guess > she's in the early stages so she still lives at home (alone) with an > aid coming in three times a weeks to do laundry, clean house, take > her to appts., etc. I am an only child plus my mom is divorced so > everything falls onto my shoulders. It's been an especially hard > past few months since my mom was hospitalized with acute back pain > from pinched nerves. She really deteriorated while she was in the > hospital and while she's improved to some degree she really isn't > back to her " old " self. Things just seem to be getting harder and > I'm so tired and worn out all the time. I try to take things day by > day because I just don't want to think about the future, it all seems > so overwhelming. I'm always hoping my mother wil improve and be able > to do the simple things she could do only a couple of months ago. > I don't really know what else to say so I guess I'll end this post > now. It's nice to know there's a LB group that exists since I belong > to an AD group where I live but almost no one I know has heard of LB. > > Elana > > > > > Welcome to LBDcaregivers. > > > Quote Link to comment Share on other sites More sharing options...
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