Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 Hi Lucy, Welcome to the group. You seem to have joined us at a time when there is a bit of I virus problem. Never mind. It will pass. You said that your mum can't speak now and that you were upset by it. My mum has multiple sclerosis (dad has LBD). Her speech was getting worse and worse over the months. I remember one Saturday morning when my dad put mum on the phone to talk to me and I couldn't understand her. It was so upsetting. I sat on the floor and cried. Felt it was my fault for not being able to understand my own mum. Take care of yourself (in Kent, England.) Re: new subscription Hi Josie, thanks to contact me. I AM REAL and I am from Italy, so sometimes I have some probles of language, expecially when you write down abbreviations like pg, mi etc. Anyhow I am sure you can help me on the run! Unfortunately I am here for bad problems in my family: my Mom (77 in May) has LBD, very hardly diagnosticated late last year. At the moment she can not speak, not walk, not eat alone and sleeps almost all the time. I really really sad, as you can imagine as I live far from her and I miss a lot her voice by phone. In the past decade there wre only some ciao and simplest sentence but now she has fallen in silence that probably is out of code in this illness. Can you help me in explaining? Can I do something? I miss my Mom a lot. All my love Lucy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2004 Report Share Posted April 2, 2004 Lucy: We truly care about one another on this site so we not only talk about LBD but care about one another as people so we like to know what's happening to one another in general. I don't think we would function quite as well if we only talked LBD nor do I think we would have developed the level of comfort and warmth here if we did. Everyone has commented on how this, among many other things, makes this particular site so special. You can write to me in Italian but I warn you I won't be able to write you back. I can read and speak Italian very well since I was raised by a grandmother who only spoke Italian but I don't feel confident writing in Italian. Plus, I need to translate what you say so my friends here will understand too. I hope you come to see this board as wonderful as I do. Abby > Luciana Mirenghi & gt; Luciana Mirenghi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Hi Lucy, Is your mother taking Seroquel or any medications for hallucinations? My mother was taking this medication and she became very quiet. I cut the medicine in half and now she can talk again - not as much as before but it is better. Courage Re: new subscription > >Josie, > >thanks for the message. I can write to all of you, >meanwhile working. It is not nice, but the only way to >communicate with you. >I decided to join the group as I felt this kind of illness >frighten too much and I was starting to feel rather alone, >with a bigget " hole " since three weeks ago when Mom >stopped speaking at the phone. I am living far from her, >and my original family as I work and I am married here 100 >km far. So the phone was very important to " feel " her. I >can hardly believe that she cannot say a " yes " or a sound >anymore. I am sure she can ear, in fact at first I was >speaking with her without any answer, but maybe it was >helping only myself to " denie " what was happening. >Now I am aware she is quickly going down. Since last year, >she has lot a lot and bocomed passive at all. >How much does it last? I have an older sister and we both >are asking if she suffers inside eventhough we can not see >any sigh on her face. >The doctor says she forgets as easily she can feels >elementary things. But I am not sure. The last time I was >to her when I told her I was going with my familiy she >started to cry in a strange way. It was really breaking my >heart as this confirms that all LBD people can feel >exactly as we do. Probably there is, in some cases, no >strenght to speach or to move eyes and face. But I believe >they all can feel and not in a elementary way. What's your >opinion? >Love to you and everybody >Lucy > > > >On Wed, 31 Mar 2004 08:29:17 EST > regattabh@... wrote: >Luciana Mirenghi >Luciana Mirenghi >Luciana Mirenghi >Luciana Mirenghi >Luciana MirenghiDear Lucy: >Luciana Mirenghi >Luciana MirenghiWelcome to this site. & nbsp; We are here to >Luciana Mirenghigive you support and information. & nbsp; >Luciana MirenghiPlease tell us about your loved one with >Luciana MirenghiLBD, the symtoms that are present and how >Luciana Mirenghiyou are coping. & nbsp; I will add you and >Luciana Mirenghiyour family to my LBD prayers, God bless >Luciana Mirenghiyou, hugs, >Luciana Mirenghi >Luciana MirenghiJosie >Luciana MirenghiMiami, Florida, U.S.A. >Luciana Mirenghi >Luciana Mirenghi >Luciana Mirenghi[Non-text portions of this message have >Luciana Mirenghibeen removed] >Luciana Mirenghi >Luciana Mirenghi >Luciana Mirenghi >Luciana Mirenghi >Luciana Mirenghi >Luciana MirenghiWelcome to LBDcaregivers. & nbsp; & nbsp; >Luciana Mirenghi >Luciana Mirenghi >Luciana Mirenghi >Luciana Mirenghi >Luciana Mirenghi >Luciana Mirenghi >Luciana Mirenghi >Luciana Mirenghi >Luciana Mirenghi >Luciana Mirenghi >Luciana Mirenghi Quote Link to comment Share on other sites More sharing options...
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