Re: For Debbie about Hallucinations

[Guest guest]

My mother tells me lately that she has a man locked in her sock

drawer.

And yes, misery does love company.

> Hey Debbie! Yep, my Gram has hallucinations just about 24/7.

There

> are 3 kids that live in the kitchen. There is a mother &

daughter.

> There are the three guys (they are country western singers), the

two

> little boys in the other bedroom, the man that lives in the pie

> plate, and a few others. She also has 3 baby bunnies, 1 rabbit,

and

> 1 lamb. She talks about " the people " sitting on the furniture.

> There was an incident (and my Gram is NOT prejudice) where she kept

> seeing black people (but she didn't use those words - used the n

> word) who peed on her couch. She has never used that word before

or

> since -- don't know where that came from. She called the cops

about

> it which started a whole different set of problems. But that has

> been taken care of now. Most of the time, " the people " don't

bother

> her, but there are times that she gets irrated with them for not

> bathing or taking up too much room in the bed or not eating the

food

> she puts out for them or whatever. She never has a problem with

the

> animals.

>

> I hope this makes you feel a little less alone in this whole bad

old

> Lewy mess. I know that I was so tickled to find this group --

> although it was somewhat like a leper walking into a leper colony --

> " Hey, you have spots too!! "

>

> Peace,

> Wolfie

[Guest guest]

Okay you made me laugh to tears with this post. The man in the pie plate

caught me off guard. Thank you for allowing me to laugh at something that

otherwise would cause us to cry. And you are right about the leper

colony...hahahaha...what would people say about our " commune " ? I have

actually wondered what it would be like to be in the same room with more

than one person with LBD. I am guessing that when someone hallucinates and

they hear them but don't see what they see, they would make a comment like

" the poor old thing, she's lost it... " Either that or they would jump on

the bandwagon and begin to see what the other saw and add to it and we would

get the sense that we were the ones with something wrong with our brains.

One way or the other it would be interesting to watch and no doubt would

probably make me laugh.

I hope no one thinks that I am insensitive to the LO's suffering. I just

really feel you need to laugh at every moment you can, before they are

stolen away from us.

Kath

For Debbie about Hallucinations

> Hey Debbie! Yep, my Gram has hallucinations just about 24/7. There

> are 3 kids that live in the kitchen. There is a mother & daughter.

> There are the three guys (they are country western singers), the two

> little boys in the other bedroom, the man that lives in the pie

> plate, and a few others. She also has 3 baby bunnies, 1 rabbit, and

> 1 lamb. She talks about " the people " sitting on the furniture.

> There was an incident (and my Gram is NOT prejudice) where she kept

> seeing black people (but she didn't use those words - used the n

> word) who peed on her couch. She has never used that word before or

> since -- don't know where that came from. She called the cops about

> it which started a whole different set of problems. But that has

> been taken care of now. Most of the time, " the people " don't bother

> her, but there are times that she gets irrated with them for not

> bathing or taking up too much room in the bed or not eating the food

> she puts out for them or whatever. She never has a problem with the

> animals.

>

> I hope this makes you feel a little less alone in this whole bad old

> Lewy mess. I know that I was so tickled to find this group --

> although it was somewhat like a leper walking into a leper colony --

> " Hey, you have spots too!! "

>

> Peace,

> Wolfie

>

>

>

>

> Welcome to LBDcaregivers.

>

>

>

[Guest guest]

Dear :

Welcome to the group. I am so sorry this LBD has hit your dad so early. I

am 59, so I can relate to his age. I still feel young. My dad passed in

August '03. He was 89.

He had been very healthy all his life, but after he started showing real LBD

symptoms (he wss never diagnosed), his health deteriorated and he lost a lot

of weight and muscle tone as well. He was at home with my mom until the last

month and a half of his life that he was in and out of the hospital.

Your dad seems to be deteriorating very quickly. I don't think he is going

to go on for 20 years, although he is so young. I hope you find the

appropriate place for him soon. You may have to start looking at a place

several steps

ahead of where he is now. Not easy, since we never know where they are going

with the illness. I'll keep you in my prayers,

Josie

[Guest guest]

,

Welcome to the group. God be with you because this is a very difficult

disease. My mother just recently died and she maintained for a year and a

half and then just seemed to do a complete turn around and progressed very

fast. That is the one thing about LBD is that it is very unpredictable.

M

>

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>Subject: Re: Re: For Debbie about Hallucinations

>Date: Fri, 5 Mar 2004 11:39:45 -0600

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>

>Hi, I'm new to the list. My father has been diagnosed with Parkinson's

>with " Alzheimers type dementia " but someone said it might be LBD and the

>more I read, the more i think it is. I was commenting on how it seems to

>go minute by minute. I am constantly off balance not knowing whether he is

>'in' or 'out'.

>

>Last night was something new though. He seemed to be asleep and I think he

>sort of was. He talked for like five hours straight. It was sooo wierd

>because the conversation he was having with someone was so detailed. He

>would even pause exactly the right amount of time for the other 'person' to

>answer. He talked about all sorts of things. It was just strange. I kept

>expecting to hear the other person. It sounded like a phone conversation,

>where you hear half of the conversation. Is this common? He has

>progressed sooo fast. A month ago he was driving, taking care of himself

>although some memory problems. In the last month he was went to not being

>able to bath himself, drive, take his medicine, lost 15 lbs this month

>alone. But has lost 50 since last May. I am stunned. Everytime I start

>the process on getting him in a home, he moves past the ability of the home

>to take care of him and I have to find a more skilled home. He has yet to

>get in one. Plus he's bucking me on moving out of his apartment that he

>has lived in for 26 years. I have been his caretaker, but with a full time

>job and three kids, it's gotten too hard on me.

>

>Anyway, thanks for listening and I can't wait to learn about this. Is this

>common though? The speedy progression with it. I mean is this something

>ot live with for years to come? Or does it go pretty quick. I guess I

>just want to know what to expect. I hear of Alzheimers pateints living for

>20 years and I can't imagine that at the point he is already. He has

>serious heart problems and hardening of the arteries too. He was supposed

>to have a five artery bypass but didn't qualify because the only arteries

>not blocked were destroyed with scar tissue from prior heart attacks. It's

>so sad because he is only 60.

>

>

>

>

>