A book

[Guest guest]

Hi all -

As I mentioned, it is an OCD-driven wish of mine to

prepare a comprehensive book on ... not that I

could publish it, but not that I wouldn't at least

try... but that seems unlikely given all that is

involved in something like that, plus my not having

any sort of degree. But still, something to be

available to people first learning the hypothesis

and trying to process it all. I remember just how

step by step I had to learn (fortunately during a very

actively educating period on this group), and really

want to break it down for new people. I wanted to run

this by you all...

My dream of the book is to include the info from Dr G

(pending his approval, which I once had but am not

sure if it still stands), all the little details like

washing off the blue dye to details about probiotics,

as well as immune system info, history of the

research, breakdown of all the medications used,

reasons why parents should not attempt some therapies,

or at the very least (to not alienate too many),

mention some considerations when trying to decide on

this therapy. I'd like to address the parental grief,

guilt, and the impact on families, include arguments

and alternate opinions, and even the details that

compare all the typical findings in our kids and how

they can trace back to the immune system... like

anemias of chronic infection, B12 & Folic acid

deficiencies or very high levels, the diet and why you

don't start out at the most extreme, ways to implement

it with lots of peoples' different methods, labs and

how to at least begin to interpret them from a

point of view in addition to doctor guidance (pointing

out common markers), and MOST of all, how to get

illness documented properly (a problem I DEFINITELY

had), and quote so many research articles that it's

downright obsene. Of course, it would not be

well-received by the pro-DAN! people since i would

certainly give lots of reasons NOT to chelate,

megadose vitamins, necessarily go GFCF unless

definitely needed, HBOT therapy, and all the other

things that cost a fortune and may hinder progress

despite perceived improvements, but I'd want to

support those reasons as well.

Would this be well-received? Something I could print

out and make available to people? I remember it took

me months to begin to absorb the data, and another two

years to truly get the overall picture and confidence,

and that was with 2 years of weekly chats where Dr G

answered just about every question (as I tended to

rudely monopolize chat with my OCD and in my desperate

desire to know every tiny detail plus my 120wpm typing

lol-and I still apologize for that!). It seems if it

could all be summarized in something that could be

held in hand rather than hours stolen at a computer

terminal, people could gain a more rapid understanding

about what this is all about. Also, if Dr G could

give us a specific example of what he means about how

we should be focusing a certain way, put it in also.

Would this be worth it, and would everyone help? Or

am I nuts to think I could take this on?

Dreaming again today...

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