Re: When did your pmg child start having seizures??

[Guest guest]

My daughter started getting them a month before her 4th birthday.

Bower (Mother Lucy now 10)

[Guest guest]

5 yo the seizures started for my son. 

Subject: When did your pmg child start having seizures??

To: polymicrogyria

Date: Friday, August 13, 2010, 8:59 AM

 

Just wanting to see if its normal that she hasn't yet at 16 months. This

being behind in her skills like crawling and walking just drives me nuts as she

was so tiny when born that she would also be behind in all of these things due

to being a preemie.. So its kinda like how do you know whats from the pmg and

whats from the prematurity?? They say when she is 2 years she should be caught

up,, so then maybe anything after that it will be the pmg keeping her behind??

[Guest guest]

Month after her 4th birthday. That was 3 months ago.

Sent on the Sprint® Now Network from my BlackBerry®

Re: When did your pmg child start having seizures??

My daughter started getting them a month before her 4th birthday.

Bower (Mother Lucy now 10)

[Guest guest]

Leah was 10 weeks old when she had her 1st seizure. She actually went into

Status Epilepticus for about 40 - 50 mins. I was so afraid I was going to lose

my baby. She was taken by ambulance to the ER, I met them there, and when I saw

her actively seizing like that it was the worst feeling of helplessness I have

ever felt. Nurses, techs, hovering over her trying to get an IV started, after

IV started, she was given 1 mg IV Ativan followed by another 1 mg Ativan before

finally seizure stopped. They did CT scan which revealed a cyst vs tumor in the

left frontal temple lobe. She was transferred to Riverside County Regional

Medical Center Pediatric ICU. Her first year of life was the hardest. She is 8

now with many medical conditions but I am so happy for each day I have with her.

Elena

>Month after her 4th birthday. That was 3 months ago.

>

>

>Sent on the Sprint® Now Network from my BlackBerry®

>

> Re: When did your pmg child start having seizures??

>

>My daughter started getting them a month before her 4th birthday.

>

> Bower (Mother Lucy now 10)

>

>

>

[Guest guest]

My daughter has a cyst also, they found it when I was 20 weeks pregnant, and her

first year was really bad too, I don't know how many trips to the er.

Sent via BlackBerry from T-Mobile

Re: When did your pmg child start having seizures??

>

>My daughter started getting them a month before her 4th birthday.

>

> Bower (Mother Lucy now 10)

>

>

>

[Guest guest]

1 year

________________________________

To: polymicrogyria

Sent: Sun, August 15, 2010 6:11:37 PM

Subject: Re: When did your pmg child start having seizures??

Month after her 4th birthday. That was 3 months ago.

Sent on the Sprint® Now Network from my BlackBerry®

Re: When did your pmg child start having seizures??

My daughter started getting them a month before her 4th birthday.

Bower (Mother Lucy now 10)

[Guest guest]

My son was born 4 wks early, and began having seizures at about 4 wks old.

Subject: When did your pmg child start having seizures??

To: polymicrogyria

Date: Friday, August 13, 2010, 12:59 PM

 

Just wanting to see if its normal that she hasn't yet at 16 months. This being

behind in her skills like crawling and walking just drives me nuts as she was so

tiny when born that she would also be behind in all of these things due to being

a preemie.. So its kinda like how do you know whats from the pmg and whats from

the prematurity?? They say when she is 2 years she should be caught up,, so then

maybe anything after that it will be the pmg keeping her behind??

[Guest guest]

Mine son is almost 5 in dec. He was delayed and a 33 week preemie he crawled at

23 months and walked at 28 months. He has not had any seizures so far.

Subject: When did your pmg child start having seizures??

To: polymicrogyria

Date: Friday, August 13, 2010, 12:59 PM

 

Just wanting to see if its normal that she hasn't yet at 16 months. This being

behind in her skills like crawling and walking just drives me nuts as she was so

tiny when born that she would also be behind in all of these things due to being

a preemie.. So its kinda like how do you know whats from the pmg and whats from

the prematurity?? They say when she is 2 years she should be caught up,, so then

maybe anything after that it will be the pmg keeping her behind??