ME/CFS -support Nevada Institute

[Guest guest]

From: Pat Fero Via: Co-Cure Moderator

Announcing CFS National Awareness Month

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Please come to Carson City, May 14th at 9:00 A.M. and support

funding for this Nevada Institute!

The Whittemore Institute for Neuro Immune

Disease, to be located at the University of Nevada, Reno,

is the first Institute in the nation to provide clinical care,

research and education for patients with CFS,

Fibromyalgia and other chronic neuroimmune disorders.

* These diseases affect millions of Americans and can

create life long disability and intense suffering.

* CFS strikes people of every age, ethnic origin and

socioeconomic level

* CFS has a severe economic impact: 9.1 billion dollars

in lost wages

* Most patients are suffering without adequate medical

care or proper diagnosis.

* Currently there are no FDA approved biomarkers for

these diseases but multiple neuroimmune abnormalities

have been documented by researchers around the

world.

* These include:

# inadequate immune responses

# abnormal neurological findings

* Effects of these disorders include chronic viral

reactivation, diffuse bodily pain, profound loss of

energy, orthostatic intolerance, cognitive difficulties

such as short term memory loss, and word finding

difficulties and gastrointestinal dysfunction.

* Full recovery from CFS is estimated at 5% to 10% of all

patients.

Physical symptoms can be severe and can have profound

effects on work, school, and family life. Some patients can not

perform tasks of basic living such as eating, showering or sitting

up in bed. They may require a wheelchair or be completely

homebound.

Support research funding through the Whittemore

Institute, to find the cause, effective treatments and a cure by

writing or calling your legislator today. You can make a

difference!

Annette Whittemore, Founding Director

e-mail: Annette.Whittemore@...