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Coyote

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Sometimes I really envy the people whose LOs go quickly and

suddenly...like my aunt who had a massive heart attack in her sleep

and never even woke up...even though I know that would be

traumatizing, we wouldnt have to " mourn " for 5-7 years or

whatever... BEFORE they die! I tell ya, if I have a choice of

inheriting my Mother's " heart attack " genes over my father's LBD

genes...I'll take the heart attack!!

> Your dad sounds like such a sweet man. I hate how LBD so often

seems

> to ravish these kind souls who mean so much to a family and are

proof

> of the existence of goodness.

>

> For me, the vulnerability that LBD leaves our LOs in is the very

> worst part. I hate that grown people start sounding either

terrified

> or angry and unrelenting depending on the day.

>

> Thanks for sharing that conversation with us Coyote. I do that

too.

> I write down meaningful convos with my dad because I don't know

how

> many I have left.

>

> Hang in there friend,

>

> Abby

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> Sometimes I really envy the people whose LOs go quickly and

> suddenly...like my aunt who had a massive heart attack in her sleep

> and never even woke up...even though I know that would be

> traumatizing, we wouldnt have to " mourn " for 5-7 years or

> whatever... BEFORE they die! I tell ya, if I have a choice of

> inheriting my Mother's " heart attack " genes over my father's LBD

> genes...I'll take the heart attack!!

Same here...If only we had a choice,

Abby

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  • 1 month later...
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Coyote:

Yes, it's really hard to cope with days like the one you had.

I remember that when my father was in the hospital, he started

talking about a party in the garden and that he wanted to go there,

asking whether the invited people arrived already, and so on. My

sister and I looked each other, trying to ask him what party he was

talking about, but he insisted to go in the garden and that we should

go at the elevators to receive the guests... My sister and I went to

the doctor and told him what was going on. What followed was pretty

funny because the doctor said it was normal he was confused, but he

went to my dad, asked us to wait outside and we could hear he was

asking my dad his name, his address and so on. My dad answered

perfectly, then the doctor asked him about this party and, a couple

of minutes later, the two nurses who were also in the room, recalled

that they were talking about a party while changing the bed in the

morning, so it became clear that my dad heard the two nurses talking

about a party and then made up a story. The funny thing was when my

sister and I went back in te room and he looked at us and said

smiling: " you two stupid girls, what did you tell the doctor? Did you

tell him that I said nonsense? " . We laughed a lot. This just to say

that LBD patients in some momento do not get everything and try to

make sense somehow out of what they heard. The problem is that it's

hard for us to understand them...

I wish you better days.

All the best,

la

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  • 2 weeks later...
Guest guest

Hi:

Nice to " talk " to you again. I know we've both been so busy and

haven't been on here much lately but you're never far from my

thoughts (nor is your dad as I wonder often if he's faring well at

the nh. I recall you had a few rough days - a dining room broohaha

erupted when your dad tried to leave the table early right?) Well, I

hope that's resolved itself or at least you've reached some happy

medium.

What are you doing to celebrate your dad's 73rd? Do you feel

confident taking him out of the nh? In our case, we generally ask

the nh to give us their party room ro conference room if it's just us

and we bring the food there. Whatever you do to celebrate, have an

awesome day with him! I was fortunate enough to have been born on my

dad's birthday so his birthday will be one I can never forget.

I hope my dad has a much better day today too. God, that wouldn't

take much. He was absolutely horrible yesterday, Coyote! It was

frightening! For the most part, LBD has created this gentle, easy-

going character in my father. No sign of that now! I'm hoping we

get some of it back.

His nurse told me he slept very, very little and was extremely

agitated all night. He also talked to himself all night and in

Italian. The poor people who are in his room (there were no

semi=private beds available when my dad came out of ICU so he's in a

quad room. Bet that will change real fast now that this beast has

returned with a vengeance.) She said he was somewhat quieter now and

appears a bit more lucid. I'm looking at this as possibly an

indication that he's turned a corner - or so I hope!!

Thanks for your good wishes Coyote. They do mean so much to me.

I hope your dad has a fabulous birthday and that your celebration

with him brings laughter to you all.

Abby

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