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If you have not sent me a listing of where you live, feel free to do so and I

will add you to the list. Please include any other info. you might want to

share such as LO's age, what stage they are in etc.

Here is the new list as promised. I will continue to update daily.

Kath

CANADA

Mark (mwmcelwain)-not sure where

ONTARIO

Coyote--I think it is St.s?

AJAX

Annette McColl

BALMERTOWN

Carol--I am in Balmertown Ontario. Which is north of Dryden

(Northwestern ON). My sister in law is caring for my mother

in-law in Winnipeg, Manitoba.

KLEINBURG

Abby-LO is her dad

STONEY CREEK

P-- My mother has passed from LBD but I still read every day. I live in

Ontario, Canada, in the city of Hamilton (actually Stoney Creek) I have an

uncle living in Winnipeg, Manitoba who also has LBD. His story is like a

replay.

TORONTO

Kath--East End, near Woodbine Subway Stn.--LO is mother Marg Grant age 79 dx'd

LBD in Oct'02, mid stage

Courage--I live in Downtown Toronto. I'm closer to the financial/theatre

district. LO is Olivia.

ENGLAND

KENT

Hodgson

Sally Rodgers--North Frith Farm

Ashes Lane

Hadlow

Tonbridge

Kent TN11 9QU

That's in the south east corner -about 35-4 miles south

east of London. Near

Tunbridge Wells, Sevenoaks and not too far from Dover.

LO--Father Colin Clive Cashmore, diagnosed ?LBD August 2001. Died October 21st

2002 at age 67 yrs. - brain autopsy confirmed Diffuse LBD.

IPSWICH

Janet Noble-I live in Ipswitch England with husband who was born here but I come

from

Leicester in the Midlands England

NEW ZEALAND

Pearce

UNITED STATES OF AMERICA

ARIZONA

CHANDLER

Lynn Whitman--I am in Chandler, Arizona...a suburb of Phoenix. I plan on staying

in touch with the group...to help when I can. (Lynn's dad recently passed away)

CALIFORNIA

Joni--anyone know about Joni?

CATALINA ISLAND

Edie-- (LA area) LO Husband at home with myself and part

time hired caregiver

LAFAYETTE

Jan Colello-suburb of San Francisco, LO is husband Jim, dx w/LBD 10/03

SAN DIEGO

Tori Hawk

SANTA ROSA

Jim Whitworth in Santa , California

COLORADO

DENVER

Gail Jessup, Denver, Colorado, Father, Joe Lee, in Florida, diagnosed in

September, 2003

FLORIDA

MIAMI

Josie- I am in the area of Baptist Hospital and South Miami Hospital, in case

there are any other LBD families in the area. You can also add my dad, who

passed on August 18, 2003.

PORT ST. LUCIE

Elaine--my beautiful mom lives in Hanover Twp., PA, and is cared dearly by my

wonderful sisters, Sharon and .

WEST PALM BEACH

Peggy (uspms) relocating to West Palm Beach, Florida

ILLINOIS

CHICAGO

Robin (haleybale)--I live in a northern suburb of Chicago and my Dad with LBD

lives in central

Illinois (Decatur).

PEORIA

(janeymar54)

INDIANA

BLOOMINGTON

Hi, I'm Deb Curtis and I live in Bloomington, Indiana. My LO is my 87-year-old

mother, Virginia Barden, who lives on a special care dementia unit of a nursing

home within 10 minutes of me here in Bloomington, so I get to visit her daily.

My 4 siblings and I moved her here from her assisted living apartment where she

lived with our dad in North East, PA, until his death in June 2002. Her memories

are of NY State, though - Ripley, in Chautauqua County where she and Dad raised

all of us and Gansevoort, NY, where she was born and raised and where her sister

and my oldest brother live. Her mind takes her to all of these places during the

day so I have to figure out where she' " been " so I can respond appropriately.

I'm sure I exasperate her at times for not " keeping up " !

INDIANAPOLIS

field

IOWA

Debbie (craftygma1)

Wolfie (luvmypugprincess) in Iowa, LO Gram age 83

DES MOINES

Sandie-no longer with the group (please feel free to fill in information)

GEORGIA

TIFTON

Jackie Gibbs

KANSAS

Kareysue-I'm , I live in Kansas, in a small town right in the middle of the

state. Mom was dx with

LBD in the summer of 2003 and is in nh since January of 2003.

LOUISIANA

SHREVEPORT

Piper--It is in the northwest part of the state, near Texas and

Arkansas.

MASSACHUSETTS

Annie P. - I'm North from Boston, about 30 miles North, actually I'm on the New

Hampshire/Mass. Line. I live in a town called

Methuen.

MICHIGAN

DETROIT

Donna R.(mido101)---Sub of Detroit MI

OHIO

Sandy--LO is (mother-in-law)

CINCINNATI

Phyllis 68 Husband Jim 76 dx LBD 2003

OREGON

VALE

Joanne Recla--cared for Mother (deceased 12-22-2003)

NEW JERSEY

.... lives at the shore in New Jersey. My 80 yr. old mom with LBD lives

in land, but stays with me for weeks on end.

NEW YORK

BROOKLYN

Imelda Fagin, caring spouse to Wil

PENNSYLVANIA

PITSBURGH

Debbie Cole-Weber

GROVE CITY

Donna Pearce--On here I am Donna Lee.

STATE COLLEGE

-My LO is my Dad, Bruce, diagnosed March 2004.

SOUTH CAROLINA

CHESNEE

Pat Caldwell, caregiver for husband, Stan Caldwell, Dx'd Oct.

2002. Joined group Aug. 2003.

TENNESEE

NASHVILLE

Betterton

TEXAS

Young

Fowler (lauraf13) - LO Billie (Mother age 76)

FORT WORTH

--LO

LUBBOCK

Penny, mother in Austin Tx.

WASHINGTON D.C.

THeresa--I live in the land suburbs of DC and my Mom with LBD lives in

Manitowoc, Wi.

WASHINGTON STATE

Kathy Larsen

Rathbone

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Guest guest

I am in Hagersville, Ontario, Canada. My Dad, Jim White, was

originally dx w/Alzheimer's a few years ago then more accurately dx

w/LBD last August and has progressed extremely rapidly through all

the stages since. He turns 73 in April.

Coyote

> If you have not sent me a listing of where you live, feel free to

do so and I will add you to the list. Please include any other

info. you might want to share such as LO's age, what stage they are

in etc.

>

> Here is the new list as promised. I will continue to update daily.

>

> Kath

>

> CANADA

>

>

> Mark (mwmcelwain)-not sure where

>

> ONTARIO

> Coyote--I think it is St.s?

>

>

>

> AJAX

> Annette McColl

>

> BALMERTOWN

> Carol--I am in Balmertown Ontario. Which is north of Dryden

> (Northwestern ON). My sister in law is caring for my mother

> in-law in Winnipeg, Manitoba.

>

> KLEINBURG

> Abby-LO is her dad

>

> STONEY CREEK

> P-- My mother has passed from LBD but I still read every

day. I live in Ontario, Canada, in the city of Hamilton (actually

Stoney Creek) I have an uncle living in Winnipeg, Manitoba who also

has LBD. His story is like a replay.

>

> TORONTO

> Kath--East End, near Woodbine Subway Stn.--LO is mother Marg Grant

age 79 dx'd LBD in Oct'02, mid stage

>

>

>

> Courage--I live in Downtown Toronto. I'm closer to the

financial/theatre district. LO is Olivia.

>

>

>

> ENGLAND

>

>

>

> KENT

> Hodgson

>

>

>

> Sally Rodgers--North Frith Farm

> Ashes Lane

> Hadlow

> Tonbridge

> Kent TN11 9QU

> That's in the south east corner -about 35-

4 miles south east of London. Near

>

> Tunbridge Wells, Sevenoaks and not too far from Dover.

>

> LO--Father Colin Clive Cashmore, diagnosed ?LBD August 2001.

Died October 21st 2002 at age 67 yrs. - brain autopsy confirmed

Diffuse LBD.

>

>

>

> IPSWICH

>

> Janet Noble-I live in Ipswitch England with husband who was born

here but I come from

>

> Leicester in the Midlands England

>

>

>

> NEW ZEALAND

> Pearce

>

>

>

>

> UNITED STATES OF AMERICA

>

>

>

> ARIZONA

>

>

> CHANDLER

> Lynn Whitman--I am in Chandler, Arizona...a suburb of Phoenix. I

plan on staying in touch with the group...to help when I can.

(Lynn's dad recently passed away)

>

>

>

> CALIFORNIA

> Joni--anyone know about Joni?

>

> CATALINA ISLAND

> Edie-- (LA area) LO Husband at home with

myself and part time hired caregiver

>

>

> LAFAYETTE

> Jan Colello-suburb of San Francisco, LO is husband Jim, dx w/LBD

10/03

>

>

>

> SAN DIEGO

>

> Tori Hawk

>

>

>

> SANTA ROSA

>

> Jim Whitworth in Santa , California

>

>

>

> COLORADO

>

>

> DENVER

> Gail Jessup, Denver, Colorado, Father, Joe Lee, in Florida,

diagnosed in September, 2003

>

>

>

> FLORIDA

>

> MIAMI

>

> Josie- I am in the area of Baptist Hospital and South Miami

Hospital, in case there are any other LBD families in the area. You

can also add my dad, who passed on August 18, 2003.

>

>

>

> PORT ST. LUCIE

>

> Elaine--my beautiful mom lives in Hanover Twp., PA, and is cared

dearly by my wonderful sisters, Sharon and .

>

>

>

> WEST PALM BEACH

>

> Peggy (uspms) relocating to West Palm Beach, Florida

>

>

>

> ILLINOIS

>

> CHICAGO

> Robin (haleybale)--I live in a northern suburb of Chicago and my

Dad with LBD lives in central

> Illinois (Decatur).

>

> PEORIA

> (janeymar54)

>

>

>

> INDIANA

>

> BLOOMINGTON

>

> Hi, I'm Deb Curtis and I live in Bloomington, Indiana. My LO is my

87-year-old mother, Virginia Barden, who lives on a special care

dementia unit of a nursing home within 10 minutes of me here in

Bloomington, so I get to visit her daily. My 4 siblings and I moved

her here from her assisted living apartment where she lived with our

dad in North East, PA, until his death in June 2002. Her memories

are of NY State, though - Ripley, in Chautauqua County where she and

Dad raised all of us and Gansevoort, NY, where she was born and

raised and where her sister and my oldest brother live. Her mind

takes her to all of these places during the day so I have to figure

out where she' " been " so I can respond appropriately. I'm sure I

exasperate her at times for not " keeping up " !

>

>

>

> INDIANAPOLIS

> field

>

>

>

> IOWA

> Debbie (craftygma1)

> Wolfie (luvmypugprincess) in Iowa, LO Gram age 83

>

>

> DES MOINES

> Sandie-no longer with the group (please feel free to fill in

information)

>

>

>

> GEORGIA

>

> TIFTON

> Jackie Gibbs

>

>

>

> KANSAS

>

> Kareysue-I'm , I live in Kansas, in a small town right in the

middle of the state. Mom was dx with

>

> LBD in the summer of 2003 and is in nh since January of 2003.

>

>

> LOUISIANA

> SHREVEPORT

> Piper--It is in the northwest part of the state,

near Texas and Arkansas.

>

> MASSACHUSETTS

> Annie P. - I'm North from Boston, about 30 miles North, actually

I'm on the New Hampshire/Mass. Line. I

live in a town called Methuen.

>

>

>

> MICHIGAN

> DETROIT

> Donna R.(mido101)---Sub of Detroit MI

>

> OHIO

> Sandy--LO is (mother-in-law)

>

>

> CINCINNATI

> Phyllis 68 Husband Jim 76 dx LBD 2003

>

> OREGON

> VALE

> Joanne Recla--cared for Mother (deceased 12-22-

2003)

>

> NEW JERSEY

> .... lives at the shore in New Jersey. My 80 yr. old mom

with LBD lives in land, but stays with me for weeks on end.

>

>

>

> NEW YORK

>

> BROOKLYN

>

> Imelda Fagin, caring spouse to Wil

>

>

> PENNSYLVANIA

>

> PITSBURGH

> Debbie Cole-Weber

>

> GROVE CITY

> Donna Pearce--On here I am Donna Lee.

>

>

>

> STATE COLLEGE

>

> -My LO is my Dad, Bruce, diagnosed March 2004.

>

>

> SOUTH CAROLINA

>

> CHESNEE

> Pat Caldwell, caregiver for husband, Stan

Caldwell, Dx'd Oct. 2002. Joined group Aug. 2003.

>

> TENNESEE

> NASHVILLE

> Betterton

>

> TEXAS

> Young

>

>

>

> Fowler (lauraf13) - LO Billie (Mother age 76)

>

> FORT WORTH

> --LO

>

>

>

> LUBBOCK

>

> Penny, mother in Austin Tx.

>

>

> WASHINGTON D.C.

> THeresa--I live in the land suburbs of DC and my Mom with LBD

lives in Manitowoc, Wi.

>

>

>

>

> WASHINGTON STATE

> Kathy Larsen

> Rathbone

>

>

>

>

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Guest guest

I am still in MI and my WI lawyer that I found will do the work for me

as soon as I can stop copying. And I have 4 YEARS of taxes to do before

Tax day. I now have a book of stuff copied and it will be fed=exed

tomorrow.. Then I have to go to WI and try and sort out some of the

stuff that is Mom's and some that is theirs. I am hoping to only make

one 12 hour up and one 12 hour back trip.

My lawyer will try and get them to agree to some stuff before I have to

be there. It is very complex and I will for sure talk about it when I

get back. This is a legal issue that everyone should be warned about,

especially with step problems. I could write a book. And may do just

that.

Thanks for asking.

Donna R

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