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Re:Emotional fragility

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Hi ..........you are SOOOOOOOOOO not alone! I can vouch for this

feeling 110%. Most days, I feel like a completely different person than the one

I was (and still am on the occasional 'good' day). I was the " go to " girl, for

everything, from friends and family members when they were in a jam or needed

help, to the 'go to' girl at work, ie: copy machine jammed, computer problems,

not to mention my actual JOB!!! LOL....then throw in a wife and mother on top of

that? Holy Cow!!!!

I have days now that are so overwhelming, I just want out of my life completely!

Not suicide mind you, but just to run away and start over somewhere where no one

knows the 'previous' me. I feel it has a lot to do with so much in our systems

are completely out of whack.......I don't really know..........maybe it's

because we feel so out of control with these diseases? So many changes that we

aren't prepared for and it finally comes to a breaking point?

Emotionally, I just crack, break down at the most insignificant things in

reality, but when it hits you, at that time, it seems ENORMOUS! I think " one

more thing and it will do me in! " The only way I can deal with it is to

remember that tomorrow will be better. When I am emotionally stronger, I

realize how small that thing was that triggered me and I chalk it up to the

intense pressure we feel to be ourselves, our OLD selves. How badly I want to

be back there.....and occasionally, I get to visit that old self of mine, that

strong self that can handle anything!!! It feels good, but I know it's just

temporary, but I still enjoy it while it lasts and can appreciate how strong I

really am, underneath all this!

I hope this all made sense to you - I guess I'm just agreeing that my emotions

are all over the place now, not like before these illnesses.

Take care and Peace,

STL Jane

---------------------------------

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You are not alone in that . I am going through it myself right at

this moment. In fact, I'm on my way to talk to my pastor to try and get

some of it off my chest so hopefully I'll be able to cope a little better.

I'm so tired and in so much pain right now that I'm ready to break down.

And when you add the other stressors in my life it makes it even worse. So

yes, others go through emotional fragility. I think for me when my pain

and fatigue levels are extremely high that my emotional state becomes even

more fragile.

Bel

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Yes , I do feel emotionally frail. I think that has a lot to do

with the fatigue. The less energy reserve I have the less I can deal

with anything and that goes for emotional responses to people as well.

Also, knowing I have to justify to folks that I am ill makes me more

fragile as well as I am on the defensive from the start.

Sandrea

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Re:

" Do some of you with CFS/ME/FBS find yourselves emotionally fragile from time to

time. Do you find yourself just worn down and not having the energy to cope with

difficult people or situations that you'd under normal circumstances would not

have trouble handling? Do you feel frail and vulnerable? Just need to know that

I'm not alone. -- "

-------------------------

Absolutely. To me CFS is being rundown, permanantly. When anyone has the flu or

a bad virus we're crabby and cry easily, or for the stoics, at least very

emotional and touchy.

No, I can't handle drama, either. And, I know it's time to go to bed when even

the commercials are upsetting to me in a noisy way. The pounding feeling of the

bombastic voices or music is actually painful, like someone poking me

repeatedly. It is someone pounding. But, it's the sound beating on me.

I'm sure others will attest to their own inability to handle emotional stuff or

noise.

Engel

" Eternal vigilance is the price of liberty "

-Ida B. Wells in her autobiography Crusade for Justice

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I always love reading your posts Jane! They are always

so articulate and inspiring! I just wanted to take a

minute to thank you for that!!:)

Gentle Hugs

--- Jane wrote:

> Hi ..........you are SOOOOOOOOOO not alone!

> I can vouch for this feeling 110%. Most days, I

> feel like a completely different person than the one

> I was (and still am on the occasional 'good' day).

> I was the " go to " girl, for everything, from friends

> and family members when they were in a jam or needed

> help, to the 'go to' girl at work, ie: copy machine

> jammed, computer problems, not to mention my actual

> JOB!!!

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In the past two years I have been under tremendous stress. My husband

went for a colonoscopy at that time and DR. perforated his bowel. The

next night he was in emergency surgery with peritonitis and his bowels

on his tummy, forgive the grossness.)

Four days later he had pneumonia and in wee hours of the a.m. had a

heart attack. A month later he had open heart surgery, had 5 blocked

arteries. A couple of days after Christmas that same year my

granddaughter was in a terrible auto accident. Took the jaws of life to

get her out of SUV. Her heart stopped twice and when she got to the

hospital she had 3 fractures in her skull, a broken neck and back, all

ribs on left side broken, broken collar bone, etc. Three weeks later I

got a call from my other granddaughter telling me my son was diagnosed

with Lymphoma. I didn't mean to bore you with all the details but

wanted you to know I KNOW there definitely is emotional fragility with

these damed diseases. Since all this began I have been in bed more then

out. Before then I was able to get up and out once in a while. The

only good it did for me was that my family and friends now understand

what happens or what the DD can cause. I love being told I look

terrible and about 90 yrs old instead of, " gee, you look great!!!!! "

lol. Healing hugs, Allie (To everyone on this board a very Happy

Holiday and thank you for being there, don't know what I would do

without you thru thess past couple of years.)

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P.S. My husband is still with me and doing okay. My granddaughter has

recovered very well and my son came thru chemo and radiation and is in

remission. So my feeling is there is a GOD and some day he will help

us! Allie

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Sorry that you have been through so ooooo much stress. That would be too much

EVEN for a healthy person. Long gone are the days when I used to hear " You look

good. " I havent head that since about the early 1990's. Now I look like s***.

Sometimes feel like I am 100 yrs. old. ( I will probably live that long and

there still WON " T be a cure for CFIDS). LOL. You have been through so much that

no longer you are back in bed. Stress is TERRIBLE for this illness. Hang in

there. Diane

allie70@... wrote: In the past two years I have been under

tremendous stress. My husband

went for a colonoscopy at that time and DR. perforated his bowel. The

next night he was in emergency surgery with peritonitis and his bowels

on his tummy, forgive the grossness.)

Four days later he had pneumonia and in wee hours of the a.m. had a

heart attack. A month later he had open heart surgery, had 5 blocked

arteries.

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Sorry that you have been through so ooooo much stress. That would be too much

EVEN for a healthy person. Long gone are the days when I used to hear " You look

good. " I havent head that since about the early 1990's. Now I look like s***.

Sometimes feel like I am 100 yrs. old. ( I will probably live that long and

there still WON " T be a cure for CFIDS). LOL. You have been through so much that

no longer you are back in bed. Stress is TERRIBLE for this illness. Hang in

there. Diane

allie70@... wrote: In the past two years I have been under

tremendous stress. My husband

went for a colonoscopy at that time and DR. perforated his bowel. The

next night he was in emergency surgery with peritonitis and his bowels

on his tummy, forgive the grossness.)

Four days later he had pneumonia and in wee hours of the a.m. had a

heart attack. A month later he had open heart surgery, had 5 blocked

arteries.

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Oh Allie you have been through so much…that would flatten a healthy person.

These struggles are part of life, but us types do have such trouble coping

with stress. Take it easy on yourself dear and I hope you too have a happy

holiday, and a peaceful one. Aylwin xox

_____

From: CFAlliance [mailto:CFAlliance ] On

Behalf Of allie70@...

Sent: Monday, December 17, 2007 12:59 PM

To: CFAlliance

Subject: Re:Emotional fragility

In the past two years I have been under tremendous stress. My husband

went for a colonoscopy at that time and DR. perforated his bowel. The

next night he was in emergency surgery with peritonitis and his bowels

on his tummy, forgive the grossness.)

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