Guest guest Posted February 19, 2004 Report Share Posted February 19, 2004 Hi, Abby, It is always so good to hear from you. You will never know how much it means to me to know you are there. Hugs, Piper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2004 Report Share Posted February 19, 2004 > Hi, Abby, > > It is always so good to hear from you. You will never know how much it means > to me to know you are there. > Ditto Piper.... Great to know we've got this surreal cyber connection that feels so tangible it's odd sometimes.. Have a great day. Hope things are relatively stable today on your own of the world :-} Abby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2004 Report Share Posted March 1, 2004 > I really can't imagine that the medicine is having an effect this quickly, > but I am so glad to have a few good days whatever the reason is. My dad hasn't > had a remotely good day in many months so it is just wonderful. I am not > going to get my hopes up, though, as we know how fast the " good " days can > disappear. > > I am sending you big hugs and much love, Hugs right back Piper. I know all too well how we tend to grab at any bones thrown at us when it comes to our LBD loved ones and " good " days. Isn't funny how we've redefined what constitutes a good day since LBD has entered our lives? Glad to know Namenda is not offering any adverse effects. Hey, that in itself is something to celebrate especially given the horrible turn your dad had taken a few weeks back. Like I said before, any small bone is acceptable.. Hope your dad's good days continue. My dad was angry at my mom again today and thought her getting to the nh this morning at 8:30 am was " late " since she hadn't been there while he was working. Horrible, horrible disease... Thanks for the encouragement. It means so much as well you know. Abby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2004 Report Share Posted March 2, 2004 Abby, I am so praying for you and your parents. I know how frustrated your mom is when your dad is angry at her. Does he get angry at you, too? Sometimes, my dad would get really angry with me, but not be mad at anyone else. I just assumed that was because I spend the most time with him. When that would happen, I would leave his room for a while when my mom was there. He would usually miss me and then be much better when I came back. I think he would be afraid that I was leaving him, and was glad to see me when I walked back into the room. He does not like to be alone at all. It is so weird how this disease works. You are right when you say it is a " horrible, horrible disease " . Sending you hugs and love, Piper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2004 Report Share Posted March 2, 2004 Hi Piper: My dad was really great in terms of his temperament on Friday, Saturday and Sunday and then, in true LBD style, he became angry once more on Monday and again today. He's mostly angry at my mom. He's actually quite good to me but there's an edge so that I know that if I pushed him, he'd unleash it all at me too. With my mom he can't hold back and doesn't. He's angry because she leaves him alone so much and because she's not going to church with him (all hallucinations since he forgets he's in the nh). He also has forgotten that he moved away from a house he hasn't lived in in 35 years and constantly tells us he's there working while my mom is out gallavanting. My mom goes along with him but not even that satisfies him. It just plain sucks!!! The fluctuations make it worse. Oddly enough, one of my students today was telling me about his grandmother who has Alzheimers and he asked me how LBD was different from AD. I told him that among many different physical manifestations were the fluctuating cognitive responses in LBD patients. Do you know what he said? He said, " Ah well. You're lucky miss. My grandmother's always confused and she's never herself. " I almost laughed outright but then I remembered where he was coming from was just as painful as where we come from. The truth is that for me, even fluctuating levels of cognitions still mean a father who is nothing like who he was and a man who vacillates between being sleepy and withdrawn or being angry and hostile. There's no middle ground in LBD - no hope of any " getting used " to living with LBD. Thanks for letting me rant again Piper. I swear I never intend to do this when I start out. My ravings just sort of happen... Abby Quote Link to comment Share on other sites More sharing options...
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