Re: It feels like Me vs. The Beast

[Guest guest]

Hey ...

You are not alone. You got US. We may not be able to physically help

out..but emotionally, we are here for ya. And we all understand how

hard it is, believe me. We may all have slightly different

circumstances...but really, we are all in the same boat. Hang in

there, ok?

Hugs, Coyote

> Here's the report, after I drag myself out of my bed after a good

> old fashion sobbing...

>

> Today Dad got his formal diagnosis from his neurologist. He

finally

> heard the words " Lewy Bodies " for the first time. And I read the

> report from the neuro-psych tests, and there's not much left to

> question.

>

> Tonight, my mother called to see how I was doing, and the reality

of

> it all just flared up in my face. (My parents are divorced for

20+

> years.) I am realizing that all that stands between my father and

> the beast is me. My brothers can't/won't help. My father's only

> sibling is a newlywed this week at 60. There is nobody else other

> than his neurologist for brief consultations every several months,

> to battle the monster. And I'm feeling so alone.

>

> If it weren't for you guys and the prince of a man that I married,

I

> think I'd just give up right now.

>

>

[Guest guest]

,

I feel terrible for you and your dad. Go ahead and have a good cry. In

fact, have many. While it doesn't feel great at the time crying is a great

way to relieve stress and gives you stress to deal with what comes.

Hang in there and know that we care.

Courage

It feels like " Me vs. The Beast "

>Here's the report, after I drag myself out of my bed after a good

>old fashion sobbing...

>

>Today Dad got his formal diagnosis from his neurologist. He finally

>heard the words " Lewy Bodies " for the first time. And I read the

>report from the neuro-psych tests, and there's not much left to

>question.

>

>Tonight, my mother called to see how I was doing, and the reality of

>it all just flared up in my face. (My parents are divorced for 20+

>years.) I am realizing that all that stands between my father and

>the beast is me. My brothers can't/won't help. My father's only

>sibling is a newlywed this week at 60. There is nobody else other

>than his neurologist for brief consultations every several months,

>to battle the monster. And I'm feeling so alone.

>

>If it weren't for you guys and the prince of a man that I married, I

>think I'd just give up right now.

>

>

>

>

>

>Welcome to LBDcaregivers.

>

>

>

[Guest guest]

:

I can see why you feel alone. What makes it even more scary is that

now that you've got the diagnosis, you know where it's going and it

isn't pretty.

I'm so sorry you only have your husband and father to help you go

through this. So often, I wish we did live on that commune

described where we could just pop over suddenly and nurture the heck

out of one another and give one another respite as needed. I know I

wouldn't worry one minute if my dad were in the hands of any one of

the people on this board.

As you've already figured out, this site is invaluable. Everyone is

here with you in spirit and in " cyberness " to help you on this

journey you'd rather not take. You've offered solace when it was

needed and you'll get it back in spades when you reach out.

It won't be the same as a physical support system but in so many

others ways it's better. Because so few people know about LBD and

what a monster it is people outside of this group aren't always

helpful yet here there is always acceptance, compassion and

unconditional support.

Hugs and fortitude goes out to you . I hope you feel those

around you today especially.

Abby

[Guest guest]

,

I am so sorry about your dad. I know when you first get the diagnosis, it is

just horrible. I will never forget how I felt when I figured out what LBD

is. You will feel better when a little time has passed. We are always here for

you. I know it is not as good as being there in person, but we are really

great at listening whenever you need to rant and rave. I will be thinking of

you and sending you strength.

Big, huge hugs,

Piper