Re: New Bee to the Group

[Guest guest]

Hi, Sheryl,

Fatigue, anxiety and sleep problems are all Hypo symptoms, it's not your imagination. It might be best to work with your GP 'till you feel better. Endos are not generally the best doctors for thyroid.

Carol

>> Hello All,> I am Sheryl and I was diagnosed with Hashimoto in Dec 06. With in > three months the Dr had me at Hyper and my anxiety went off the > charts. Having a pill phobia and it being all that I could do > to 'accept' this condition, It really messed me up emotionally and > spiritually.( financilly ext...,, I work for myself) I felt better > off of the Synthroid and with in two weeks was in the ER feeling > horrible. I since then have discovered that I was allergic to the > Acacia (filler material in Synthriod). It is in the Mimosa family > and as a young girl both me and my sister were allergic to Mimosa > Tree's. Living in the South you should know what that is. ... > Any way I went to the Endo and he would not see me on an emergency > basis so my GB is treating me for now untill I can get in to another > Endo at the end of JUly. Now I am on Levoxyl .050mcg and my TSH is > 3.260. I have been struggling with Anxiety but it is getting better > each day. The Dr. gave me the generic of Zoloft and it made me really > sick at my stomach. So I am still recovering from that (bottom > wise) . All this to ask, how should I be feeling?? I ask myself > threw the day, am I tired because I am telling myself I am tired? am > I tired due to battling the anxiety? am I tired due to the thyroid? > I just don't know and need some help with what is real and what it > the anxiety? I have had some success in my past with overcomeing > anxiety and I feel like I am on my way again but I still dont feel > good. Any input would greatly be appreciated. Also to tell you when > they tested my TSH while I was on the 75 Synthroid my DHEA was over > 1400 and then the GP wanted to put me on Prednisone. I told him that > I would wait until I see the new Endo. Thank you for your time and > sharing in the group.It gives me hope that 'this too shall pass.'>

[Guest guest]

I, too, am allergic to the acacia in Synthroid, but it is also in many other

things, including some other T4 synthetics. Yes, it is not in Levoxyl.

Your history is a little similar to mine in that I also initially presented

with hyper Hashi's all those yrs ago, running like a rat in a cage or a

hamster on a wheel. This is probably what's going on, the up down up down

thing of a thyroid that is eventually going to burn out. You need the FREE

values of the thyroid hormones, as the TSH (this so called gold standard is

laughable) is the pituitary hormone, not the thyroid hormones. It is good

for diagnosis, sometimes, but is useless after starting thyroid meds. The

object (most of the time) is to stop the Hashi's thyroid itself from

working, as it will get all kinds of unrecoverable damage to it, if it works

on it's own hormone. The idea is to suppress the TSH, bypass the thyroid

itself, and replace with outside thyroid hormone. This is probably where

your fatigue is coming from, as the thyroid will make hormone, the

antibodies will attack it when it does this, then the thyroid stops

production due to the damage it incurs from these antibodies. The

antibodies then stop the attack as the thyroid rests, but the thyroid then

starts up production again after it has recovered from this attack. Then

the antibodies attack the thyroid follcles again, as the hormone is

produced, and so on and so on, over and over. Meanwhile, this is why you

experience these up down up down physical and psychological symptoms. It is

MISERABLE, but this IS the way it works. You need a doctor who understands

the way this particular form of thyroid disease works, if this one isn't

" trainable " , you have not time to waste now. The suppression of the TSH is

sort of a " funeral " for your own thyroid, as it will only get more nodular

and distorted in your neck, and it is VERY hard to accept that, once you

realize that you have a very chronic disease, believe me, I know, I've been

there, and so many of us have been. Hormone replacement is the only way, so

far, to alleviate the symptoms, and you have to figure out which thyroid med

or combination works best for YOUR body. You will find many many

sympathetic people here who are or have been right where you are, most of us

still working on it. Go in on the site and read as much as you possibly

can. There is lots of good stuff on our site. WELCOME!!!

(One moderator and Thyroid Advocate)

New Bee to the Group

> Hello All,

> I am Sheryl and I was diagnosed with Hashimoto in Dec 06. With in

> three months the Dr had me at Hyper and my anxiety went off the

> charts. Having a pill phobia and it being all that I could do

> to 'accept' this condition, It really messed me up emotionally and

> spiritually.( financilly ext...,, I work for myself) I felt better

> off of the Synthroid and with in two weeks was in the ER feeling

> horrible. I since then have discovered that I was allergic to the

> Acacia (filler material in Synthriod). It is in the Mimosa family

> and as a young girl both me and my sister were allergic to Mimosa

> Tree's. Living in the South you should know what that is. ...

> Any way I went to the Endo and he would not see me on an emergency

> basis so my GB is treating me for now untill I can get in to another

> Endo at the end of JUly. Now I am on Levoxyl .050mcg and my TSH is

> 3.260. I have been struggling with Anxiety but it is getting better

> each day. The Dr. gave me the generic of Zoloft and it made me really

> sick at my stomach. So I am still recovering from that (bottom

> wise) . All this to ask, how should I be feeling?? I ask myself

> threw the day, am I tired because I am telling myself I am tired? am

> I tired due to battling the anxiety? am I tired due to the thyroid?

> I just don't know and need some help with what is real and what it

> the anxiety? I have had some success in my past with overcomeing

> anxiety and I feel like I am on my way again but I still dont feel

> good. Any input would greatly be appreciated. Also to tell you when

> they tested my TSH while I was on the 75 Synthroid my DHEA was over

> 1400 and then the GP wanted to put me on Prednisone. I told him that

> I would wait until I see the new Endo. Thank you for your time and

> sharing in the group.It gives me hope that 'this too shall pass.'

[Guest guest]

Hi Carol.

Thank you for your affermation. This is not easy when I can't seem

to get the right answer. Thank you, I need a good Dr in Houston.

> >

> > Hello All,

> > I am Sheryl and I was diagnosed with Hashimoto in Dec 06. With in

> > three months the Dr had me at Hyper and my anxiety went off the

> > charts. Having a pill phobia and it being all that I could do

> > to 'accept' this condition, It really messed me up emotionally and

> > spiritually.( financilly ext...,, I work for myself) I felt better

> > off of the Synthroid and with in two weeks was in the ER feeling

> > horrible. I since then have discovered that I was allergic to the

> > Acacia (filler material in Synthriod). It is in the Mimosa family

> > and as a young girl both me and my sister were allergic to Mimosa

> > Tree's. Living in the South you should know what that is. ...

> > Any way I went to the Endo and he would not see me on an emergency

> > basis so my GB is treating me for now untill I can get in to

another

> > Endo at the end of JUly. Now I am on Levoxyl .050mcg and my TSH is

> > 3.260. I have been struggling with Anxiety but it is getting

better

> > each day. The Dr. gave me the generic of Zoloft and it made me

really

> > sick at my stomach. So I am still recovering from that (bottom

> > wise) . All this to ask, how should I be feeling?? I ask myself

> > threw the day, am I tired because I am telling myself I am tired?

am

> > I tired due to battling the anxiety? am I tired due to the

thyroid?

> > I just don't know and need some help with what is real and what it

> > the anxiety? I have had some success in my past with overcomeing

> > anxiety and I feel like I am on my way again but I still dont feel

> > good. Any input would greatly be appreciated. Also to tell you

when

> > they tested my TSH while I was on the 75 Synthroid my DHEA was

over

> > 1400 and then the GP wanted to put me on Prednisone. I told him

that

> > I would wait until I see the new Endo. Thank you for your time and

> > sharing in the group.It gives me hope that 'this too shall pass.'

> >

>

[Guest guest]

You're welcome. Nothing about this is easy. For any of us. As far as doctors, you can check out our list in files, also the Database. I'm in Houston, but I see Dr. in Lubbock.

Carol

> > >> > > Hello All,> > > I am Sheryl and I was diagnosed with Hashimoto in Dec 06. With in> > > three months the Dr had me at Hyper and my anxiety went off the> > > charts. Having a pill phobia and it being all that I could do> > > to 'accept' this condition, It really messed me up emotionally and> > > spiritually.( financilly ext...,, I work for myself) I felt better> > > off of the Synthroid and with in two weeks was in the ER feeling> > > horrible. I since then have discovered that I was allergic to the> > > Acacia (filler material in Synthriod). It is in the Mimosa family> > > and as a young girl both me and my sister were allergic to Mimosa> > > Tree's. Living in the South you should know what that is. ...> > > Any way I went to the Endo and he would not see me on an emergency> > > basis so my GB is treating me for now untill I can get in to > another> > > Endo at the end of JUly. Now I am on Levoxyl .050mcg and my TSH is> > > 3.260. I have been struggling with Anxiety but it is getting > better> > > each day. The Dr. gave me the generic of Zoloft and it made me > really> > > sick at my stomach. So I am still recovering from that (bottom> > > wise) . All this to ask, how should I be feeling?? I ask myself> > > threw the day, am I tired because I am telling myself I am tired? > am> > > I tired due to battling the anxiety? am I tired due to the > thyroid?> > > I just don't know and need some help with what is real and what it> > > the anxiety? I have had some success in my past with overcomeing> > > anxiety and I feel like I am on my way again but I still dont feel> > > good. Any input would greatly be appreciated. Also to tell you > when> > > they tested my TSH while I was on the 75 Synthroid my DHEA was > over> > > 1400 and then the GP wanted to put me on Prednisone. I told him > that> > > I would wait until I see the new Endo. Thank you for your time and> > > sharing in the group.It gives me hope that 'this too shall pass.'> > >> >>

[Guest guest]

Only time and experimentation will tell. We are all so individual here.

Some folks do better on Armour Thyroid, others do fine with the synthetic

T4, and others with a combo of any of the above, even adding synthetic T3 to

the mix. We have a list of doctors in files on the site. As you read the

folks here, they will tell you who they think the better doctors are, the

worst, and all their experiences with them. So far, the only Houston area

doctor that I know of, that anyone is showing good experiences with is

Vivian Rodriquez, in Houston. Others will have opinions about different

doctors.

Re: New Bee to the Group

> Hi ,

> Wow.... I am in Houston . Do you know of any good Dr that will

> understand this and not have an ego the size of this www?..

> Thank you so much for your detailed explination. It is exactly what I

> have been feeling. My GP looked at me like I was crazy when I told

> him that I was allergic to the acacia but it was an answered prayer.

> I just want to feel better. I feel like I have lose almost a whole

> year with my family. I did feel good for about 6 weeks when my

> numbers were coming down but then got in to Hyper and I am still

> recovering. Will I ever feel normal again??