New here

[Guest guest]

Hi Genie, welcome to the group !

Don¹t worry too much about fast responses. Most all of us know what it¹s

like to not be able to readily respond, and understand when someone else

can¹t either.

This is a good bunch of folks. I hope you find support and understanding

here.

If you need any help, or questions answered, you may ask myself, Ray Neal,

and Darwent. We¹ll be happy to answer you best we can.

Again, welcome to the group !

Robbie in FL, moderator chronic_pain.

AS, RS (ReA), FMS, CFS

feralelf@...

[Guest guest]

Hi, Genie!

Welcome!! You and I could be " twins in pain " -- I too have RSD, Fibro,

arthritis in my neck and lower back, carpal tunnel, migraines. I also have

irritable bowel syndrome and my right kidney has atrophied due to the RSD. I

too was injured at work, breaking a small bone in my ankle. Unfortunately, I

didn't get diagnosed with a break until it was too late to stop the RSD.

I hope you enjoy being a member here. If you'd like to talk privately, feel

free to contact me. Like you, the pain sometimes delays my answer, but I

will write back.

Gentle hugs,

Fran

[Guest guest]

Freda, it is so frustrating when you are the only one who sees such

behavior. Your post that you were the youngest brings to mind a question I

have

always wondered. My mother really became much worse as she went through

menopause. Since your older siblings never saw her behavior in the same way

that you

saw it could it be that she became more dangerous with her hormonal changes.

I definitely have seen this in my own mother. Although she was crazy

before 40 she became dangerous after 40. My childhood friend who spent much

time with us can't believe what I tell her. She always saw the " nice " friendly

side of my mother.

Glad you found this list. It has helped me in so many ways and I know it

will help you.

Debbie

In a message dated 1/12/2004 12:49:02 AM Eastern Standard Time,

everydaydeco@... writes:

> Had a mother who was maybe BP. She was manipulative, cunning, very

> bright, very charming to folks outside of the family. I was born

> last of 4 children, 10 years after the one before me. I am almost

> certain that my mother tried to kill me at one point for a period

> when I was around 4 or 5 (with a yucky variety of poisoning... over

> a period of time)and she had just divorced my dad and the other kids

> were gone (one grown and moved out, 2 younger...both boys...went to

> live with my dad) So I was alone with her ...

>

> I have now relationship with my siblings anymore. The fastest way

> to explain that is say if my mother was the witch in the Wizard of

> Oz, my brothers and my sister were her monkeys.

>

> My mother is now dead, she died at the age of 96...I am now 64...AND

> STILL TRYING to leave this all behind. Such grief.

>

> Your posts reveal a lot of knowledge on the subject of BPD. So I

> guess my request is this: from what you know , and what I've said,

> does this exceed the parameters of BPD?

>

>

> She was never diagnosed with anything...everyone thought she was

> just great...once I was trying to explain to an old friend just a

> little of what she was like...he said " Look...I've met your

> mother...it's hard to believe these things about such a sweet old

> lady " Very typical response.

>

> I've been in therapy a lot in my time...but in my many attempts,

> didn't find a person that really could deal with BPD or whatever

> this was.

>

>

> Freda

>

>

>

>

>

[Guest guest]

Welcome Yossi,

Yeah, in just reading your mother's words to you, I can hear my

own " Nada's voice. " Keep posting, you'll find a lot of common ground

here.

Blessings,

> B " H

>

> Hi, list. I am new here (Edith recommended the list to me after I

> posted a comment about my childhood, on another list - WTO).

>

> My nusthell summary - I am 50, married for 23 years to a woman who

> has recently (the past 5 years) shown BP and other symptoms and is

> currently convinced that a divorce will solve her problems. We have

> kids - 22, 20, 16 and 13.

>

> I may still have fleas (I'm learning this list's lingo) from my

> childhood. My mother, who was raised in an orphanage, seemed to

> have " something " . It was never diagnosed. I was never close with

> her. She was not one of those kind of mothers who you could run to

> for comfort.

>

> I guess I can periodically post incidents that describe her (all

> kind of memories flood my head at the moment). For instance, as a

> teenager she would alternatively praise me in ways that were

> embarassing, and the next day tell me that I was psychotic and

> incorrigible and needed serious psychological help. (I remember her

> saying, with a spiteful look, " you're sick. You're a sick

> individual " .

>

> You could be driving with her in a car, and all of a sudden she

> would start hitting you, for no reason. She did this also to my

> younger sister (7 years younger). She would get this glassy look in

> her eyes sometimes, and we both used to call it the " witchy look " .

> She was also very " uptight " and worried what people thought about

> her. She once gave our puppies away (I must have been 11 or so),

> cause one neighbor complained that they barked too much. No thought

> of whether it would bother my sister and myself to not have the

> puppies (we kind of liked them). She just got rid of them.

>

> I pretty much left home when I was 17 (I found that when I was

> around her I would get really depressed). In college, she would

call

> me; the conversations were very awkward. She would say stuff

like " I

> know I have been a terrible mother, " and start crying. Or she would

> get angry. I never knew how to respond to her emotional ups and

> downs.

>

> Like I said, I'm not sure what kind of fleas I got from her. I made

> a lot of conscious efforts as a teenager not to think like her,

and

> not to act like her. I thought I did OK, but in my late 20s I

> developed panic disorder. I have had it for over 20 years, though

> recently I have been making progress, G-d willing, in managing it.

I

> also married a woman, who, it turns out, has some kind of

> personality disorder (probably BP mixed with something else.)

>

> Anyway, I have to go pick up my son from basketball, so that is the

> end of this first post. Be well,

>

> Yossi

[Guest guest]

Yossi

Welcome to the list, hopefully you can find some support and insight here. My

background is similar to yours. Only started putting the picture together over

the last couple years. The enlightenment alone is empowering.

Consider joining the staying and menonly list as well.

Doug

New here

B " H

Hi, list. I am new here (Edith recommended the list to me after I

posted a comment about my childhood, on another list - WTO).

My nusthell summary - I am 50, married for 23 years to a woman who

has recently (the past 5 years) shown BP and other symptoms and is

currently convinced that a divorce will solve her problems. We have

kids - 22, 20, 16 and 13.

I may still have fleas (I'm learning this list's lingo) from my

childhood. My mother, who was raised in an orphanage, seemed to

have " something " . It was never diagnosed. I was never close with

her. She was not one of those kind of mothers who you could run to

for comfort.

I guess I can periodically post incidents that describe her (all

kind of memories flood my head at the moment). For instance, as a

teenager she would alternatively praise me in ways that were

embarassing, and the next day tell me that I was psychotic and

incorrigible and needed serious psychological help. (I remember her

saying, with a spiteful look, " you're sick. You're a sick

individual " .

You could be driving with her in a car, and all of a sudden she

would start hitting you, for no reason. She did this also to my

younger sister (7 years younger). She would get this glassy look in

her eyes sometimes, and we both used to call it the " witchy look " .

She was also very " uptight " and worried what people thought about

her. She once gave our puppies away (I must have been 11 or so),

cause one neighbor complained that they barked too much. No thought

of whether it would bother my sister and myself to not have the

puppies (we kind of liked them). She just got rid of them.

I pretty much left home when I was 17 (I found that when I was

around her I would get really depressed). In college, she would call

me; the conversations were very awkward. She would say stuff like " I

know I have been a terrible mother, " and start crying. Or she would

get angry. I never knew how to respond to her emotional ups and

downs.

Like I said, I'm not sure what kind of fleas I got from her. I made

a lot of conscious efforts as a teenager not to think like her, and

not to act like her. I thought I did OK, but in my late 20s I

developed panic disorder. I have had it for over 20 years, though

recently I have been making progress, G-d willing, in managing it. I

also married a woman, who, it turns out, has some kind of

personality disorder (probably BP mixed with something else.)

Anyway, I have to go pick up my son from basketball, so that is the

end of this first post. Be well,

Yossi

Send questions and/or concerns to ModOasis-owner

" Stop Walking on Eggshells, " a primer for non-BPs, can be ordered via

1-888-35-SHELL () and for the table of contents, go to:

http://www.BPDCentral.com

------------------------------------------------------------------------------

[Guest guest]

>Welcome to the group Yossi! Keep posting stories and sharing. I've

gotten priceless insights and advice from this group. There's always

someone here who can relate to you, which is hard if not impossible

anywhere else because BPs are not well understood and we KOs are

always reluctant to share our stories with just anyone because we

don't expect to be believed. Here, people believe you because we've

all been there, done that, got the t-shirt AND the hat! lol!

Tammy

B " H

>

> Hi, list. I am new here (Edith recommended the list to me after I

> posted a comment about my childhood, on another list - WTO).

>

> My nusthell summary - I am 50, married for 23 years to a woman who

> has recently (the past 5 years) shown BP and other symptoms and is

> currently convinced that a divorce will solve her problems. We have

> kids - 22, 20, 16 and 13.

>

> I may still have fleas (I'm learning this list's lingo) from my

> childhood. My mother, who was raised in an orphanage, seemed to

> have " something " . It was never diagnosed. I was never close with

> her. She was not one of those kind of mothers who you could run to

> for comfort.

>

> I guess I can periodically post incidents that describe her (all

> kind of memories flood my head at the moment). For instance, as a

> teenager she would alternatively praise me in ways that were

> embarassing, and the next day tell me that I was psychotic and

> incorrigible and needed serious psychological help. (I remember her

> saying, with a spiteful look, " you're sick. You're a sick

> individual " .

>

> You could be driving with her in a car, and all of a sudden she

> would start hitting you, for no reason. She did this also to my

> younger sister (7 years younger). She would get this glassy look in

> her eyes sometimes, and we both used to call it the " witchy look " .

> She was also very " uptight " and worried what people thought about

> her. She once gave our puppies away (I must have been 11 or so),

> cause one neighbor complained that they barked too much. No thought

> of whether it would bother my sister and myself to not have the

> puppies (we kind of liked them). She just got rid of them.

>

> I pretty much left home when I was 17 (I found that when I was

> around her I would get really depressed). In college, she would

call

> me; the conversations were very awkward. She would say stuff

like " I

> know I have been a terrible mother, " and start crying. Or she would

> get angry. I never knew how to respond to her emotional ups and

> downs.

>

> Like I said, I'm not sure what kind of fleas I got from her. I made

> a lot of conscious efforts as a teenager not to think like her,

and

> not to act like her. I thought I did OK, but in my late 20s I

> developed panic disorder. I have had it for over 20 years, though

> recently I have been making progress, G-d willing, in managing it.

I

> also married a woman, who, it turns out, has some kind of

> personality disorder (probably BP mixed with something else.)

>

> Anyway, I have to go pick up my son from basketball, so that is the

> end of this first post. Be well,

>

> Yossi

[Guest guest]

> I found out yesterday my step mom is BPD. Wow. Funny how that is

> such a relief. Growing up, no one understood how much of a

> Psycholand my home was. " She seems nice to me. " And I could not

> explain it. To this day I always thought something was wrong with

> me. That if only I could be, I don't Know, more or better or

> something, then everthing would be alright. Now that I understand

> more, I feel a deep compasion for her. But I still don't want to

> interact with her. It's like I start drowning, too.

> Nicky

Welcome, Nicky. I have recently joined this site, and it has been a

haven for me. It is full of supportive people who truly understand

and are willing to help each other understand, learn and grow more

healthy, overcoming whatever issues we have because of our

experiences with a BP.

Sylvia

[Guest guest]

Hi Nicky. You sound, like most KO's, like a compassionate person.

However, it can be dangerous to feel compassion for an abusive person

too soon. First we have to feel our own pain and neglect and feel

compassion for ourselves. It is too easy to rescue and focus on their

pain instead of rescuing ourselves. My mother wanted me to feel sorry

for her and responsible for her when I was growing up when it was I

who needed cared for. She would still like it if I would sacrifice

myself for her. She always comes first. She is like a desperate

frightened animal, who, when threatened (real or perceived), will do

anything to protect herself. She is not safe and I know she puts her

needs ahead of everything and whatever toll that takes on others is

inconsequential. It is okay to put yourself first, we all should, and

it will get easier as you do it and it will begin to feel right. A

healthy mother would NOT want not her children to feel guilty,

obligated or responsible for them. If you don't have a copy

of " Understanding the Borderline Mother " you might want to get one.

There is a list in it that shows the difference between a healthy

mother's behavior vs. a bp mother. I read that when I get

confused..keep posting!

> I found out yesterday my step mom is BPD. Wow. Funny how that is

> such a relief. Growing up, no one understood how much of a

> Psycholand my home was. " She seems nice to me. " And I could not

> explain it. To this day I always thought something was wrong with

> me. That if only I could be, I don't Know, more or better or

> something, then everthing would be alright. Now that I understand

> more, I feel a deep compasion for her. But I still don't want to

> interact with her. It's like I start drowning, too.

> Nicky

[Guest guest]

>

Hey Nicky,

Welcome to the group. I understand the 'drowning' feeling. I just

found out my mom was BPD last summer and my life has been both a

wonderful discovery and a nightmare all at the same time. This group

has been a lifesaver for me because even though my husband and father

are very supportive, they don't always 'get it' when I go off the

deep end, so to speak. We all do that at times trying to deal with

growing up in Psycholand as you call it. Keep posting and you'll see

what I mean.

Tammy

I found out yesterday my step mom is BPD. Wow. Funny how that is

> such a relief. Growing up, no one understood how much of a

> Psycholand my home was. " She seems nice to me. " And I could not

> explain it. To this day I always thought something was wrong with

> me. That if only I could be, I don't Know, more or better or

> something, then everthing would be alright. Now that I understand

> more, I feel a deep compasion for her. But I still don't want to

> interact with her. It's like I start drowning, too.

> Nicky

[Guest guest]

Go look in the file section - you will be able to find a doctor in Dallas or nearby in that area...mine is in ville (and I live in Austin)..his name is Dr. Launius! Cheers, Teelindasjrts wrote: First of all thank you for letting me join, I live in OK, not too bad of a drive to Dallas. I have been searching for a Dr that can help me, I had part of my thryoid out in the late 90s.. just preventitive they told me at the time a nodule that wouldn't shrink, if I knew then what I know now, there would have been no surgery~ But long

story short was on synthroid since, never a problem til last fall, under alot of stress and peri-menopause I went hyper.. The Dr here in town cut my meds in 1/2 and I have been on a hormonal roller coaster since. I am on Armour now, since April and still having a hard time getting adjusted. Not sure what my problem is, as none of the Dr's I have been too can seem to help me much either. Thanks~ Still not sure where to turn, or if I am doing the right thing.. I am on 2 grains of Armour now, used to take .125 synthroid.

¤º°`°º¤ø,¸¸,ø¤¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø,¸¸,ø¤¤ø,¸¸,ø¤¤ Don't Take Life Seriously. It's Not Permanent!

Blessings & Joy, The Tee in Texas! ¤º°`°º¤ø,¸¸,ø¤¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø,¸¸,ø¤¤ø,¸¸,ø¤¤

[Guest guest]

Welcome from . I live i Lufkin about 120 miles N of Houston. I used to got to OKC every summer for

Convention with a company I was involved in. I hope you find a great Doctor. I have a doctor here in Lufkin that I just started with who put me on 1 grain of Armour. My husband keeps asking me if I am sure I want to take this stuff. I said yes I am..The nutritionist from the company I was previously with toldme if I ever had to go on thyroid meds to use Armour.

Great To meet you. What part of Ok are you in?

Pickle

Yahoo IM lpic49

New here

First of all thank you for letting me join, I live in OK, not too bad of a drive to Dallas. I have been searching for a Dr that can help me, I had part of my thryoid out in the late 90s.. just preventitive they told me at the time a nodule that wouldn't shrink, if I knew then what I know now, there would have been no surgery~ But long story short was on synthroid since, never a problem til last fall, under alot of stress and peri-menopause I went hyper.. The Dr here in town cut my meds in 1/2 and I have been on a hormonal roller coaster since. I am on Armour now, since April and still having a hard time getting adjusted. Not sure what my problem is, as none of the Dr's I have been too can seem to help me much either. Thanks~ Still not sure where to turn, or if I am doing the right thing..I am on 2 grains of Armour now, used to take .125 synthroid.

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.394 / Virus Database: 268.9.1/369 - Release Date: 6/19/2006

[Guest guest]

Has your husband smelled your Armour? Is that why he keeps asking you if you want to take it? <snicker!> It smells bad, but it works good! How are you feeling now?l & jpickle wrote: Welcome from . I live i Lufkin about 120 miles N of Houston. I

used to got to OKC every summer for Convention with a company I was involved in. I hope you find a great Doctor. I have a doctor here in Lufkin that I just started with who put me on 1 grain of Armour. My husband keeps asking me if I am sure I want to take this stuff. I said yes I am..The nutritionist from the company I was previously with toldme if I ever had to go on thyroid meds to use Armour. Great To meet you. What part of Ok are you in? Pickle Yahoo IM lpic49 New here First of all thank you for letting me join, I live in OK, not too bad of a drive to Dallas. I have been searching for a Dr that can help me, I had part of my thryoid out in the late 90s.. just preventitive they told me at the time a nodule that wouldn't shrink, if I knew then what I know now, there would have been no surgery~ But long story

short was on synthroid since, never a problem til last fall, under alot of stress and peri-menopause I went hyper.. The Dr here in town cut my meds in 1/2 and I have been on a hormonal roller coaster since. I am on Armour now, since April and still having a hard time getting adjusted. Not sure what my problem is, as none of the Dr's I have been too can seem to help me much either. Thanks~ Still not sure where to turn, or if I am doing the right thing..I am on 2 grains of Armour now, used to take .125 synthroid. No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.394 / Virus Database: 268.9.1/369 - Release Date: 6/19/2006

Yahoo! Groups gets better. Check out the new email design. Plus there’s much more to come.

[Guest guest]

Hi Deidra~

Welcome to the board. Good luck with you approval. It is awesome!

Missing you in Willits,

Jenni

open ds Dr. k

312/172/150

Deidra wrote:

HI, I'm sure that some of you know Roy, he his my wonderful husband

and now it's his turn to support me through all this. I'm waiting for

insurance approval right now. I'm hoping for surgery this summer cause

Roy and I both work for the school system, it would be a lot simpler

that way. I guess we'll see!

Good to be here

[Guest guest]

Hello,

Just wanted to introduce myself. I am new to this board and to

thyroid issues. LOL

I was recently put on Armor for a possible thyroid problem. I have

been having symptoms such as very very tired,swollen thyroid

gland,very sensitive to the heat,hot alot and moody. I also have

spells where I feel like I may pass out. I seen a Dr that said my t7

was alittle low and put me on Armor. I am taking it every other day

or 3 x a week. The pills are 2 grains. She did not order a Free t4 or

Free t3. I will be getting those soon through healthcheck along with

the antibodies. I did find out that my potassium and sodium is low.

Is this normal with thyroid issues?

I am in Lubbock. I have heard about Dr and maybe I can visit

him soon. I no health insurance so it makes it hard. If I could get

the energy to work maybe I could get some health insurance. Its been

very hard.

Glad to find you guys here.

[Guest guest]

I see several red flags about this doc.

First, T7 is part of the obsolete thyroid panel. It is an estimate of T4 levels.

Second, she has prescribed Armour which is mostly T3. You may or may not need the T3.

Third, alternate day dosing generally does not work for meds that contain T3. If alternate day dosing is necessary, the doses should be very close in amount. You are on two grains (120 mg) about every other day. It might be more appropriate to take 60 mg (one grain) every day. I would suggest you get a pill splitter and take half of the 120 mg pill every day.

Dr. R is pretty expensive without insurance. If you can get this doc to work with you, we can offer some suggestions to take to her.

I would suggest you order a ferritin test at Healthcheck. Low in range ferritin can give hypothyroid like symptoms. When you get your results from it and your Free T3 and Free T4, post them here together with the reference ranges and the exact name of each test.

When you get the blood draw for Free T3 and Free T4, do not take your Armour in the morning before the blood draw. Or did you have those tests run before you started the meds?

For the ferritin, stop any iron supplements three days before the test.

Welcome to the group!

jan

>> Hello, > > Just wanted to introduce myself. I am new to this board and to > thyroid issues. LOL > I was recently put on Armor for a possible thyroid problem. I have > been having symptoms such as very very tired,swollen thyroid > gland,very sensitive to the heat,hot alot and moody. I also have > spells where I feel like I may pass out. I seen a Dr that said my t7 > was alittle low and put me on Armor. I am taking it every other day > or 3 x a week. The pills are 2 grains. She did not order a Free t4 or > Free t3. I will be getting those soon through healthcheck along with > the antibodies. I did find out that my potassium and sodium is low. > Is this normal with thyroid issues? > > I am in Lubbock. I have heard about Dr and maybe I can visit > him soon. I no health insurance so it makes it hard. If I could get > the energy to work maybe I could get some health insurance. Its been > very hard. > > Glad to find you guys here. > > >

[Guest guest]

Actually the ER ran the test. The Dr just read the test from the ER.

I was suprised that she didnt order the FREE's. I thought the ER had

done them at first.

My TSH was .51 and my t4 was 9.75 and then the t7 was 8.86. But I

have stong symptoms of both hypo and hyper.

The ER did check my iron levels and said it was fine but did not test

for ferritin. Is there another name for the test they use to check

iron levels? I have a copy of the test they did but not sure which

one is for iron levels. The Hemoglobin was 14.9.

Oh and I have not had the tests(free t4 and t3 and antibodies) done

yet. Plan to do that soon.

Glad to be here. Thanks.

>

> , If you are having labs done. You probably should also

include a

> ferritin test. Low ferritin often goes with hypothyroidism. Low

ferritin

> can also make you feel really crummy.

>

> Do you know what your TSH was?

>

> Hang in there girl!

>

> Kim

>

> New here

>

> Hello,

>

> Just wanted to introduce myself. I am new to this board and to

> thyroid issues. LOL

> I was recently put on Armor for a possible thyroid problem. I have

> been having symptoms such as very very tired,swollen thyroid

> gland,very sensitive to the heat,hot alot and moody. I also have

> spells where I feel like I may pass out. I seen a Dr that said my

t7

> was alittle low and put me on Armor. I am taking it every other day

> or 3 x a week. The pills are 2 grains. She did not order a Free t4

or

> Free t3. I will be getting those soon through healthcheck along

with

> the antibodies. I did find out that my potassium and sodium is low.

> Is this normal with thyroid issues?

>

> I am in Lubbock. I have heard about Dr and maybe I can

visit

> him soon. I no health insurance so it makes it hard. If I could get

> the energy to work maybe I could get some health insurance. Its

been

> very hard.

>

> Glad to find you guys here.

>

>

>

>

>

>

>

[Guest guest]

Hi, - welcome to the group - but sorry you have to be here.

There are a lot of smart and helpful members in this group.

The summer heat is hard on all of us hypos. We've been talking about

that very thing the last several days. And our fatigue gets worse.

Your sensations that you are about to pass out sound like you could

have blood sugar issues, low cortisol, low iron, on top of the

failing thyroid function. We tend to get sick in many areas of our

health once the thyroid gets in trouble. It runs everything!

Several of us see Dr. in Lubbock and we travel from all over

the state. I know of others who come from other states. He's been

able to help several of us with complex issues. I hope you can find a

way to get better with your doc and get to the point you can work,

get insurance, and maybe see Dr. . That's just my personal

opinion, since he helped me so much. You might want to find out what

insurance he's accepting, just in case you get back to work, aren't

fully helped by your current physician, and choose to see him. I know

many of us who are probably already envious that you are right there

in Lubbock! LOL. I drive from Dallas, myself.

I think Jan has already told you tests that need to be done. Many of

us also get tests for B12, DHEA (SO2), female hormones, and cortisol.

I don't know if you can get those with Healthcheck. If you have

Hashimoto's Thyroiditis antibodies, things get more complex. Several

of us that are Hashi have to take Armour, female hormones, iron

supplements, prescription DHEA, a prescription med called Metanx that

has Vitamin B1 and B6 and folic acid, calcium, magnesium, Vitamin C

(helps in iron absorption), and we have to eat better - like no

sugar, flour or process foods, or fast foods, no potatoes or rice.

Just meats, fish and chicken with fresh fruits and veggies. Helps to

have less stress on the body trying to process junk and high glycemic

foods.

There are lots of interesting and helpful files in the links on the

left side of this page. And there are usually members or moderators

on the board every day. Jan has an incredible knowledge of thyroid

issues and treatments. So ask all you want, and you'll probably get

lots of ideas, opinions, and experiences that folks will share. And

you'll learn a lot just reading the posts day to day.

Sara

[Guest guest]

You can get the ferritin done at Healthcheck and the female hormones, probably the DHEA, but not the cortisol.

Anemia shows up on the ferritin test a long time before you see it on any other test.

Has your doc felt your neck for nodules?

> >> > , If you are having labs done. You probably should also > include a> > ferritin test. Low ferritin often goes with hypothyroidism. Low > ferritin> > can also make you feel really crummy.> > > > Do you know what your TSH was?> > > > Hang in there girl!> > > > Kim> > > > New here> > > > Hello, > > > > Just wanted to introduce myself. I am new to this board and to > > thyroid issues. LOL > > I was recently put on Armor for a possible thyroid problem. I have > > been having symptoms such as very very tired,swollen thyroid > > gland,very sensitive to the heat,hot alot and moody. I also have > > spells where I feel like I may pass out. I seen a Dr that said my > t7 > > was alittle low and put me on Armor. I am taking it every other day > > or 3 x a week. The pills are 2 grains. She did not order a Free t4 > or > > Free t3. I will be getting those soon through healthcheck along > with > > the antibodies. I did find out that my potassium and sodium is low. > > Is this normal with thyroid issues? > > > > I am in Lubbock. I have heard about Dr and maybe I can > visit > > him soon. I no health insurance so it makes it hard. If I could get > > the energy to work maybe I could get some health insurance. Its > been > > very hard. > > > > Glad to find you guys here. > > > > > > > > > > > > > >

[Guest guest]

Ok. I will get the ferritin done to then. I will look for others to

add to.

Yes, I do have a goiter. It bugs me so much. It pushes against my

throat. Its really annoying. I cant afford to have a thyroid scan

done but maybe when I am able to afford health insurance. My

husband's insurance is not good at all and very very expensive. I

really need to get on something better.

Thanks for the help. I hope I get for sure answers soon on what is

wrong with me. It is so hard to keep up with my children feeling like

this. My oldest has dance class and girl scouts which I am the leader

of. I do some volunteer work as well. I so need more energy. LOL Did

I mention church activies? LOL

> > >

> > > , If you are having labs done. You probably should also

> > include a

> > > ferritin test. Low ferritin often goes with hypothyroidism. Low

> > ferritin

> > > can also make you feel really crummy.

> > >

> > > Do you know what your TSH was?

> > >

> > > Hang in there girl!

> > >

> > > Kim

> > >

> > > New here

> > >

> > > Hello,

> > >

> > > Just wanted to introduce myself. I am new to this board and to

> > > thyroid issues. LOL

> > > I was recently put on Armor for a possible thyroid problem. I

have

> > > been having symptoms such as very very tired,swollen thyroid

> > > gland,very sensitive to the heat,hot alot and moody. I also have

> > > spells where I feel like I may pass out. I seen a Dr that said

my

> > t7

> > > was alittle low and put me on Armor. I am taking it every other

day

> > > or 3 x a week. The pills are 2 grains. She did not order a Free

t4

> > or

> > > Free t3. I will be getting those soon through healthcheck along

> > with

> > > the antibodies. I did find out that my potassium and sodium is

low.

> > > Is this normal with thyroid issues?

> > >

> > > I am in Lubbock. I have heard about Dr and maybe I can

> > visit

> > > him soon. I no health insurance so it makes it hard. If I could

get

> > > the energy to work maybe I could get some health insurance. Its

> > been

> > > very hard.

> > >

> > > Glad to find you guys here.

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Hi !

I have CFS/FMS/and now RA. I take prednisone

occassionally for really bad flares. It's not good

for bones though and because of my age they don't want

to give it very often. It does work to help

inflammation rather quickly short term.

--- wrote:

> Hi,

>

> I am new here and thank you for letting me share.

>

> I have had CFS for 20 years. I came down with strep

> throat, Mono, and

> secondary Hepatitis in 1/1988 that lasted for 3

> months. I got slightly

> better but kept feeling like I was going to pass out

> until 12/1988 at which

> time the Hepatitis came back.

[Guest guest]

HI Sandrea,

Thank you for the welcome. Thankfully my children are now all grown and out

of the house. I had to quit working as I was falling asleep everywhere. I

have Idiopathic Hypersomnolence and all the symptoms of Narcolepsy except

the catapl (?). The virus or my migraines did some damage to my brain but

no one knows what.

I am getting so fed up with all the “We don’t know” answers I get from all

my myriad of physicians. I am on so many medications that I feel like a

walking medicine cabinet. I was looking up my symptoms from one of the

links from here and I think that I will have the test for MS as I have a lot

of the symptoms. I didn’t want it last year as it is a spinal tap and I am

allergic to local anesthetic but if I do have it, I read that it is

important to get on medication sooner than later.

I had to get off the 20 mg. steroid and yesterday started taking 5 mg. for 7

days. I felt pretty good though not as good as the 20 mg. but I really

don’t want to stay up for 23 hours again! :-) It is amazing how my body

aches and pains are so lessened with this stuff. I will look up the info on

the adrenal glands. I don’t understand why the Doctors can’t keep us on a

small amount of the steroids since it helps SO VERY MUCH. They could

monitor it to make sure it is not doing damage.

[Guest guest]

Hi and Welcome , wow your story sounds a lot like mine…but I’m a

Canadian and I got diagnosed with ME (the international name for what is

often called CFS in the States – long and confusing story). I’ve been ill

for 21 years and much sicker for the past 18 months. I too developed

anaphylactic allergies, chem. sensitivities etc.etc. – oh I feel as if I’ve

done & had it all! A Private Investigator eh? COOL…maybe a second career

writing mysteries(?), though I know in real life it is not as interesting as

it is in fiction. Well, maybe not as interesting as raising 6 kids! So sad

about losing a babe to SIDS, and who really knows if it’s connected.

I’m afraid I’ve stayed off the steroids so I don’t have a good answer for

you there, but as you’ve discovered, us types react very weirdly to meds! In

general, I do know that an artificial boost can make us feel good for the

moment, but as we are still so ill, we burn our circuits out. So, you stayed

awake for a full day, but then you crashed – no wonder. Too bad hey,

wouldn’t it be nice. Once upon a time I had a similar reaction to gamma

globulin…I’d feel great for 2 days then crash, but as a single parent that

bit of energy was so precious to me. I got allergic to the preservative, and

that was the end of that. In retrospect, I would say that the high is not

worth the crash, but isn’t it wonderful to just have a pain

Holiday once in awhile. In fact I’d love a holidayfrom the whole thing!

I suspect that you may enjoy reading about ME…check out a hummingbird’s

guide (website), it has the best info from that perspective. I also just got

a great book, written 10 years ago but just full of info like what you are

asking – Chronic Fatigue Syndrome – A Treatment Guide, By Verrullo & Gellman

– very comprehensive and goes into the metabolsm of drugs etc. way more than

I can understand!

Anyway I wish you well and you are not alone here, Welcome. Aylwin xo

[Guest guest]

Huh? The usual test for MS is an MRI…no anesthetic involved…and also it may

show some of the brain damage. I just had one after 21 years of ME, and had

a significant result, looking like MS, but ME does look like ME on an MRI

sometimes too. I’m off to the neuro Thus. so we shall see! I am also

allergic to local anesthetics, but I think part of the problem for me is the

preservatives in injectables…I managed to get away with one for some dental

work that is preservative free, it’s called citanest prilocaine

hydrochloride (just FYI). Steroids are very hard on the immune system over

time…it’s better to do short bursts rather than an ongoing dose, or so I’ve

heard. Take Care, Aylwin

_____

From: CFAlliance [mailto:CFAlliance ] On

Behalf Of

Sent: Wednesday, November 21, 2007 10:05 AM

To: CFAlliance

Subject: Re: New here

HI Sandrea,

Thank you for the welcome. Thankfully my children are now all grown and out

of the house. I had to quit working as I was falling asleep everywhere. I

have Idiopathic Hypersomnolence and all the symptoms of Narcolepsy except

the catapl (?). The virus or my migraines did some damage to my brain but

no one knows what.

[Guest guest]

Hi

I take a lot of meds too so know what you mean about being a walking

medicine cabinet. I do encourage you to do the tests for the MS. My

mother had MS and died about 14 years ago from it. At that time they

didn't know as much about it and she was told it was all in her head for

a long time. And unfortunately she did not respond to the meds that

existed at that time. In any case, from what I understand some

neurological changes can be seen on an MRI but they really need to be

able to take an MRI and then another a year later to compare them. So,

at least do the MRI so that you have a means of comparison in the

future. I don't envy you the idea of a spinal tap, but if you do have

MS then you might as well know as it seems there is much more research

being done on that and much more acceptance and treatment and support

and all available than we have for CFS or ME or other invisible

diseases. As far as I have been able to find, conventional MDs don't

know about adrenal fatigue, only complete adrenal failure. So a doc who

keeps you on steroids does so without understanding the effect these can

have on adrenals. The only way I would do that is if I found a doc who

truly understood both. I know you don't want to sleep as much as you

had been, but don't know what to tell you other than that it is common

at the beginning stages of ME and CFS and that perhaps if you do listen

to your body and get the sleep you will recover. I don't know.

Sandrea

[Guest guest]

Hi ,

Pred can be a very scary drug, I refer to it as " making a deal with

the devil " , I have personally dealt with life theatening side effects

having my BP skyrocket into near stroke, not to mention that it can

cause bone loss, weight gain (I put on 45 lbs), hair growth, night

sweats, vision loss and much more. I was on it for 3 years on and off

while trying to control throat closing angio and uncontrolled

urticaria, since my " near death " experience I only take pred in a 10

mg burst, emergency use only. I am allergic to some degree to

basically everything man-made. I have learned to eat nothing with

preservatives, colorings or artificial anything. Inhalants get to me

as well, car exhaust, smoke, perfumes, had to have a colonoscopy a

few years back and made sure that the anestiologist knew my illness

and he had me take pred 10 mg and my antihistamines that morning.

Pred is a drug that should be respected but feared at the same time.

Take care,

>

> HI Sandrea,

>

>

>

> Thank you for the welcome. Thankfully my children are now all

grown and out

> of the house.