RE: Quick post re: my dad's surgery

[Guest guest]

Abby-

There is power in prayer as you just testified. So sorry I didn't read this

message before I read the one with my name in it. Thank you so very much for

updating us. I was worried, yet knew I still had prayer and faith. And, with

that, I knew you were fine and that your dad had someone higher than you and I

guiding his way.

Will continue to keep you, your dad, and your family in my prayers.

I am sooo proud of you for asking for prayer for your sister. As it was

written... " love thy neighbor and pray for those who persecute you " ...words you

are living by!

Hugs, big time, to you!

Sandie

[Guest guest]

Abby,

I can't tell you how happy I am to read your post - I'm over the moon!

Yes, I was nervous that things perhaps didn't go so well when I hadn't heard

from you but I kept praying all the same. Love your dads comments about his

car and what a smart nurse to mention the insurance. Please don't let your

sister bug you at this stressful time. She will come to learn the truth

soon enough. I also had a hard day with my sister so I'm so feeling it for

you.

So very, very happy that your dad not only made it out of surgery alive but

that he seems to be doing well physically.

Great big hug to you and your family.

Smiling Courage

Quick post re: my dad's surgery

>Sorry, my computer crashed Monday night and I haven't been able to

>get back online until about 5 minutes ago.

>

>My dad had surgery yesterday at 2:30 pm. We had picked him up at the

>nh at 4:30 since the hospital told us he needed to be there for 6

>am. We waited a whole long time before my dad was taken in for a CT

>scan and his surgery was initially scheduled for 10:55 am but there

>apparently was some emergency and his surgery was postponed.

>

>No big deal. My dad had the very best cognitive day he's ever had

>since this whole thing began in August yesterday. He was right on

>the money about most things. Totally in touch with everything and he

>never complained about the long wait. He was just such a good

>sport. Because there was a delay, I had my dad back for a great deal

>of yesterday. Gosh, how I've missed him but I'm thankful that the

>cognitive fluctuations were going our way on yesterday of all days.

>

>His surgery lasted about 5.5 hours. He came out of surgery and the

>doctor brought him right up to the neurology ICU. He was awake when

>we saw him but he had a breathing tube inserted in his mouth so he

>couldn't talk. What he did tell us (by shaking his head " yes " ) is

>that he was in some degree of pain. We were told to leave for the

>night and urged to call throughout the night to check on his progress.

>

>Well, last night at about midnight the ICU nurses told me they were

>concerned because he wasn't breathing on his own yet. Apparently

>though by 3 am, he was breathing fine and the tube came out.

>

>I went to work for half a day today to give a test since the hospital

>wasn't allowing visitors until 11. At about 12 noon, I get a call

>from my husband who had just got off the phone with my mom who told

>him that my dad was being removed from ICU later and that he was

>doing remarkably. All the tubes and " sticky things " on his body were

>off.

>

>When I got there, my dad was in ICU still but he was hallucinating

>wildly. He believed the bed was a car and kept trying to pick at

>things (flowers) out of the sky. He was unable to follow any

>instructions so we had to physically move him to sit him up. The

>physiotherapist is surprised that he's that strong. All day long all

>I heard is what a miracle it was that my dad was taken out of ICU in

>so little time and that he was faring so well physically.

>

>That's just it. Physically my dad is doing superbly. Cognitively,

>he's a mess. At times, we can't help but chuckle at his

>hallucinations (ie. when the nurse was wheeling him out of ICU and

>bringing him to his room, she hit the side of the door with the bed

>he was in. Now, for my father he was in no bed - he was in a car.

>When she hit the door once and then again as she was going into his

>room, he said in a concerned tone, " My God. Is there much damage to

>the car? I hope not. " So cute. We all got a chuckle out of that as

>the nurse told him that her insurance would cover the damage.

>

>My sister is keeping on with her " It's not LBD...it's delirium

>because of the anaesthesia refrain. " I actually phoned his

>neurosurgeon and asked if he could drop by and see if what's

>happening with him is LBD or anaesthesia related. She kept

>repeating, " This is just like the last time. We've going to have a

>rough couple of weeks before he gets better... "

>

>If I thought it was bad when she denied LBD to me, it's so much worse

>when she does it in the presence of nurses who expect her to give

>them an accurate diagnosis. I stopped myself from really giving it

>to her when she said, " I know Daddy's got dementia of some kind but

>I'm not ready to put him at a level he's not at yet " ...What does that

>mean???

>

>Needless to say, I spend the first five minutes while I was online

>downloading and printing the CCC files (yes again) and I'll get my

>husband to drop them off tomorrow morning.

>

>I've come down with bronchitis and/or a mild form of pneumonia. I

>went to a clinic today and was put on some really strong anti-biotics

>but I'm going to stay away from my dad until this calms down. I've

>been wearing a mask and gloves and the other appropriate SARS gear

>just to keep my dad and the other patients safe but I'm now going to

>wait until my feveer subsides as the doctor instructed. Hopefully my

>sister won't do too much damage by then.

>

>I've missed and needed you all so much yet I couldn't get to you.

>Sorry if you thought something really horrible (or, even more

>horrible) happened. I didn't want to worry you but with both my

>computers off sick, I was in a bind.

>

>Haven't checked the messages but I probably won't be able to answer

>the messages for a while since I'm so behind but I will read them. I

>need to.

>

>Thanks for your prayers. Keep them coming for my dad and for my

>sister.

>

>Have a good night. My husband will be on the computer soon - he's

>got some bills to pay (even that had to be put off without our

>computer...)

>

>I've stopped proofreading my posts long ago so forgive me if this

>quick post has tonnes of typos and errors. My mind is going a mile a

>minute now that I'm back here among friends.

>

>Abby

>

>

>

>Welcome to LBDcaregivers.

>

>

>

[Guest guest]

Dear Abby:

I have been anxiously waiting for your post about your dad's operation.

Praying that everything was ok. I guess my prayers were answered. I amglad it

was only computer problems that kept you from posting.

Your dad's physical strength reminds me of my own dad. He was not weak until

the last month of his life. I am sorry his cognition is so bad right now,

but it really should improve after a while, not just bacause of the effects of

the operation, but also because of the fluctuations of LBD.

Ii am sorry your sister continus to aggrevate you. It is just a matter of

time. She will not be able to deny the truth much longer. It is good you are

sending the CCC files to the place your dad is in now. The staff will realize

your sister is in denial, will talk to her appropriatelly, and treat your

father for what he has, withouth bothering her so much. Or else they will hit

her

with the truth... Bad image, it will be bad for her when she can no longer

hide behind denial, her coping mechanism taken away.

I had no idea you have such a bad respiratory infection. You must really

feel bad. I have had pneunonia while the girls were little, I dragged myself

everywhere to do what needed to be done. You take care of yourself and wear

that

mask so you don't pass it on. You don't need to be nursing the rest of your

family as well. Try to get as much rest as possible, since you cannot visit

your dad for a few days.

You didn't say what the DRs comments were after the operation. Were they

pleased that they got everything out this time? What is the prognosis with the

brain tumor? How is your mom doing through all this?

I continue to pray for your dad's quick return to the level of cognition just

before the operation, for the continued success of the operation and his

continued physical strength. I also pray for your health, I send my support to

you and each member of your family. Hugs and love,

Josie

[Guest guest]

Abby

I a relieved to hear the surgery went well. I was worried when we hadn't

heard anything. The hallucinating is not something that you weren't

expecting, so all is situation normal. I will keep my fingers crossed that

things will improve soon for your dad. He sounds like a real trooper. As

far as your sister is concerned, I would just let her think what she wants.

No point in arguing as eventually they will see the " light " and know what we

know. You have done everything you can for your dad and now you need to

drop back and take care of yourself. I hope you are feeling better soon.

Kath

Quick post re: my dad's surgery

> Sorry, my computer crashed Monday night and I haven't been able to

> get back online until about 5 minutes ago.

>

> My dad had surgery yesterday at 2:30 pm. We had picked him up at the

> nh at 4:30 since the hospital told us he needed to be there for 6

> am. We waited a whole long time before my dad was taken in for a CT

> scan and his surgery was initially scheduled for 10:55 am but there

> apparently was some emergency and his surgery was postponed.

>

> No big deal. My dad had the very best cognitive day he's ever had

> since this whole thing began in August yesterday. He was right on

> the money about most things. Totally in touch with everything and he

> never complained about the long wait. He was just such a good

> sport. Because there was a delay, I had my dad back for a great deal

> of yesterday. Gosh, how I've missed him but I'm thankful that the

> cognitive fluctuations were going our way on yesterday of all days.

>

> His surgery lasted about 5.5 hours. He came out of surgery and the

> doctor brought him right up to the neurology ICU. He was awake when

> we saw him but he had a breathing tube inserted in his mouth so he

> couldn't talk. What he did tell us (by shaking his head " yes " ) is

> that he was in some degree of pain. We were told to leave for the

> night and urged to call throughout the night to check on his progress.

>

> Well, last night at about midnight the ICU nurses told me they were

> concerned because he wasn't breathing on his own yet. Apparently

> though by 3 am, he was breathing fine and the tube came out.

>

> I went to work for half a day today to give a test since the hospital

> wasn't allowing visitors until 11. At about 12 noon, I get a call

> from my husband who had just got off the phone with my mom who told

> him that my dad was being removed from ICU later and that he was

> doing remarkably. All the tubes and " sticky things " on his body were

> off.

>

> When I got there, my dad was in ICU still but he was hallucinating

> wildly. He believed the bed was a car and kept trying to pick at

> things (flowers) out of the sky. He was unable to follow any

> instructions so we had to physically move him to sit him up. The

> physiotherapist is surprised that he's that strong. All day long all

> I heard is what a miracle it was that my dad was taken out of ICU in

> so little time and that he was faring so well physically.

>

> That's just it. Physically my dad is doing superbly. Cognitively,

> he's a mess. At times, we can't help but chuckle at his

> hallucinations (ie. when the nurse was wheeling him out of ICU and

> bringing him to his room, she hit the side of the door with the bed

> he was in. Now, for my father he was in no bed - he was in a car.

> When she hit the door once and then again as she was going into his

> room, he said in a concerned tone, " My God. Is there much damage to

> the car? I hope not. " So cute. We all got a chuckle out of that as

> the nurse told him that her insurance would cover the damage.

>

> My sister is keeping on with her " It's not LBD...it's delirium

> because of the anaesthesia refrain. " I actually phoned his

> neurosurgeon and asked if he could drop by and see if what's

> happening with him is LBD or anaesthesia related. She kept

> repeating, " This is just like the last time. We've going to have a

> rough couple of weeks before he gets better... "

>

> If I thought it was bad when she denied LBD to me, it's so much worse

> when she does it in the presence of nurses who expect her to give

> them an accurate diagnosis. I stopped myself from really giving it

> to her when she said, " I know Daddy's got dementia of some kind but

> I'm not ready to put him at a level he's not at yet " ...What does that

> mean???

>

> Needless to say, I spend the first five minutes while I was online

> downloading and printing the CCC files (yes again) and I'll get my

> husband to drop them off tomorrow morning.

>

> I've come down with bronchitis and/or a mild form of pneumonia. I

> went to a clinic today and was put on some really strong anti-biotics

> but I'm going to stay away from my dad until this calms down. I've

> been wearing a mask and gloves and the other appropriate SARS gear

> just to keep my dad and the other patients safe but I'm now going to

> wait until my feveer subsides as the doctor instructed. Hopefully my

> sister won't do too much damage by then.

>

> I've missed and needed you all so much yet I couldn't get to you.

> Sorry if you thought something really horrible (or, even more

> horrible) happened. I didn't want to worry you but with both my

> computers off sick, I was in a bind.

>

> Haven't checked the messages but I probably won't be able to answer

> the messages for a while since I'm so behind but I will read them. I

> need to.

>

> Thanks for your prayers. Keep them coming for my dad and for my

> sister.

>

> Have a good night. My husband will be on the computer soon - he's

> got some bills to pay (even that had to be put off without our

> computer...)

>

> I've stopped proofreading my posts long ago so forgive me if this

> quick post has tonnes of typos and errors. My mind is going a mile a

> minute now that I'm back here among friends.

>

> Abby

>

>

>

> Welcome to LBDcaregivers.

>

>

>

[Guest guest]

Hey Abby,

To be honest I'm at a loss to what to say. Part of me wants to say I'm so

happy that your dad made it through ok and the the other part is so sorry

he's so confused.

You say I put you through a pile of emotions. You aren't far behind me.

Take care girl.

Hugs

Quick post re: my dad's surgery

Sorry, my computer crashed Monday night and I haven't been able to

get back online until about 5 minutes ago.

My dad had surgery yesterday at 2:30 pm. We had picked him up at the

nh at 4:30 since the hospital told us he needed to be there for 6

am. We waited a whole long time before my dad was taken in for a CT

scan and his surgery was initially scheduled for 10:55 am but there

apparently was some emergency and his surgery was postponed.

No big deal. My dad had the very best cognitive day he's ever had

since this whole thing began in August yesterday. He was right on

the money about most things. Totally in touch with everything and he

never complained about the long wait. He was just such a good

sport. Because there was a delay, I had my dad back for a great deal

of yesterday. Gosh, how I've missed him but I'm thankful that the

cognitive fluctuations were going our way on yesterday of all days.

His surgery lasted about 5.5 hours. He came out of surgery and the

doctor brought him right up to the neurology ICU. He was awake when

we saw him but he had a breathing tube inserted in his mouth so he

couldn't talk. What he did tell us (by shaking his head " yes " ) is

that he was in some degree of pain. We were told to leave for the

night and urged to call throughout the night to check on his progress.

Well, last night at about midnight the ICU nurses told me they were

concerned because he wasn't breathing on his own yet. Apparently

though by 3 am, he was breathing fine and the tube came out.

I went to work for half a day today to give a test since the hospital

wasn't allowing visitors until 11. At about 12 noon, I get a call

from my husband who had just got off the phone with my mom who told

him that my dad was being removed from ICU later and that he was

doing remarkably. All the tubes and " sticky things " on his body were

off.

When I got there, my dad was in ICU still but he was hallucinating

wildly. He believed the bed was a car and kept trying to pick at

things (flowers) out of the sky. He was unable to follow any

instructions so we had to physically move him to sit him up. The

physiotherapist is surprised that he's that strong. All day long all

I heard is what a miracle it was that my dad was taken out of ICU in

so little time and that he was faring so well physically.

That's just it. Physically my dad is doing superbly. Cognitively,

he's a mess. At times, we can't help but chuckle at his

hallucinations (ie. when the nurse was wheeling him out of ICU and

bringing him to his room, she hit the side of the door with the bed

he was in. Now, for my father he was in no bed - he was in a car.

When she hit the door once and then again as she was going into his

room, he said in a concerned tone, " My God. Is there much damage to

the car? I hope not. " So cute. We all got a chuckle out of that as

the nurse told him that her insurance would cover the damage.

My sister is keeping on with her " It's not LBD...it's delirium

because of the anaesthesia refrain. " I actually phoned his

neurosurgeon and asked if he could drop by and see if what's

happening with him is LBD or anaesthesia related. She kept

repeating, " This is just like the last time. We've going to have a

rough couple of weeks before he gets better... "

If I thought it was bad when she denied LBD to me, it's so much worse

when she does it in the presence of nurses who expect her to give

them an accurate diagnosis. I stopped myself from really giving it

to her when she said, " I know Daddy's got dementia of some kind but

I'm not ready to put him at a level he's not at yet " ...What does that

mean???

Needless to say, I spend the first five minutes while I was online

downloading and printing the CCC files (yes again) and I'll get my

husband to drop them off tomorrow morning.

I've come down with bronchitis and/or a mild form of pneumonia. I

went to a clinic today and was put on some really strong anti-biotics

but I'm going to stay away from my dad until this calms down. I've

been wearing a mask and gloves and the other appropriate SARS gear

just to keep my dad and the other patients safe but I'm now going to

wait until my feveer subsides as the doctor instructed. Hopefully my

sister won't do too much damage by then.

I've missed and needed you all so much yet I couldn't get to you.

Sorry if you thought something really horrible (or, even more

horrible) happened. I didn't want to worry you but with both my

computers off sick, I was in a bind.

Haven't checked the messages but I probably won't be able to answer

the messages for a while since I'm so behind but I will read them. I

need to.

Thanks for your prayers. Keep them coming for my dad and for my

sister.

Have a good night. My husband will be on the computer soon - he's

got some bills to pay (even that had to be put off without our

computer...)

I've stopped proofreading my posts long ago so forgive me if this

quick post has tonnes of typos and errors. My mind is going a mile a

minute now that I'm back here among friends.

Abby

Welcome to LBDcaregivers.

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