Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 I hope you find positive results with Namenda, which might well include an improvement in your sister's behavior because she might become more aware and feel a little more in control and less paranoid or frightened about what she doesn't perceive accurately in her surroundings. My mother has been on it for 8 months and I found this to be true. You don't need to feel guilty about how you feel, though. I interpret it to mean that you'd like to have a little more control over your situation, so, hopefully, your sister's Namenda might have a good effect on both of you! Take Care - Deb > Just wanted to update everyone on the trip to the Mayo Clinic in Jax, Fl this > past Monday. > Went down Sun after lunch, 4 hour drive. Stopped by to see daughter #2 and on > down to the beaches, where the clinic is located. > Got to bed early for me and thought " yea I can get up at 5am and be to the > clinic at 6:45!! > I didn't take into consideration I was sharing a room with my sister. She > blows, coughs, turns, twists and moans until about 12:30. She had the sheets, > pillows, bed spread all tangled and half on the floor. I finally ask if she was > hurting. Yes she had a headache. Got out of bed, straightened the covers, gave > tylenol and told her to be still and go to sleep. She did. > Anyway to cut thur all the happenings of the day. > The neurologist thinks she may have lbd and alz. Will be going back in April > for more testing. She made the trip really good. Didn't have to use a wheel > chair all day, she walked!!! Which she doesn't usually do when we are out. > Now for the good --- bad. She got a prescription for the new medicine, > Namenda. Doctor seems to think she would benefit from it. > Guess what????? I hate to even put this in words, I feel soooo guilty. > I just don't know if I want her memory to get better. How sad for me. > I just know if the memory gets better it will be a big big problem when she > realizes she is paying someone to stay with her at times when I have to be gone > for any length of time. > She gives me a bad time about bathing, and if she gets better, I may have to > get me something for depression or either stay out side. > She just has such a strong will, and we butt heads a lot now and I just > wonder what it will be like if her memory improves. > Please forgive me for my feelings, I can't imagine anyone not wanting their > lo to get better. > Pray for me, I ask your forgiveness. > > Jayn > in S G > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Hi You know what? Sometimes you have have to tell little white lies. Tell her that your medical pays for a caretaker when you are not there. Or that it is free that the government pays. I had to do that with my mother and she accepted it. I know how you feel.. been there felt that. Regards -Carol _________________________________________________________________ Free yourself from those irritating pop-up ads with MSn Premium. Get 2months FREE* http://join.msn.com/?pgmarket=en-ca & page=byoa/prem & xAPID=1994 & DI=1034 & SU=http://\ hotmail.com/enca & HL=Market_MSNIS_Taglines Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Jayn, Improving memory is not necessarily " better " . You are an incredible help to her...and this may be harder for both of you. Try it and see what happens. YOu can always stop the therapy. Dad's experience with Namenda was not necessarily good, although there were no negative side effects. I have posted about it before...so if you want further info, email me directly. Don't want to bore everyone with with the details again. DON'T FEEL GUILTY~!~ XXOO Lynn > Just wanted to update everyone on the trip to the Mayo Clinic in Jax, Fl this > past Monday. > Went down Sun after lunch, 4 hour drive. Stopped by to see daughter #2 and on > down to the beaches, where the clinic is located. > Got to bed early for me and thought " yea I can get up at 5am and be to the > clinic at 6:45!! > I didn't take into consideration I was sharing a room with my sister. She > blows, coughs, turns, twists and moans until about 12:30. She had the sheets, > pillows, bed spread all tangled and half on the floor. I finally ask if she was > hurting. Yes she had a headache. Got out of bed, straightened the covers, gave > tylenol and told her to be still and go to sleep. She did. > Anyway to cut thur all the happenings of the day. > The neurologist thinks she may have lbd and alz. Will be going back in April > for more testing. She made the trip really good. Didn't have to use a wheel > chair all day, she walked!!! Which she doesn't usually do when we are out. > Now for the good --- bad. She got a prescription for the new medicine, > Namenda. Doctor seems to think she would benefit from it. > Guess what????? I hate to even put this in words, I feel soooo guilty. > I just don't know if I want her memory to get better. How sad for me. > I just know if the memory gets better it will be a big big problem when she > realizes she is paying someone to stay with her at times when I have to be gone > for any length of time. > She gives me a bad time about bathing, and if she gets better, I may have to > get me something for depression or either stay out side. > She just has such a strong will, and we butt heads a lot now and I just > wonder what it will be like if her memory improves. > Please forgive me for my feelings, I can't imagine anyone not wanting their > lo to get better. > Pray for me, I ask your forgiveness. > > Jayn > in S G > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2004 Report Share Posted March 6, 2004 Jayn, So good to hear from you. Please, you do not need our forgiveness. You have spoken what many of us have only thought in our heads and hearts, afraid to speak the words, but feel them just the same. To deny the shadow of self only adds to more injury. To acknowledge all of self gives a base upon which to make choices about our thoughts and words before any action is taken. We feed the best of us, knowing full well that the shadow lingers in the background, waiting, hungry. You have such a beautiful soul, Jayn, remember that please. And you are not bad, bad, bad!!!! My heart says you are already in the grace of the Wise One. You have my prayers that, by that grace, your spirit be lifted and you see all the beauty within yourself. Much love to you, Betty Quote Link to comment Share on other sites More sharing options...
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