Guest guest Posted July 5, 2002 Report Share Posted July 5, 2002 New to group Hi, my name is Terry. I am 40 years old and new to this group. I have an autoimmune condition called Polyarteritis Nodosa which is inflammation of arteries causing decreased circulation to organs. in My case my liver and intestines are affected. I live with a lot of pain. I currently am on chemotherapy and steroid treatments whcih are helping but have to live with a lot of pain. I have had this for nearly 10 years. It took nearly 8 years and many docs to figure out owhat I have as it is quite rare. I currently take Methadone and Oxy IR for breakthrough pain as well as neurontin. The majority of pain is in my stomach, very bad. I also have terrible digestive troubles related to the disease. I have tried MS contin but it quit working after a while. I am becoming more and more tolerant of these drugs. It is not recommended I have a nerve block although an anesthesiologst would love to get their hands on me. I didn't know how to post as there was no option on the lefthand bar at this site so I don't know if I am doing this right. I hope to learn how others manage with severe pain day in and day out. It gets quite isolating. Thanks for allowing me to share. Terry- In chronic_pain@y..., " melifluousone " <melifluousone@y...> wrote: > trying to keep me as comfortable and stable as they can > and we await the next episode to see where it takes us > > Hey y > > Just a note, wanted to say I'm pulling for you. I hope they can > find out what is wrong and that when they do it is treatable and > maybe that will impact/reduce some of your other problems who knows. > > I have other health problems in addition to what's structurally wrong > with my back. Treating the pain actually sometimes aggravates the > other conditions, but if I am in untreated pain it's much worse. Hope > you can find that comfort that you seek. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2003 Report Share Posted November 29, 2003 I have visited BK's website,but, it was recently I found this loop and I am looking forward to participating. [FB] We are a loop. Is it true? Oh, yes. You're right. I can find it. ) I am just disappointed that the whole universe has not opened it's welcoming arms to me with warmth, friendliness, a perfect job, a perfect place to live and lots of people wanting to hang out with me. If anyone relates to what I am saying, I'd like to hear you take.... And if anyone can shed some light on letting go of habitual thoughts, please let me know the secret! [FB] Well, I notice that my habitual thoughts spring from my habitual beliefs. For instance, when I'm in the belief that I'm not good enough or welcome I have habitual thoughts that people are noticing that I'm not good enough and are wishing I would leave. The Work is wonderful for addressing these beliefs. Here's some beliefs you might want to inquire into. The world does not welcome me with open arms. The world is not friendly towards me. I don't have a perfect job. I am not living in the perfect place. There are not lots of people wanting to hang out with me. Interesting, I'm trying on: I am just disappointed with myself that I have not opened my welcoming arms to the whole universe with warmth and friendliness, noticing that it is doing a perfect job, that I am in the perfect place and recognizing that there are lots of people wanting to hang out with me. I can find that one too. Thanks for listening, [FB] You're welcome . Welcome to the loop, - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2003 Report Share Posted November 29, 2003 Hi , I really appreciate you taking time to write me back. I realize that my tone does not come across in my e-mail.... Basically, what I was talking about are my made up beliefs....I know that and I am just telling on myself. In many ways, I have been welcomed back to CA.....and some people do want to spend time with me and I have a great place to live while I look, if I decide not to stay here, and I have been back not even two weeks and haven't had time to look for the perfect job yet! I Know I am just where I need to be. It is just these habitual thoughts and beliefs that make me THINK something is or is not happening. What your e-mail brought home to me is the deep pain I feel by buying into these beliefs. And my fear of opening up my arms to the universe with a trusting heart. I have a choice in the matter. Thanks again, On Saturday, November 29, 2003, at 06:50 AM, Boyd wrote: > I have visited BK's website,but, it was recently I found this loop and > I am looking forward to participating. > > [FB] We are a loop. Is it true? Oh, yes. You're right. I can find it. > ) > > > I am just disappointed that the whole universe has not opened it's > welcoming arms to me with warmth, friendliness, a perfect job, a > perfect place to live and lots of people wanting to hang out with me. > > > > If anyone relates to what I am saying, I'd like to hear you take.... > And if anyone can shed some light on letting go of habitual thoughts, > please let me know the secret! > > [FB] Well, I notice that my habitual thoughts spring from my habitual > beliefs. For instance, when I'm in the belief that I'm not good enough > or > welcome I have habitual thoughts that people are noticing that I'm not > good > enough and are wishing I would leave. The Work is wonderful for > addressing > these beliefs. Here's some beliefs you might want to inquire into. > > The world does not welcome me with open arms. > > The world is not friendly towards me. > > I don't have a perfect job. > > I am not living in the perfect place. > > There are not lots of people wanting to hang out with me. > > > > Interesting, I'm trying on: I am just disappointed with myself that I > have > not opened my welcoming arms to the whole universe with warmth and > friendliness, noticing that it is doing a perfect job, that I am in the > perfect place and recognizing that there are lots of people wanting to > hang > out with me. I can find that one too. > > Thanks for listening, > > > [FB] You're welcome . Welcome to the loop, - > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2007 Report Share Posted May 21, 2007 Welcome! It does get scary sometimes if you're alone with it. The group can bring a ton of info and support into your life. It has mine! Good Luck figuring things out. Aylwin _____ From: CFAlliance [mailto:CFAlliance ] On Behalf Of mynylaina Sent: Monday, May 21, 2007 4:17 PM To: CFAlliance Subject: New to group Hi gang, I was diagnosed with FM with myofacial tendencies about a year and a half ago. I have a list a mile long of all the symptoms and emotions which I'm sure most of you are familiar with. Lately I have been down right scared. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2007 Report Share Posted May 21, 2007 Welcome! It does get scary sometimes if you're alone with it. The group can bring a ton of info and support into your life. It has mine! Good Luck figuring things out. Aylwin _____ From: CFAlliance [mailto:CFAlliance ] On Behalf Of mynylaina Sent: Monday, May 21, 2007 4:17 PM To: CFAlliance Subject: New to group Hi gang, I was diagnosed with FM with myofacial tendencies about a year and a half ago. I have a list a mile long of all the symptoms and emotions which I'm sure most of you are familiar with. Lately I have been down right scared. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2007 Report Share Posted May 22, 2007 Hi Mynylaina, Welcome to our group. I know you will find support and acceptance here. I look forward to hearing more from you. Take care, English Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2007 Report Share Posted May 23, 2007 Hi Jane! Miss talkin to you girl!!! You bring up a very good point and I'd like to add to it just a tad. I have started training my shitizu as an assist dog. He is all of 16 lbs but I have to tell you what happend. I was attempting to kill two birds with one stone one day (was having a good day) so I decided to skip the coffee and take him outside while at the same time, walk to the end of my street to the postal office. (no mailmans here..just boxes at office) We got to the street which was rather busy with lunch crowds breaking from major factory. I stood there and processing when was it safe to cross...and my little Gizmo gave me a tug and pulled me accross after looking both ways that is When training an assist dog it's good to take him quite literally everywhere with you. Since my illness, my dog does not leave my side. An assist dog can pick up things for you, be personal support should you fall or etc. He can hold your emergency info and med list as there are pockets in his vest. It's a huge gratification when you teach your dog...one more new thing. I am looking to get a larger dog though to train also as it could be very helpful when I need help say ..getting up and standing. You need a larger animal to help there...at least I do LMAO! It used to be labs used almost exclusively as assist but there has been a growing trend to have peekaneeze (butchered that one!) as assists. I found my vest on the internet with patches. No body questions your assist dog in public places because the laws are so strict and the group is huge that nobody wants to tangle with those with disabilities. You can have your dog certified as assist but you don't have to. Every assist dog is different and trained by you..just for you. Let me know if anyone follows up with this as I have, I would be very interested in discussion on how it helps you! God Bless! *the one with the shitizu and parrot named sweetpea!* I took that from JANE..the one with hounds!! )) > Hi all, and welcome to you!! > I know a little bit about myofacial and I know it is so terribly > painful; I'm so sorry you have that and fibro as well. One thing here > is this. There is hope. I did go through some very bad years; there > were the years before I was properly diagnosed and sought diagnosis but > no one knew what all the symptoms were. And I felt pain, my legs, > especially my knees becoming weaker, hurting... Then the emotional, > however as I already HAD some emotional problems (in therapy and seeing > a psychiatrist for PTSD, major depression and anxiety). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2007 Report Share Posted May 23, 2007 Hi Jane and , well I got my lil dog Seven to train this way, they use this breed (Papillion) as disability aides a lot, though @ 7 lbs no heavy labour! But he is very smart and alert, I'd like some resources as to how to train him appropriately and what kind of things you can train them to do. Aylwin xo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2007 Report Share Posted May 24, 2007 Hi all, and especially YOU Dutchie/ of Parrot and pup, SO glad to hear from you, and that you are working in this way with your dog! Here we have a myriad of problems due to laws about where dogs are/ are not allowed. Dogs for the blind, ofcourse, can go anywhere but notso with others unless they are being trained. If they are being trained (and only by someone with special certification here) they must wear a tag. The laws vary, but one good thing is this; if laws and your situation is such, you CAN get stipends to help with costs for your pet -oops!- I mean Assist Dog. Mine is really more of a scare-off-the-bad-guys dog. An absolute best friend, completely non judgemental, and incredibly devoted. Also, nobody's fool (That is the black mouth cur dog part!). It varies as to breed, I think. With law enforcement a guy once told me they have golden retreivers sometimes,and there are goldens who are sweethearts,but complete airheads when it comes towhat that job needs. They also have some which are super sharp. I think that you can even, in some cases, just get a young (hopefully) shelter dog,or perhaps a shelter dog who was a pet but had to be given up for some viable reason (i.e. the dog is housebroken; judged by the shelter not to have bad habits). Here at our ASPCA they do evaluations of all their dogs before putting them up for adoption; the older dogs are less likely to be a surprise than the mix breed pups. Then again, you might just want to go to a breeder. I am just a sucker for shelter dogs and push that when I can; those dogs KNOW you saved their life, and they are grateful! Online you can find out most anything on asssistance dog by state, town, and even get help with training! Thanks!! Love from Jane, one with the hound and love from the hound as well!! > > Hi Jane! Miss talkin to you girl!!! > You bring up a very good point and I'd like to add to it just a tad. > I have started training my shitizu as an assist dog. He is all of >16> lbs but I have to tell you what happend. I was attempting to >kill> two birds with one stone one day (was having a good day) so I >decided> to skip the coffee and take him outside while at the same >time, walk> to the end of my street to the postal office. (no >mailmans here..just> boxes at office) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 I would like to check this out too. On training a dog. Roxanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 I have found that being scared comes and goes. When I hurt realy bad I just stay in bad and try to sleep it off cause that is my way of dealing with the pain. It gets me throw it. But if it is so bad that I can't sleep I try to get into some thing funny. Roxanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 I have found that being scared comes and goes. When I hurt realy bad I just stay in bad and try to sleep it off cause that is my way of dealing with the pain. It gets me throw it. But if it is so bad that I can't sleep I try to get into some thing funny. Roxanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 Hi Roxanne, yes I find any kind of comedy (as long as it's actually funny & makes me laugh!) is about the best mood-breaker there is. One can only be miserable so much. Aylwin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2007 Report Share Posted May 26, 2007 Hi sorry I haven't been posting lately. Just very down. Still waiting for my marriage certificate to see if I can apply on my ex husbands Social security since we co owned a biz together but he wouldn't pay me a salary. Whenever I tried he would say how much money we already made and it would increase our taxes. Well dummy me . He was verbally and emotionally abusive ( I already had Fibro and CFS before he started this behavior ) So someone found a loophole since he is over 62 and he also lied and committed fraud for not divulging another business that he owned at the time of my last alimony order. So my daughter returned back to Fl. after being married for seven months. Her soon to be ex who is deaf and doesn't even read lips tells her one day that he wants a divorce. So now I am in debt for paying for her move. She was about to start a new job here in South Florida it is hard to find anything right now. Sorry I am venting but very anxious , in a flare and well you get the idea. Welcome to the group. I have Fibro, CFS, Spinal Stenosis and arthritis of the spine. Diagnosed in my mid 30's now 52. Divorced etc. I won't even try to date for my self esteem is so low. We are also having a problem for i don't think my landlord is going to renew my lease and my alimony also ends in December. Oh well. Have a great Weekend. Hugs to all. Blair Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2007 Report Share Posted May 26, 2007 Hi sorry I haven't been posting lately. Just very down. Still waiting for my marriage certificate to see if I can apply on my ex husbands Social security since we co owned a biz together but he wouldn't pay me a salary. Whenever I tried he would say how much money we already made and it would increase our taxes. Well dummy me . He was verbally and emotionally abusive ( I already had Fibro and CFS before he started this behavior ) So someone found a loophole since he is over 62 and he also lied and committed fraud for not divulging another business that he owned at the time of my last alimony order. So my daughter returned back to Fl. after being married for seven months. Her soon to be ex who is deaf and doesn't even read lips tells her one day that he wants a divorce. So now I am in debt for paying for her move. She was about to start a new job here in South Florida it is hard to find anything right now. Sorry I am venting but very anxious , in a flare and well you get the idea. Welcome to the group. I have Fibro, CFS, Spinal Stenosis and arthritis of the spine. Diagnosed in my mid 30's now 52. Divorced etc. I won't even try to date for my self esteem is so low. We are also having a problem for i don't think my landlord is going to renew my lease and my alimony also ends in December. Oh well. Have a great Weekend. Hugs to all. Blair Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2007 Report Share Posted June 27, 2007 Welcome Darlena! I'm sorry for your troubles and the family stress too. All too common, sadly. Great that you found love though! Sounds like a hard time for you healthwise. I hope you get some help & resolution with things soon. This is a great sharing and venting place, so feel free! Aylwin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2007 Report Share Posted June 27, 2007 Welcome Darlena! I'm sorry for your troubles and the family stress too. All too common, sadly. Great that you found love though! Sounds like a hard time for you healthwise. I hope you get some help & resolution with things soon. This is a great sharing and venting place, so feel free! Aylwin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2007 Report Share Posted June 27, 2007 Welcome Darlena, I am so glad that you are here. I think you will find many understanding and caring people here. It sounds like you have really been through the ringer lately. I hope you will find some comfort here. I live in Atlanta and hate to hear that your time here was so terrible. Losing your mom is terrible enough without all of the extra drama from your brother and SIL. That kind of stress reeks havoc with us. My deepest sympathies for your loss and I hope that you will be feeling better soon. Take care, English Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2007 Report Share Posted June 27, 2007 Welcome Darlena, I am so glad that you are here. I think you will find many understanding and caring people here. It sounds like you have really been through the ringer lately. I hope you will find some comfort here. I live in Atlanta and hate to hear that your time here was so terrible. Losing your mom is terrible enough without all of the extra drama from your brother and SIL. That kind of stress reeks havoc with us. My deepest sympathies for your loss and I hope that you will be feeling better soon. Take care, English Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 Welcome to the group Darlena I'm so sorry to hear of all your dealing with and will keep you in my prayers. One thing ocurred to me though about your " staying home " . You really need to decide that yourself, yes discussing with dh is a good thing but ultimately it is your decision. Make sure when your sharing this with him that he knows it is your decision. If and when you do decide you cannot work with any regularity, make sure you apply right away for disability. Unlike myself, I did not know by denying my disability while I tried and tried to work that 5 yrs had passed and by the time I applied, I got bottom amount for disability through the state. They basically use a point system in which they grade the jobs you have worked and for how long to determine your amount you get monthly and it goes up from there. I am so sorry for your loss, my brother died the very same way, rare stomach cancer before he was 42 and died 2 weeks from diagnosis. You have been stressed to the max and that plays alot into how you will feel in the future. I find stress makes my illnesses worse after the adrinalin or whatever carried me through it dies down. So you dont feel alone here, I have ME/Fibro, degenerative bone disease since late 20's, sleep apnea and narcolepsy. I cannot imagine you going on without meds and living with what you are physically. I do know most recently, it is possible to get Disibility through Social Security after first letter of denial if you get a Attorney to take from then on. My friend who sufferes with many things as I do had a judge decide it for her and her attorney just called after the first denial letter and told her it went through! That is amazing as it has taken most of us at least 2yrs to get anything. Perhaps Social Security are seeing more of us now and don't make you wait so long. Seems I've rambled on now! Just know your in the right place and we do bounce issues off each other for answers or just justification of how we feel about things. There is a stream of information and links added by the Alliance that keeps us up to date on the most important things going on things that effects us most. God Bless and get some REST! I am curious when you were diagnosed and is there a chance of your being able to reverse your CFS (much I have read indicates you can have full reversal if you are DX early enough) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 -OMG, to think I almost missed this thread because my email sends me what they feel are the " important " ones. lmao!! No offence Alliance but you got this one wrong lol Well yah see, dis is how I did it. I got the vest for my small furby with the patches you sew on that say " I " m working, don't play with me " and let me tell yah..........I TAKE THE BLOODY PUP EVERYWHERE WITH ME! If anyone questions it, all you have to do is tell them to call ADA or American Disibilities Association or summit like dat and Poof! Yer in like flynn! To be honest though, he has two lil pockets on his vest, one to hold my cigs and the other for a lighter, now if I fall say.....I'm down at his level and can just..lite up! ROFL! Being an equal opportunity kinda gal, where do I find small suites for my parrot? *scratchin head, thinking what I can put in those pockets!* Oh do tell me more on that-- stipends. I haven't the foggiest idea what that is. Not long ago (before this DD) I bread Labrador Retrievers, Blacks and yellows mainly with chocs once in a while. I donated one of the litter to local police department on list and two to the seeing eye foundation. Now, I need help and can't find a full bread poodle to train! Even in shelters, they want minimal fee of 400.00 to start! I say poodle because my friend that also has ME/Fibro has recently gotten " johnathan " she got him trained so quickly and goes everywhere she does. He's all work though and loves it! She told me if I was open to the idea of bigger dog for assist (I could crush my furbaby with one fall) that a standard poodle is what I want to find. Really good hearing from you! I miss your helarious posts! I got my laugh for the day...ty! Huggz, In CFAlliance , " ferynnghee " wrote: > > Hi all, and especially YOU Dutchie/ of Parrot and pup, > SO glad to hear from you, and that you are working in this way with > your dog! Here we have a myriad of problems due to laws about where > dogs are/ are not allowed. Dogs for the blind, ofcourse, can go > anywhere but notso with others unless they are being trained. If they > are being trained (and only by someone with special certification > here) they must wear a tag. The laws vary, but one good thing is > this; if laws and your situation is such, you CAN get stipends to > help with costs for your pet -oops!- I mean Assist Dog. > Mine is really more of a scare-off-the-bad-guys dog. An absolute best > friend, completely non judgemental, and incredibly devoted. Also, > nobody's fool (That is the black mouth cur dog part!). It varies as > to breed, I think. With law enforcement a guy once told me they have > golden retreivers sometimes,and there are goldens who are > sweethearts,but complete airheads when it comes towhat that job needs. > They also have some which are super sharp. I think that you can even, > in some cases, just get a young (hopefully) shelter dog,or perhaps a > shelter dog who was a pet but had to be given up for some viable > reason (i.e. the dog is housebroken; judged by the shelter not to > have bad habits). Here at our ASPCA they do evaluations of all their > dogs before putting them up for adoption; the older dogs are less > likely to be a surprise than the mix breed pups. Then again, you > might just want to go to a breeder. I am just a sucker for shelter > dogs and push that when I can; those dogs KNOW you saved their life, > and they are grateful! > Online you can find out most anything on asssistance dog by state, > town, and even get help with training! Thanks!! Love from Jane, one > with the hound and love from the hound as well!! > > > > Hi Jane! Miss talkin to you girl!!! > > You bring up a very good point and I'd like to add to it just a tad. > > I have started training my shitizu as an assist dog. He is all of > >16> lbs but I have to tell you what happend. I was attempting to > >kill> two birds with one stone one day (was having a good day) so I > >decided> to skip the coffee and take him outside while at the same > >time, walk> to the end of my street to the postal office. (no > >mailmans here..just> boxes at office) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2007 Report Share Posted June 29, 2007 Welcome to the group Darlena. I am so sorry you are having to deal with so much. I am pretty run down right now and have visitors staying with me till next Thursday, so will write more once I feel a bit better. Sandrea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2007 Report Share Posted June 30, 2007 Thank you ! Having visitors for that long is big challenge for us. I hope you have a lot of fun and can enjoy them. Hope you feel better, too. Darlena Re: New to group Welcome to the group Darlena. I am so sorry you are having to deal with so much. I am pretty run down right now and have visitors staying with me till next Thursday, so will write more once I feel a bit better. Sandrea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2007 Report Share Posted June 30, 2007 , Thanks for the welcome. This last week has been a real bear with body aches and migraines. I had a job interview Monday, drug test Tues, along with TB test. I wondered if what they injected caused some of my flare up symptoms. Just a thought. Anyway, I finally found out late yesterday I DID get the job! YEAH! I will be working at Mayo Clinic here in ville, FL; more money than at my last job that I was kind of forced to quit. I was diagnosed with FMS about 5 yrs ago, CFS within the last yr. But the 2 are so similar my doctors believe I've had since my 20's along with the Fibro. I also have Hypothyroidism and they can't get my levels straightened out. My dtr works for a SSDI atty and they have told I would be eligible if I was not actively seeking work or working. My hsb wants me to apply, but keeps forgetting I may not get approved for a yr and cannot work, therefore would have no income. It would all fall on him. I hate to put that burden on him. I have always worked and relied on no one. I raised my dtr by myself and am very independent, to the point of being stubborn. Now I can hardly do anything for myself or others. This has been very humbling for me. I don't believe God caused all of this, but will use it to make me stronger and reliant on HIM. Thankfully this job is somewhat sedentary. They also have a beautiful campus for the patients and I intend on trying to start walking as much as possible now that my foot is better. It's a long drive from where we live now, so we are looking to relocate to that side of town. We were waiting till I found a job to know where to look. I feel this is my last chance for a real job. No matter how hard I try, my concentration and memory fail me, whether from meds or pain, it slows me me down. I pray this is a fresh start. It's a slower paced job. I'll be working 7-3:30 so I won't hit so much traffic. I've rambled on enough here. Got to go and list some stuff in our Ebay store. Darlena Jax, FL Re: New to group Welcome to the group Darlena I'm so sorry to hear of all your dealing with and will keep you in my prayers. One thing ocurred to me though about your " staying home " . You really need to decide that yourself, yes discussing with dh is a good thing but ultimately it is your decision. Make sure when your sharing this with him that he knows it is your decision. If and when you do decide you cannot work with any regularity, make sure you apply right away for disability. Unlike myself, I did not know by denying my disability while I tried and tried to work that 5 yrs had passed and by the time I applied, I got bottom amount for disability through the state. They basically use a point system in which they grade the jobs you have worked and for how long to determine your amount you get monthly and it goes up from there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2007 Report Share Posted June 30, 2007 , Thanks for the welcome. This last week has been a real bear with body aches and migraines. I had a job interview Monday, drug test Tues, along with TB test. I wondered if what they injected caused some of my flare up symptoms. Just a thought. Anyway, I finally found out late yesterday I DID get the job! YEAH! I will be working at Mayo Clinic here in ville, FL; more money than at my last job that I was kind of forced to quit. I was diagnosed with FMS about 5 yrs ago, CFS within the last yr. But the 2 are so similar my doctors believe I've had since my 20's along with the Fibro. I also have Hypothyroidism and they can't get my levels straightened out. My dtr works for a SSDI atty and they have told I would be eligible if I was not actively seeking work or working. My hsb wants me to apply, but keeps forgetting I may not get approved for a yr and cannot work, therefore would have no income. It would all fall on him. I hate to put that burden on him. I have always worked and relied on no one. I raised my dtr by myself and am very independent, to the point of being stubborn. Now I can hardly do anything for myself or others. This has been very humbling for me. I don't believe God caused all of this, but will use it to make me stronger and reliant on HIM. Thankfully this job is somewhat sedentary. They also have a beautiful campus for the patients and I intend on trying to start walking as much as possible now that my foot is better. It's a long drive from where we live now, so we are looking to relocate to that side of town. We were waiting till I found a job to know where to look. I feel this is my last chance for a real job. No matter how hard I try, my concentration and memory fail me, whether from meds or pain, it slows me me down. I pray this is a fresh start. It's a slower paced job. I'll be working 7-3:30 so I won't hit so much traffic. I've rambled on enough here. Got to go and list some stuff in our Ebay store. Darlena Jax, FL Re: New to group Welcome to the group Darlena I'm so sorry to hear of all your dealing with and will keep you in my prayers. One thing ocurred to me though about your " staying home " . You really need to decide that yourself, yes discussing with dh is a good thing but ultimately it is your decision. Make sure when your sharing this with him that he knows it is your decision. If and when you do decide you cannot work with any regularity, make sure you apply right away for disability. Unlike myself, I did not know by denying my disability while I tried and tried to work that 5 yrs had passed and by the time I applied, I got bottom amount for disability through the state. They basically use a point system in which they grade the jobs you have worked and for how long to determine your amount you get monthly and it goes up from there. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.