Guest guest Posted July 11, 2003 Report Share Posted July 11, 2003 In a message dated 7/10/03 10:38:43 PM Pacific Daylight Time, floey4@... writes: Hey Floey, Welcome to the list, its nice to see you here ). This is a good place to hang out so I am sure you will enjoy it as well. Edith, our list moderator, posts a list of abbreviations once a month I believe. Let me help you with the most used ones though. KO = adult child of a borderline Nada = Borderline Mother Fada = Borderline Father UBM = Understanding the Borderline Mother By Dr. Ann Lawson SWOE = Stop Walking on Eggshells. Uhhm, I think those are the most used ones. Again, welcome to the list i look forward to corresponding more. Warm regards Malene > > I joined this site tonight and read all the entries for today (now, > technically yesterday). I feel excited at having found you all; I > could laugh and cry right now. Fortunately and unfortunately, I > deeply relate to what I have read. > > Please allow me to introduce myself. I am in my early 40's, married > and have two young children. I have been treated for depression for > 2 1/2 years but probably have been depressed for 20 ys. I have one > sister with whom I am close but who lives on the opposite coast. My > parents and in-laws live within one hour of my home. I learned only > in the last 7 months that I may have a BP mother. > > Since CHristmas 2002,I have taken stock of a lifetime of inexplicable > and untimely rageful behavior on my mother's part and silence on my > father's. In the last 6 months, I have read some about > codependency, started reading " Walking on Eggshells, " have done some > hard work in therapy and have attended a codependency recovery > program at the Caron Foundation. I am facing unpleasant realities > that I prefer to ignore but as a result, am making changes in my > inner life that are benefiting me, my marriage and my children. > > However, I am in a persistant state of unsettled and conflicted > emotions. My changed behavior toward my parents (to protect my newly > understood boundaries) has led to a semi-estranged, cool to cold, > relationship with them. I hope this will warm up sooner than later > but in any event, I am convinced that my path of change is the best > one for my future mental, emotional,spiritual and physical health. > > I look forward to sharing my experiences and learning from those of > you who share yours. I am particularly interested in hearing about > the process of change and its effect on the relationship with one's > parents. By the way, where on this site can I learn what the > abrieviations mean i.e., KO, nada ( I figure that means BP mother but > why use that term?)I thank you in advance. > Floey4 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 Randy Beth, For years I made the weekly phone call to N. just " to get it over with " . Some days she would be just fine but most of the time any little conversation would set her off. I used to make a list of things to talk about so I would not venture into dangerous ground. It was all so " fake & phony " on my part. how's the weather in Virginia vs. Florida (where I live)....dumb stuff like that.......couldn't discuss any family ---that would get her into a rage....also, I would always call her at her office----never, never at home! You would think she would figure it out.............. She stopped talking to me ast December & my life is so peaceful. Even visited family in her area but didn't bother seeing her. I don't know if we will mend our relationship or not, I just don't want to think about it. I, too was raised with those 10 commandments ---they should be amended to reflect abusive parents!!! LOL Debbie In a message dated 7/23/2003 9:27:16 PM Eastern Daylight Time, raskel@... writes: > Question: > How do you live in daily contact with nada if she refuses to see that she is > such an idiot!?? Refuses to see that everything she does and says to you is > damaging? > I have not posted much because I don't want to " never " talk to my nada again > Something to do with the 10 Commandments and honoring thy parents..but how > do you survive when it is impossible to divide? > Any takers? > Randy Beth > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 Question: How do you live in daily contact with nada if she refuses to see that she is such an idiot!?? Refuses to see that everything she does and says to you is damaging? I have not posted much because I don't want to " never " talk to my nada again Something to do with the 10 Commandments and honoring thy parents..but how do you survive when it is impossible to divide? Any takers? Randy Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 Hi. Well, I went to a therapist for the first time in my life because dealing with my mother became so stressful. I felt it was my duty also. I told the therapist that I wanted to learn how to be around my mother and not feel like choking her (okay those weren't my exact words, but close)I wanted to learn to not be affected by abusive behavior. Gee, you would have thought I'da learned that in childhood. Had enough practice. But no, I think I will always be affected by it and I am damn glad I am. Because when we stop being affected, we are dead. I tried meditation and all kinds of things before a visit, but I got triggered every time. I think what I was asking was impossible for me. So, I began therapy to learn to accomodate my mother and ended up learning how to take care of myself. And yes, that meant walking away. I know this isn't what you wanted to hear, but..I don't know how to not be affected by abuse. Hang in there -. > Question: > How do you live in daily contact with nada if she refuses to see that she is > such an idiot!?? Refuses to see that everything she does and says to you is > damaging? > I have not posted much because I don't want to " never " talk to my nada again > Something to do with the 10 Commandments and honoring thy parents..but how > do you survive when it is impossible to divide? > Any takers? > Randy Beth > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2003 Report Share Posted July 24, 2003 Hi Rabdy- Well, even though I said I would " never " talk to nada again, we are speaking. For me, it was all about taking care of myself and setting boundaries that keep me safe from her. This way, she can act the way that she likes and I am not along for the ride so to speak. My life with her is not perfect, and there are still situations that I am fearful to put myself in with her, but I just take that as my internal alarm saying tht I am not ready yet. Trish > Question: > How do you live in daily contact with nada if she refuses to see that she is > such an idiot!?? Refuses to see that everything she does and says to you is > damaging? > I have not posted much because I don't want to " never " talk to my nada again > Something to do with the 10 Commandments and honoring thy parents..but how > do you survive when it is impossible to divide? > Any takers? > Randy Beth > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2003 Report Share Posted July 29, 2003 Randy Beth, Regarding the 10 commandments and honor thy father and mother. Our Rabbi said that the only thing neccessary in my circomstance is to make sure nada is not living in abject poverty. Then the rest is to take care of your own children to show honor to your parents. Think about it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2003 Report Share Posted July 29, 2003 , In overty she'll never be. Thanks for the words from the Rabbi. It has been a while since I have spoken to one. Randy Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2004 Report Share Posted March 4, 2004 Hi Gail: Thanks for letting me know. How is it going for him there? It is about one hour from my house in Miami. Let me know if you need anythig that I can help. I would like to meet with you if you have time and plans to visit your dad. Josie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 Lasandra, I am so sorry to hear of all of your difficulties...especially not having any thyroid replacement since October. You state that you have labs on the 12th, so when do you have an actual appointment so you can get a prescription? I am just plain hypothyroid. Both of my daughters age 14 and 17 have also been recently diagnosed hypothyroid. Hang in there! I'm praying for you. Kim in Aubrey From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of lasandra taylorSent: Tuesday, January 09, 2007 6:06 PMTo: texas_thyroid_groups Subject: (unknown) lasandra taylor wrote: Hi Group Members!! Thank you for allowing me to join your group. This is new to me. I found out last year that I had a hyper thyroid disease. I was having this problem of being tired all the time but did not know that my body was going to shout down on me. I work at a hospital and people thought that I might had the flu because my body was hurting and I had the shakes like I was cold. I went to the ER on a Friday the doctor sent me home with a heart monitor because my heart rate was up. Went back on Monday a NP but me in the hospital and told me it was my thyroid because he can tell that my neck was swollen. I spent a week in the hospital in January and another week in February. I live in Texarkana,Tx and we don't have a Diagnostic Clinic or docs that specialize with thyroid disease. We mostly see Internal Medicine docs for this problem. To make the story short, I ended up going to Lt. Rock. I had two treatment of that radiation pill. One in March, it did not work, and one in October, it worked, now am Hypo. Am at rock bottom. I found this out when I was seeing a doctor about my eyes for Graves Disease. I went to an IM doc he put me on Levothyroxin. I started having a bad reaction to it. My tongue and throat was feeling swollen when I wake up in the morning. So I called Lt. Rock and they changed it to Synthroid and the same thing started happening again. Now I have to go to Lt. Rock on the 12th for some lab work. I have been with out medication since Oct. of last year. Am a 33 year old single mom and I attend to Texarkana College. I don't have any close family here. My mom lives about an hr. away. This has been a lot on my plate for me to take. But am taking it day by day and I have the lord on my side. I know this is a lot to read but I did try to make it short. If any one else have any comments please email me and I would like to thank Jan for her helpful informantion. Thank you, La __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 It takes from a few days to over a week to get the lab results back. There is no way you can see the doc and get your results the same day or even the next day. Those of us who see an out of town doc get our blood drawn at a local lab two weeks or so before our appointment with the doc. Thyroid 101: Always ask for a hard copies of all lab reports, not just the doc's card saying "normal." Besides Free T3, Free T4 and TSH, I would also ask for an 8 am cortisol, anti-thyroid peroxidase antibodies, thyroglobulin antibodies, serum ferritin. Allergies, sensitivities and intolerance issues would suggest that you may have low cortisol and/or antibodies "out the wazoo. . . . . ." If you cannot tolerate synthetic T4, then I would ask for Armour or Nature-throid. If you are allergic to the fillers, then ask your doc to order a compounded thyroid made with a filler you can tolerate from a compounding pharmacy. lasandra taylor wrote: Hi everyone!!! This is La from Texarkana,TX. I went to see Dr.Boehm in Lt. Rock at the diagnostic clinic. It did not go to good. I'm going to have to fine a doctor that will talk to me and explain to me about my thyroid disease. This is new to me and I need to Know from the beginning to the end about my problem. My mom and I went there early like his nurse said so that I can have my lab done first so he can explain to me about my problem. From being in this group with y'all I had a lot of questions to ask him. They wanted to see me, draw blood and send me home. Then later in a couple of day will send me a letter in the mail and tell me about my problem. I told her, she told me to come in early to have my lab done and he was going to have it read and talk to me about it. She said know he will send me a letter in the mail about my lab a tell me to come in for my next appointment. So I ask can he see me, draw my blood, then see me again before I drive back and talk to me about my lab. She said know he will send me a letter in the mail. So I went a head a seen him because I needed to be on something from being hyper to now hypo from the radioactive iodine pill treatments since Oct. I showed him the lab from Dr. how was starting to treat me for my Graves disease. I had told him that I had seen an Internal medicine doctor, Dr. Overlock, for some lab work because I really need to see Dr. , now and I had to wait a while to see him. Overlock put me on Levothyroxin. It made my tongue,neck and throat swell up in two days. So I stopped taking it and called him because Overlock go scared and told his nurse that I need to go back to him. Then you, Dr. Boehm, put me on Synthroid about 2 weeks later. The same thing happen. So I went in for lab work Fri. in Lt. Rock. In his office he was telling me and my mom that I need to take Synthroid the lab from showed me very, very, low. My mom said why do you want her to take something that is swelling her up. He told us that shouldn't be happening and he don't know why. I ask can you put me on another thyroid medication but he really wanted my to take Synthroid. So he put me on some samples first of Levoxyl. If that swells me up he gave me also some samples of Unithroid. Take one pill .5 twice a day. If any one have suggestions please email me back. La Need Mail bonding?Go to the Yahoo! Mail Q&A for great tips from Yahoo! Answers users. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 La, I think this isn't the doctor for you. You gotta have the thyroid hormone but you really need a doc who will help you find a form you can take without swelling. Terijo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2011 Report Share Posted June 2, 2011 Thank u dear, but may I know in which area does he have the PMG? Best Regards, Lina Kurdi > Lina, > Sorry it took a bit to get back to you. He is in a preschool program that is a combination class with children needing therapies and some not. He is doing well and very much enjoys going. He recieves PT, OT, speech/ language, vision and special education while he is there (we also go to private therapies outside of school). If you are asking how he does cognitively, it is a bit hard to fully explain. It is becoming apparent that he has some difficulties with learning. He is 4 and is unable to identify colors/ shapes, tell you how old he is and so on. When I say it is hard to explain, I mean that there are some things that I don't feel he is too far behind for his age, but is like a 2 year old in other areas. > > > > > > > > > Subject: (unknown) > > To: " polymicrogyria " <polymicrogyria > > > Date: Wednesday, June 1, 2011, 8:33 AM > > > > > > > > Hi, this is Lina. I have a 7 months old daughter who was diagnosed with PMG she was born with seizures disorder and taking medications to control it. Keppra and Tegritol, the seizures are partly controlled but still happening every once and a while I don't know why. Her development in normal to her age but I feel that she is not strong enough and she is not holding herself as most babies on her age. Could this be related to the medications or the PMG itself? > > > > Best Regards, > > Lina Kurdi > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2011 Report Share Posted June 2, 2011 Lina, It is located on his frontal, temporal and occipital lobes on both sides. His right side is more effected causing more weakness on his left side. Along with PMG he has multiple other brain abnormalities (as do many children with PMG do), one being Joubert's syndrome. > > > > > > Subject: (unknown) > > To: " polymicrogyria " <polymicrogyria > > > Date: Wednesday, June 1, 2011, 8:33 AM > > > > > > > > Hi, this is Lina. I have a 7 months old daughter who was diagnosed with PMG she was born with seizures disorder and taking medications to control it. Keppra and Tegritol, the seizures are partly controlled but still happening every once and a while I don't know why. Her development in normal to her age but I feel that she is not strong enough and she is not holding herself as most babies on her age. Could this be related to the medications or the PMG itself? > > > > Best Regards, > > Lina Kurdi > > > > Quote Link to comment Share on other sites More sharing options...
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